EUROPEAN ASSOCIATION OF HAEMOPHILIA AND ALLIED D..

16th Annual Congress of EAHAD

 

7-10 February 2023 Manchester
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Poster title
Applicant name
Status
  PO-5 MUTATIONAL PROFILE OF SEVERE TUNISIAN PEOPLE WITH HEMOPHILIA A (PWH A) AND INHIBITORS. Hejer Elmahmoudi Received Received
  PO-8 ARE ONE STAGE AND CHROMOGENIC FVIII:C ASSAYS SUITABLE FOR MEASURING ADYNOVI IN SPIKED PLASMA? Susan Guy Received Received
  PO-14 EXPLORING RED BLOOD CELLS AS A NOVEL TOLEROGENIC APPROACH FOR FACTOR VIII INHIBITORS EMPLOYING IMMUNO-DOMINANT FVIII DERIVED PEPTIDES PRESENTED ON MHC CLASS II Mariarosaria Miranda Received Received
  PO-17 ASSESSMENT OF LIVER FUNCTION IN CROATIAN PATIENTS WITH HAEMOPHILIA B Josipa Pavic Received Received
  PO-18 EFANESOCTOCOG ALFA ACTIVITY ASSESSMENT WITH ONE-STAGE CLOTTING (OSA) AND CHROMOGENIC SUBSTRATE (CSA) FACTOR VIII ASSAYS Sarah Meadows Received Received
  PO-21 DESIGN OF SECOND- AND THIRD-GENERATION FVIII-SPECIFIC CARS DIFFERENTLY IMPACTS PHENOTYPE STABILITY AND RESPONSES TOWARDS FVIII OF TRANSDUCED TREGS Sarah Scatigna Received Received
  PO-63 RETROSPECTIVE STUDY OF THE EFFECTIVENESS AND SAFETY OF THE USE OF RIX-FP IN PATIENTS WITH HAEMOPHILIA B. EXPERIENCE OF FOUR CENTRES IN THE REGION OF CASTILLA Y LEÓN (C&L) Natalia Carpizo Received Received
  PO-77 TEST-RETEST RELIABILITY ANALYSIS OF THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY Elizabeth Clearfield Received Received
  PO-86 HRQOL IMPACT AFTER INTRODUCING EMICIZUMAB IN SUB-SAHARAN AFRICA IN THE WFH HUMANITARIAN AID PROGRAM Elizabeth Clearfield Received Received
  PO-98 AN OBSERVATIONAL STUDY TO EVALUATE THE IMPACT AND DISEASE BURDEN IN MODERATE AND SEVERE HEMOPHILIA FROM NURSING AND PATIENT PERSPECTIVE Itziar Guerra Received Received
  PO-99 CORRELATION BETWEEN HEMOPHILIA EARLY ARTHROPATHY DETECTION WITH ULTRASOUND (HEAD-US) SCOREAND HEMOPHILIA JOINT HEALTH SCORE (HJHS) IN PATIENTS WITH HEMOPHILIA Ons Ghali Received Received
  PO-106 EMICIZUMAB PROPHYLAXIS IN SEVERE HAEMOPHILIA A WITHOUT INHIBITORS: OUTCOME AND INDICATIONS. FROM THE UK HAEMOPHILIA CENTRE DOCTORS ORGANISATION Charles Hay Received Received
  PO-120 TAWAM HOSPITAL, AL AIN, UAE EXPERIENCE WITH SWITCHING FROM STANDARD HALF-LIFE RECOMBINANT COAGULATION FACTOR IX TO EXTEND HALF-LIFE RECOMBINANT COAGULATION FACTOR IX, FC FUSION PROTEIN IN PATIENTS WITH SEVERE HEMOPHILIA B Muhammad Faisal Khanani Received Received
  PO-122 PERIOPERATIVE MANAGEMENT WITH EFANESOCTOCOG ALFA IN PATIENTS WITH HEMOPHILIA A IN THE PHASE 3 XTEND-1 STUDY Lois Roberts-Grant Received Received
  PO-125 BARRIERS TO HAEMOPHILIA CARRIERS IDENTIFICATION, SCREENING AND COUNSELLING AN INTERIM ANALYSIS OF THE PROCARRIERS1 STUDY Evelien Krumb Received Received
  PO-167 THIRD INTERIM ANALYSIS OF THE PHASE IV HEM-POWR STUDY EVALUATING THE REAL-WORLD EFFECTIVENESS OF DAMOCTOCOG ALFA PEGOL IN PREVIOUSLY TREATED PATIENTS WITH HEMOPHILIA A Bethany Lund-Yates Received Received
  PO-170 INSIGHTS INTO THE SPANISH MILD AND MODERATE HAEMOPHILIA A COHORT: REAL-WORLD EVIDENCE FROM THE CHESS II STUDY Itziar Guerra Received Received
  PO-175 CLINICAL EXPERIENCE WITH EMICIZUMAB IN SUB-SAHARAN AFRICA: A WFH HUMANITARIAN AID PROGRAM REPORT Elizabeth Clearfield Received Received
  PO-176 NEW PARADIGM IN THE TREATMENT OF HEMOPHILIA B: REAL-LIFE EXPERIENCE WITH RIX-FP Cristina Sierra Received Received
  PO-177 IMPACT ON PAIN AND ACTIVITIES OF DAILY LIVING AFTER SWITCHING TO EMICIZUMAB: INSIGHTS FROM PROBE Elizabeth Clearfield Received Received
  PO-192 BLEEDING CONTROL IMPROVES AFTER SWITCHING TO EMICIZUMAB: REAL WORLD EXPERIENCE FROM 251 CHILDREN IN THE PEDNET REGISTRY Konrad van der Zwet Received Received
  PO-194 SUBCLINICAL SYNOVIAL PROLIFERATION IN PATIENTS WITH SEVERE HAEMOPHILIA A: ADVOCATING ULTRASOUND SCREENING Flora van Leeuwen Received Received
  PO-197 DETERMINATION OF VITAMIN D IN PATIENTS WITH HEMOPHILIA AND DECREASED BONE MINERAL DENSITY Laura Villarreal-Martinez Received Received
  PO-198 ISOKINETIC STRENGTH TESTING IN PATIENTS WITH HEMOPHILIA IN A HEMOPHILIA CLINIC IN MEXICO Laura Villarreal-Martinez Received Received
  PO-201 PAIN MEMORIES IN HAEMOPHILIA PRELIMINARY RESULTS FROM A QUALITATIVE STUDY IN COLLABORATION WITH A PATIENT AND PUBLIC INVOLVEMENT GROUP Anna Wells Received Received
  PO-202 TREATMENT OF BLEEDING EPISODES WITH EFANESOCTOCOG ALFA IN PATIENTS WITH SEVERE HAEMOPHILIA A IN THE PHASE 3 XTEND-1 STUDY Ellie Hughes Received Received
  PO-203 PATIENT EXPERIENCE WITH EFANESOCTOCOG ALFA: RESULTS FROM THE XTEND-1 PHASE 3 CLINICAL TRIAL EXIT INTERVIEWS IN PATIENTS WITH SEVERE HAEMOPHILIA A Nana Kragh Received Received
  PO-214 VEYVONDI IN A PAEDIATRIC POPULATION: A SINGLE-CENTRE EXPERIENCE sahil bhagat Received Received
  PO-217 DIAGNOSIS AND MANAGEMENT OF HEAVY MENSTRUAL BLEEDING IN ADOLESCENTS IN PRIMARY CARE Anne de Vaan Received Received
  PO-222 RECOMBINANT VON WILLEBRAND FACTOR TREATMENT OUTCOMES IN ADULTS WITH VON WILLEBRAND DISEASE IN THE UK: AN INTERIM ANALYSIS Heena Howitt Received Received
  PO-224 STABLE FVIII EXPRESSION IN PATIENTS WITH VON WILLEBRAND DISEASE RECEIVING 1:1 RATIO VWF/FVIII CONCENTRATE Geoffrey Kuppens Received Received
  PO-233 ISTH-BAT AS A DIAGNOSTIC SCREENING TOOL IN WOMEN AND GIRLS WITH HEAVY MENSTRUAL BLEEDING: A SYSTEMATIC REVIEW Anne de Vaan Received Received
  PO-245 RECURRENT VENOUS THROMBOEMBOLIC DISEASE IN A PATIENT WITH SEVERE CONGENITAL FACTOR XIII DEFICIENCY. Laura Bounaix Received Received
  PO-249 LONG-TERM EFFECTIVENESS OF PLASMINOGEN EYE DROPS IN PATIENTS WITH LIGNEOUS CONJUNCTIVITIS: THE ITALIAN EXPERIENCE Cesare Dalla Porta Received Received
  PO-260 GRAY PLATELET SYNDROME WITH NBEAL2 MUTATION ASSOCIATED WITH DYSIMMUNITY Birgit Frotscher Received Received
  PO-267 THROMBOCYTOPENIA DOES NOT ALWAYS MEAN ITP: A SINGLE CENTRE EXPERIENCE Eman Hassan Received Received
  PO-271 IMPACT OF THERAPEUTIC PLASMA EXCHANGE ON INTACT PROTEIN S, APOLIPOPROTEIN CIII AND THE HEMOSTATIC POTENTIAL Riitta Lassila Received Received
  PO-281 INHERITED AUTOSOMAL DOMINANT THROMBOCYTOPENIA: ONE FAMILY DESCRIPTION Víctor Portela Piñeiro Received Received
  PO-283 MANAGEMENT OF BLEEDING DISORDERS OF UNKNOWN CAUSE (BDUC) IN A TERTIARY LONDON HOSPITAL Sinthiya Punnialingam Received Received
  PO-293 CLINICAL APPLICATION OF MULTIGENE PANEL TESTING FOR DIAGNOSIS OF INHERITED COAGULATION DISORDERS Christine Van Laer Received Received
  PO-301 LOCALISATION OF NATIONAL HAEMOPHILIA COMPETENCY FRAMEWORK FOR THE SHEFFIELD HAEMOPHILIA & THROMBOSIS CENTRE SERVICE Cathy Harrison Received Received
  PO-303 IMPROVING PATIENT SAFETY WITH STAFF WELLBEING Natasha Longsmith Received Received
  PO-309 PRESENTATION OF A QUESTIONNAIRE: WOMEN WITH BLEEDING DISORDERS Malin Svennefalk Received Received
  PO-310 WHY AND HOW TO TALK ABOUT SEXUAL HEALTH Nanda Uitslager Received Received
  PO-324 PSYCHOLOGICAL EXPERIENCES OF MOTHERS WITH SEVERE HAEMOPHILIAC CHILDREN IN IRANIAN CULTURE: A PHENOMENOLOGICAL STUDY Reza Farahani Received Received
  PO-325 TEAM HAEM GOES GREEN - A PILOT PROJECT Claire Forde Received Received
  PO-328 Development and useability testing of patient, caregiver and clinician tools to support shared decision making in haemophilia Shade Olatunde Received Received
  PO-332 PERCEPTIONS OF A CAREER IN HAEMOSTASIS & THROMBOSIS - AN INTERNATIONAL PERSPECTIVE Sinthiya Punnialingam Received Received
  PO-333 360 VIRTUAL REALITY INCREASES TREATMENT ADHERENCE AND EMPOWERMENT IN PEOPLE WITH HEMOPHILIA: PRELIMINARY RESULTS. Daniel-Anibal Garcia Received Received
  PO-335 IMPACT ON AND COMMUNICATION ABOUT SEXUAL FUNCTIONING IN MEN WITH HAEMOPHILIA IN THE NETHERLANDS (HIN-6). Tessa van Gastel Received Received
  PO-336 WOMEN WITH BLEEDING DISORDERS AND THEIR EXPERIENCES IN DAILY LIFE FUNCTIONING IN THE NETHERLANDS. A QUALITATIVE STUDY. Tessa van Gastel Received Received
  PO-337 TRAUMA WORK WITHIN AN INHERITED BLEEDING DISORDERS SERVICE USING EMDR Sarah Whitaker Received Received
  PO-338 EXAMINING TREATMENT PREFERENCES OF PEOPLE WITH HAEMOPHILIA A AND B IN THE UK: A DISCRETE CHOICE EXPERIMENT ENCOMPASSING GENE THERAPY George Morgan Received Received
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16th Annual Congress of EAHAD

 

7-10 February 2023 Manchester
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