EUROPEAN ASSOCIATION OF HAEMOPHILIA AND ALLIED D..

17th annual EAHAD Congress

 

6 - 9 February 2024 Frankfurt
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Poster title
Applicant name
Status
  1-PT Using evidence-based co-design to develop a hydrid based exercise intervention that aims to increase confidence to exercise in persons with haemophilia Stephanie Taylor Received Received
  3-PT The DASH Project - DEVELOPING AHP SERVICES FOR PEOPLE WITH HAEMOPHLIA Fionnuala Sayers Received Received
  4-PO A single centre assessment of the frequency and clinical relevance of discrepant factor VIII assays both in persons without a disorder of haemostasis and in those with haemophilia A David Allsup Received Received
  8-PO Challenges in determining the severity of hemophilia A: an insight in discrepancies between factor VIII assays Marie-Astrid van Dievoet Received Received
  14-PO FVIII post infusion monitoring surveys: Results and analysis from the updated UK NEQAS BC Haemophilia programmes 2023. Anna Williams Received Received
  15-PO Association of Thrombin activatable fibrinolysis inhibitor (TAFI) with the severity of haemophilia B Josipa Pavi&263; Received Received
  21-PO Investigation of the suitability of the ROTEM assay to measure coagulation potential in blood from patients on concizumab prophylaxis Judit Meszaros Received Received
  31-PO Cardiovascular safety and brain protective effect of emicizumab in patients with hemophila older than 40 Cedric Hermans Received Received
  32-PO A Novel Gene Editing Lexicon Strategy for the Haemophilia Community Annie Popova Received Received
  36-PO A case of acquired factor XI deficiency and retroperitoneal bleed associated with Streptococcus pyogenes cellulitis Timea Szanto Received Received
  41-PO Personalised prophylaxis with simoctocog alfa versus standard prophylaxis with efanesoctocog alfa in haemophilia A, a matching-adjusted indirect comparison Gillian Patman Received Received
  42-PO Personalised prophylaxis with simoctocog alfa versus standard emicizumab prophylaxis in haemophilia A, a matching-adjusted indirect comparison Gillian Patman Received Received
  43-PO Interim Analysis of Real-World Effectiveness and Usage of Recombinant Factor IX Fc for Surgical Haemostasis from the 24-Month Prospective, Non-Interventional B-MORE Study Sana Yaar Received Received
  44-PO International Data Integration Program of the WFH World Bleeding Disorders Registry: bringing Europe data to the global stage Donna Coffin Received Received
  47-PO Treatment-related Humanistic Unmet Needs in Haemophilia B Without Inhibitors Brooke Morriswood Received Received
  50-PO Clinical overview of perioperative outcomes from the XTEND-Kids study Hannah Nelson Received Received
  61-PO Varna Expert center of coagulopathies and rare anemias 10 years experience Elina Peteva Received Received
  62-PO Promoting Gender Equity in Hemophilia Care through Proactive and Systematic Screening of Hemophilia Carriers: Results of the PROCARRIERS1 study Evelien Krumb Received Received
  64-PO Surgical Procedures and Hemostatic Outcome in Patients with Hemophilia Receiving Concizumab Prophylaxis During the Phase 3 explorer7 and explorer8 Trials Judit Meszaros Received Received
  67-PO Novel insights into Factor VIII and FIX levels among pediatric hemophilia carriers Luke Hayden Received Received
  68-PO Real-World Effectiveness and Usage of Recombinant Factor IX Fc: Secondary Paediatric Analysis from the 24-Month French, Prospective, Non-Interventional B-SURE Study Yasha Najafi Received Received
  79-PO Patient preferences and usage patterns of mobile device applications for haemophilia A prophylaxis in Eastern Europe: results from a descriptive, observational, cross-sectional, survey-based study Laszlo Nemes Received Received
  82-PO Emerging and exciting new treatments in hemophilia future Luis Miguel Moura Received Received
  85-PO Real-world effectiveness and safety of a recombinant Factor VIII Fc in patients with haemophilia A by age groups: Pooled analysis (A-SURE/PREVENT) Liz Beatty Received Received
  88-PO Trial in Progress: Disease Characteristics of Hemophilia B in Patients Receiving Standard-of-Care Prophylactic Factor IX (FIX) Replacement Therapy (HONEY-B) Annie Popova Received Received
  90-PO Emicizumab as a primary and immediate standalone therapy for acquired hemophilia A: shaping a novel therapeutic approach for a complex hematological condition Morgane Thiry Received Received
  94-PO Safety, efficacy, and laboratory profile of reduced Emicizumab dosing in hemophilia A patients Timea Szanto Received Received
  96-PO Observational, PRO study to Evaluate Quality of Life for Hemophilia patients on Hemlibra, Single study Ohoud Kashari Received Received
  97-PO Using of Emicizumab in Pediatric Hemophilia a Patients: KSA Single Center Experience ohoud kashari Received Received
  99-PO Real-world effectiveness and safety of a recombinant Factor VIII Fc in patients with haemophilia A by disease severity: Pooled analysis (A-SURE/PREVENT) Liz Beatty Received Received
  100-PO The value-based healthcare approach to haemophilia: development of outcome measures for the evaluation of care of people with haemophilia. Paolo Angelo Cortesi Received Received
  103-PO Immune Tolerance Induction with a Recombinant Factor VIII Fc in Haemophilia A: Final Data from a Chart Review Study Yasha Najafi Received Received
  107-PO Enhancing haemophilia assessment and monitoring with novel digital biomarkers using HemoCopilot: a digital self-assessment solution for People with Haemophilia Sébastien Lobet Received Received
  108-PO ACTIVLIM-Hemo, a new valid, reliable, unidimensional and linear measure of activity limitations in hemophilia Sebastien Lobet Received Received
  113-PO Efanesoctocog Alfa Prophylaxis Outcomes in European Patients From the XTEND-1 Trial Yasha Najafi Received Received
  118-PO Reducing potential data gap after Gene Therapy using myGTR a patient engagement tool from World Federation of Hemophilia Gene Therapy Registry Toong Youttananukorn Received Received
  120-PO Impacts on Functional Outcomes Following Total Knee Arthroplasty in Hemophilia Patients: A Comparative Study of Pain Catastrophizing and Adaptation to Artificial Joints Ufuk Gürsoy Kanlikaya Received Received
  121-PO Real-life single center experience on the effectiveness of Emicizumab prophylaxis in patients with Haemophilia A with and without inhibitors associated with improvement of health-related quality of life. Uros Markovic Received Received
  124-PO Seven-year follow-up of valoctocogene roxaparvovec gene therapy for haemophilia A Emily Williams Received Received
  126-PO Emicizumab Prophylaxis in People with Haemophilia A: Summary of 10 Years of Safety Data on Thromboembolic Events and Thrombotic Microangiopathy Helen Miller Received Received
  127-PO Real-World Effectiveness and Usage of Recombinant Factor IX Fc: Interim Analysis in Paediatric Patients from the 24-Month, Prospective, Non-Interventional B-MORE Study Sana Yaar Received Received
  128-PO The efficacy, safety, and pharmacokinetics of N8-GP in previously treated Chinese patients with haemophilia A: results from the phase 3b pathfinder10 study Jessie Arries Received Received
  129-PO Comparing inhibitor development in (plasma derived vs recombinant) FVIII/FIX concentrates in severe haemophilia: reporting on 1392 PUPs from EUHASS and Canadian registries Kathelijn Fischer Received Received
  130-PO Uptake of emicizumab in PUPs with severe haemophilia A and changes in inhibitor incidence Kathelijn Fischer Received Received
  144-PO Health-related quality of life and long-term joint damage in people with severe Haemophilia A in Brazil Jonathan Evans Received Received
  150-PO ACQUIRED HAEMOPHILIA - CLINICAL MANIFESTATIONS AND MANAGEMENT; A SINGLE CENTRE EXPERIENCE Anna Kouramba Received Received
  158-PO Experience of Treatment in Children with Severe Hemophilia B in a single center Carmen Gil Barroso Received Received
  162-PO Characteristics of Girls with haemophilia A or B included in the PedNet registry Marloes de Kovel Received Received
  163-PO Gathering and Disseminating Standardized Gene Therapy Data The World Federation of Hemophilia Gene Therapy Registry Mayss Naccache Received Received
  164-PO The World Federation of Hemophilia Living Guidelines Model Mona Mayla Received Received
  166-PO Psychometric evaluation of the Haem-A-QoL in adults with haemophilia B Sheena Thakkar Received Received
  167-PO The Haemophilia Activities List: psychometric evaluation in adults with haemophilia B Sheena Thakkar Received Received
  194-PO Managing von Willebrand disease with inhibitors during prophylaxis with a plasma derived von Willebrand Factor/Factor VIII concentrate The WIL-31 study Gillian Patman Received Received
  197-PO Cost model of long-term prophylaxis with von Willebrand Factor concentrate Antonio Palomero Received Received
  202-PO A case report of type-2B Von Willebrand Disease and gastrointestinal bleeding María Nieves Alonso Escobar Received Received
  206-PO RECOMBINANT VON WILLEBRAND FACTOR TREATMENT OUTCOMES IN UK ADULTS WITH VON WILLEBRAND DISEASE: A RETROSPECTIVE CHART REVIEW STUDY Ollie Heard Received Received
  210-PO Efficacy and Safety of Plasma-derived VWF Concentrates in a cohort of 93 Patients with Type 3 von Willebrand Disease enrolled in 3WINTERS-IPS: Results of the 2-year Prospective Clinical Observation Augusto Federici Received Received
  213-PO Accumulation of Factor VIII and von Willebrand Factor during prophylaxis with a Plasma-derived von Willebrand Factor/Factor VIII Concentrate during the WIL-31 Study Gillian Patman Received Received
  241-PO Prospective Examination of Acquired von Willebrand Syndrome Co-occurrence in Patients with BCR-ABL1-negative Myeloproliferative Neoplasms. Mohamed Hussam Aswad Received Received
  259-PO No added value of testing for factor XIII and a2-antiplasmin deficiency in patients with a mucocutaneous bleeding disorder of unknown cause Sander Ariëns Received Received
  261-PO Experience in the Treatment of ITP with Fostamatinib Pilar Pérez García Received Received
  266-PO Participation in sports in Dutch children and adults with inherited platelet function disorders is similar to the general population: not afraid to participate. Annick de Moor Received Received
  269-PO IMPLEMENTATION OF SINGLE FACTOR X REPLACEMENT TREATMENT IN ADULTS WITH INHERITED SEVERE FACTOR X DEFICIENCY Halin Veronicka Buruno Received Received
  278-PO Initiatives of the EAHAD Glanzmann Working Group Roger Schutgens Received Received
  290-PO Comparison of outcome assessment in prophylaxis versus on demand treatment: A research support program of WFH World Bleeding Disorders Registry Dinkar Viswam Received Received
  298-PO Health-related quality of life (HRQoL) in Greek patients with von Willebrand Disease (VWD) Ioannis Vasilopoulos Received Received
  310-PO A New Tool to Assist in Treatment Selection The World Federation of Hemophilia (WFH) Shared Decision-Making (SDM) Tool Donna Coffin Received Received
  312-PO Intergenerational Impact of the Contaminated Blood Scandal Sally-Anne Wherry Received Received
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17th annual EAHAD Congress

 

6 - 9 February 2024 Frankfurt
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