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PP-01 | Prevalence of Bleeding Disorders in Nicaragua in the period 2004-2020. | Sergio Luis Gustavo Aguilera Covarrubias | ![]() |
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LR-01 | Transition Readiness among Adolescents and Young Adults with Hemophilia in the Netherlands | Martijn Brands | ![]() |
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PO-01 | Beginning of the Hemophilic Arthropathy in children of 7 to 11 years old in Nicaragua in the absence of replacement treatment: Series of 9 cases. | Sergio Luis Gustavo Aguilera Covarrubias | ![]() |
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VLR-01 | TSUBASA: a prospective study evaluating the association between physical activity and bleeding events in people with hemophilia A during emicizumab prophylaxis | Katie Smith | ![]() |
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LBPP-01 | HemActive study: Beliefs and attitudes towards physical activity and treatment concordance by persons with hemophilia (PwH) from Colombia | Ingrid Koo | ![]() |
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LR-01 | Safety of eptacog beta: Comparing the 225 g/kg and 75 g/kg dosing regimens across pivotal clinical trials | Manuel Carcao | ![]() |
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LR-02 | No Significant Differences in Physical Activity During the Covid-19 Pandemic in Adults with Moderate and Severe Haemophilia: The Irish Personalised Approach to the Treatment of Haemophilia (iPATH) study | Megan Kennedy | ![]() |
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LR-02 | Ambulatory Care Transformation to Telehealth Mode during the COVID-19 Pandemic: Experience from Pediatric Non-Malignant Blood Disorder Service at A Tertiary Care Centre | Viqaruddin Mohammed Khaja | ![]() |
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PO-02 | Behavior of Von Willebrands Disease in patients treated at the Manuel de Jesús Rivera La Mascota Childrens Hospital in Managua-Nicaragua in the period from January 2015 to June 2020 | Jairo F Campos Castilblanco | ![]() |
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VLR-02 | WFH Survey on Impact Covid-19 Pandemic Impact on the Bleeding Disorders Community | Salome Mekhuzla | ![]() |
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LBPP-02 | Haemophilia-mediated bleeding induces red pulp macrophage expansion | Heike Hawerkamp | ![]() |
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PP-02 | Development and validation of the Physiotherapy Therapeutic RElationship Measure in people with bleeding disorders | Erin McCabe | ![]() |
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VLR-03 | Narratives of Families of Children Living with Hemophilia and Other Bleeding Disorders: Balancing Life During and Between Bleeds | Roberta L Woodgate | ![]() |
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VLR-03 | Spontaneous Bleeding Incidence Associated with Psychosocial Factors in Hemophilia Patients in Colombia | Mario M Barbosa-Rengifo | ![]() |
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LR-03 | The SCORE-Project: a survey on COVID-19 resilience of Brazilian hemophilics during pandemic | Mariana Freire | ![]() |
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PP-03 | Three-Decade Ongoing Establishment of Care for Women/Girls with Haemophilia Carrier and Haemophilia | Ampaiwan Chuansumrit | ![]() |
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PO-03 | An mHealth App (WeThrive) to identify heavy menstrual bleeding in adolescents with bleeding disorders: App Design and Development | Meghan Pike | ![]() |
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LBPP-03 | Analysis of FIX Activity Following Addition of Exogenous FIX to Plasma From Participants Treated With Fidanacogene Elaparvovec | Marion James | ![]() |
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VLR-04 | Major Orthopaedic Surgery In Subjects With And Without Inhibitors In Regimen With Emicizumab: A Mid-Term Follow-Up At A Single Haemophilia Center | Christian Carulli | ![]() |
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VLR-04 | Immersive VR visualization to improve joint pain in patients with hemophilic ankle arthropathy. | Roberto Ucero-Lozano | ![]() |
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PO-04 | Multidisciplinary experience in the development of the Declaration of Recommendations for the Emicizumab Prophylaxis Program in Nicaragua. | Engels Rolando Reyes Sanchez | ![]() |
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VLR-04 | The Efficacy of Arthropathy Identification Using Diagnostic Ultrasound in People with Haemophilia | Wing-Yun Bud | ![]() |
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LBPP-04 | Quality of life in pediatric hemophilia, Chile | Isabel Villalobos | ![]() |
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PP-04 | Physical Fitness Improvement by Smart-Watch Monitoring in Hemophiliac during COVID-19 Pandemic A Nationwide Study | Nawachai Lertvivatpong | ![]() |
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VLR-05 | Orthopedic surgery in a boy with severe haemophilia A and inhibitors on prophylaxis with emicizumab: the success of the first case in Portugal | Catarina Jacinto Correia | ![]() |
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PP-05 | Health Seeking Behaviours and Associated Factors Among People Living With Hemophilia In Western Uganda. | Joshua Bwambale | ![]() |
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LR-05 | Acquired haemophilia A: a 15-year population based review of incidence rate, patient demographics, and treatment outcomes of Acquired haemophilia A patients in Manitoba, Canada | Chantal Tian | ![]() |
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VLR-05 | Rescue immune tolerance induction strategyLow-dose FVIII combining with second round immunosuppressants agent(s) | Runhui Wu | ![]() |
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PO-05 | Quality of life of people with hemophilia in Nicaragua: A case series with PROBE survey | Ivonne Leyton | ![]() |
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LBPP-05 | Use of immunosuppressives in patients with hemophilia receiving gene therapy: Evidence generation using a mixed-methods approach | Alexa Zayadi | ![]() |
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PP-06 | Study design for B-LIEVE, a Phase 1/2 dose-confirmation trial of FLT180a gene therapy for hemophilia B | Amie Hedges | ![]() |
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LR-06 | Telehealth and COVID-19 Impact on Patient Satisfaction with US Hemophilia Treatment Centers | Virginie L Sirianna | ![]() |
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VLR-06 | An exploration of virtual healthcare. How CANHCOR is interacting with patients during a pandemic? | Sarah Crymble | ![]() |
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LR-06 | Cost of Clinical Care for Patients with Severe Hemophilia in Six Low- and Middle-Income Countries | Nancy Bolous | ![]() |
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LBPP-06 | Transforming Transition in a Virtual World | Clare James | ![]() |
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PO-06 | Burden of menstrual bleeding and use of the pictorial blood assessment chart in Japanese women and girls with inherited bleeding disorders: a validation study | Azusa Nagao | ![]() |
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LR-07 | Ambitious training of patients, parents and healthcare providers for the design of educational workshops for patients and families living with a rare bleeding disorder. | Thomas Sannié | ![]() |
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PP-07 | Ultrasound in addition to clinical evaluation changes treatment decisions in persons with hemophilia with acute musculoskeletal complaints | Flora van Leeuwen | ![]() |
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LR-07 | Research Group on Hemorrhagic Disorders: A Strategy to Educate College Students and People with Coagulopathies | Francisco Careta | ![]() |
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LBPP-07 | Cost-effectiveness of Gene Therapy for Persons with Severe Hemophilia A and B (PWsH) in Six Low- and Middle-Income Countries (LMICs) | Nancy Bolous | ![]() |
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PO-07 | Treatment and care of individuals with non-severe haemophilia time for improvement | Gerry Dolan | ![]() |
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LR-07 | Integration of the Mexican Registry of Coagulopathies (RMC) with PROBE | Alexandra Kucher | ![]() |
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PO-08 | Seed training model Hand by hand with hemophilia and willebrand disease: In 5 years, 1689 new professionals committed to our cause. | Engels Rolando Reyes Sanchez | ![]() |
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LR-08 | Joint Health Status monitoring in Children and Adolescents with Haemophilia using the combination of Clinical, Imaging and Self-assessment methods. | Aikaterini Michalopoulou | ![]() |
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VLR-08 | Assessment of Joint Health Using Point of Care Musculoskeletal Ultrasound (POC-MSKUS) in Female Hemophilia Carriers: The CUP Study-Interim Analysis | Rachel Kronenfeld | ![]() |
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PP-08 | Further genotypic elucidation of discrepant hemophilia A | Emma Li | ![]() |
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VLR-08 | European Principles of Care for Physiotherapy Provision for People with Bleeding Disorders: Perspectives of Physiotherapists and Patients | David Stephensen | ![]() |
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VLR-09 | Preliminary field study results suggest differences in FIX activity based on assay from gene therapy trial patients expressing R338L high-activity variant of FIX | Debra Pittman | ![]() |
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PO-09 | Joint And Functional Status Of Patients Under low dose Secondary/Tertiary Prophylaxis and Physiotherapy A 5 year Experience From A Limited Resource Setting | Viswam Dinkar | ![]() |
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PP-09 | An expedition of tolerance and resilience amidst hardships: Experience of a child with factor VII inhibitor | ROHINI T | ![]() |
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LR-09 | Haemophilic Arthropathy in a Novel Mouse Model of Haemophilia A | Aoife Yeow | ![]() |
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VLR-09 | Mutation characteristics of haemophilia A and haemophilia B patients in the National Institute of Haematology and Blood Transfusion, Hanoi, Vietnam. | Khanh Q Bach | ![]() |
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PP-10 | Efficacy of low dose immune tolerance induction (ITI) in Haemophilia A adults with inhibitors | May Anne Cheong | ![]() |
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LR-10 | Fitusiran Prophylaxis Improves Health-Related Quality of Life in People with Hemophilia A or B without Inhibitors: Results of Phase 3 ATLAS-A/B Randomized Control Trial | Kaan Kavakli | ![]() |
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VLR-10 | Epidemiological profile of bleeding disorders population in Tabasco, Mexico. | Laura Olán | ![]() |
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VLR-10 | Real-world Persistence with and Adherence to Emicizumab Prophylaxis in People with Hemophilia A Results from Two Secondary Claims Database Analyses | Rahul Khairnar | ![]() |
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PO-11 | Health related quality of life In severe Hemophilia A patients prophylaxis versus on demand treatment | AJAI THOMAS | ![]() |
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VLR-11 | Management of patients presenting with an elevated Self-Administered Bleeding Assessment Tool (Self-BAT) score or other bleeding symptoms in a primary care setting | Katie Yeung | ![]() |
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VLR-11 | Bleeding symptoms in carriers of hemophilia | Daniela Neme | ![]() |
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LR-11 | Von Willebrand Disease (VWD) incidence among patients with bleeding manifestations in Egypt - a study cohort from VWD Registry | Sonia Adolf | ![]() |
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PP-11 | Real-World Experience with the Use of Emicizumab in Paediatric Haemophilia A Patients With and Without Inhibitors | Joyce Ching Mei Lam | ![]() |
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VLR-12 | The role of the specialist haemophilia nurses in switching patients to Emicizumab: Experience from a large haemophilia comprehensive care centre (CCC) in the UK | Janette Kemp | ![]() |
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PP-12 | Short versions of the pedHAL and HAL: validation in Dutch children and adults with haemophilia | Isolde Kuijlaars | ![]() |
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VLR-12 | The Red Box as a Tool to Provide Practical Help for Women and Girls with Bleeding Disorders During their Period | Willie van Greevenbroek | ![]() |
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VLR-12 | Improving patient experience and outcomes for women with inherited bleeding disorders | Bella Madan | ![]() |
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PO-13 | Getting Ready for Hemophilia Gene Therapy; Nursing Perspective | Mahmoud Abu-Riash | ![]() |
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PP-13 | Advancing Care for Women with Bleeding Disorders - support provided by a female healthcare team. | Helena Landa | ![]() |
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PO-14 | Coagulation Factor Levels and Postpartum Blood Loss: Preliminary Results of the Canadian Hemophilia Carriers Study-Postpartum (CHIC-P) | Michaela Spence | ![]() |
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PP-14 | MRI evidence of Subclinical Bleeding; preliminary results of the BEGIN-study | Flora H van Leeuwen | ![]() |
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PP-15 | Review of long-term efficacy and safety of recombinant factor VIII Fc in individualised prophylactic treatment | Cédric Hermans | ![]() |
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PO-15 | Virtual consultation project for patient with Hemophilia. | Claudia Raffo | ![]() |
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PP-16 | Fc-fusion technology beyond half-life extension review of potential immunomodulatory and anti-inflammatory effects of rFVIIIFc in haemophilia A | Sébastien Lacroix-Desmazes | ![]() |
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PP-17 | Using the World Federation of Hemophilia Gene Therapy Registry for the Long-term Follow-up of Hemophilia Patients Treated with Gene Therapy | Mayss Naccache | ![]() |
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PO-17 | Overview of the Mim8 FRONTIER clinical development program | Irina Matytsina | ![]() |
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PO-18 | Managing Joint Health in Haemophilia: Perspectives from Patients, Caregivers, and Healthcare Professionals to Create a Patient-Reported Outcome (PRO) Tool for Patients Aged 8 Years and Older | Nisa Khan | ![]() |
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PP-18 | Legal advice for hemophilia patients: 12 years of experience | Daniel Adolfo Luna | ![]() |
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PP-19 | Estimation of a Recombinant, Humanized, Bi-specific Monoclonal Antibody Plasma Level in Countries Where No Commercial Calibrator is Available | German Detarsio | ![]() |
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PO-19 | Hemophilia and Covid-19 infection: real-life experiences | Gianluca Sottilotta | ![]() |
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PP-20 | Factor VIII:C measurement by different chromogenic and one stage assays in two Acquired Haemophilia patients treated with recombinant porcine factor VIII. | Susan Guy | ![]() |
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PO-20 | Acquired hemophilia A following allogeneic stem cell transplantation for acute lymphoblastic leukemia | Kelsey Uminski | ![]() |
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PP-21 | How to assess parallelism in factor assays: CV of results with different dilutions or Slope Ratio? | Susan Guy | ![]() |
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PO-21 | Demographics, clinical profile and treatment landscape of patients with Hemophilia B in China | Wenhui Zhang | ![]() |
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PO-22 | Point-of-Care Ultrasound Assessment for a Paedaitric Patient with Haemophilic Arthropathy in Joint Haemophilia Clinic | Wing-Wai Dr. chan | ![]() |
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PP-22 | Involvement in care decisions and community engagement of people with hemophilia in Europe: Insights from the CHESS II study | Hanlu Zhang | ![]() |
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PP-23 | Conducting a Virtual Home Infusion Workshop at the Time of COVID | Chiew Ying Lim | ![]() |
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PO-23 | Sexual Health of Persons with Hemophilia | Marko Marini&263; | ![]() |
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PO-24 | coagulation factor 8 concentrations required for different activity in children with severe hemophilia A: A single-center clinical study | Di Ai | ![]() |
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PP-24 | The Pearls and Perils of Virtual Community Education during the Pandemic | Ruthrolen Martinez | ![]() |
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PP-25 | A Quantitative Systems Pharmacology (QSP) Model to Compare the Non-clinical Biodistribution and Efficacy Between Recombinant Factor IX (rIX) Therapies | Oliver Ghobrial | ![]() |
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PO-25 | Severe hemophilia A children with severe joint disease need for higher target trough concentrations of preventive therapy: A single-center clinical study | Di Ai | ![]() |
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PO-26 | The influence of dead space in blood sampling needle on FVIII level and pharmacokinetic profiles in hemophiliac boys | Kun Huang | ![]() |
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PP-26 | Study on demographic, clinical and therapeutic characteristics of hemophilia patients at National Institute of Hematology and Blood transfusion 2019 - 2020 | Nguyen Thi Mai | ![]() |
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PO-27 | Substantial reduction of cost of care of PWH by add on homoeopathic medicine reduced the parental anxiety and stress | Tapas Kundu | ![]() |
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PP-27 | From collective trauma to singular trauma | Trinidad Valente | ![]() |
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PP-28 | New book for families with hemophiliac children: Children with hemophilia: family and school | Patricia Cabre Sala | ![]() |
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PO-28 | The switch from plasma-derived to recombinant Factor VIII concentrates: Experience of the southern Tunisian hemophilia treatment center | Olfa Kassar | ![]() |
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PP-29 | Quality of Life and Joint Health Changes in Severe Hemophilia A Patients Switching to an Emicizumab Prophylaxis Regimen | Alyson Trillo | ![]() |
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PO-30 | Bleeding Outcomes and Musculoskeletal Function after Switching from On-Demand to Intermediate Dose of FVIII as Tertiary Prophylaxis in Severe Hemophilia A Children with Joint Arthropathy: A Case Series | Raisa Cecilia Sarita | ![]() |
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PP-30 | Pain Relief With Eptacog Beta in Hemophilia Patients With Inhibitors | cedric HERMANS | ![]() |
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PO-31 | Treatment must go on | Jae Chung Song | ![]() |
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PP-31 | Quality of life and outcome improvement in adolescents with bleeding disorders receiving medical management for heavy menstrual bleeding. | Kelly Tickle | ![]() |
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PP-32 | Quality of life and some related factors of hemophilia patients treated at the National Institute of Hematology and Blood Transfusion in 2020 | Nguyen Thi Mai | ![]() |
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PO-32 | Surgical treatment of hemophilic pseudotumors: a case series | Agustin Colombo | ![]() |
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PP-33 | Awareness and Education Matters | Mohommad Nurul Islam | ![]() |
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PO-33 | Yttrium-90 synovectomy is feasible, safe and effective for chronic hemophilic synovitis in adolescents on secondary prophylaxis in a resource limited setting | Nittu Panjikaran | ![]() |
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PO-34 | Iliopsoas bleed : A case series from a Haemophilia treatment centre | Shigy Francis | ![]() |
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PO-35 | A comparison of adult to pediatric hemostatic response to emicizumab therapy within the same institution | Erika J Martin | ![]() |
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PO-36 | Supporting Patient-Centered Research in China: Planning of the EPOCH Project | Elizabeth Clearfield | ![]() |
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PP-36 | General self efficacy in parents of children with haemophilia in Poland. | Pawel Laguna | ![]() |
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PP-37 | HeRo Bears Camp - adventure and team building camp for young people with haemophilia. | Tudor Bucur | ![]() |
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PO-37 | Natural history of Hepatitis C virus (HCV) infection in Korean hemophilic cohort | Hugh Chul Kim | ![]() |
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PO-38 | Capacity building by bringing change by improving access to healthcare and awareness | Muhammad Nadeem Zahid | ![]() |
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PP-38 | Digitising Data Collection to Improve Haemophilia Care: Creating a Bespoke, Interdisciplinary Data Management System | Richard Davis | ![]() |
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PP-39 | An observational French survey to compare perceived and observed accessibility to therapeutic drugs used for treating patients with inherited bleeding disorders | Valérie Chamouard | ![]() |
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PO-39 | Self-induced myofascial release in patients with hemophilic ankle arthropathy. | Rubén Cuesta-Barriuso | ![]() |
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PP-40 | Experience of establishing National Hemophilia Helpline in Pakistan | Masood F Malik | ![]() |
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PO-40 | Carotid Intima-Media Thickness (cIMT) as a Marker of Subclinical Atherosclerosis in Adolescents with Severe Hemophilia Undergoing a Prophylaxis Regimen | Alyson Trillo | ![]() |
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PO-41 | Regular Virtual Meetings Organized by the Hemophilia Society in the COVID-19 Pandemic | Bulent Zulfikar | ![]() |
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PP-41 | First nursing intervention guide for patients with coagulation disease | Josefina Santillán | ![]() |
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PP-42 | Platelet- Rich Plasma treatment on chronic synovitis haemophilic patients - ultrasound evaluation | Carla Daffunchio | ![]() |
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PO-42 | The Adequacy of the ACH Psychological Service during the pandemic SARS CoV-2: Telephone or virtual attention? | Silvia Grases | ![]() |
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PO-43 | Management of hemophilia in pandemic of COVID: Experience of the southern Tunisian hemophilia treatment center | Olfa Kassar | ![]() |
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PO-44 | What do people with haemophilia (PwH) really need? Patient perspectives on terminology, information channels, and experience to refine communication and the future of haemophilia care in the post-COVID era | Danai Krithinidi | ![]() |
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PO-45 | Benefits from the use of Extended Half-Life (EHL) against Standard Half-Life (SHL) coagulation Factors in Total Knee Replacement in Haemophilia patients | Anna Kouramba | ![]() |
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PP-45 | Surveillance of State Registry of People with Hemophilia in Kerala | Sheena Mathew | ![]() |
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PO-46 | Experience in Surgical Management for Persons with Hemophilia A and with Inhibitors in Western Kenya | Carole J Kilach | ![]() |
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PP-47 | Emicizumab Prophylaxis in PWH with Inhibitor and bleeds in a resource limited setting | Sheena Mathew | ![]() |
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PO-47 | Why does the Catalan Association of Hemophilia (ACH) offer physiotherapy as one of its programms? | Cristian Morte | ![]() |
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PO-48 | Real-World Experience on the Use of rVIII-SingleChain in Patients with Hemophilia A: Interim Results of Safety Data from a Prospective, Non-Interventional Study in Germany and Austria | Eleanor Broadberry | ![]() |
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PP-49 | The many opportunities of the WFH twinning program: Experience of the Abidjan-Brussels collaboration | Catherine Lambert | ![]() |
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PO-49 | Experience with 10 pediatric patients with hemophilia A and FVIII inhibitors treated with immune tolerance induction (ITI) at Tawam hospital, UAE | Muhammad Faisal Yousuf Khanani | ![]() |
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PO-50 | Real-world experience of rIX-FP prophylaxis at dosing intervals of up to 14 days in a pediatric patient with hemophilia B during the COVID-19 pandemic | BOLIVAR LUIS DIAZ JORDAN | ![]() |
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PP-50 | Niger, a first evaluation of patients needs by Afath | Amadou Djibrilla | ![]() |
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PO-51 | Healthcare Resource Use, Depression, and Anxiety Among Adult Males With Hemophilia B: Observed Differences for Those With and Without Medically Recorded Bleeding Episodes in the United States | Margit Rezabek | ![]() |
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PP-51 | Improvement of outcome measures following total joint replacement surgery in severe hemophilic arthropathy of the knee | Anna Kouramba | ![]() |
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PP-52 | Aquatic Rehabilitation Program for patients with Hemophilia submitted to Total Joint Arthroplasty. | Glenda Feldberg | ![]() |
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PO-52 | Identification of the Intron 1 and Intron 22 Inversions of the Factor VIII Gene in patients with severe Hemophilia A in Uruguay | Yasser Vega | ![]() |
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PP-53 | Learn through what you go though HTC Aluva model home therapy in hemophilia | Syamraj Santhappan | ![]() |
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PO-53 | Clinical Application of Extended Half-Life Pegylated Factor VIII in Ten Children with Haemophilia A | Athina Dettoraki | ![]() |
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PP-54 | Afath webinars: illustration of partnership in care model | Thomas Sannié | ![]() |
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PP-55 | Virtual healthcare during a Global Pandemic: Patient Perspectives | Sarah Crymble | ![]() |
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PP-56 | Self-Reported Migraine in Subjects with von Willebrand Disease | Corey MacGregor | ![]() |
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PO-56 | Antifragility within fragility. Women & hemophilia. | Bernadetta Pieczy&324;ska | ![]() |
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PO-57 | The Least Expected Guest: Acute Compartment Syndrome in Haemophilia | A.Patricia Nally | ![]() |
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PP-57 | Awareness campaign for women and girls with rare constitutional bleeding disorders (WGBD) Women bleed too a new way of communication | Yannick Collé | ![]() |
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PP-58 | Formation of national member organization (NMO) and consolidation of centralized patients data for efficient treatment in Pakistan | Muhammad Nadeem Zahid | ![]() |
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PO-58 | How to conduct effective online training in NMOs: tips that work | Juan Andrés Pereira de Souza | ![]() |
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PO-59 | Implementing Culturally-Appropriate translations of the Self-BAT to increase awareness of the prevalence of Bleeding Disorders in India Implementing Culturally-Appropriate translations of the Self-BAT to increase awareness of the prevalence of Bleeding Di | Hiral Thakkar | ![]() |
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PP-59 | Examining preferences for gene therapy treatment in haemophilia: attribute elicitation for a discrete choice experiment | Shahid Malik | ![]() |
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PO-60 | Physiotherapeutic evaluation of joint health of hemophiliac patients through HJHS, referred to radioactive synovectomy, in Brazil. | Fernando Eduardo Zikan | ![]() |
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PP-60 | Feasibility of integrating PROBE (Patient Reported Outcomes, Burdens and Experiences) into a clinical care pathway to facilitate transformation to a Value-Based Health Care Model in hemophilia. | Federico Germini | ![]() |
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PP-61 | Prevalence and characteristics of non-neutralizing FVIII-specific antibodies in persons with hemophilia A preliminary results | Ilja Oomen | ![]() |
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PO-61 | Physiotherapy, Hemophilia and International Classification of Functionality (ICF) - WE HAVE EVIDENCE? | Fernando Eduardo Zikan | ![]() |
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PP-62 | Diagnosis Recognition Associated with Comprehensive Management Program Adherence in Hemophilia Patients in Colombia | Mario M Barbosa-Rengifo | ![]() |
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PO-62 | Inter-individual variability in pharmacokinetics and clinical features in pediatric patients with severe hemophilia A | Kun Huang | ![]() |
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PO-63 | A real-world data of Children hemophilia A with inhibitors conducting low-dose ITI strategy in China | Zhengping LI | ![]() |
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PP-63 | COVID-19 experience with inherited bleeding disorders similar to the country population | Basak Koc | ![]() |
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PP-64 | Impact of Emicizumab on Annualized Bleeding Rates in Persons with Hemophilia A in Western Kenya | Carole J Kilach | ![]() |
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PO-64 | On Mountain Trails - psycho-physical-educational project to change mentalities of stakeholders in haemophilia and other rare bleeding disorders | Valentin Brabete | ![]() |
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PO-65 | F8 Gene Mutation Profile of Chinese Hemophilia A Children with Inhibitors: A Large-cohort Data Analysis from A Single Center of China | Jie Sun | ![]() |
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PO-66 | The Prevalence and Risk Factors for Inhibitor Development in Patients with Hemophilia A in Northern Pakistan. | Tahira Zafar | ![]() |
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PP-67 | Comprehensive distance treatment focused on physical rehabilitation in patients with hemophilia in Mexico | Cecilia Gallardo Pérez | ![]() |
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PO-67 | Mental Health Of Patient With Bleeding Disorder | Ms. Midhat Khalid | ![]() |
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PO-68 | The effect of a LDP regimen on bleeding episodes and development of inhibitors in patients with Hemophilia A. | Tahira Zafar | ![]() |
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PP-68 | Use of emicizumab in Venezuelan hemophilia A patients: preliminary report | Apsara Boadas | ![]() |
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PO-69 | Implementation of an institutional quality management project in the Hemophilia Foundation of Salta | Maria Sol cruz | ![]() |
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PP-69 | Haemophilia in the Central and Northern Regions of Malawi an Epidemiological Study | Loviisa Mulanje | ![]() |
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PP-70 | Project Phoenix: the need for sharing experience in bleeding disorder care | Sandra Dodgson | ![]() |
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PO-70 | Aspects of social reality of patients with hemophilia in Salta Province | maría sol cruz | ![]() |
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PO-71 | Health-related quality of life among adults with hemophilia China:A cross-sectional survey | Wenhui Zhang | ![]() |
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PP-71 | Clot Waveform Analysis In Patients With Hemophilia A | Malek Terras | ![]() |
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PP-72 | PROBE Results Show Continued Burden of Disease in Canadians with Hemophilia A and B | David Page | ![]() |
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PO-72 | Two Decades Diagnosing Acquired Inhibitors in a Tertiary Centre: Changing Over Time? | Sofia Teixeira | ![]() |
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PP-73 | Long term follow up of low dose prophylaxis in Tunisian patients with hemophilia | Rabeb Jaied | ![]() |
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PO-73 | Vitamin D insufficiency and its relation with bone mineral density in children with hemophilia A. | Samantha Fierro Sáenz | ![]() |
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PO-74 | Review of eleven-year examination of patients with severe hemophilia that present intracranial hemorrhage | JUAN PABLO Ortíz | ![]() |
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PP-74 | Pain and quality of life in Mexican pediatric patients | Maricela Osorio Guzmán | ![]() |
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PO-75 | Assessment Of Intron-22 Inversion Mutation And Phenotypic Variation In Plasma Levels Of Factor VIII In Person With Haemophilia A In South East Nigeria | Theresa Nwagha | ![]() |
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PP-75 | Changing Community Needs for Those with a Bleeding Disorder in Poland | Elizabeth Clearfield | ![]() |
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PP-76 | A Retrospective Analysis of the Management of Iliopsoas Haematomas in Persons with Haemophilia | David Stephensen | ![]() |
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PO-76 | Experience related to the use of digital tools for virtual communication implemented by the Hemophilia Foundation of Salta in times of Covid-19 pandemic. | Josefina Santillán | ![]() |
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PO-77 | Hemophilic elbow arthropathy and upper limb functionality in patients treated with extended half-life clotting factor. An observational study. | Rubén Cuesta-Barriuso | ![]() |
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PP-77 | Does the Use of an Online Screening Tool affect Referral Outcomes? Preliminary Results of the Lets Talk Period Project | Julie Grabell | ![]() |
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PO-78 | Musculoskeletal status of lower limbs in patients with prophylactic treatment using extended half-life clotting factor | Rubén Cuesta-Barriuso | ![]() |
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PP-78 | Comparison of Change in Number of Identified People With Hemophilia A and Factor VIII Use Per Patient Over Time | Ellia Tootoonchian | ![]() |
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PP-79 | Conceptualization and Development of Quality of Life Scale for PWH Living in India | Richa Mohan | ![]() |
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PO-79 | VWD Connect Foundation U.S. Severe Von Willebrand Disease Patient Registry | Jeanette Cesta | ![]() |
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PP-80 | Monitoring Emicizumab-data from a World Federation of Haemophilia International External Quality Assessment Scheme exercise. | Christopher Reilly-Stitt | ![]() |
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PO-80 | Clinical and laboratory characteristics of patients with isolated factor VII deficiency at the National Institute of Hematology - Blood Transfusion | Nguyen Thi Mai | ![]() |
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PO-81 | Hemophilic knee arthropathy. Is self-induced myofascial release an effective therapeutic option? | Rubén Cuesta-Barriuso | ![]() |
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PP-81 | Reaching Undiagnosed Women and Girls: Outcomes from 5 Years of the Better You Know Outreach Campaign | Dawn Rotellini | ![]() |
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PP-82 | Challenges and Knowledge Gaps facing Hemophilia Carriers: Perspectives from Patients and Healthcare Providers | Monique Botros | ![]() |
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PO-82 | Risk factor to dental caries by Cambra in a pediatric bleeding disorders population. | Laura B Isidro-Olán | ![]() |
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PO-83 | First on-line dentistry training for the treatment of patients with hemophilia and von Willebrand. | Laura Forzani | ![]() |
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PP-83 | Diagnosis of von Willebrand disease and its relationship with bleeding disorders. Ecuador Case | Marcela A Mardones | ![]() |
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PP-84 | Evaluation of an automated von Willebrand Factor Activity Assay without ristocetin | Amine Sfaxi | ![]() |
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PO-84 | Conference on dental surgery in patients with bleeding disorder of Salta Province | Laura Forzani | ![]() |
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PO-85 | Sports in hemophilic patients, expectation versus reality | gabriela Sliba | ![]() |
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PP-85 | Re-revision surgery after total knee arthroplasty in haemophilic patients: a multidisciplinary challenging case series | Gianluigi Pasta | ![]() |
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PP-86 | The ex vivo effects of varying factor VIII concentrations on clot formation and structure in Haemophilia A patients | Joachim Potgieter | ![]() |
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PO-86 | Multidisciplinary Work Team: Comprehensive Care of Haemophilia | A.Patricia Nally | ![]() |
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PO-87 | Arnica Montana: three years of therapeutic experience in patients with bleeding diseases | Maria del Valle Bertoni | ![]() |
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PP-87 | Bleeding in Hemophilia Carriers : Tunisian Center Experience | Eya Drissi | ![]() |
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PO-89 | Efficacy and safety characteristics of emicizumab in the prevention of bleeding in patients with hemophilia A with inhibitors | Nguyen Thi Mai | ![]() |
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PO-90 | Evaluation of the effectiveness of emicizumab in preventing bleeding and safety in patients with hemophilia A without inhibitors | Nguyen Thi Mai | ![]() |
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PO-91 | The use of clinical hypnosis on the psychological impact of hemophilia in the family | Jonathan Giovani Navarro Sanchez | ![]() |
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PO-92 | Being present with the families as soon as the diagnosis is announced | Yannick Collé | ![]() |
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PO-93 | The latest news of bleeding disorders in Korean at a glance | Tai-il Kim | ![]() |
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PO-98 | Hemophilia in Palestine:Reality and Chalenges | Osama Najjar | ![]() |
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PO-99 | Trends in Product Use since Approval of Novel Therapies at a Paediatric Haemophilia Treatment Center | Nur Insyirah Abdul Kadir | ![]() |
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PO-100 | Perioperative management in non-severe hemophilia patients | Carmen Rodríguez Lefler | ![]() |
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PO-102 | Address the needs of women and girls with rare congenital bleeding disorder (WGBD): an unprecedented partnership between 20 specialized healthcare professionals (HCP) and the womens committee to publish an informative brochure. | Yannick Collé | ![]() |
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PO-104 | Lower dose prophylaxis and home therapy A 5 Year real-world experience from Hemophilia Treatment Centre, Aluva in a resource-limited setting | Syamraj Santhappan | ![]() |
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PO-106 | Incidence of articular osteophytes of the ankle in PWH with symptomatic joint | Horacio Caviglia | ![]() |
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PO-108 | Impact of moderate/severe Haemophilia A on German patients daily activities | Vanessa Kratzer | ![]() |
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PO-109 | Accquired vs Inherited haemophilia A 3 year coagulation work up based review in a single south Indian centre | Bitty Kurian | ![]() |
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PO-111 | Current Joints Condition of Patients with Haemophilia in Hong Kong | Henry Hon-Wai Lam | ![]() |
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PO-112 | Good laboratory communication: A cost effective networking model for patient management in coagulation laboratory | Bitty Kurian | ![]() |
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PO-113 | Dose optimisation of routine prophylaxis with rIX-FP to improve bleeding control and convenience in hemophilia B | Cathy Farrelly | ![]() |
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PO-114 | How did patients with a rare bleeding disorder organise their own care during the Covid-19 crisis? | Nicolas Giraud | ![]() |
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PO-115 | Platelet-Rich Plasma: 5 years of practice | María E Landro | ![]() |
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PO-117 | Inhibitor Testings An Analysis in HTC with limited resource setting | Meena Beebi | ![]() |
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PO-118 | coreHEM Mental Health PROM Development: Updating the Conceptual Framework as a Step in Content Validation | Elizabeth Clearfield | ![]() |
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PO-119 | Restrictions in daily life among adults with severe haemophilia in Europe: CHESS II dataset analysis | Shahid Malik | ![]() |
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PO-120 | The AFH en route for the Jacques Vabre Transatlantic yachting race thanks to Clara Fortin | Yannick Collé | ![]() |
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PO-121 | Homemade Adaptive Device Ensures Successful Medication Delivery | Mary Jane Frey | ![]() |
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PO-123 | Cost-analysis in people who have moderate-to-severe hemophilia A with and without inhibitor in Thailand: How to manage in a limited-resource country | Rungrote Natesirinilkul | ![]() |
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PO-124 | Impact of the pandemic on the continuity of the educational process of persons with hemophilia in a middle-income country | Laura I Páez Briseño | ![]() |
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PO-125 | European accreditation of haemophilia treatment and gene therapy centres | Ana Boban | ![]() |
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PO-126 | Combined Hindfoot Endoscopy and Ankle Arthroscopy Improves Patient Reported Outcomes in the Treatment of Hemophilic Involvement | Semih Aydogdu | ![]() |
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PO-127 | Therapeutic adherence in hemophilia, linguistic adaptation of the Veritas-pro in Mexican population | Carlos Prado Romero | ![]() |
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PO-128 | Developing a genetic counselling outreach program for PWBD in South Africa | Julie Malan | ![]() |
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PO-129 | Plasminogen Deficiency; 12 Cases in one center in Turkey | Canan Albayrak | ![]() |
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PO-131 | Clinical status evaluation of hemophilia A patients with and without inhibitor | Tatsiana Talako | ![]() |
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PO-132 | Congenital Fibrinogen Deficiency In A Portuguese Haemophilia Center Diagnosis; Clinical Manifestations And Management Of Bleeding And Surgeries | Carolina Peixoto | ![]() |
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PO-133 | Successful treatment of acquired hemophilia A in patients with hematological malignancy, autoimmune disease and pregnancy-associated: A case series | Katsiarina Kabayeva | ![]() |
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PO-134 | The Influence of the Coronavirus Pandemic on the Perceived Mental Health of Persons with Inherited Bleeding Disorders and their Parents/Guardians An International Comparison | Sylvia von Mackensen | ![]() |
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PO-135 | Recurrent thrombosis associated with increased level of von Willebrand factor: A case report | Tatsiana Talako | ![]() |
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PO-136 | Twinning during the pandemic: pure loss, or some gains? | Philip Kuriakose | ![]() |
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PO-138 | Prophylaxis in Women with von Willebrand disease. Experience in a center in Colombia | Claudia Casas | ![]() |
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PO-139 | Successful management of intracranial bleeding in hemophilia b children with suspected inhibitor F IX | Ganda Ilmana | ![]() |
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PO-140 | Factor VIII level comparison in patients with severe hemophilia A on emicizumab with inhibitors with one stage, bovine and human chromogenic assays and the factor VIII equivalency of emicizumab using in vivo global hemostasis assays | Hande Kizilocak | ![]() |
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PO-141 | Arthrodesis or Arthroplasty for the Treatment of End-Stage Hemophilic Ankle Arthropathy: A Systematic Review | Margareth Ozelo | ![]() |
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PO-142 | Vaginal Blood Loss: A patient- and trainee-centered mixed-methods research program | Fartoon Siad | ![]() |
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PO-143 | Acquired hemophilia in association with the Covid-19 vaccine | Petr Dulí&269;ek | ![]() |
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PO-144 | Characteristics of visceral hemorrhages in patients with hemophilia in southern Tunisia | maha charfi | ![]() |
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PO-145 | eSanjeevani, a National Tele consultation service benefited to hemophilia patients for home therapy of factor infusions during covid pandemic -A real world experience from HTC Aluva | Syamraj Santhappan | ![]() |
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PO-146 | The Effect of Manual Therapy in People with Hemophilia with Ankle Arthropathy | Andressa Ornelas | ![]() |
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PO-148 | Prevalence of Obesity in the Hemophilic Population in Tunisia | Mariem Ghazouani | ![]() |
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PO-150 | Treatment Of Severe Hemorrhagic Syndrome In JBS Thrombopathy. | Cherif hosni Aicha | ![]() |
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PO-151 | Evaluation of adherence, quality of life, bleeding events, and joints status of patients with hemophilia A and inhibitor trated with Emicizumab. Experience of a specialized center in Argentina. | Mauro Davoli | ![]() |
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May 8-11 2022 Montreal
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Digital Object Identifier. Official code used to identify documents published on internet; similar to ISBN for books. You may use this code to reference your poster in future scientific publications or CVs. It can be found from anywhere in the world. ![]() To find the poster page, log onto www.medra.org and enter the DOI, or enter in your internet browser https://dx.doi.org/ followed by the DOI string asigned to your congress. ![]() |
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