WORLD FEDERATION OF HEMOPHILIA

WFH 2026 World Congress

 

April 19-22, 2026 Kuala Lumpur
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  MP-2 VGA039, a protein S-targeted monoclonal antibody, promotes in-vitro thrombin generation in plasma samples from subjects across a broad range of bleeding disorders, including von Willebrand disease, Hemophilia A, Hemophilia B and Hemophilia C Kristen Jaworski Received Received
  PP-003 Elucidating Pseudotumor Pathogenesis in Coagulation Disorders Through Combined Clinico-pathological and Genomic Approaches Mariya Tomy Received Received
  PP-004 Von Willebrand Disease in Tunisia: Insights from a 39-Year Bicentric Cohort Meriem Achour Received Received
  PP-007 Analysis of aPTT-Based Clot Reaction Curve in Patients With Haemophilia A, Acquired Haemophilia A and Lupus Anticoagulant – a Single Tertiary Hospital Experience Lean Theng Ewe Received Received
  PP-8 The Spectrum of the Factor 8 (f8) Defects in 106 Children with Haemophilia A (HA) living in Greece: a Single Centre Experience Athina Dettoraki Received Received
  PP-010 The Hematocrit Factor: Adjusting anticoagulants for accurate coagulation analysis Maliha Sumbul Received Received
  PP-012 Acquired Hemophilia A: Monocentric Experience of a Tunisian Center Ghassen Saidi Received Received
  PO-014 Effects of human placenta hydrolysate and thymosin alpha 1 on blood coagulation parameters in patients with hemophilia A: An ex vivo study Ki Young Yoo Received Received
  MP-016 The DivulgHEMOs Project: Advancing Hemophilia Literacy for Laypeople, Patients, and Their Families Through Social Media Ricardo Mesquita Camelo Received Received
  MP-17 Capacity building of patients to report their bleeds & treatment data through myWBDR Hamza Qureshi Received Received
  PP-018 The World Federation of Hemophilia Strategic Plan 2026–2030 Alain Baumann Received Received
  PP-019 Turning Data Into Voice: Regional Advocacy Priorities for Bleeding Disorders in the Eastern Mediterranean Region Donna Coffin Received Received
  PP-022 Evaluating the Impact of WFH Programs on Clinical & Health Care Outcomes in Pakistan: A Case Study Donna Coffin Received Received
  PO-024 From Vision to Action: National Bleeding Disorders Foundation´s Roadmap for Achieving Health Equity, Diversity, and Inclusion LEONARD VALENTINO Received Received
  PP-025 Building Organizational Resilience to Serve Bleeding Disorder Communities Deon York Received Received
  PP-27 Digital Advocacy, Legal Literacy, and Holistic Wellness: An African Hemophilia Youth Multi-Pillar Empowerment Model for Health Equity. Pius opalakadi Received Received
  MP-028 Structuring and Directing a Campaign for the Incorporation of Emicizumab for Children with Hemophilia A in Brazil Mariana Battazza Received Received
  PP-029 Establishing a National Hemophilia Helpline to Strengthen Information Access and Community Support in Pakistan Masood Fareed Malik Received Received
  PP-030 Developing a Psychosocial Toolkit for People Living with Bleeding Disorder in India. Richa Mohan Received Received
  PP-34 Fifty years of the Catalan Hemophilia Association: from advocacy to a comprehensive model of hemophilia care and psychosocial support Patricia Cabré Received Received
  FP-034 The body speaks before the child: Subjective constitution in children with hemophilia Veronica Cerutti Received Received
  PP-035 Development of a therapeutic education program on heavy menstrual bleedings (HMB) across all type of congenital bleeding disorders Caroline ARTU DUMONT Received Received
  PP-038 HTC Achievements Ghazala Manzoor Received Received
  PP-039 Experience and Challenges in Establishing a Community-Based NGO for Hemophilia Support in Pakistan Muhammad Amar Muhammad Amar Received Received
  PO-041 Empowering Bleeding Disorder in Balochistan Advocacy, Awareness and Treatment Access Ghazala Manzoor Received Received
  PO-043 Promoting Transparent Practices in the World Federation of Hemophilia´s Humanitarian Aid Program Masood Fareed Malik Received Received
  PO-044 Strengthening Community Capacity Through Youth-Led Volunteer Activities: A Case Study from Korea Kanghoon Jeong Received Received
  PO-045 Establishing the First Public-Sector Hemophilia Treatment Centre in Pakistan: A Model for Sustainable, Comprehensive Care Masood Fareed Malik Received Received
  PO-047 Improving Rural Outreach and Access to Care for People with Bleeding Disorders in Pakistan: Lessons from a Community-Based Initiative Muhammad Amar Muhammad Amar Received Received
  PO-049 Educational information for professionals at health, people with hemophilia and primary caregivers. Laura Irene Páez Briseño Received Received
  PO-050 Empowering Patients Through Awareness and Education in Bleeding Disorders: A Community-Led Approach from Pakistan Muhammad Amar Muhammad Amar Received Received
  PO-052 A STRUCTURED PATHWAY TO SUPPORT PATIENT-HEALTHCARE PROFESSIONAL PARTNERSHIP IN THERAPEUTIC PATIENT EDUCATION FOR RARE BLEEDING DISORDERS Caroline ARTU DUMONT Received Received
  PO-053 Navigating Youth Inclusion Within the Board Committee of the Hemophilia Society of Malaysia Amierul Hakimie Luqman bin Yusli Received Received
  MP-054 Assessment of Comprehensive Care for Bleeding Disorders: Insights from 10 years of Annual Global Survey data Ellia Tootoonchian Received Received
  MP-055 Advancing Shared Decision-Making in Hemophilia: Development and Contextualization of Consensus-Based Best Practice Statements Donna Coffin Received Received
  MP-058 Improving Care for Hemophilia and Other Bleeding Disorders Through Comprehensive Clinics: Perspectives from a Low-Resource Set-Up ALEX GACHOYA Received Received
  PP-059 Patient-centred Summary: Evaluating Outcomes and Follow-up Across All Severities of Haemophilia Liz Beatty Received Received
  PP-060 Addressing Stigma in Hemophilia Management: Insights from Two Tertiary Hospitals in a Low-Income Country Abu Yousuf Md Nazim Uddin Received Received
  PP-062 Synergies for Patients: A Domiciliary Delivery Program of Coagulation Factors for Hemophilia Patients in a Middle-Income Country´s Social Security Health System Marilyn Mendoza Received Received
  MP-63 Obstacles and Limitations of Care in Adolescents and Young Adults with Hemophilia Nongnuch Sirachainan Received Received
  PP-064 Humanitarian Support of the World Federation of Hemophilia: Advancing Care and Quality of Life for Individuals with Bleeding Disorders in Pakistan Masood Fareed Malik Received Received
  PP-065 Navigating the Transfer of Care in Rare Bleeding Disorders: Experiences and Needs from Adolescents and Young Adults, their Caregivers and Healthcare Providers Greta Mulders Received Received
  PP-066 From Regional Hospitals to Local Pharmacies: Evaluating Ten Years of Changes in Coagulation Factor Delivery in Estonia Martin Kaal Received Received
  PP-067 Clinical Impact of Immediate Versus Delayed Factor Replacement in the Management of Hemophilic Bleeding Episode Usama Grewal Received Received
  PP-068 Plain Language Summary: What is Extravascular Distribution of Factor IX and how does it Affect Management of Those with Haemophilia B? Liz Beatty Received Received
  PP-69 Evaluating The Effectiveness Of The Self-Bat screening Tool In Improving Early Diagnosis In A Tertiary Hospital Abu Yousuf Md Nazim Uddin Received Received
  PP-071 Tattoos: A global bleeding disorders survey Cathy Harrison Received Received
  PO-077 Advancing Evidence-Based Care: 2025–2026 Update of the WFH Living Guidelines for the Management of Hemophilia, Prophylaxis and Hemostatic Agents Donna Coffin Received Received
  PO-80 Mild Matters: A Survey of US Hematologists on the Diagnosis and Management of Individuals with Mild Hemophilia Ming Yeong Lim Received Received
  PO-082 Improving Diagnosis of Hemophilia by Use of Pedigree and Contact Tracing in Western Kenya Nancy Midiwo Received Received
  PO-083 Mindset and attitudes towards people with hemophilia A after the introduction of emicizumab prophylaxis: impressions of the biopsychosocial support team Ricardo Mesquita Camelo Received Received
  PP-084 Results from the IMPROVE project: Complex Co-inheritance of VWD Type 2N, VWD Type 1, and Mild Haemophilia A in a Large Multigenerational Family – Diagnostic and Therapeutic Implications Anna Pavlova Received Received
  PP-085 Sixth Interim Analysis of the HEM-POWR Study: Real-World Effectiveness and Safety of Damoctocog Alfa Pegol in Patients With Severe and Nonsevere Hemophilia A Amanda Ward Received Received
  PP-086 Sixth Interim Analysis of the Real-World HEM-POWR Study: Surgical Hemostasis With Damoctocog Alfa Pegol in Patients With Hemophilia A Amanda Ward Received Received
  PP-087 Galician multicenter clinical experience with emicizumab in patients with severe hemophilia a: a real-world analysis Rebeca Guzmán Received Received
  PP-088 Replacement Therapy Around Percutaneous Coronary Intervention and the Subsequent Dual Aantiplatelet Therapy Period in Hepatitis C Virus and Human Immunodeficiency Virus coinfected Hemophiliacs Haruka Uemura Received Received
  PP-090 Bridging the Gap: A Systematic Review of Modern Hemophilia Therapies and Global Inequities in Clinical Trial Participation Nadiya Nurul Afifah Received Received
  PO-092 Bleeding Complications Following Wisdom Tooth Removal for Patients with Haemophilia and von Willebrand Disease Managed Using a Tranexamic Acid Protocol Mathew Lim Received Received
  PP-093 Emicizumab Prophylaxis in Children with Hemophilia A without Inhibitors: the Brazilian Experience Ricardo Mesquita Camelo Received Received
  PP-095 Real-World Effectiveness, Safety, and Quality-of-Life Outcomes of Lonoctocog Alfa in Thai Paediatric Previously Treated Patients with Severe Haemophilia A: A Case Series Nongnuch Sirachainan Received Received
  PO-096 Physical Activity and Bleed Prevention for People With Severe Haemophilia A Treated With Once-Weekly Efanesoctocog Alfa: A Plain-Language Summary of 12-Month Interim Results From the FREEDOM Study Nadia Gonnermann Received Received
  PO-97 Exploratory Analysis from HAVEN 1–4 to Further Contextualise Injection-Site Reactions Among People with Haemophilia A Receiving Emicizumab Helen Miller Received Received
  PO-098 Bringing American Thrombosis and Hemostasis Network (ATHN) Research Opportunities to Patient-Facing Conferences: The One Drop Experience Shelby Domino Received Received
  PO-099 Adult and adolescent hemophilia patients treated with MarstacimaB: a patient Experience Registry (AMBER) and Real-World Assessment of Treatment Burden and Patient Preferences Mankai Ju Received Received
  PP-102 Therapy Adjustment in Patients with Coagulation Disorders and Myeloproliferative Neoplasms Maria Teresa Alvarez Roman Received Received
  PP-104 Prevalence of Overweight and Obesity in Hemophilia: Evidence From a Real-World Cohort in Córdoba Monica Martinez Received Received
  PO-106 BODY MASS INDEX (BMI) IN TUNISIAN PATIENTS WITH HEMOPHILIA: INSIGHTS FROM THE World Bleeding Disorder Registry (WBDR) Ons Ghali Received Received
  MP-107 The WFH Gene Therapy Registry: Early Implementation Experience and Global Collaboration Mayss Naccache Received Received
  PP-108 Universal Clinical Intelligence & Psychosocial Network: A Scalable Generalist Digital Health Ecosystem for Complex Chronic Disease Management Ronald Mahomane Received Received
  PP-109 Impact of the Socioeconomic Status of the Patient on the Management of Hemophilia A Usama Grewal Received Received
  PP-110 Public Assistance for People with Hemophilia in Brazil (PATCH) Survey: Outcome Assessment across the Brazilian Hemophilia Treatment Centers Ricardo Mesquita Camelo Received Received
  PP-111 Management of hemophilia in developping countriesThe Moroccan experience Mohamed El khorassani Received Received
  PP-112 Development of a National Web-Based Patient Registry as a Tool for Strengthening Care, Data Quality, and Health Advocacy in Pakistan Masood Fareed Malik Received Received
  PP-113 Breakthrough Bleeds Among People With Severe Hemophilia on Prophylaxis Therapy at a Tertiary Centre Suhaila Sukiman Received Received
  PP-114 Growth in use of myWBDR in Tunisia Kaouther Zahra Received Received
  PP-116 USE OF WBDR MONITORING HJHS FOR PATIENTS WITH HEMOPHILIA Kaouther Zahra Received Received
  PO-117 Public Assistance for People with Hemophilia in Brazil (PATCH) Survey: Inhibitor Screening and Diagnosis, and Immune Tolerance Induction Ricardo Mesquita Camelo Received Received
  PO-118 Public Assistance for People with Hemophilia in Brazil (PATCH) Survey: Patient Profiles, Interdisciplinary Team, and Treatment Support across the Brazilian Hemophilia Treatment Centers Ricardo Mesquita Camelo Received Received
  PO-120 Hemophilia Patient Journey study in China Linguo Li Received Received
  PP-125 Understanding Gene Editing in Hemophilia: A New WFH Education Initiative Mayss Naccache Received Received
  MP-128 The Iron Triangle of Cure: A Quantitative Risk Framework (PD, LGD, CVaR) for Securitizing Gene Therapy Supply Chains in Emerging Markets Ronald Mahomane Received Received
  PP-129 Actual Impact of Overweight and Obesity on Coagulation Factor Consumption and Healthcare Costs in Patients with Haemophilia Hossein Motahari Received Received
  PP-130 DivulgHEMOs Project: An Educational Initiative to Improve Hemophilia Knowledge in Infrequent Healthcare Providers Ricardo Mesquita Camelo Received Received
  PP-133 Establishment of Hemophilia Welfare Society Balochistan Ghazala Manzoor Received Received
  PP-135 The Holistic Health Potential Metric: A Novel Composite Measure Integrating Biomedical, Social, and Systemic Determinants Ronald Mahomane Received Received
  MP-137 Changes in hypertrophic synovium status in adult patients with severe HA receiving emicizumab prophylaxis Ilenia Calcaterra Received Received
  MP-138 Research and Single–Center Validation of a Convolutional Neural Network–Based Ultrasound Assessment Model for Hemophilic Arthropathy Jun Li Received Received
  PP-140 Comparison of Point-of-Care Ultrasonography (POCUS) With Magnetic Resonance Imaging (MRI) in Assessment of Joints in Hemophilic Arthropathy Praveen Kumar Received Received
  PP-141 Protecting Joints from the Start: Point-of-Care Ultrasound Evidence Supporting Primary Prophylaxis in Hemophilia Mauro Dyntino Received Received
  PP-142 Comprehensive musculoskeletal evaluation in hemophilia: Relationship between arthropathy and tendinopathy using HEAD-US and THD-US methods ALVARO AUGUSTO VARGAS CARO Received Received
  PP-143 Musculoskeletal Ultrasound for Joint Monitoring in Patients with Hemophilia: a Longitudinal Study Henry Hon Wai Lam Received Received
  PO-147 Spontaneous Retroperitoneal And Psoas Muscle Hematoma, With Abscess And Calcification, In Severe Hemophilia A: Challenges In The Context Of Limited Resources Etelvina de Jesus Elija Received Received
  MP-148 Diverse B-cell Responses to FVIII in Persons with Severe Hemophilia A SHANNON MEEKS Received Received
  PP-150 Inhibitors in Haemophilia A & B: UK Lived Experiences Across Life Stages Ranjit Nagra Received Received
  PP-153 Genetic and Clinical Characteristics of Haemophilia A Patients with Factor VIII Inhibitors Kee Tat Lee Received Received
  PP-154 Clinical Characteristics of Factor VIII Inhibitor Development in Children with Hemophilia A in Indonesia: Experience from a Low- and Middle-Income Country Purnamasari Natsir Putri Received Received
  PP-155 Drastic Bleed Reduction With Adjunctive Emicizumab in Immune Tolerance Induction-Refractory Haemophilia A and High-Risk Genetics: A Clinical Management Strategy Wan Alia Amalina Binti Adenan Received Received
  PP-156 Factor VIII inhibitor detection by bovine based chromogenic Nijmegan- Bethesda assay – Experience from a Specialised Coagulation Laboratory Sitalakshmi Subramanian Received Received
  PP-157 Spectrum of F8 Gene Variants in Haemophilia A Patients With Inhibitor Development Nursaedah Abdullah Aziz Received Received
  PP-158 Prevalence of Inhibitor Development in Malagasy Patients with Hemophilia: A Prospective Study Toong Youttananukorn Received Received
  PP-159 Modifiable and non-modifiable risk factors for inhibitor development in previously untreated patients with haemophilia A controlled in Venezuela National Hemophilia Center Apsara Boadas Received Received
  PO-161 Acute Compartment Syndrome in a Haemophilia A Patient With Inhibitors: A Case Report Marwa N. Soramairy Received Received
  PO-162 Hemophilia A Inhibitors in Sousse, Tunisia: First Local Insights, Diagnostic Barriers, and Management Outcomes Ghassen Saidi Received Received
  PO-163 Inhibitor testing in Hemophilia our experience at HTC from a govt. facility in North India Savitri Singh Received Received
  PO-164 Organized Gluteal Hematoma in Hemophilia A Patient with Factor VIII Inhibitors Treated with On-Demand Therapy Salih Aksu Received Received
  PO-165 Inhibitors in Hemophilia: A Challenging Complication Maha charfi Received Received
  MP-168 Utilising Thromboelastography for Predicting Bleed Risk in Patients with Mild Haemophilia A and Factor VIII Discrepant Assays Stephanie Wong Received Received
  MP-169 Long-Term Evaluation of External Quality Assessment Results for Factor VIII Claudia van Rijn Received Received
  MP-170 Bridging the Assay Gap: One more reagent for Accurate Measurement of Efanesoctocog Alfa Angelo Claudio Molinari Received Received
  PP-171 Long-term performance of Factor VIII inhibitor testing by laboratories participating in the ECAT External Quality Assessment Programme Piet Meijer Received Received
  PP-172 Long-Term Performance of Factor VIII by Laboratories of the Italian Haemophilia Centers. Claudia van Rijn Received Received
  PP-173 Strategies to correct FVIII interference on emicizumab plasma levels RODOLFO SUELDO Received Received
  PP-174 Long-term performance of Factor VIII inhibitor testing by laboratories of Italian Hemophilia Centers Piet Meijer Received Received
  PP-176 Performance Evaluation of a One-Stage Clotting Assay for Monitoring Efanesoctocog Alfa Activity: Insights from the ECAT 2024 Survey Marika Pikta Received Received
  PP-177 Improving Hematology Lab Results: Detecting Preanalytical Errors through Quality Metrics Noorulain Fareed Received Received
  PP-180 Challenges in Laboratory Assessment of Hemophilia A Patients on Emicizumab Undergoing Surgery: A Single-Center Experience from South India Bitty Kurian Received Received
  PP-181 Critical Value Matters: A Study of Critical Value Identification and Notification to clinicians in the hematology section of the Pathology Laboratory at a Tertiary Care Hospital Noorulain Fareed Received Received
  PP-182 Molecular Diagnosis of Unresolved Congenital Coagulopathies: Beyond Routine Testing Francisco Vidal Received Received
  PO-184 Efanesoctocog alfa Measurement Using Reagent Substitutions and Determining its In Vitro Temperature Stability Geoffrey Kershaw Received Received
  PP-185 Transferrin Receptor 1 as a Novel Therapeutic Target for Hemophilic Synovitis Tsunemasa Kita Received Received
  MP-186 FVIII Expression Via Non-viral Vector DNA Medicine Platform Results in Efficacious Levels of FVIII Protein and Correction of the Bleeding Phenotype in Hemophilia A Mice Stefani Slog Received Received
  PP-189 Thrombotic Events in Adult Patients With Severe Hemophilia on Emicizumab: Results of a National Study Predrag Miljic Received Received
  PP-190 Real-World Effectiveness and Safety of Emicizumab in a Cohort of 39 Pediatric Patients with Hemophilia A in Balochistan, Pakistan Mohammad Qayyam Khan Received Received
  PP-192 Advocacy on the Impact of Emicizumab on Young Lives in Mauritius Janaki Sonoo Received Received
  PP-193 THE ROLE OF EMICIZUMAB IN HEMOPHILIA PATIENTS WITH ANTI-FVIII INHIBITORS A REPORT OF 5 CASES : Mohamed El khorassani Received Received
  MP-195 Nursing Practice in the Era of Emicizumab: Five-Year Surgical Experience at the Queensland Haemophilia Centre Alexandra Klever Received Received
  PP-196 Challenges in Maintaining Employment for Hemophilia Survivors in Their forties Infected with HIV Through Blood Products and Implications for Nursing Support Miwa Ogane Received Received
  PP-198 Oral hygiene habits, sugar consumption, and dental care in children with hemostasis disorders Laura Beatriz Isidro-Olán Received Received
  PO-199 Evaluation of underlying etiology and therapeutic challenges of Recurrent Gingival Hemorrhage in Severe Hemophilia A: A Case Report from a Developing Country Salsa Makruf Received Received
  MP-200 Standard Half-Life (SHL) and Extended Half-Life (EHL) FVIII in Major Orthopedic Surgery: Evidence from Real-World Experience. ezio.zanon@unipd.it ezio.zanon@unipd.it Received Received
  PP-201 Awareness of Hemophilic Patients Regarding Potential Orthopedic Abnormalities of Target Joints Usama Grewal Received Received
  PP-203 Myositis Ossificans as a Complication of Haemophilia: A 20-year retrospective case series Adam Hussain Received Received
  PP-204 Correlation of FVIII:C and Joint Health in Korean Patients with Hemophilia A Hong Hoe Koo Received Received
  PP-205 Pediatric Severe Hemophilia with Ankle Hemophilic Arthropathy: Microfracture with Cartilage Repair- Surgical Case Study Elia Fong Received Received
  PP-206 Orthopaedic Management of Complex Haemophilic Arthropathy of the Ankle Joint Adam Hussain Received Received
  PP-207 Managing Complex Haemophilia A Presentations in Low-Resource Settings: A Two-Case Series Highlighting Multisystem Challenges and Delayed Access to Therapy Erick Ayaye Received Received
  PO-208 Prophylaxis vs On-Demand Treatment: Ripple Effects After Many Years! Waleed Grewal Received Received
  PO-209 A proposed classification for end stage hemophilic knee arthritis requiring Total knee replacement with suggested treatment/ constraint options. Sandeep Albert Received Received
  PO-210 Management of Hemophiliac Arthritis of Target Joints Usama Grewal Received Received
  PO-211 Establishing a Multidisciplinary Model for Musculoskeletal Surgery in Severe Hemophilia within a Resource-Limited Setting Bhaskar Pant Received Received
  PO-213 A retrospective study of Radiosynovectomy on Target Joints in Haemophilia from a Tertiary Hospital Shin Yen Yeam Received Received
  PO-214 Surgical Outcomes in Extremity Hemophilic Pseudotumors Sanjana Bose Received Received
  PP-215 Determinants of Central Sensitization in Hemophilic Arthropathy: A Multicentre Analysis of Psychosocial and Joint-Related Predictors. Ruben Cuesta-Barriuso Received Received
  PP-216 Effectiveness and Tolerability of a Topical Emulgel Containing Glucosamine Sulphate, Chondroitin Sulphate, Curcumin, Boswellia Serrata, Ginger, Oil of Wintergreen, and Menthol in Pediatric Haemophilic Arthropathy Pamela Narayan Received Received
  MP-218 Long-Term Outcomes and Inhibitor Relapse Following Immune Tolerance Induction in Severe Hemophilia A Children with Inhibitors: A Prospective Multicenter Study Runhui Wu Received Received
  PP-219 The Hemophilia Health Journey: Exploring the Experiences and Unmet Care Needs of Young Children with Hemophilia and their Caregivers Caroline Mussert Received Received
  PP-220 A Single Paediatric Centre Experience in Immune Tolerisation Induction (ITI) for Paediatric Severe Haemophilia A Patients with Inhibitors on Subcutaneous Emicizumab Chiew Ying Lim Received Received
  PP-221 Clinical Profile of Children with Factor XI Deficiency in Singapore Nur Insyirah Abdul Kadir Received Received
  PP-222 Pharmacokinetic Parameters Related Bleeding Outcomes of Hemophilia A Treated with Low Dose Prophylaxis Treatment in Thailand Under National Health Security Office Scheme in Thailand Bunchoo Pongtanakul Received Received
  PP-223 Novel Variants in Hemophilia A Patients: Report from a Referral Hemophilia Treatment Centre in Indonesia Fitri Primacakti Received Received
  PP-225 Clinical Profile of Hemophilia Children Admitted to a Limited-Resource Hospital in West Nusa Tenggara, Indonesia: A Cross-Sectional Study Yudhi Kurniawan Received Received
  PP-226 Recurrent Hemophilic Pseudotumor in Mild Hemophilia A with Neurofibromatosis Type 1: Experience from a Low- and Middle-Income Country Purnamasari Natsir Putri Received Received
  PP-227 Paediatric Haemophilia B in Northern Peninsular Malaysia: A Descriptive Analysis of Patient Profiles and Outcomes Chee Enn Han Received Received
  PP-228 Safe Childhood: Helping Children With Hemophilia A Stay Active and Confident Aamir Aslam Awan Received Received
  PP-229 Epidural Hematoma on the Left Frontoparietotemporal Region in a Child with Newly Diagnosed Severe Hemophilia A: A Case Report Salsa Makruf Received Received
  MP-232 Efficacy and Safety of Low-Load Blood Flow Restriction Training in Hemophilic Ankle Arthropathy: A Multicenter Randomized Clinical Trial Rubén Cuesta-Barriuso Received Received
  PP-233 Recreative Sport, Joint Health, and Musculoskeletal Power in Children and Young People with Haemophilia Carlos Cruz-Montecinos Received Received
  PP-235 Ten Years of Multidisciplinary Rehabilitation Check-ups for People with Hemophilia in Japan: Long-Term Survivors of HIV Acquired from Historically Contaminated Blood Products Fujitani Junko Received Received
  PP-236 A comparison of patients presenting with musculoskeletal issues to the bleeding disorder rheumatology clinic 10 years apart Abi Polus Received Received
  PP-237 The Effects of Physical & Mental Health Rehabilitation Program(PMHRP) in post operative periods for hemophilic arthritis Won-Sook Bak Received Received
  PP-238 A Prospective Ultrasound Framework for Physiotherapists Working in Haemophilia Care James Cartwright Received Received
  PP-241 Safety and Efficacy of Physiotherapy in Patients with Severe Hemophilia A Treated with Emicizumab: A Prospective Polish Multicenter Study Ewa Stefanska-Windyga Received Received
  PO-243 Role of Physiotherapy to Rehabilitate a Person with Hemophilia Induced Foot Drop: A Case Study Easmin Ara Doly Received Received
  PO-246 Individualized Physiotherapy Program Combining Manual Therapy and Exercise Improves Musculoskeletal System, Cardiopulmonary Endurance and Quality of Life in Patients With Hemophilia A Wan-Jung Kao Received Received
  PO-247 Neuromotor Reprogramming in Hemophilia: Preliminary Experience Using the Allyane Method Mauro Dyntino Received Received
  PO-248 Point of Care Ultrasound Use Among Australian Physiotherapists Working with People with Bleeding Disorders Abi Polus Received Received
  MP-249 Long-term outcome with emicizumab prophylaxis for haemophilia A in China and efficacy prediction using machine learning Yuan Xu Received Received
  MP-250 Efficacy of Low-Dose Emicizumab Prophylaxis in Hemophilia A: A Systematic Review and Meta-Analysis April Joy Ong Received Received
  PP-251 Real-World Efficiency of EHL FIX Prophylaxis in Hemophilia B Olga Benítez Hidalgo Received Received
  PP-253 Real-World Experience with Emicizumab Prophylaxis from a single Canadian Tertiary Care Center Areeb Hassan Received Received
  PP-255 Pediatric Cohort Treated With rIX-FP (Idelvion): Real-World Analysis of Efficacy, Safety, PK Improvement and Resource Utilization BOLIVAR LUIS DIAZ JORDAN Received Received
  PP-256 The Role of Low dose Emicizumab Prophylaxis in Improving PedHAL Domains and Clinical Outcomes in Children with Hemophilia: An insight from a low-middle income country. Shigy Francis Received Received
  PP-257 Level of Knowledge of Hemophilia Patient´s Families in Implementing Prophylactic Therapy at the Hemophilia Treatment Center Ulin General Hospital , Banjarmasin, Indonesia Wulandewi Marhaeni Received Received
  PP-259 Determinants of Adherence to Clotting Factor Prophylaxis in Adolescent and Adult Men with Hemophilia Alice Sacramento Received Received
  PP-261 Management for Hemophilia A Pediatric Patients without Inhibitors Receiving Nationwide Emicizumab Prophylaxis sanikarn nakrong Received Received
  PP-262 New Confidence Through Modern Prophylaxis: Community Experiences With Emicizumab in Hemophilia A Aamir Aslam Awan Received Received
  PP-263 Bleeding Outcomes >3 Years After Discontinuing Emicizumab Among Persons With Hemophilia A in a Low-Resource Setting: Experience From Moi Teaching and Referral Hospital, Kenya Everlyn Aliwa Received Received
  MP-267 "Hemophilia explained for children": A psychosocial approach through storytelling Patricia Cabré Received Received
  MP-268 Tea Party Care in the Hemophilia Community: A Psychosocial Healing Program for Parents of Children with Hemophilia Jeong Sik Hwang Received Received
  MP-269 Patient-Reported Outcomes on Artificial Intelligence Use in Hemophilia: a Psychometric Evaluation Cindy Komar Received Received
  PP-271 Mental Health Needs Assessment Among People With Hemophilia in Nepal: A Mixed- Methods Study Toong Youttananukorn Received Received
  PP-272 Evaluating the World Federation of Hemophilia´s Shared Decision-Making Tool: Insights from a Multi-Group Impact Study Donna Coffin Received Received
  PP-273 Emotional Burden and Marginalization in Individuals with Bleeding Disorders Midhat Khalid Received Received
  PP-275 The Importance of the Psychosocial Approach in the Healthcare Team: Current Reality and Future Perspectives Silvina Grana Received Received
  PP-276 Advancing Mental Health and Substance Use Care Accessibility for Individuals With Bleeding Disorders: A United States Multi-State Outreach and Champion Facility Identification Model Shanthi Hegde Received Received
  PP-278 Navigating Life With Bleeding Disorders: Understanding the Lived Psychosocial Experiences of Youth Midhat Khalid Received Received
  PP-280 Psychosocial well being and exercise participation of patients with Haemophilia and the carers in Hong Kong Henry Hon-Wai Lam Received Received
  PP-281 Feasibility and Engagement of an Online CBT-Based Group Intervention for Adolescents with Haemophilia Anna-Maria Tsilia Received Received
  PP-282 Emotional Impact of Hemorrhagic Disorders on Mexican Female Caregivers: Prevalence of Anxiety and Depression Ezequiel Martinez Martinez Received Received
  PP-283 Neurobiological Perspectives on Hemophilia: A Review of Neurological, Cognitive, and Psychosocial Interactions Ferose Pallimanhayalil Received Received
  PP-284 Beyond Carriers: Promoting Recognition, Diagnosis, and Psychosocial Inclusion for Women with Bleeding Disorders in Korea Jeong Sik Hwang Received Received
  PP-287 Comparison of psycho-social difficulties faced by haemophilia patients with and without HIV/AIDS Tomie Fujii Received Received
  PP-288 Creating a Children´s Book as a Tool for Education and Support Darian Smith Received Received
  PP-290 Innovations in Child Life Services for Hemophilia Care in Kenya: Enhancing Psychosocial Support and Treatment Compliance for Pediatric Patients Living with Hemophilia Bilha Nyaboke Omari Received Received
  PP-291 Balancing Hemophilia Care and Cultural Practices:Psychosocial and Clinical Outcomes of Circumcision with Optimized Factor Therapy AJAI THOMAS Received Received
  PP-292 Ibero-American Psychosocial Group: A Collaborative Network in Development Silvina Graña Received Received
  PP-295 New educational strategies for individuals with hemophilia and autism Tongpil Min Received Received
  PP-296 Hemophilia and autism: where do challenges come from? Gavin Min Received Received
  PP-297 A Study on Development of RAG-based Psychological Counseling Support System via Analysis of Unmet Counseling Needs in Hemophilia Patients Jihun Chang Received Received
  PO-298 Bleeding in Silence: A Young Man´s Battle for Identity, Dignity, and Hope with Severe Hemophilia A Masood Fareed Malik Received Received
  PO-300 Personal Coping Pathways and Psychosocial Resilience in a Person With Hemophilia Masood Fareed Malik Received Received
  MP-303 Psychological Well-being in Primary Caregivers of People with Coagulopathies Ezequiel Martinez Martinez Received Received
  MP-305 Patient-Reported and Clinical Outcomes in Persons with Severe Hemophilia (PwSH) Treated Within vs. External to U.S. Hemophilia Treatment Center Network Clinics: An Update from the CHESS US Study Randall Curtis Received Received
  MP-306 Hemophilia Life Stages and Changes Global Survey of People with Hemophilia, Caregivers, and Hematologists: Patient Experience According to Disease Severity and Gender Kim Isenberg Received Received
  MP-307 Psychological Burden and Quality of Life of Mothers of Hemophiliac Children: A study of 69 cases Mohamed El khorassani Received Received
  PP-309 WBDR RSP Series Part 1/6: Beyond Patient Registry – Demonstrating Multifunctional WBDR Value Across Six Domains (32 Research Support Program Projects, 2018–2023) Toong Youttananukorn Received Received
  PP-310 WBDR RSP Series Part 2/6: Generating Clinical Evidence That Informs Policy – Four Focused Research Areas from 32 RSP Projects (2018–2023) Toong Youttananukorn Received Received
  MP-311 WBDR RSP Series Part 3/6: Diagnosis Evidence– Findings From Research Projects Under the WFH WBDR Research Support Program (2018–2023) Toong Youttananukorn Received Received
  PP-312 WBDR RSP Series Part 4/6: Quality-of-Life Evidence – Findings From Research Projects Under the WFH WBDR Research Support Program (2018–2023) Toong Youttananukorn Received Received
  PP-313 WBDR RSP Series Part 5/6: Prophylaxis Evidence - Findings From Research Projects Under the WFH WBDR Research Support Program (2018–2023) Toong Youttananukorn Received Received
  PP-314 WBDR RSP Series Part 6/6: Underserved Populations (WGBD/VWD) Evidence - Findings From Research Projects Under the WFH WBDR Research Support Program (2018–2023) Toong Youttananukorn Received Received
  PP-315 Insights into Physical Function and Treatment Experience with Mim8: Patient Cases from the FRONTIER Trials Jayson Tang Received Received
  PP-316 Patient-Reported Outcomes in Hemophilia in Kosovo: Results from the PROBE Questionnaire Dawn Rotellini Received Received
  PP-317 The Quality of Life of Hemophilia A Patients Accessing Treatment Services Toong Youttananukorn Received Received
  PP-318 Long-Term Treatment Adherence Decline in Pediatric Hemophilia Patients Receiving Extended Half-Life Therapies: A Cross-Sectional Study in South Korea Harim Kim Received Received
  PP-319 Assessing the Change in Bleeding Rates and Related Clinical Outcomes in Haemophilia Patients Before and After Introducing Humanitarian Aid Clotting Factor Concentrates in Malawi Francis Mkwenembera Received Received
  PP-320 Real-World Effectiveness and Patient-Reported Burden of Pharmacokinetic-Guided Individualized Prophylaxis in Chinese Hemophilia A Patients Shaoyu Yin Received Received
  PP-321 Health-Related Quality of Life among Adults with Haemophilia in Southern Nigeria Toong Youttananukorn Received Received
  PP-322 Adapting the Patient Reported Outcomes Burdens and Experiences (PROBE) Study to Measure Quality of Life in People with von Willebrand Disease (VWD) Elizabeth Clearfield Received Received
  PP-323 Mapping the Journey of Caregivers and Patients with Hemophilia A and B in Brazil Indianara Galhardo Received Received
  PP-324 Parental Experience of Hemophilia Diagnosis Disclosure in Morocco :A Mixed-Methods Study on Communicational Quality and Psychosocial Impact Mohamed El khorassani Received Received
  PP-325 Quality of life assessment in parents of infants with severe hemophilia A without inhibitors after emicizumab prophylaxis Canan Albayrak Received Received
  PP-326 Empowering Movement in Hemophilia: A Medically Supervised Trekking Experience Carlos Kolker Received Received
  PP-327 Mapping the Journey of Caregivers and Patients Under 6 Years Old with Hemophilia A in Brazil Mariana Battazza Received Received
  PP-329 Impact of Hemophilia on Quality of Life and Self-Esteem in Adolescents and Young Adults in South India Ferose Pallimanhayalil Received Received
  PP-331 Evaluation of the Quality of Life of Hemophiliac Patients Under Prophylactic Treatment in Cameroon Toong Youttananukorn Received Received
  PP-332 Assessment of Joint Arthropathy by FISH and Pain Scoring in Hemophilia Patients: Experience from Pakistan Munira Borhany Received Received
  PP-333 Emicizumab Prophylaxis and Its Impact on Bleeding Control, Joint Health, and Psychosocial Well-Being in Hemophilia A Ayisha Imran Received Received
  PO-334 Satisfaction Towards A Multidisciplinary Service on Haemophilia Care YI JING LEE Received Received
  PO-337 Increasing Patient and Family Knowledge Regarding the Joint Health of Hemophilia Patients: Educational Intervention at Hemophilia Treatment Center Ulin General Hospital, Banjarmasin, Indonesia Ratih Kumala Sari Received Received
  PO-339 Impact of Genetic Counseling on Prevention of Factor VII Deficiency in a family from Pakistan. Lubna Zafar Received Received
  PO-342 Assessment of Quality of Life in People with Hemophilia on Coagulation Factor Prophylaxis in Brazil Ricardo Mesquita Camelo Received Received
  PP-344 Factor XIII Deficiency: Clinical features and Management Approaches from a Specialized Adult Haemophilia Treatment Centre Kara Cordiner Received Received
  PP-346 Hereditary Severe Factor X Deficiency in Childhood: Single Centre Experience at Evelina London Children´s Hospital Jayanthi Alamelu Received Received
  PP-347 A Sticky Situation: An Illustrated Review of Glanzmann´s Thrombasthenia Shanthi Hegde Received Received
  PP-349 Development of A Global Registry: The Glanzmann Thrombasthenia Real-World Insights Research Study Amy Owen-Wyard Received Received
  PP-351 Acquired Hemophilia A in a Resource-Limited Setting: Demographic Profile and Real-World Outcomes From a Multi-Centre Retrospective Study Rema Ganapathi Received Received
  PP-352 Susoctocog Alfa for Bleeding Control in High-Titer Acquired Hemophilia A: A Case Series of Four Patients JAE JOON HAN Received Received
  PP-353 Acquired deficiency of vitamin K dependent factors: an alarming increase in cases. Experience in Banco Municipal de Sangre DC, Caracas Apsara Boadas Received Received
  PP-354 Rare Bleeding diosrders - Our experience Sitalakshmi Subramanian Received Received
  PO-356 A Challenging Surgery In a Child with Inherited FVII Deficiency and a Huge Nasopharyngeal Angiofibroma Aysegul Unuvar Received Received
  PO-358 Prophylaxis for Inherited Deficiency of Factor X: A Systematic Review Ricardo Mesquita Camelo Received Received
  PO-359 Proposed Diagnostic Algorithm for Rare Bleeding Disorders Veronica Arrieta Received Received
  PP-360 Optimization of Clotting Factor Concentrates Use During Circumcision in People with Hemophilia: A Retrospective Analysis from a Low-Middle Income Country. Shigy Francis Received Received
  PP-361 Perioperative Management With Lonoctocog Alfa (Afstyla) in Hemophilia A: Real-World Surgical Experience Olga Benítez Hidalgo Received Received
  PP-362 Surgical Management in Hemophilia Patients Receiving Efmoroctocog Alfa Goksel Leblebisatan Received Received
  PP-363 Expanding Surgical Boundaries in Severe Hemophilia A: Successful Orthognathic Correction Using PK-Guided Extended Half-Life FVIII in a Middle-Income Country Eileen Viviana Fonseca Received Received
  PO-365 Perioperative Management and Surgical Outcomes in Patients With Inherited Bleeding Disorders in a Public Sector Hospital: The Pakistan Institute of Medical Sciences Experience Farwa Sijjeel Received Received
  PO-366 Intussusception Secondary to Meckel´s Diverticulitis: A Rare and Life-Threatening Complication in an Infant with Hemophilia A Serap Karaman Received Received
  PP-370 Pilot Study Exploring the Lived Experiences of Adolescents and Adults with von Willebrand Disease Treated with VGA039 and Their Families in the VIVID-3 Phase 1/2 Clinical Study Kristen Jaworski Received Received
  PO-371 Low-Dose Emicizumab Prophylaxis in Severe Hemophilia A: A Trial in Progress Evaluating Feasibility and Accessibility in a Resource-Limited Setting Ayisha Imran Received Received
  MP-372 Plasma-Derived VWF/FVIII Prophylaxis in Children Under 6 With VWD: First Results From WIL-33 Akshat Jain Received Received
  MP-373 Pregnancy Outcomes in Women with Von Willebrand Disease: A Statewide Cohort Study Ming Y Lim Received Received
  MP-374 Recombinant von Willebrand Factor, Vonicog alfa: United Kingdom experience of its use in children under 18 years of age Jayanthi Alamelu Received Received
  MP-375 Clinical Spectrum, Subtype Distribution, And Treatment Outcomes In Von Willebrand Disease: A Prospective Study From A Hemophilia Treatment Center In Pakistan Munira Borhany Received Received
  PP-379 Expanding the PIVOT-vWD Programme: An International Patient-Driven Study to Capture the Impact, Voice, and Outcomes of von Willebrand Disease George Morgan Received Received
  PP-380 Pregnancy Outcomes and Hemostatic Management in Women with Von Willebrand Disease: A Single-Center Experience Chin Sheng Ting Received Received
  PP-382 Successfully Searching to See Type 1C von Willebrand Disease Karen Sims Received Received
  PP-383 Bridging the Diagnostic Gap: Development and Validation of a Localized Screening Tool for Von Willebrand Disease in a Taiwanese Cohort Chun-Hui Chiao Received Received
  PP-384 Von Willebrand Disease and prophylactic treatment Ons Ghali Received Received
  PP-385 Managing Type 3 von Willebrand Disease Complicated by Anti-VWF Alloantibodies: A Therapeutic Challenge Wafa Chenbah Received Received
  MP-386 Global Utilisation and Impact of VWDtest.com: A Multilingual Digital Platform to Improve Awareness and Early Identification of von Willebrand Disease Fernando F. Corrales-Medina Received Received
  MP-388 They´re Missing: The Underrepresentation of Women and Girls with Hemophilia in the WBDR Pamela Dakik Received Received
  MP-389 Demographic and Socioeconomic Characteristics of Females in the Community Voices in Research Registry Paxton G. Mills Received Received
  MP-390 Assessment of joint health using HEAD-US scores among asymptomatic mothers of hemophilia/Familial Mediterranean fever patients and women with Type 3 von Willebrand disease ZÜHRE KAYA Received Received
  MP-391 Strengthening Diagnostics and Patient Care for Women and Girls With Bleeding Disorders Through International Capacity-Building and Twinning Programme Bitty Kurian Received Received
  MP-394 Bleeding Profile and Health Related Quality of Life among Females Living with Bleeding Disorders: A Single-Centre Observational study. Rema Ganapathi Received Received
  MP-395 Inherited Bleeding Disorders in Women: A 15 year cohort review from a single comprehensive center in Australia Kara Cordiner Received Received
  MP-396 Females Affected by Hemophilia A; Data From the U.S. 8CHECK Program Barbara Konkle Received Received
  PP-397 Perceived Health Status in Women with haemophilia and Carriers Carla Daffunchio Received Received
  PP-398 Improving Diagnosis and Treatment of Women with VWD in Pakistan: A Two Phase Analysis Using WBDR Data and Shared Decision Making Tools Tahira Zafar Received Received
  PP-399 Advancing Global Data Collection for Women with Bleeding Disorders: Early Insights from the PROBE WBD Module Dawn Rotellini Received Received
  PP-400 Unraveling Pathogenic Variants in the F8 Gene in Females with Mild Hemophilia A and Asymptomatic Carriers: Detecting Compound and Double Heterozygous Yasser Vega Received Received
  PP-403 Cross-cultural Adaptation and Reliability of the Self-administered ISTH Bleeding Assessment Tool Sowmya Nayak Received Received
  MP-405 Bleeding Profiles and ISTH-BAT Assessment in Women and Girls with Hemophilia: Insight from an Indonesian Referral Center Fitri Primacakti Received Received
  PP-409 Opportunities at Birth: Postpartum Hemorrhage as an Indicator for Early Hemophilia Screening in Low- and Middle-Income Countries Maureen Kiio Received Received
  PP-410 Becoming Stronger in the Bleed: A Phenomenological Case of a Young Pakistani Nurse Living With Severe Von Willebrand Disease Type 3 wajiha javaid Received Received
  PO-413 Gendered Marital Challenges for Girls with von Willebrand Disease in Pakistan wajiha javaid Received Received
  PP-417 Surgical synovectomy in moderate to severe Haemophilic arthropathy - a systematic review Adam Hussain Received Received
  PP-420 Wiskott-Aldrich Syndrome Case Series and Novel Whole Blood Exchange Transfusion Walter Kelley Received Received
  PP-421 Successful Utilisation of Low Dose Emicizumab in the Bleeding Management of Acquired Haemophilia; A Single Center Experience Veena Selvaratnam Received Received
  PP-422 Microarchitectural Bone Deterioration Despite Preserved Bone Mineral Density in Persons with Hemophilia A Prisha Nankana Received Received
  PP-423 Hemophilia treatment and Joint Health: A Colombian Hemophilia Cohort Study Jose Santacruz-Arias Received Received
  PP-425 Diagnostic Reassessment of a Congenital Bleeding Disorder From Suspected Factor X Deficiency to von Willebrand Disease Elen Avetisyan Received Received
  PP-426 Access to Care, Registry Quality, and Socioeconomic Barriers among People with Hemophilia in Uttar Pradesh, India: A Mixed-Methods Evaluation across Eight Treatment Centers Prisha Nankana Received Received
  PP-428 Bridging the Gap: Enhancing Pediatric to Adult Bleeding Disorder Care Transitions with Multidisciplinary SmartPhrases Denise Lowery Received Received
  PP-429 Severe Inhibitor Hemophilia A With Refractory Gastrointestinal Bleeding, Massive Transfusion Requirement, and Multisystem Complications: A Case Report Anna Stepanyan Received Received
  PP-430 A novel chemiluminescent microfluidic thrombin generation assay detects in vivo aPCC effects with assay-specific sensitivity to accumulated prothrombin levels Aernoud Bavinck Received Received
  PO-433 Perception and Practice of Shared Decision-Making in Hemophilia Care in China: Interim Results from a Multicenter Survey Karina Chin Po Hsu Received Received
  PP-434 Spectrum of F8 Gene Variants in a Multi-Ethnic Cohort of Malaysian Haemophilia A Patients Yuslina Mat Yusoff Received Received
  PP-436 Epidemiological Landscape and Gender Equity in a Colombian Coagulation Disorder Program Jose Santacruz-Arias Received Received
  PP-437 Bolar Provisions as a Legal Mechanism for Health Equity in Hemophilia: A Case Study on Emicizumab Tirsa M. Carcamo Bonilla Received Received
  PO-440 Impact of Joint Health on Quality of Life in Haemophilia Patients Receiving On-Demand Therapy in Indonesia Muhammad Hakim Abyantoro Received Received
  PO-441 Strengthening Hemophilia Care Through Patient Advocacy and Community-Led Initiatives in Khyber Pakhtunkhwa, KP, Pakistan Syed Shabistan Received Received
  PO-442 Low dose subcutaneous protein C concentrates in a Child with homozygous protein C deficiency Yee Yee Yap Received Received
  PO-443 Circumcision in Three Boys With Severe Haemophilia A Without Inhibitors Using Standard Factor VIII Replacement: A Case Series Jihane Layla Azzi Received Received
  PO-444 Bloodless arthroplasty surgery in patients with bleeding disorders Yee Yee Yap Received Received
  PO-445 Surgical Intervention in Von Willebrand Disease: A Single Center Experience MEHMET CAN UGUR Received Received
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WFH 2026 World Congress

 

April 19-22, 2026 Kuala Lumpur
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