6 - 9 February 2024 Frankfurt
![]() |
![]() |
![]() |
![]() |
1-PT | Using evidence-based co-design to develop a hydrid based exercise intervention that aims to increase confidence to exercise in persons with haemophilia | Stephanie Taylor | ![]() |
![]() |
|||
3-PT | The DASH Project - DEVELOPING AHP SERVICES FOR PEOPLE WITH HAEMOPHLIA | Fionnuala Sayers | ![]() |
![]() |
|||
4-PO | A single centre assessment of the frequency and clinical relevance of discrepant factor VIII assays both in persons without a disorder of haemostasis and in those with haemophilia A | David Allsup | ![]() |
![]() |
|||
8-PO | Challenges in determining the severity of hemophilia A: an insight in discrepancies between factor VIII assays | Marie-Astrid van Dievoet | ![]() |
![]() |
|||
14-PO | FVIII post infusion monitoring surveys: Results and analysis from the updated UK NEQAS BC Haemophilia programmes 2023. | Anna Williams | ![]() |
![]() |
|||
15-PO | Association of Thrombin activatable fibrinolysis inhibitor (TAFI) with the severity of haemophilia B | Josipa Pavi&263; | ![]() |
![]() |
|||
21-PO | Investigation of the suitability of the ROTEM assay to measure coagulation potential in blood from patients on concizumab prophylaxis | Judit Meszaros | ![]() |
![]() |
|||
31-PO | Cardiovascular safety and brain protective effect of emicizumab in patients with hemophila older than 40 | Cedric Hermans | ![]() |
![]() |
|||
32-PO | A Novel Gene Editing Lexicon Strategy for the Haemophilia Community | Annie Popova | ![]() |
![]() |
|||
36-PO | A case of acquired factor XI deficiency and retroperitoneal bleed associated with Streptococcus pyogenes cellulitis | Timea Szanto | ![]() |
![]() |
|||
41-PO | Personalised prophylaxis with simoctocog alfa versus standard prophylaxis with efanesoctocog alfa in haemophilia A, a matching-adjusted indirect comparison | Gillian Patman | ![]() |
![]() |
|||
42-PO | Personalised prophylaxis with simoctocog alfa versus standard emicizumab prophylaxis in haemophilia A, a matching-adjusted indirect comparison | Gillian Patman | ![]() |
![]() |
|||
43-PO | Interim Analysis of Real-World Effectiveness and Usage of Recombinant Factor IX Fc for Surgical Haemostasis from the 24-Month Prospective, Non-Interventional B-MORE Study | Sana Yaar | ![]() |
![]() |
|||
44-PO | International Data Integration Program of the WFH World Bleeding Disorders Registry: bringing Europe data to the global stage | Donna Coffin | ![]() |
![]() |
|||
47-PO | Treatment-related Humanistic Unmet Needs in Haemophilia B Without Inhibitors | Brooke Morriswood | ![]() |
![]() |
|||
50-PO | Clinical overview of perioperative outcomes from the XTEND-Kids study | Hannah Nelson | ![]() |
![]() |
|||
61-PO | Varna Expert center of coagulopathies and rare anemias 10 years experience | Elina Peteva | ![]() |
![]() |
|||
62-PO | Promoting Gender Equity in Hemophilia Care through Proactive and Systematic Screening of Hemophilia Carriers: Results of the PROCARRIERS1 study | Evelien Krumb | ![]() |
![]() |
|||
64-PO | Surgical Procedures and Hemostatic Outcome in Patients with Hemophilia Receiving Concizumab Prophylaxis During the Phase 3 explorer7 and explorer8 Trials | Judit Meszaros | ![]() |
![]() |
|||
67-PO | Novel insights into Factor VIII and FIX levels among pediatric hemophilia carriers | Luke Hayden | ![]() |
![]() |
|||
68-PO | Real-World Effectiveness and Usage of Recombinant Factor IX Fc: Secondary Paediatric Analysis from the 24-Month French, Prospective, Non-Interventional B-SURE Study | Yasha Najafi | ![]() |
![]() |
|||
79-PO | Patient preferences and usage patterns of mobile device applications for haemophilia A prophylaxis in Eastern Europe: results from a descriptive, observational, cross-sectional, survey-based study | Laszlo Nemes | ![]() |
![]() |
|||
82-PO | Emerging and exciting new treatments in hemophilia future | Luis Miguel Moura | ![]() |
![]() |
|||
85-PO | Real-world effectiveness and safety of a recombinant Factor VIII Fc in patients with haemophilia A by age groups: Pooled analysis (A-SURE/PREVENT) | Liz Beatty | ![]() |
![]() |
|||
88-PO | Trial in Progress: Disease Characteristics of Hemophilia B in Patients Receiving Standard-of-Care Prophylactic Factor IX (FIX) Replacement Therapy (HONEY-B) | Annie Popova | ![]() |
![]() |
|||
90-PO | Emicizumab as a primary and immediate standalone therapy for acquired hemophilia A: shaping a novel therapeutic approach for a complex hematological condition | Morgane Thiry | ![]() |
![]() |
|||
94-PO | Safety, efficacy, and laboratory profile of reduced Emicizumab dosing in hemophilia A patients | Timea Szanto | ![]() |
![]() |
|||
96-PO | Observational, PRO study to Evaluate Quality of Life for Hemophilia patients on Hemlibra, Single study | Ohoud Kashari | ![]() |
![]() |
|||
97-PO | Using of Emicizumab in Pediatric Hemophilia a Patients: KSA Single Center Experience | ohoud kashari | ![]() |
![]() |
|||
99-PO | Real-world effectiveness and safety of a recombinant Factor VIII Fc in patients with haemophilia A by disease severity: Pooled analysis (A-SURE/PREVENT) | Liz Beatty | ![]() |
![]() |
|||
100-PO | The value-based healthcare approach to haemophilia: development of outcome measures for the evaluation of care of people with haemophilia. | Paolo Angelo Cortesi | ![]() |
![]() |
|||
103-PO | Immune Tolerance Induction with a Recombinant Factor VIII Fc in Haemophilia A: Final Data from a Chart Review Study | Yasha Najafi | ![]() |
![]() |
|||
107-PO | Enhancing haemophilia assessment and monitoring with novel digital biomarkers using HemoCopilot: a digital self-assessment solution for People with Haemophilia | Sébastien Lobet | ![]() |
![]() |
|||
108-PO | ACTIVLIM-Hemo, a new valid, reliable, unidimensional and linear measure of activity limitations in hemophilia | Sebastien Lobet | ![]() |
![]() |
|||
113-PO | Efanesoctocog Alfa Prophylaxis Outcomes in European Patients From the XTEND-1 Trial | Yasha Najafi | ![]() |
![]() |
|||
118-PO | Reducing potential data gap after Gene Therapy using myGTR a patient engagement tool from World Federation of Hemophilia Gene Therapy Registry | Toong Youttananukorn | ![]() |
![]() |
|||
120-PO | Impacts on Functional Outcomes Following Total Knee Arthroplasty in Hemophilia Patients: A Comparative Study of Pain Catastrophizing and Adaptation to Artificial Joints | Ufuk Gürsoy Kanlikaya | ![]() |
![]() |
|||
121-PO | Real-life single center experience on the effectiveness of Emicizumab prophylaxis in patients with Haemophilia A with and without inhibitors associated with improvement of health-related quality of life. | Uros Markovic | ![]() |
![]() |
|||
124-PO | Seven-year follow-up of valoctocogene roxaparvovec gene therapy for haemophilia A | Emily Williams | ![]() |
![]() |
|||
126-PO | Emicizumab Prophylaxis in People with Haemophilia A: Summary of 10 Years of Safety Data on Thromboembolic Events and Thrombotic Microangiopathy | Helen Miller | ![]() |
![]() |
|||
127-PO | Real-World Effectiveness and Usage of Recombinant Factor IX Fc: Interim Analysis in Paediatric Patients from the 24-Month, Prospective, Non-Interventional B-MORE Study | Sana Yaar | ![]() |
![]() |
|||
128-PO | The efficacy, safety, and pharmacokinetics of N8-GP in previously treated Chinese patients with haemophilia A: results from the phase 3b pathfinder10 study | Jessie Arries | ![]() |
![]() |
|||
129-PO | Comparing inhibitor development in (plasma derived vs recombinant) FVIII/FIX concentrates in severe haemophilia: reporting on 1392 PUPs from EUHASS and Canadian registries | Kathelijn Fischer | ![]() |
![]() |
|||
130-PO | Uptake of emicizumab in PUPs with severe haemophilia A and changes in inhibitor incidence | Kathelijn Fischer | ![]() |
![]() |
|||
144-PO | Health-related quality of life and long-term joint damage in people with severe Haemophilia A in Brazil | Jonathan Evans | ![]() |
![]() |
|||
150-PO | ACQUIRED HAEMOPHILIA - CLINICAL MANIFESTATIONS AND MANAGEMENT; A SINGLE CENTRE EXPERIENCE | Anna Kouramba | ![]() |
![]() |
|||
158-PO | Experience of Treatment in Children with Severe Hemophilia B in a single center | Carmen Gil Barroso | ![]() |
![]() |
|||
162-PO | Characteristics of Girls with haemophilia A or B included in the PedNet registry | Marloes de Kovel | ![]() |
![]() |
|||
163-PO | Gathering and Disseminating Standardized Gene Therapy Data The World Federation of Hemophilia Gene Therapy Registry | Mayss Naccache | ![]() |
![]() |
|||
164-PO | The World Federation of Hemophilia Living Guidelines Model | Mona Mayla | ![]() |
![]() |
|||
166-PO | Psychometric evaluation of the Haem-A-QoL in adults with haemophilia B | Sheena Thakkar | ![]() |
![]() |
|||
167-PO | The Haemophilia Activities List: psychometric evaluation in adults with haemophilia B | Sheena Thakkar | ![]() |
![]() |
|||
194-PO | Managing von Willebrand disease with inhibitors during prophylaxis with a plasma derived von Willebrand Factor/Factor VIII concentrate The WIL-31 study | Gillian Patman | ![]() |
![]() |
|||
197-PO | Cost model of long-term prophylaxis with von Willebrand Factor concentrate | Antonio Palomero | ![]() |
![]() |
|||
202-PO | A case report of type-2B Von Willebrand Disease and gastrointestinal bleeding | María Nieves Alonso Escobar | ![]() |
![]() |
|||
206-PO | RECOMBINANT VON WILLEBRAND FACTOR TREATMENT OUTCOMES IN UK ADULTS WITH VON WILLEBRAND DISEASE: A RETROSPECTIVE CHART REVIEW STUDY | Ollie Heard | ![]() |
![]() |
|||
210-PO | Efficacy and Safety of Plasma-derived VWF Concentrates in a cohort of 93 Patients with Type 3 von Willebrand Disease enrolled in 3WINTERS-IPS: Results of the 2-year Prospective Clinical Observation | Augusto Federici | ![]() |
![]() |
|||
213-PO | Accumulation of Factor VIII and von Willebrand Factor during prophylaxis with a Plasma-derived von Willebrand Factor/Factor VIII Concentrate during the WIL-31 Study | Gillian Patman | ![]() |
![]() |
|||
241-PO | Prospective Examination of Acquired von Willebrand Syndrome Co-occurrence in Patients with BCR-ABL1-negative Myeloproliferative Neoplasms. | Mohamed Hussam Aswad | ![]() |
![]() |
|||
259-PO | No added value of testing for factor XIII and a2-antiplasmin deficiency in patients with a mucocutaneous bleeding disorder of unknown cause | Sander Ariëns | ![]() |
![]() |
|||
261-PO | Experience in the Treatment of ITP with Fostamatinib | Pilar Pérez García | ![]() |
![]() |
|||
266-PO | Participation in sports in Dutch children and adults with inherited platelet function disorders is similar to the general population: not afraid to participate. | Annick de Moor | ![]() |
![]() |
|||
269-PO | IMPLEMENTATION OF SINGLE FACTOR X REPLACEMENT TREATMENT IN ADULTS WITH INHERITED SEVERE FACTOR X DEFICIENCY | Halin Veronicka Buruno | ![]() |
![]() |
|||
278-PO | Initiatives of the EAHAD Glanzmann Working Group | Roger Schutgens | ![]() |
![]() |
|||
290-PO | Comparison of outcome assessment in prophylaxis versus on demand treatment: A research support program of WFH World Bleeding Disorders Registry | Dinkar Viswam | ![]() |
![]() |
|||
298-PO | Health-related quality of life (HRQoL) in Greek patients with von Willebrand Disease (VWD) | Ioannis Vasilopoulos | ![]() |
![]() |
|||
310-PO | A New Tool to Assist in Treatment Selection The World Federation of Hemophilia (WFH) Shared Decision-Making (SDM) Tool | Donna Coffin | ![]() |
![]() |
|||
312-PO | Intergenerational Impact of the Contaminated Blood Scandal | Sally-Anne Wherry | ![]() |
![]() |
6 - 9 February 2024 Frankfurt
![]() |
Digital Object Identifier. Official code used to identify documents published on internet; similar to ISBN for books. You may use this code to reference your poster in future scientific publications or CVs. It can be found from anywhere in the world. ![]() To find the poster page, log onto www.medra.org and enter the DOI, or enter in your internet browser https://dx.doi.org/ followed by the DOI string asigned to your congress. ![]() |
![]() |
||
![]() |
|