EUROPEAN CYSTIC FIBROSIS SOCIETY

49th EUROPEAN CYSTIC FIBROSIS CONFERENCE

 

3-6 June, 2026 Lisbon
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N. Poster
Poster title
Applicant name
Status
  16-P Adherence with baseline and follow-up screening for cataracts in patients on modulators containing ivacaftor. conor ring Received Received
  17-P Cystic fibrosis newborn screening pilot study in Estonia Elerin Albin Received Received
  20-P Critical assessment of newborn screening data in a low-income country: insights from a Brazilian reference center Juliana Horn Received Received
  23-P Genome sequencing for discovery of hard-to-detect CFTR gene mutations Jolt Roukema Received Received
  25-P Ethnic differences in the frequency of CFTR gene variants in the Russian Federation Nataliya Kashirskaya Received Received
  58-P Paired culture-based analysis reveals heterogeneous airway microbiota restructuring after elexacaftor/tezacaftor/ivacaftor (ETI) therapy in adult people with cystic fibrosis (pwCF) Kevin Deasy Received Received
  84-P Mycobacterium abscessus clearance post initiation of elexacaftor/tezacaftor/ivacaftor in patients with cystic fibrosis Hannah Withers Received Received
  110-P The link between pulmonary exacerbations and respiratory viruses in young children with cystic fibrosis. Kim Van Hoorenbeeck Received Received
  129-P Factors associated with response to CFTR modulator therapy in cystic fibrosis Paulina Famulska Received Received
  143-P Long-term safety and efficacy of vanzacaftor/tezacaftor/deutivacaftor in people with cystic fibrosis aged 12 years and older: 96-week interim analysis from an open-label extension study Dario Prais Received Received
  144-P Pregnancy and neonatal outcomes in women with cystic fibrosis receiving elexacaftor/tezacaftor/ivacaftor Nele-Kristin Vagt Received Received
  146-P Model-informed dose reduction of elexacaftor/tezacaftor/ivacaftor therapy in adult people with cystic fibrosis: a simulation study Syendon Baromeo Received Received
  157-P Exploring perspectives of patients receiving outpatient palliative care alongside usual CF treatment: A qualitative study within a Randomized Controlled Trial Dio Kavalieratos Received Received
  163-P Discontinuing therapy in children with Cystic Fibrosis on CFTR modulators Madalena Duarte Received Received
  175-P The "last families" in cystic fibrosis: equity, non-responders, and the translational imperative Christopher Landon Received Received
  185-P Phase 2 population pharmacokinetics (popPK) of verducatib (BI 1291583) in people with cystic fibrosis and non-cystic fibrosis bronchiectasis (CFBE and NCFBE) Keeley Sankey Received Received
  198-P Clinical utility of 129Xe ventilation Magnetic Resonance Imaging (MRI) in Paediatric Cystic Fibrosis (CF) patients Ina Aldag Received Received
  207-P Prevalence and Perceptions of E-Cigarette Use Among Children and Adolescents With Cystic Fibrosis in a Canadian Cystic Fibrosis Center. Candice Bjornson Received Received
  218-P Advancing Inclusive Enrollment: Insights from the LTx READY CF 2 Study Tijana Milinic Received Received
  231-P Early vascular dysfunction in adults with cystic fibrosis: a controlled observational study Bruno Porto Pessoa Received Received
  236-P The role of physical activity in bone health among people with cystic fibrosis: a scoping review Ziyad Alharbi Received Received
  239-P Cardiopulmonary exercise testing in three cystic fibrosis patients with at least one copy of the F508del CFTR mutation and normal distance on the six-minute walk test. Paulo Mendes Received Received
  249-P Comparing Airway Sampling Methods in Non-Expectorating Children with Cystic Fibrosis and Bronchiectasis Ayesha Delaney Received Received
  276-P Assessment of abdominal symptoms and intestinal inflammation in children and adolescents with cystic fibrosis before and after initiation of elexacaftor/tezacaftor/ivacaftor therapy Gabriel Cezar dos Santos Received Received
  293-P Patterns of referral, investigation, and diagnosis in a specialist adult cystic fibrosis gastroenterology service Penelope Ward-Hutchings Received Received
  298-P Intestinal inflammation in pediatric cystic fibrosis - Impact of elexacaftor/tezacaftor/ivacaftor therapy Camilla Sland Received Received
  300-P Traditional cardiometabolic risk factors trajectories before and after Elexacaftor/Tezacaftor/Ivacaftor initiation Heather Girouard Received Received
  302-P Trends in emergency department visits and hospitalizations for gastrointestinal complications in pediatric patients with cystic fibrosis pre and post modulator therapy: a multicenter analysis Christiana Ekezie Received Received
  325-P The Impact of Elexacaftor/Tezacaftor/Ivacaftor on Bone Mineral Density in Children and Adults with Cystic Fibrosis David OKeeffe Received Received
  330-P Reviewing the necessity for annual liver ultrasounds in children with cystic fibrosis - A comparison to the Cystic Fibrosis Standards of Care Jessamy Coulson Received Received
  331-P Comparison of carbohydrate metabolism in children with cystic fibrosis with and without variant-specific therapy Lyabina Nadezhda Received Received
  337-P Impact of Early Elexacaftor/Tezacaftor/Ivacaftor Treatment on Growth and Pancreatic Function in Children with Cystic Fibrosis Miriam Mala Received Received
  351-P Service evaluation of a virtual ´vitamin club´ for optimising fat-soluble vitamin management in children with cystic fibrosis Mary Healy Received Received
  372-P Medical traumatic stress in cystic fibrosis: National survey of provider knowledge, barriers and clinical practice Alexandra Quittner Received Received
  373-P Correlation of substance use among adolescent cystic fibrosis patients with mental health screenings using CRAFFT, PHQ-9, and GAD-7 screening tools. Sara Hill Received Received
  377-P Psychometric validation of the General Mental Health Screener and Modulator Side-Effects instruments: Novel research design Alexandra Quittner Received Received
  378-P ACT with CF Self-Help Toolkit: a Standalone Targeted Mental Health Intervention for Adults with Cystic Fibrosis Meredith Marden Received Received
  384-P Identifying Patient - Reported Care Needs in an Adult Cystic Fibrosis Service Ciara Quigney Received Received
  388-P Meeting the need when it matters most: Creating a unique, specialist out-of-hours cystic fibrosis (CF) multidisciplinary team (MDT) on-call service at the York Hull CF Centre. Kath France Received Received
  391-P Digital Transformation of paediatric cystic Fibrosis Care: A Cost-Benifit Evaluation Frida Lundqvist Received Received
  397-P ´Mum Culture´ in Hospital Care: An Interpretative Phenomenological Analysis of Identity, Scrutiny, and Coping Among Mothers of Children with Cystic Fibrosis. Ruth Day Received Received
  399-P Understanding the evolving needs of the cystic fibrosis (CF) community in Australia: challenges, priorities and opportunities Genevieve Handley Received Received
  406-P Patient-provider communication and shared decision-making in CF pain management Deborah Friedman Received Received
  432-P Demographic and clinical characteristics of children with CF aged 2-5 years initiating ELX/TEZ/IVA in LONGITUDE – a UK CF Registry observational study Lorilei Richardson Received Received
  446-P Uruguayan Experience with the Use of CFTR Modulators in the Pediatric Population Maria Catalina Pinchack Received Received
  458-P Pregnancy care and outcomes in patients with cystic fibrosis at a UK specialist centre Adelaide Yue Received Received
  467-P Positive airway pressure initiation is associated with improved lung function in persons with cystic fibrosis. Nicholas Vozoris Received Received
  472-P Audiological profiling in an era of CFTR modulation, including extended high frequency hearing assessment in a cohort of adult people with Cystic Fibrosis (pwCF). Preliminary results of 104 screened. Kevin Deasy Received Received
  474-P Newborn Screening and Early Outcomes in Cystic Fibrosis: ECFS Patient Registry Data Laura Kirwan Received Received
  478-P A Low-Cost, Standardized Cystic Fibrosis Registry Architecture for Low- and Middle-Income Countries: The International Cystic Fibrosis Training Network (ICFTN) Experience Cathy Mims Received Received
  479-P Evaluation of professional quality of life and prevalence of burnout: A national survey of healthcare providers on cystic fibrosis (CF) care teams Alexandra L. Quittner Received Received
  482-P A mixed-methods evaluation of the International Cystic Fibrosis Training Network program, a multidisciplinary training model to improve cystic fibrosis care in low- and middle-income countries Cathy Mims Received Received
  483-P Advancing cystic fibrosis care in Canada: developing a national quality improvement model Jana Kocourek Received Received
  484-P The role of the Paediatrician in managing patients with cystic fibrosis in the absence of specialised centers Lola Dzhumaeva Received Received
  485-P Building and implementing a data core team to support a cystic fibrosis learning network. Bethany Horton Received Received
  489-P Updating the Cystic Fibrosis Questionnaire-Revised (CFQ-R) in the era of highly effective modulators: A qualitative and crosswalk study to develop the CFQ-M Alexandra L. Quittner Received Received
  490-P Mapping current practice & preferences in the use of PROMs in the clinical setting in Ireland and an international review of the inclusion of PROMs in Cystic Fibrosis patient registries Laura Kirwan Received Received
  493-P How to deliver Digital Health Literacy Training to PwCF, Families, and Caregivers: results of an Irish Survey Tamara Vagg Received Received
  494-P Cloud-based remote care for cystic fibrosis: feasibility and patient outcomes Benedicte Akselsen Grĝterud Received Received
  495-P Mapping current practices of digital health in respiratory disease management: national survey Hibbah Alshuwaikhat Received Received
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49th EUROPEAN CYSTIC FIBROSIS CONFERENCE

 

3-6 June, 2026 Lisbon
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