WORLD FEDERATION OF HEMOPHILIA

WFH 2022 World Congress

 

May 8-11 2022 Montreal
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N. Poster
Poster title
Applicant name
Status
  PP-01 Prevalence of Bleeding Disorders in Nicaragua in the period 2004-2020. Sergio Luis Gustavo Aguilera Covarrubias Received Received
  LR-01 Transition Readiness among Adolescents and Young Adults with Hemophilia in the Netherlands Martijn Brands Received Received
  PO-01 Beginning of the Hemophilic Arthropathy in children of 7 to 11 years old in Nicaragua in the absence of replacement treatment: Series of 9 cases. Sergio Luis Gustavo Aguilera Covarrubias Received Received
  VLR-01 TSUBASA: a prospective study evaluating the association between physical activity and bleeding events in people with hemophilia A during emicizumab prophylaxis Katie Smith Received Received
  LBPP-01 HemActive study: Beliefs and attitudes towards physical activity and treatment concordance by persons with hemophilia (PwH) from Colombia Ingrid Koo Received Received
  LR-01 Safety of eptacog beta: Comparing the 225 g/kg and 75 g/kg dosing regimens across pivotal clinical trials Manuel Carcao Received Received
  LR-02 No Significant Differences in Physical Activity During the Covid-19 Pandemic in Adults with Moderate and Severe Haemophilia: The Irish Personalised Approach to the Treatment of Haemophilia (iPATH) study Megan Kennedy Received Received
  LR-02 Ambulatory Care Transformation to Telehealth Mode during the COVID-19 Pandemic: Experience from Pediatric Non-Malignant Blood Disorder Service at A Tertiary Care Centre Viqaruddin Mohammed Khaja Received Received
  PO-02 Behavior of Von Willebrands Disease in patients treated at the Manuel de Jesús Rivera La Mascota Childrens Hospital in Managua-Nicaragua in the period from January 2015 to June 2020 Jairo F Campos Castilblanco Received Received
  VLR-02 WFH Survey on Impact Covid-19 Pandemic Impact on the Bleeding Disorders Community Salome Mekhuzla Received Received
  LBPP-02 Haemophilia-mediated bleeding induces red pulp macrophage expansion Heike Hawerkamp Received Received
  PP-02 Development and validation of the Physiotherapy Therapeutic RElationship Measure in people with bleeding disorders Erin McCabe Received Received
  VLR-03 Narratives of Families of Children Living with Hemophilia and Other Bleeding Disorders: Balancing Life During and Between Bleeds Roberta L Woodgate Received Received
  VLR-03 Spontaneous Bleeding Incidence Associated with Psychosocial Factors in Hemophilia Patients in Colombia Mario M Barbosa-Rengifo Received Received
  LBPP-03 Analysis of FIX Activity Following Addition of Exogenous FIX to Plasma From Participants Treated With Fidanacogene Elaparvovec Marion James Received Received
  LR-03 The SCORE-Project: a survey on COVID-19 resilience of Brazilian hemophilics during pandemic Mariana Freire Received Received
  PP-03 Three-Decade Ongoing Establishment of Care for Women/Girls with Haemophilia Carrier and Haemophilia Ampaiwan Chuansumrit Received Received
  PO-03 An mHealth App (WeThrive) to identify heavy menstrual bleeding in adolescents with bleeding disorders: App Design and Development Meghan Pike Received Received
  VLR-04 Major Orthopaedic Surgery In Subjects With And Without Inhibitors In Regimen With Emicizumab: A Mid-Term Follow-Up At A Single Haemophilia Center Christian Carulli Received Received
  PO-04 Multidisciplinary experience in the development of the Declaration of Recommendations for the Emicizumab Prophylaxis Program in Nicaragua. Engels Rolando Reyes Sanchez Received Received
  VLR-04 Immersive VR visualization to improve joint pain in patients with hemophilic ankle arthropathy. Roberto Ucero-Lozano Received Received
  VLR-04 The Efficacy of Arthropathy Identification Using Diagnostic Ultrasound in People with Haemophilia Wing-Yun Bud Received Received
  LBPP-04 Quality of life in pediatric hemophilia, Chile Isabel Villalobos Received Received
  PP-04 Physical Fitness Improvement by Smart-Watch Monitoring in Hemophiliac during COVID-19 Pandemic A Nationwide Study Nawachai Lertvivatpong Received Received
  VLR-05 Orthopedic surgery in a boy with severe haemophilia A and inhibitors on prophylaxis with emicizumab: the success of the first case in Portugal Catarina Jacinto Correia Received Received
  PP-05 Health Seeking Behaviours and Associated Factors Among People Living With Hemophilia In Western Uganda. Joshua Bwambale Received Received
  VLR-05 Rescue immune tolerance induction strategyLow-dose FVIII combining with second round immunosuppressants agent(s) Runhui Wu Received Received
  LBPP-05 Use of immunosuppressives in patients with hemophilia receiving gene therapy: Evidence generation using a mixed-methods approach Alexa Zayadi Received Received
  PO-05 Quality of life of people with hemophilia in Nicaragua: A case series with PROBE survey Ivonne Leyton Received Received
  LR-05 Acquired haemophilia A: a 15-year population based review of incidence rate, patient demographics, and treatment outcomes of Acquired haemophilia A patients in Manitoba, Canada Chantal Tian Received Received
  PP-06 Study design for B-LIEVE, a Phase 1/2 dose-confirmation trial of FLT180a gene therapy for hemophilia B Amie Hedges Received Received
  LR-06 Telehealth and COVID-19 Impact on Patient Satisfaction with US Hemophilia Treatment Centers Virginie L Sirianna Received Received
  LR-06 Cost of Clinical Care for Patients with Severe Hemophilia in Six Low- and Middle-Income Countries Nancy Bolous Received Received
  VLR-06 An exploration of virtual healthcare. How CANHCOR is interacting with patients during a pandemic? Sarah Crymble Received Received
  LBPP-06 Transforming Transition in a Virtual World Clare James Received Received
  PO-06 Burden of menstrual bleeding and use of the pictorial blood assessment chart in Japanese women and girls with inherited bleeding disorders: a validation study Azusa Nagao Received Received
  PP-07 Ultrasound in addition to clinical evaluation changes treatment decisions in persons with hemophilia with acute musculoskeletal complaints Flora van Leeuwen Received Received
  LBPP-07 Cost-effectiveness of Gene Therapy for Persons with Severe Hemophilia A and B (PWsH) in Six Low- and Middle-Income Countries (LMICs) Nancy Bolous Received Received
  LR-07 Research Group on Hemorrhagic Disorders: A Strategy to Educate College Students and People with Coagulopathies Francisco Careta Received Received
  LR-07 Ambitious training of patients, parents and healthcare providers for the design of educational workshops for patients and families living with a rare bleeding disorder. Thomas Sannié Received Received
  PO-07 Treatment and care of individuals with non-severe haemophilia time for improvement Gerry Dolan Received Received
  LR-07 Integration of the Mexican Registry of Coagulopathies (RMC) with PROBE Alexandra Kucher Received Received
  LR-08 Joint Health Status monitoring in Children and Adolescents with Haemophilia using the combination of Clinical, Imaging and Self-assessment methods. Aikaterini Michalopoulou Received Received
  PO-08 Seed training model Hand by hand with hemophilia and willebrand disease: In 5 years, 1689 new professionals committed to our cause. Engels Rolando Reyes Sanchez Received Received
  VLR-08 European Principles of Care for Physiotherapy Provision for People with Bleeding Disorders: Perspectives of Physiotherapists and Patients David Stephensen Received Received
  VLR-08 Assessment of Joint Health Using Point of Care Musculoskeletal Ultrasound (POC-MSKUS) in Female Hemophilia Carriers: The CUP Study-Interim Analysis Rachel Kronenfeld Received Received
  PP-08 Further genotypic elucidation of discrepant hemophilia A Emma Li Received Received
  PO-09 Joint And Functional Status Of Patients Under low dose Secondary/Tertiary Prophylaxis and Physiotherapy A 5 year Experience From A Limited Resource Setting Viswam Dinkar Received Received
  PP-09 An expedition of tolerance and resilience amidst hardships: Experience of a child with factor VII inhibitor ROHINI T Received Received
  VLR-09 Preliminary field study results suggest differences in FIX activity based on assay from gene therapy trial patients expressing R338L high-activity variant of FIX Debra Pittman Received Received
  LR-09 Haemophilic Arthropathy in a Novel Mouse Model of Haemophilia A Aoife Yeow Received Received
  VLR-09 Mutation characteristics of haemophilia A and haemophilia B patients in the National Institute of Haematology and Blood Transfusion, Hanoi, Vietnam. Khanh Q Bach Received Received
  LR-10 Fitusiran Prophylaxis Improves Health-Related Quality of Life in People with Hemophilia A or B without Inhibitors: Results of Phase 3 ATLAS-A/B Randomized Control Trial Kaan Kavakli Received Received
  PP-10 Efficacy of low dose immune tolerance induction (ITI) in Haemophilia A adults with inhibitors May Anne Cheong Received Received
  VLR-10 Epidemiological profile of bleeding disorders population in Tabasco, Mexico. Laura Olán Received Received
  VLR-10 Real-world Persistence with and Adherence to Emicizumab Prophylaxis in People with Hemophilia A Results from Two Secondary Claims Database Analyses Rahul Khairnar Received Received
  PO-11 Health related quality of life In severe Hemophilia A patients prophylaxis versus on demand treatment AJAI THOMAS Received Received
  VLR-11 Management of patients presenting with an elevated Self-Administered Bleeding Assessment Tool (Self-BAT) score or other bleeding symptoms in a primary care setting Katie Yeung Received Received
  VLR-11 Bleeding symptoms in carriers of hemophilia Daniela Neme Received Received
  LR-11 Von Willebrand Disease (VWD) incidence among patients with bleeding manifestations in Egypt - a study cohort from VWD Registry Sonia Adolf Received Received
  PP-11 Real-World Experience with the Use of Emicizumab in Paediatric Haemophilia A Patients With and Without Inhibitors Joyce Ching Mei Lam Received Received
  VLR-12 Improving patient experience and outcomes for women with inherited bleeding disorders Bella Madan Received Received
  VLR-12 The Red Box as a Tool to Provide Practical Help for Women and Girls with Bleeding Disorders During their Period Willie van Greevenbroek Received Received
  PP-12 Short versions of the pedHAL and HAL: validation in Dutch children and adults with haemophilia Isolde Kuijlaars Received Received
  VLR-12 The role of the specialist haemophilia nurses in switching patients to Emicizumab: Experience from a large haemophilia comprehensive care centre (CCC) in the UK Janette Kemp Received Received
  PO-13 Getting Ready for Hemophilia Gene Therapy; Nursing Perspective Mahmoud Abu-Riash Received Received
  PP-13 Advancing Care for Women with Bleeding Disorders - support provided by a female healthcare team. Helena Landa Received Received
  PO-14 Coagulation Factor Levels and Postpartum Blood Loss: Preliminary Results of the Canadian Hemophilia Carriers Study-Postpartum (CHIC-P) Michaela Spence Received Received
  PP-14 MRI evidence of Subclinical Bleeding; preliminary results of the BEGIN-study Flora H van Leeuwen Received Received
  PP-15 Review of long-term efficacy and safety of recombinant factor VIII Fc in individualised prophylactic treatment Cédric Hermans Received Received
  PO-15 Virtual consultation project for patient with Hemophilia. Claudia Raffo Received Received
  PP-16 Fc-fusion technology beyond half-life extension review of potential immunomodulatory and anti-inflammatory effects of rFVIIIFc in haemophilia A Sébastien Lacroix-Desmazes Received Received
  PP-17 Using the World Federation of Hemophilia Gene Therapy Registry for the Long-term Follow-up of Hemophilia Patients Treated with Gene Therapy Mayss Naccache Received Received
  PO-17 Overview of the Mim8 FRONTIER clinical development program Irina Matytsina Received Received
  PO-18 Managing Joint Health in Haemophilia: Perspectives from Patients, Caregivers, and Healthcare Professionals to Create a Patient-Reported Outcome (PRO) Tool for Patients Aged 8 Years and Older Nisa Khan Received Received
  PP-18 Legal advice for hemophilia patients: 12 years of experience Daniel Adolfo Luna Received Received
  PP-19 Estimation of a Recombinant, Humanized, Bi-specific Monoclonal Antibody Plasma Level in Countries Where No Commercial Calibrator is Available German Detarsio Received Received
  PO-19 Hemophilia and Covid-19 infection: real-life experiences Gianluca Sottilotta Received Received
  PP-20 Factor VIII:C measurement by different chromogenic and one stage assays in two Acquired Haemophilia patients treated with recombinant porcine factor VIII. Susan Guy Received Received
  PO-20 Acquired hemophilia A following allogeneic stem cell transplantation for acute lymphoblastic leukemia Kelsey Uminski Received Received
  PP-21 How to assess parallelism in factor assays: CV of results with different dilutions or Slope Ratio? Susan Guy Received Received
  PO-21 Demographics, clinical profile and treatment landscape of patients with Hemophilia B in China Wenhui Zhang Received Received
  PO-22 Point-of-Care Ultrasound Assessment for a Paedaitric Patient with Haemophilic Arthropathy in Joint Haemophilia Clinic Wing-Wai Dr. chan Received Received
  PP-22 Involvement in care decisions and community engagement of people with hemophilia in Europe: Insights from the CHESS II study Hanlu Zhang Received Received
  PP-23 Conducting a Virtual Home Infusion Workshop at the Time of COVID Chiew Ying Lim Received Received
  PO-23 Sexual Health of Persons with Hemophilia Marko Marini&263; Received Received
  PO-24 coagulation factor 8 concentrations required for different activity in children with severe hemophilia A: A single-center clinical study Di Ai Received Received
  PP-24 The Pearls and Perils of Virtual Community Education during the Pandemic Ruthrolen Martinez Received Received
  PP-25 A Quantitative Systems Pharmacology (QSP) Model to Compare the Non-clinical Biodistribution and Efficacy Between Recombinant Factor IX (rIX) Therapies Oliver Ghobrial Received Received
  PO-25 Severe hemophilia A children with severe joint disease need for higher target trough concentrations of preventive therapy: A single-center clinical study Di Ai Received Received
  PO-26 The influence of dead space in blood sampling needle on FVIII level and pharmacokinetic profiles in hemophiliac boys Kun Huang Received Received
  PP-26 Study on demographic, clinical and therapeutic characteristics of hemophilia patients at National Institute of Hematology and Blood transfusion 2019 - 2020 Nguyen Thi Mai Received Received
  PO-27 Substantial reduction of cost of care of PWH by add on homoeopathic medicine reduced the parental anxiety and stress Tapas Kundu Received Received
  PP-27 From collective trauma to singular trauma Trinidad Valente Received Received
  PO-28 The switch from plasma-derived to recombinant Factor VIII concentrates: Experience of the southern Tunisian hemophilia treatment center Olfa Kassar Received Received
  PP-28 New book for families with hemophiliac children: Children with hemophilia: family and school Patricia Cabre Sala Received Received
  PP-29 Quality of Life and Joint Health Changes in Severe Hemophilia A Patients Switching to an Emicizumab Prophylaxis Regimen Alyson Trillo Received Received
  PO-30 Bleeding Outcomes and Musculoskeletal Function after Switching from On-Demand to Intermediate Dose of FVIII as Tertiary Prophylaxis in Severe Hemophilia A Children with Joint Arthropathy: A Case Series Raisa Cecilia Sarita Received Received
  PP-30 Pain Relief With Eptacog Beta in Hemophilia Patients With Inhibitors cedric HERMANS Received Received
  PP-31 Quality of life and outcome improvement in adolescents with bleeding disorders receiving medical management for heavy menstrual bleeding. Kelly Tickle Received Received
  PO-31 Treatment must go on Jae Chung Song Received Received
  PP-32 Quality of life and some related factors of hemophilia patients treated at the National Institute of Hematology and Blood Transfusion in 2020 Nguyen Thi Mai Received Received
  PO-32 Surgical treatment of hemophilic pseudotumors: a case series Agustin Colombo Received Received
  PP-33 Awareness and Education Matters Mohommad Nurul Islam Received Received
  PO-33 Yttrium-90 synovectomy is feasible, safe and effective for chronic hemophilic synovitis in adolescents on secondary prophylaxis in a resource limited setting Nittu Panjikaran Received Received
  PO-34 Iliopsoas bleed : A case series from a Haemophilia treatment centre Shigy Francis Received Received
  PO-35 A comparison of adult to pediatric hemostatic response to emicizumab therapy within the same institution Erika J Martin Received Received
  PO-36 Supporting Patient-Centered Research in China: Planning of the EPOCH Project Elizabeth Clearfield Received Received
  PP-36 General self efficacy in parents of children with haemophilia in Poland. Pawel Laguna Received Received
  PP-37 HeRo Bears Camp - adventure and team building camp for young people with haemophilia. Tudor Bucur Received Received
  PO-37 Natural history of Hepatitis C virus (HCV) infection in Korean hemophilic cohort Hugh Chul Kim Received Received
  PO-38 Capacity building by bringing change by improving access to healthcare and awareness Muhammad Nadeem Zahid Received Received
  PP-38 Digitising Data Collection to Improve Haemophilia Care: Creating a Bespoke, Interdisciplinary Data Management System Richard Davis Received Received
  PO-39 Self-induced myofascial release in patients with hemophilic ankle arthropathy. Rubén Cuesta-Barriuso Received Received
  PP-39 An observational French survey to compare perceived and observed accessibility to therapeutic drugs used for treating patients with inherited bleeding disorders Valérie Chamouard Received Received
  PP-40 Experience of establishing National Hemophilia Helpline in Pakistan Masood F Malik Received Received
  PO-40 Carotid Intima-Media Thickness (cIMT) as a Marker of Subclinical Atherosclerosis in Adolescents with Severe Hemophilia Undergoing a Prophylaxis Regimen Alyson Trillo Received Received
  PO-41 Regular Virtual Meetings Organized by the Hemophilia Society in the COVID-19 Pandemic Bulent Zulfikar Received Received
  PP-41 First nursing intervention guide for patients with coagulation disease Josefina Santillán Received Received
  PO-42 The Adequacy of the ACH Psychological Service during the pandemic SARS CoV-2: Telephone or virtual attention? Silvia Grases Received Received
  PP-42 Platelet- Rich Plasma treatment on chronic synovitis haemophilic patients - ultrasound evaluation Carla Daffunchio Received Received
  PO-43 Management of hemophilia in pandemic of COVID: Experience of the southern Tunisian hemophilia treatment center Olfa Kassar Received Received
  PO-44 What do people with haemophilia (PwH) really need? Patient perspectives on terminology, information channels, and experience to refine communication and the future of haemophilia care in the post-COVID era Danai Krithinidi Received Received
  PO-45 Benefits from the use of Extended Half-Life (EHL) against Standard Half-Life (SHL) coagulation Factors in Total Knee Replacement in Haemophilia patients Anna Kouramba Received Received
  PP-45 Surveillance of State Registry of People with Hemophilia in Kerala Sheena Mathew Received Received
  PO-46 Experience in Surgical Management for Persons with Hemophilia A and with Inhibitors in Western Kenya Carole J Kilach Received Received
  PP-47 Emicizumab Prophylaxis in PWH with Inhibitor and bleeds in a resource limited setting Sheena Mathew Received Received
  PO-47 Why does the Catalan Association of Hemophilia (ACH) offer physiotherapy as one of its programms? Cristian Morte Received Received
  PO-48 Real-World Experience on the Use of rVIII-SingleChain in Patients with Hemophilia A: Interim Results of Safety Data from a Prospective, Non-Interventional Study in Germany and Austria Eleanor Broadberry Received Received
  PP-49 The many opportunities of the WFH twinning program: Experience of the Abidjan-Brussels collaboration Catherine Lambert Received Received
  PO-49 Experience with 10 pediatric patients with hemophilia A and FVIII inhibitors treated with immune tolerance induction (ITI) at Tawam hospital, UAE Muhammad Faisal Yousuf Khanani Received Received
  PO-50 Real-world experience of rIX-FP prophylaxis at dosing intervals of up to 14 days in a pediatric patient with hemophilia B during the COVID-19 pandemic BOLIVAR LUIS DIAZ JORDAN Received Received
  PP-50 Niger, a first evaluation of patients needs by Afath Amadou Djibrilla Received Received
  PO-51 Healthcare Resource Use, Depression, and Anxiety Among Adult Males With Hemophilia B: Observed Differences for Those With and Without Medically Recorded Bleeding Episodes in the United States Margit Rezabek Received Received
  PP-51 Improvement of outcome measures following total joint replacement surgery in severe hemophilic arthropathy of the knee Anna Kouramba Received Received
  PP-52 Aquatic Rehabilitation Program for patients with Hemophilia submitted to Total Joint Arthroplasty. Glenda Feldberg Received Received
  PO-52 Identification of the Intron 1 and Intron 22 Inversions of the Factor VIII Gene in patients with severe Hemophilia A in Uruguay Yasser Vega Received Received
  PP-53 Learn through what you go though HTC Aluva model home therapy in hemophilia Syamraj Santhappan Received Received
  PO-53 Clinical Application of Extended Half-Life Pegylated Factor VIII in Ten Children with Haemophilia A Athina Dettoraki Received Received
  PP-54 Afath webinars: illustration of partnership in care model Thomas Sannié Received Received
  PP-55 Virtual healthcare during a Global Pandemic: Patient Perspectives Sarah Crymble Received Received
  PO-56 Antifragility within fragility. Women & hemophilia. Bernadetta Pieczy&324;ska Received Received
  PP-56 Self-Reported Migraine in Subjects with von Willebrand Disease Corey MacGregor Received Received
  PO-57 The Least Expected Guest: Acute Compartment Syndrome in Haemophilia A.Patricia Nally Received Received
  PP-57 Awareness campaign for women and girls with rare constitutional bleeding disorders (WGBD) Women bleed too a new way of communication Yannick Collé Received Received
  PP-58 Formation of national member organization (NMO) and consolidation of centralized patients data for efficient treatment in Pakistan Muhammad Nadeem Zahid Received Received
  PO-58 How to conduct effective online training in NMOs: tips that work Juan Andrés Pereira de Souza Received Received
  PO-59 Implementing Culturally-Appropriate translations of the Self-BAT to increase awareness of the prevalence of Bleeding Disorders in India Implementing Culturally-Appropriate translations of the Self-BAT to increase awareness of the prevalence of Bleeding Di Hiral Thakkar Received Received
  PP-59 Examining preferences for gene therapy treatment in haemophilia: attribute elicitation for a discrete choice experiment Shahid Malik Received Received
  PO-60 Physiotherapeutic evaluation of joint health of hemophiliac patients through HJHS, referred to radioactive synovectomy, in Brazil. Fernando Eduardo Zikan Received Received
  PP-60 Feasibility of integrating PROBE (Patient Reported Outcomes, Burdens and Experiences) into a clinical care pathway to facilitate transformation to a Value-Based Health Care Model in hemophilia. Federico Germini Received Received
  PP-61 Prevalence and characteristics of non-neutralizing FVIII-specific antibodies in persons with hemophilia A preliminary results Ilja Oomen Received Received
  PO-61 Physiotherapy, Hemophilia and International Classification of Functionality (ICF) - WE HAVE EVIDENCE? Fernando Eduardo Zikan Received Received
  PP-62 Diagnosis Recognition Associated with Comprehensive Management Program Adherence in Hemophilia Patients in Colombia Mario M Barbosa-Rengifo Received Received
  PO-62 Inter-individual variability in pharmacokinetics and clinical features in pediatric patients with severe hemophilia A Kun Huang Received Received
  PO-63 A real-world data of Children hemophilia A with inhibitors conducting low-dose ITI strategy in China Zhengping LI Received Received
  PP-63 COVID-19 experience with inherited bleeding disorders similar to the country population Basak Koc Received Received
  PP-64 Impact of Emicizumab on Annualized Bleeding Rates in Persons with Hemophilia A in Western Kenya Carole J Kilach Received Received
  PO-64 On Mountain Trails - psycho-physical-educational project to change mentalities of stakeholders in haemophilia and other rare bleeding disorders Valentin Brabete Received Received
  PO-65 F8 Gene Mutation Profile of Chinese Hemophilia A Children with Inhibitors: A Large-cohort Data Analysis from A Single Center of China Jie Sun Received Received
  PO-66 The Prevalence and Risk Factors for Inhibitor Development in Patients with Hemophilia A in Northern Pakistan. Tahira Zafar Received Received
  PP-67 Comprehensive distance treatment focused on physical rehabilitation in patients with hemophilia in Mexico Cecilia Gallardo Pérez Received Received
  PO-67 Mental Health Of Patient With Bleeding Disorder Ms. Midhat Khalid Received Received
  PO-68 The effect of a LDP regimen on bleeding episodes and development of inhibitors in patients with Hemophilia A. Tahira Zafar Received Received
  PP-68 Use of emicizumab in Venezuelan hemophilia A patients: preliminary report Apsara Boadas Received Received
  PO-69 Implementation of an institutional quality management project in the Hemophilia Foundation of Salta Maria Sol cruz Received Received
  PP-69 Haemophilia in the Central and Northern Regions of Malawi an Epidemiological Study Loviisa Mulanje Received Received
  PP-70 Project Phoenix: the need for sharing experience in bleeding disorder care Sandra Dodgson Received Received
  PO-70 Aspects of social reality of patients with hemophilia in Salta Province maría sol cruz Received Received
  PO-71 Health-related quality of life among adults with hemophilia China:A cross-sectional survey Wenhui Zhang Received Received
  PP-71 Clot Waveform Analysis In Patients With Hemophilia A Malek Terras Received Received
  PP-72 PROBE Results Show Continued Burden of Disease in Canadians with Hemophilia A and B David Page Received Received
  PO-72 Two Decades Diagnosing Acquired Inhibitors in a Tertiary Centre: Changing Over Time? Sofia Teixeira Received Received
  PP-73 Long term follow up of low dose prophylaxis in Tunisian patients with hemophilia Rabeb Jaied Received Received
  PO-73 Vitamin D insufficiency and its relation with bone mineral density in children with hemophilia A. Samantha Fierro Sáenz Received Received
  PP-74 Pain and quality of life in Mexican pediatric patients Maricela Osorio Guzmán Received Received
  PO-74 Review of eleven-year examination of patients with severe hemophilia that present intracranial hemorrhage JUAN PABLO Ortíz Received Received
  PO-75 Assessment Of Intron-22 Inversion Mutation And Phenotypic Variation In Plasma Levels Of Factor VIII In Person With Haemophilia A In South East Nigeria Theresa Nwagha Received Received
  PP-75 Changing Community Needs for Those with a Bleeding Disorder in Poland Elizabeth Clearfield Received Received
  PP-76 A Retrospective Analysis of the Management of Iliopsoas Haematomas in Persons with Haemophilia David Stephensen Received Received
  PO-76 Experience related to the use of digital tools for virtual communication implemented by the Hemophilia Foundation of Salta in times of Covid-19 pandemic. Josefina Santillán Received Received
  PO-77 Hemophilic elbow arthropathy and upper limb functionality in patients treated with extended half-life clotting factor. An observational study. Rubén Cuesta-Barriuso Received Received
  PP-77 Does the Use of an Online Screening Tool affect Referral Outcomes? Preliminary Results of the Lets Talk Period Project Julie Grabell Received Received
  PO-78 Musculoskeletal status of lower limbs in patients with prophylactic treatment using extended half-life clotting factor Rubén Cuesta-Barriuso Received Received
  PP-78 Comparison of Change in Number of Identified People With Hemophilia A and Factor VIII Use Per Patient Over Time Ellia Tootoonchian Received Received
  PP-79 Conceptualization and Development of Quality of Life Scale for PWH Living in India Richa Mohan Received Received
  PO-79 VWD Connect Foundation U.S. Severe Von Willebrand Disease Patient Registry Jeanette Cesta Received Received
  PP-80 Monitoring Emicizumab-data from a World Federation of Haemophilia International External Quality Assessment Scheme exercise. Christopher Reilly-Stitt Received Received
  PO-80 Clinical and laboratory characteristics of patients with isolated factor VII deficiency at the National Institute of Hematology - Blood Transfusion Nguyen Thi Mai Received Received
  PO-81 Hemophilic knee arthropathy. Is self-induced myofascial release an effective therapeutic option? Rubén Cuesta-Barriuso Received Received
  PP-81 Reaching Undiagnosed Women and Girls: Outcomes from 5 Years of the Better You Know Outreach Campaign Dawn Rotellini Received Received
  PP-82 Challenges and Knowledge Gaps facing Hemophilia Carriers: Perspectives from Patients and Healthcare Providers Monique Botros Received Received
  PO-82 Risk factor to dental caries by Cambra in a pediatric bleeding disorders population. Laura B Isidro-Olán Received Received
  PO-83 First on-line dentistry training for the treatment of patients with hemophilia and von Willebrand. Laura Forzani Received Received
  PP-83 Diagnosis of von Willebrand disease and its relationship with bleeding disorders. Ecuador Case Marcela A Mardones Received Received
  PP-84 Evaluation of an automated von Willebrand Factor Activity Assay without ristocetin Amine Sfaxi Received Received
  PO-84 Conference on dental surgery in patients with bleeding disorder of Salta Province Laura Forzani Received Received
  PO-85 Sports in hemophilic patients, expectation versus reality gabriela Sliba Received Received
  PP-85 Re-revision surgery after total knee arthroplasty in haemophilic patients: a multidisciplinary challenging case series Gianluigi Pasta Received Received
  PO-86 Multidisciplinary Work Team: Comprehensive Care of Haemophilia A.Patricia Nally Received Received
  PP-86 The ex vivo effects of varying factor VIII concentrations on clot formation and structure in Haemophilia A patients Joachim Potgieter Received Received
  PO-87 Arnica Montana: three years of therapeutic experience in patients with bleeding diseases Maria del Valle Bertoni Received Received
  PP-87 Bleeding in Hemophilia Carriers : Tunisian Center Experience Eya Drissi Received Received
  PO-89 Efficacy and safety characteristics of emicizumab in the prevention of bleeding in patients with hemophilia A with inhibitors Nguyen Thi Mai Received Received
  PO-90 Evaluation of the effectiveness of emicizumab in preventing bleeding and safety in patients with hemophilia A without inhibitors Nguyen Thi Mai Received Received
  PO-91 The use of clinical hypnosis on the psychological impact of hemophilia in the family Jonathan Giovani Navarro Sanchez Received Received
  PO-92 Being present with the families as soon as the diagnosis is announced Yannick Collé Received Received
  PO-93 The latest news of bleeding disorders in Korean at a glance Tai-il Kim Received Received
  PO-98 Hemophilia in Palestine:Reality and Chalenges Osama Najjar Received Received
  PO-99 Trends in Product Use since Approval of Novel Therapies at a Paediatric Haemophilia Treatment Center Nur Insyirah Abdul Kadir Received Received
  PO-100 Perioperative management in non-severe hemophilia patients Carmen Rodríguez Lefler Received Received
  PO-102 Address the needs of women and girls with rare congenital bleeding disorder (WGBD): an unprecedented partnership between 20 specialized healthcare professionals (HCP) and the womens committee to publish an informative brochure. Yannick Collé Received Received
  PO-104 Lower dose prophylaxis and home therapy A 5 Year real-world experience from Hemophilia Treatment Centre, Aluva in a resource-limited setting Syamraj Santhappan Received Received
  PO-106 Incidence of articular osteophytes of the ankle in PWH with symptomatic joint Horacio Caviglia Received Received
  PO-108 Impact of moderate/severe Haemophilia A on German patients daily activities Vanessa Kratzer Received Received
  PO-109 Accquired vs Inherited haemophilia A 3 year coagulation work up based review in a single south Indian centre Bitty Kurian Received Received
  PO-111 Current Joints Condition of Patients with Haemophilia in Hong Kong Henry Hon-Wai Lam Received Received
  PO-112 Good laboratory communication: A cost effective networking model for patient management in coagulation laboratory Bitty Kurian Received Received
  PO-113 Dose optimisation of routine prophylaxis with rIX-FP to improve bleeding control and convenience in hemophilia B Cathy Farrelly Received Received
  PO-114 How did patients with a rare bleeding disorder organise their own care during the Covid-19 crisis? Nicolas Giraud Received Received
  PO-115 Platelet-Rich Plasma: 5 years of practice María E Landro Received Received
  PO-117 Inhibitor Testings An Analysis in HTC with limited resource setting Meena Beebi Received Received
  PO-118 coreHEM Mental Health PROM Development: Updating the Conceptual Framework as a Step in Content Validation Elizabeth Clearfield Received Received
  PO-119 Restrictions in daily life among adults with severe haemophilia in Europe: CHESS II dataset analysis Shahid Malik Received Received
  PO-120 The AFH en route for the Jacques Vabre Transatlantic yachting race thanks to Clara Fortin Yannick Collé Received Received
  PO-121 Homemade Adaptive Device Ensures Successful Medication Delivery Mary Jane Frey Received Received
  PO-123 Cost-analysis in people who have moderate-to-severe hemophilia A with and without inhibitor in Thailand: How to manage in a limited-resource country Rungrote Natesirinilkul Received Received
  PO-124 Impact of the pandemic on the continuity of the educational process of persons with hemophilia in a middle-income country Laura I Páez Briseńo Received Received
  PO-125 European accreditation of haemophilia treatment and gene therapy centres Ana Boban Received Received
  PO-126 Combined Hindfoot Endoscopy and Ankle Arthroscopy Improves Patient Reported Outcomes in the Treatment of Hemophilic Involvement Semih Aydogdu Received Received
  PO-127 Therapeutic adherence in hemophilia, linguistic adaptation of the Veritas-pro in Mexican population Carlos Prado Romero Received Received
  PO-128 Developing a genetic counselling outreach program for PWBD in South Africa Julie Malan Received Received
  PO-129 Plasminogen Deficiency; 12 Cases in one center in Turkey Canan Albayrak Received Received
  PO-131 Clinical status evaluation of hemophilia A patients with and without inhibitor Tatsiana Talako Received Received
  PO-132 Congenital Fibrinogen Deficiency In A Portuguese Haemophilia Center Diagnosis; Clinical Manifestations And Management Of Bleeding And Surgeries Carolina Peixoto Received Received
  PO-133 Successful treatment of acquired hemophilia A in patients with hematological malignancy, autoimmune disease and pregnancy-associated: A case series Katsiarina Kabayeva Received Received
  PO-134 The Influence of the Coronavirus Pandemic on the Perceived Mental Health of Persons with Inherited Bleeding Disorders and their Parents/Guardians An International Comparison Sylvia von Mackensen Received Received
  PO-135 Recurrent thrombosis associated with increased level of von Willebrand factor: A case report Tatsiana Talako Received Received
  PO-136 Twinning during the pandemic: pure loss, or some gains? Philip Kuriakose Received Received
  PO-138 Prophylaxis in Women with von Willebrand disease. Experience in a center in Colombia Claudia Casas Received Received
  PO-139 Successful management of intracranial bleeding in hemophilia b children with suspected inhibitor F IX Ganda Ilmana Received Received
  PO-140 Factor VIII level comparison in patients with severe hemophilia A on emicizumab with inhibitors with one stage, bovine and human chromogenic assays and the factor VIII equivalency of emicizumab using in vivo global hemostasis assays Hande Kizilocak Received Received
  PO-141 Arthrodesis or Arthroplasty for the Treatment of End-Stage Hemophilic Ankle Arthropathy: A Systematic Review Margareth Ozelo Received Received
  PO-142 Vaginal Blood Loss: A patient- and trainee-centered mixed-methods research program Fartoon Siad Received Received
  PO-143 Acquired hemophilia in association with the Covid-19 vaccine Petr Dulí&269;ek Received Received
  PO-144 Characteristics of visceral hemorrhages in patients with hemophilia in southern Tunisia maha charfi Received Received
  PO-145 eSanjeevani, a National Tele consultation service benefited to hemophilia patients for home therapy of factor infusions during covid pandemic -A real world experience from HTC Aluva Syamraj Santhappan Received Received
  PO-146 The Effect of Manual Therapy in People with Hemophilia with Ankle Arthropathy Andressa Ornelas Received Received
  PO-148 Prevalence of Obesity in the Hemophilic Population in Tunisia Mariem Ghazouani Received Received
  PO-150 Treatment Of Severe Hemorrhagic Syndrome In JBS Thrombopathy. Cherif hosni Aicha Received Received
  PO-151 Evaluation of adherence, quality of life, bleeding events, and joints status of patients with hemophilia A and inhibitor trated with Emicizumab. Experience of a specialized center in Argentina. Mauro Davoli Received Received
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WFH 2022 World Congress

 

May 8-11 2022 Montreal
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