9-12 June 2021 Digital Conference
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EPS2-001 | Drug-induced liver injury from antibiotics administered to adult cystic fibrosis patients: is it a problem? A single-centre retrospective study | Rachael Meredith | ![]() |
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EPS3-001 | Is variation in Pseudomonas aeruginosa (Pa) surface-enhanced Raman spectroscopy (SERS) spectra related to phenotype? | Danielle Allen | ![]() |
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EPS1-001 | Physiotherapy practice of French cystic fibrosis children changed during lockdown due to COVID-19 pandemic | Marie Mittaine | ![]() |
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P-001 | TCR repertoire in monozygotic cystic fibrosis twins | Burkhard Tmmler | ![]() |
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P-002 | Genetic characteristics of the cystic fibrosis Polish patients registered in the public Matio Polish Cystic Fibrosis Foundation | Karolina Surma | ![]() |
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EPS3-002 | Using rapid evaporative ionisation mass spectrometry (REIMS) for biomarker discovery and mechanistic studies of Pseudomonas aeruginosa stress responses | Rob Bradley | ![]() |
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EPS1-002 | The impact of COVID-19 on the prescribing practice of specialist cystic fibrosis physiotherapist non-medical prescribers in the UK | Catherine Brown | ![]() |
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EPS3-003 | Using airway organoids and Air Liquid Interface cultures to profile the spatial and temporal dynamics of Pseudomonas aeruginosa infections | Signe Lolle | ![]() |
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EPS1-003 | Recommended shielding against COVID-19 impacts physical activity levels and adherence to airway clearance therapy in patients with cystic fibrosis | Elpis Hatziagorou | ![]() |
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EPS2-003 | Lumacaftor-ivacaftor therapy and its impact on glucose tolerance in children with cystic fibrosis | Kathy McGrath | ![]() |
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EPS3-004 | Depolarisation of the Pseudomonas aeruginosacytoplasmic membrane by Glatiramer acetate potentiates the antibacterial activity of tobramycin | Ronan Murphy | ![]() |
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EPS1-004 | Audit of virtual exercise class during COVID-19 in children with cystic fibrosis | Zoe Johnstone | ![]() |
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EPS2-004 | The role of Flash Glucose Monitoring System at annual review during the COVID-19 restrictions, within Cystic Fibrosis Diabetes Service at Blackpool Adult Cystic Fibrosis Centre. UK | Julie Knowles | ![]() |
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EPS2-005 | Arm circumference and skinfolds vs. body mass index: a single-centre experience over two decades | Dorothea Appelt | ![]() |
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EPS1-005 | Evaluating impacts of the change from clinic to home spirometry on clinicians and adults with cystic fibrosis | Tracey Daniels | ![]() |
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P-005 | Mild variants of the CFTR gene in Russian patients without clinical manifestations | Yuliya Melyanovskaya | ![]() |
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P-006 | The complex allele c.1399CT;1521_1523delCTT (L467F;F508del) of the CFTR gene in Russian cystic fibrosis patients | Nataliya Kashirskaya | ![]() |
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EPS3-006 | Low induction of Antibiotic resistance by two new drugs against Pseudomonas aeruginosa in a clinical cohort of cystic fibrosis patients | Mette Kolpen | ![]() |
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EPS2-006 | What do people with cystic fibrosis eat? Diet quality, macronutrient and micronutrient intakes compared to recommended guidelines in adults with cystic fibrosis: a systematic literature review | Nicola Drummond | ![]() |
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EPS1-006 | A retrospective audit of home-based spirometry quality in a large UK adult cystic fibrosis centre | Ian Waller | ![]() |
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P-007 | A novel cystic fibrosis-causing mutation identified in a newborn of African origin | Natalia Cirilli | ![]() |
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EPS1-007 | Impact of COVID-19 on cystic fibrosis physiotherapy outpatient clinics | Emily Scott | ![]() |
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EPS2-007 | How did the COVID-19 lockdown influence the nutritional status and body composition of cystic fibrosis patients in Poland? | Monika Mielus | ![]() |
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EPS3-007 | Predictors of eradication failure at first isolation of MRSA in children with cystic fibrosis | Almala Pinar Ergenekon | ![]() |
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EPS2-008 | The model for determining risk groups for the development of vitamin D deficiency and prevention algorithm in children with cystic fibrosis using the multifactor dimensionality reduction method | Elena Zhekaite | ![]() |
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P-008 | Identification of two novel mutations (c.3639dup and ex16-17a dup) in the CFTR gene in Polish patient with cystic fibrosis | Sebastian Wardak | ![]() |
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EPS3-008 | Evaluation of a fixed-step eradication regime in children with cystic fibrosis and detection of Pseudomonas aeruginosa | Simon Florian Grewendorf | ![]() |
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EPS1-008 | Exercising online a Beaming good initiative | Gemma McCrea | ![]() |
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EPS3-009 | Biofilm formation in methicillin-resistant Staphylococcus aureus isolated in cystic fibrosis patients is strain-dependent and differentially influenced by antibiotics | Agathe Boudet | ![]() |
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P-009 | The investigation of the effect of electrolyte disorder on sweat test in newborns with positive cystic fibrosis screening test | Sevgi Pekcan | ![]() |
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EPS2-009 | F508del genotype is an independent risk factor for reduced bone mineral density in children with cystic fibrosis | JASNA RODMAN BERLOT | ![]() |
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EPS1-009 | Adapting services during the COVID-19 pandemic a patient evaluation of physiotherapy telephone reviews within multidisciplinary team virtual clinics | Sarah Fitzgerald | ![]() |
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P-010 | Newborn screening for cystic fibrosis improves nutritional outcome: monocentric data of the first 4 years in Germany | Katharina Schtz | ![]() |
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EPS2-010 | Pregnancy and cystic fibrosis: patients experience from pre-conception to birth | Marilyn Hagan | ![]() |
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EPS3-010 | Clinical pharmacokinetics and dose recommendations for posaconazole gastro-resistant tablets in children with cystic fibrosis | Sian Bentley | ![]() |
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P-011 | Cystic fibrosis - newborn screening (CF-NBS) start-up in Flanders (Belgium): report of first evaluation after two years | Marijke Proesmans | ![]() |
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P-012 | Two years neonatal screening for cystic fibrosis in Republic of North Macedonia | Stojka Fustik | ![]() |
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P-013 | Evaluation of improvements of the cystic fibrosis newborn screening protocol in the Netherlands | Marelle Bouva | ![]() |
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P-015 | Evaluation of the specificity and sensitivity of the cut-off values of immunoreactive trypsinogen in the cystic fibrosis newborn screening program | Tugba Ramasli Gursoy | ![]() |
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P-016 | The role of clinical and laboratory findings in the diagnosis of cystic fibrosisin children with positive newborn screening | Tugba Ramasli Gursoy | ![]() |
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P-017 | Different ethnical distribution of the incidence of cystic fibrosis in Republic of North Macedonia | Violeta Anastasovska | ![]() |
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P-018 | Follow-up of children with Cystic Fibrosis Screen Positive, Inconclusive Diagnosis (CFSPID) in Switzerland | Orell Imahorn | ![]() |
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P-019 | Inconclusive Cystic Fibrosis Positive Neonatal Screening (CFSPID): clinical outcomes | Silvia Gartner | ![]() |
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P-020 | CFTR mutation panel in detecting cystic fibrosis screen positive inconclusive diagnosis patients (CFSPIDs) in the Marche Region, Italy | Natalia Cirilli | ![]() |
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P-021 | An evaluation of the cystic fibrosis newborn screening service at Royal Manchester Childrens Hospital - experience from a tertiary service provider in Northwest United Kingdom | Anirban Maitra | ![]() |
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P-022 | Evaluation of hearing and vestibular system in patients with cystic fibrosis | Beste zsezen | ![]() |
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P-023 | Characterisation of CFTR function in a patient with the F508del/CFTRdup1-3 genotype | Senne Cuyx | ![]() |
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P-024 | Pili annulati: is it a new finding in cystic fibrosis? | SEVG&304; PEKCAN | ![]() |
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P-025 | Systems biology modelling of CFTR maturation to predict possible active compound combinations | Liza Vinhoven | ![]() |
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P-026 | Characterisation of F508del-CFTR rescue by corrector MCG1516A | Mafalda Bacalhau | ![]() |
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P-027 | Identification of corrector combinations to increase the rescue of F508del-CFTR traffic and function | Filipa Castela Ferreira | ![]() |
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P-028 | Identification of novel F508del-CFTR correctors among triazole derivative compounds | Mafalda Bacalhau | ![]() |
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P-029 | First report: Kaftriovs. Symkeviin intestinal organoids | Eva Furstova | ![]() |
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P-030 | Metabolomic impact of the restoration of CFTR activity in the respiratory epithelium | Emmanuelle Bardin | ![]() |
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P-031 | The last 10: small molecule screening for correctors of rare CFTR processing mutations | Marjolein Ensinck | ![]() |
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P-032 | Chemical optimisation of a PI3Ky competing peptide for the therapy of cystic fibrosis | Angela Della Sala | ![]() |
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P-033 | Therapeutic approach by translational suppression of non-sens mutation in CFTR gene | Sabrina Karri | ![]() |
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P-034 | Novel insights into the therapeutic potential of antisense oligonucleotides as splicing modulators in respiratory and intestinal patient-derived model systems | Noemie Stanleigh | ![]() |
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P-035 | iPSC-derived macrophages from cystic fibrosis patients as a cell source to establish in vitro infection models and a drug screening platform | Claudio Rodríguez-González | ![]() |
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P-036 | Analysis of the dysfunction of cystic fibrosis macrophages | Claudio Rodríguez-González | ![]() |
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P-037 | Elexacaftor/tezacaftor/ivacaftor improve lung disease in patients with advanced cystic fibrosis homozygous for the F508del mutation | Donatello Salvatore | ![]() |
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P-038 | An Italian centre experience with elexacaftor-tezacaftor-ivacaftor therapy in cystic fibrosis patients with advanced lung disease | Chiara Rosazza | ![]() |
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P-039 | The clinical impact of triple CFTR modulator therapy in a cohort of people with CF and severe lung disease | Orla Fanthorpe | ![]() |
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P-040 | Compassionate use triple therapy CFTR modulation (Kaftrio) in severe disease. Single-centre, real-world clinical outcomes, safety and tolerability | David Morrissy | ![]() |
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P-041 | Effect of thetriplecombination of CFTR correctors and potentiatoron lung function, BMI and the Brasfield score in adolescents with cystic fibrosis | Marina Praprotnik | ![]() |
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P-042 | RECOVER - the Real World Clinical Outcomes with Novel Modulator therapy combinations in people with cystic fibrosis | Paul McNally | ![]() |
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P-043 | A snapshot of respiratory microbiology results pre- and post-commencing Kaftrio | Laura Jenkins | ![]() |
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P-045 | Are people with cystic fibrosis reducing their medication since Kaftrio initiation? | Michael Dooney | ![]() |
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P-046 | Menstrual abnormalities linked to Kaftrio | Michael Dooney | ![]() |
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P-047 | Impact of tezacaftor/ivacaftor/elexacaftor on outcome in a patient with I336Kmutation and a minimal function mutation R553X | Sivagurunathan Sutharsan | ![]() |
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P-048 | Olfactory dysfunction: impact of highly effective modulator therapy | Daniel Beswick | ![]() |
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P-049 | Tolerance induction (hyposensitisation) in drug intolerance to CFTR modulators | Patience Eschenhagen | ![]() |
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P-050 | Drug desensitisation for lumacaftor/ivacaftor - step-by-step to drug tolerance | Julia Westhoff | ![]() |
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P-051 | Rollout of Kaftrio to adult cystic fibrosis patients at the Royal Brompton Hospital during a global pandemic | Elaine Bowman | ![]() |
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P-052 | Managing the roll out of the cystic fibrosis modulator therapy Kaftrio at a large UK adult centre | Constance (Connie) Takawira | ![]() |
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P-053 | Real-life clinical effects of therapy with lumacaftor and ivacaftor in patients with cystic fibrosis | Isabella Comello | ![]() |
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P-054 | Clinical outcomes in people with cystic fibrosis treated with lumacaftor/ivacaftor in routine clinical practice in Sweden | Anders Lindblad | ![]() |
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P-056 | Intestinal current measurement (ICM) in cystic fibrosis paediatric patients - a pilot study | Magdalena Postek | ![]() |
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P-057 | Cystic fibrosis children not eligible for modulators therapy - data from a tertiary paediatric centre in Northwest United Kingdom | Ghulam Mujtaba | ![]() |
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P-058 | The effect of hypertonic saline treatment in preschoolers with cystic fibrosis on lung structure as measured by chest computed tomography (CT). SHIP-CT study: feasibility of CT scan protocol | Harm A.W.M. Tiddens | ![]() |
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P-059 | A double-blind randomised multicentre European study of linoleic acid supplementation for one year in patients with cystic fibrosis | Birgitta Strandvik | ![]() |
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P-060 | Phage therapy for chronic Pseudomonas aeruginosa infections in cystic fibrosis patients | Maya Kahan-Hanum | ![]() |
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P-061 | The UK Clinical Trials Accelerator Platform - a national cystic fibrosis clinical trials network increasing access to clinical trials for the UK cystic fibrosis community | Rebecca Brendell | ![]() |
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P-062 | Impact of the SARS-CoV-2 pandemic on clinical trials in the ECFS-CTN during 2020 | Fiona Dunlevy | ![]() |
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P-063 | Community involvement in shaping cystic fibrosis clinical trials | Lorna Allen | ![]() |
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P-064 | How does early weight gain explain the effect of childhood socioeconomic conditions on lung function for children with cystic fibrosis? A UK Registry-based study | Daniela Schlter | ![]() |
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P-066 | Lung function and pulmonary exacerbations among individuals with cystic fibrosis living near composting facilities in the United Kingdom | Muhammad Saleem Khan | ![]() |
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P-067 | Mechanisms for the effect of CFRD on mortality: a causal mediation analysis using UK cystic fibrosis Registry data | Kamaryn Tanner | ![]() |
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P-068 | Estimating the long-term effects of insulin on outcomes in cystic fibrosis-related diabetes: a target trial approach | Emily Granger | ![]() |
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P-069 | Cystic fibrosis-related liver disease a decade of experience | Ana Mocic Pavic | ![]() |
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P-070 | Epidemiology of nontuberculous mycobacteria in a single adult cystic fibrosis centre | Ayesha Kumar | ![]() |
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P-071 | Real-world pregnancy data and outcomes in an era post-CFTR modulation therapies: an Irish centres perspective | Anina Ratjen | ![]() |
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P-072 | Psychometric validation of the Cystic Fibrosis Impact Questionnaire: a patient-reported outcome instrument assessing the life impacts of cystic fibrosis | Daniel Serrano | ![]() |
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P-073 | Influence of assessment tool and publication type on the reported prevalence of depression and anxiety in adults with cystic fibrosis: a meta-analysis | Louise Lord | ![]() |
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P-074 | Setting up a framework for the collection of patient-reported outcomes in the real world: trials and tribulations | Elise Lammertyn | ![]() |
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P-075 | Are there lessons to be learned from cystic fibrosis patient deaths and the timing of lung transplant referral? | Kavita Dave | ![]() |
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P-076 | Using the Cystic Fibrosis Foundation consensus guidelines to assess the timing of lung transplant referral for individuals with cystic fibrosis in a single large adult UK centre: do they help? | Kavita Dave | ![]() |
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P-077 | Clinical factors affecting timing of referral for lung transplantation for people with cystic fibrosis: a national comparison of opinions between adult cystic fibrosis and transplant centres | Kavita Dave | ![]() |
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P-078 | The burden of cystic fibrosis beyond medical costs in Switzerland | Christina Tzogiou | ![]() |
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P-079 | Using a learning health system to understand medicine waste in cystic fibrosis the Easy Medicines for Burden Reduction And Care Enhancement (EMBRACE) study | Amanda Bevan | ![]() |
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P-081 | 30 years of organisation of care for cystic fibrosis patients in the Russian Federation | Yuliya Melyanovskaya | ![]() |
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P-082 | The National Cystic Fibrosis Patient Registry of the Russian Federation 9 years of experience (2011-2019) | Nataliya Kashirskaya | ![]() |
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P-083 | Clinical progression of SARS-CoV-2 infection in people with cystic fibrosis: a global observational study | Elliot McClenaghan | ![]() |
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P-084 | The impact of the SARS-CoV-2 pandemic on people living with cystic fibrosis in Ireland: real-world data from the Irish cystic fibrosis registry | Huw Rees | ![]() |
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P-085 | Impact of COVID-19 on hospital services and specialist care of adults with cystic fibrosis | Rini Bhatnagar | ![]() |
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P-086 | The impact of COVID-19 in people with cystic fibrosis a single-centre experience | Georgina Aldous | ![]() |
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P-087 | Impact of COVID-19 on mental health of children with cystic fibrosis and their parents | Rini Bhatnagar | ![]() |
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P-088 | Impact of COVID-19 and cocooning on employment of people with cystic fibrosis | Rini Bhatnagar | ![]() |
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P-089 | Coronavirus infection (COVID 19) in children with cystic fibrosis of the Russian Federation | Yuliya Melyanovskaya | ![]() |
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P-090 | A UK survey on changes in managing people with cystic fibrosis during the COVID-19 pandemic | Saffana Hameed | ![]() |
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P-091 | Regularity of check-ups at the cystic fibrosis centre in the time of COVID-19 pandemic | Ivana Todori&263; | ![]() |
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P-092 | Embedding an electronic patient record into a developing UK service and impact during the COVID-19 pandemic - Blackpool Adult Cystic Fibrosis Service (BACFS) | Natasha Pickering | ![]() |
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P-094 | Facilitating cystic fibrosis research during the COVID-19 pandemic | Sharon Burnett | ![]() |
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P-095 | Effect of age and genotype on lung function in children with cystic fibrosis | Shadrina Vera | ![]() |
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P-096 | Long-term follow-up of adolescent and adult patients with cystic fibrosis: a single centres experience | Asl&305; &304;mran Y&305;lmaz | ![]() |
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P-097 | Whos talking about cystic fibrosis? The changing landscape of internet postings related to cystic fibrosis: a two-year comparative study | Tamara Vagg | ![]() |
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P-098 | Change in FEV1 after standardised care algorithm for cystic fibrosis patients: quality improvement project | Muruvvet Cenk | ![]() |
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P-100 | Quality of home spirometry performance amongst adults with cystic fibrosis | Jody Bell | ![]() |
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P-101 | Provision of home spirometry in a physiologist-led service: experiences from a large adult cystic fibrosis centre | Scott Hawkes | ![]() |
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P-102 | Utility of Dynamic Chest Radiography (DCR) for calculating lung volume subdivisions in adult people with cystic fibrosis | Thomas Simon FitzMaurice | ![]() |
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P-103 | Longitudinal SF6 multiple breath washout testing in children aged 0-4 years with cystic fibrosis | Rikke Sandvik | ![]() |
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P-104 | Multiple-breath nitrogen washout test and structural lung damage in adult patients with cystic fibrosis | Alexander Cherniak | ![]() |
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P-105 | Lung clearance index in monitoring response to antibiotic therapy in children with cystic fibrosis | Katarzyna Walicka-Serzysko | ![]() |
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P-106 | Positioning may not affect lung clearance index | TJ BAKER | ![]() |
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P-107 | Lung clearance index in Bulgarian patients with cystic fibrosis | Boryana Gospodinova | ![]() |
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P-108 | Cross-sectional and longitudinal comparison of N2 and SF6 multiple breath washout in children with cystic fibrosis aged 2-45 months | Rikke Sandvik | ![]() |
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P-109 | Regional assessment of lung function using non-contrast MRI in people with cystic fibrosis | Jonathan Brooke | ![]() |
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P-110 | A soft, flexible, wearable device for cough detection in paediatric cystic fibrosis patients | Andreas Tzavelis | ![]() |
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P-111 | CT-signs and the effectiveness of surgical treatment of sinonasal disease in children with cystic fibrosis | Yulia Gorinova | ![]() |
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P-112 | Sleep disorders and exercise capacity in adult patients with cystic fibrosis in the Republic of North Macedonia | Tatjana Jakovska Maretti | ![]() |
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P-113 | Integration of Qi Gong sessions into a respiratory rehabilitation program: the experience of the CF Centre in Roscoff (France) | Laetitia Gueganton | ![]() |
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P-114 | Neutrophil effector responses to cystic fibrosis clinical isolates of Pseudomonas aeruginosa | Kayla Fantone | ![]() |
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P-115 | Effectiveness of different eradication treatment protocols for the first Pseudomonas aeruginosa isolation in paediatric cystic fibrosis patients | Birce Sunman | ![]() |
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P-116 | Clinical characteristics of frequent and infrequent pulmonary exacerbations of cystic fibrosis lung disease | Claire Houston | ![]() |
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P-118 | Lung ultrasound in cystic fibrosis exacerbations | Ioana Ciuca | ![]() |
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P-119 | Improving Home IV outcomes | Christina Ryan | ![]() |
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P-120 | Bridging the gap enhancing a multidisciplinary team Home IV service to reduce discrepancy in cystic fibrosis care | Victoria Kendall | ![]() |
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P-121 | The effect of training about nebuliser cleaning and disinfection on the knowledge levels and practises of the caregivers of patients with cystic fibrosis | Muruvvet Cenk | ![]() |
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P-122 | The role of the clinical pharmacy specialist in monitoring adherence to inhaled therapies in patients with cystic fibrosis in the Republic of North Macedonia | Marija Atanasova Nadzinska | ![]() |
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P-123 | Adaptive immune response to Mycobacterium abscessus complex and cross-reactivity of BCG vaccination | Renan Mauch | ![]() |
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P-124 | Implementing an anti-emetic protocol improves morbidity associated with intravenous therapy for Mycobacterium abscessus in children | Anupama Menon | ![]() |
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P-125 | Impact of infection withAchromobacterspp.on clinical outcome in paediatric patients with cystic fibrosis | Birce Sunman | ![]() |
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P-127 | Pulsed intravenous methylprednisolone for allergic bronchopulmonary aspergillosis in cystic fibrosis | Tamsin Thornton | ![]() |
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P-128 | A review of inhaled corticosteroid prescribing in an adult cystic fibrosis population | Claire McKeown | ![]() |
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P-129 | Induced sputum as a minimally invasive sample to investigate airway inflammation in the early course of cystic fibrosis | Vincent Giacalone | ![]() |
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P-130 | Chronic inflammation biomarkers and lung function in cystic fibrosis patients | Mihaela Dediu | ![]() |
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P-132 | The Induced Immune response in CF patients | Mads Lausen | ![]() |
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P-133 | Impact of specialised pro-resolving lipid mediators on cystic fibrosis airway epithelial cell functions | Malle Briottet | ![]() |
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P-134 | SARS-CoV-2 infection in cystic fibrosis during the first pandemic wave in Italy: a multicentre prospective study with a control group | Carla Colombo | ![]() |
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P-136 | Relationship between cystic fibrosis disease severity and susceptibility to COVID-19 infection | MERVE ATALAY | ![]() |
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P-137 | COVID-19 in cystic fibrosis patients with and without lung transplantation: the Zurich cohort | Carolin Steinack | ![]() |
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P-139 | Evaluating the impact of a telemedicine service during the COVID-19 pandemic in people with cystic fibrosis | Alex Bull | ![]() |
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P-140 | TeCC (TeleMedicine, Cystic Fibrosis, Corona-Virus) study in a previous telemedicine-naive centre: clinical challenges, outcomes, and user experience in the first six months of a global pandemic | David Morrissy | ![]() |
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P-142 | Lung and gut microbiota signatures in cystic fibrosis mice challenged with Pseudomonas aeruginosa | Annamaria Bevivino | ![]() |
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P-145 | Unwanted effects of an essential oil component, citral, on the susceptibility of Pseudomonas aeruginosato antibiotics | Alexandre Tetard | ![]() |
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P-146 | Intra-patient evolution of a pulmonary strain of Pseudomonas aeruginosa,from primocolonisation until after lung transplant | Susie Gaillot | ![]() |
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P-148 | Different treatment regimens in first isolation of Pseudomonas aeruginosa | Cansu Yilmaz Yegit | ![]() |
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P-149 | Evolution of levofloxacin resistance and phenotypic characterisation of Pseudomonas aeruginosaclinical isolates from people with cystic fibrosis | Callum Sloan | ![]() |
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P-150 | Competitive fitness experiments of CF isolates of Pseudomonas aeruginosa in human and murine precision-cut lung slices (PCLS) | Lion Wege | ![]() |
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P-151 | Improved isolation yields for bacteriophage active against Staphylococcus aureus | Joshua Iszatt | ![]() |
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P-152 | Clinical findings and long-term effect of methicillin-resistant Staphylococcus aureus isolation in patients with cystic fibrosis | Beste Ozsezen | ![]() |
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P-153 | Exophiala dermatitidis infection in cystic fibrosis patients accelerates lung function decline: a retrospective single-centre review of historical lung function | Gemma Ford | ![]() |
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P-154 | Exophiala dermatitidis can undergo patient-patient transmission in cystic fibrosis patients | Jonathan Ayling-Smith | ![]() |
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P-155 | Identification of an evolutionary split in Burkholderia multivorans using phylogenomics: does it have any impacts on the ability to cause cystic fibrosis lung infection? | Kasia Parfitt | ![]() |
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P-156 | Mycobacterium abscessus treatment in adult patients with cystic fibrosis: case series and review | Amel Alameeri | ![]() |
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P-157 | Monitoring the distribution and genotypic diversity of Burkholderiales bacteria in Russian cystic fibrosis patients in the year of the COVID-19 pandemic | Olga Voronina | ![]() |
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P-158 | Fungal airway colonisation in cystic fibrosis patients in the Institute for Respiratory Diseases in Children - Skopje, Republic of North Macedonia | Ivana Arnaudova Danevska | ![]() |
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P-159 | Relationship between clinical and environmental strains of emerging opportunistic pathogens in cystic fibrosis and diversity in the home environment | Quentin Menetrey | ![]() |
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P-160 | Detection and management of non-tuberculous mycobacteria in cystic fibrosis patients in a tertiary paediatric centre | Harriet Wayman | ![]() |
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P-162 | Pneumococcal and influenza vaccination coverage level: data from a cystic fibrosis centre | Elpis Hatziagorou | ![]() |
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P-163 | Effects of the SARS-CoV-2 pandemic on attendance at the cystic fibrosis centre and the definition of the microbiological status of cystic fibrosis patients in Tuscany | Daniela Dolce | ![]() |
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P-164 | What is the tolerance of antibiotic dry powder inhalers in patients with cystic fibrosis? | Paul Wilson | ![]() |
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P-165 | Improvement in antibiotic usage and ppFEV1 with compassionate use of elexacaftor, tezacaftor and ivacaftor (ETI) for patients with cystic fibrosis | Olivia Baker | ![]() |
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P-166 | Prevalence of cystic fibrosis-associated liver disease in Albanian cystic fibrosis patients | Irena Kasmi | ![]() |
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P-167 | Prevalence of liver disease in cystic fibrosis patients in the Institute for Respiratory Diseases in Children - Skopje, Republic of North Macedonia | Ivana Arnaudova Danevska | ![]() |
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P-168 | Use of faecal elastase in patients with cystic fibrosis and mutation analysis in the Republic of North Macedonia | Tatjana Jakovska Maretti | ![]() |
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P-169 | Trends in Glycaemic Control in a Cohort of Patients with Cystic Fibrosis Related Diabetes | Rahana Khanam | ![]() |
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P-170 | Current status of cystic fibrosis-related diabetes in the Bulgarian cystic fibrosis population | GUERGANA PETROVA | ![]() |
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P-171 | Adult cystic fibrosis diabetes patient education and care needs: have your say - a patient survey | Katrin Kosbab-Jackson | ![]() |
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P-172 | Patient experience of Manchester Virtual Cystic Fibrosis-Related Diabetes Clinic during the COVID-19 pandemic | Amanda Brennan | ![]() |
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P-173 | Investigation of cyproheptadine as an appetite stimulator in 6 children with cystic fibrosis with a suboptimal nutritional status | Sara Van Meerbeeck | ![]() |
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P-174 | The association between body composition and respiratory outcomes for patients with cystic fibrosis | Lidia Sheibani | ![]() |
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P-175 | Nutritional status, lung function and adequacy of micronutrient supplementation in children with cystic fibrosis | Tena Niseteo | ![]() |
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P-176 | The benefits of changing to a cystic fibrosis-specific combined fat-soluble vitamin supplement: vitamin status, tablet burden and adherence | Katie Marsden | ![]() |
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P-177 | A review of vitamin levels in children with cystic fibrosis following the introduction of a multi-vitamin preparation | harriet gledhill | ![]() |
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P-180 | Food access challenges and social needs for people with cystic fibrosis | Cristen Clemm | ![]() |
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P-181 | Nutrition support at an adult cystic fibrosis centre | Mandisa Mitchell-Whyte | ![]() |
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P-182 | Developing a model for self-care support of diet and the gut in the routine care of children with cystic fibrosis: a qualitative study | Laurie Cave | ![]() |
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P-183 | The role of the nutritionist in care of adult patients with cystic fibrosis in Republic of North Macedonia | Sonja Panovska | ![]() |
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P-184 | Going green: patient awareness of inhaler indication, usage and environmental impact | Kizzy Snow | ![]() |
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P-185 | Health literacy in children with cystic fibrosis | Cherie Millar | ![]() |
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P-186 | The use of Recombinant human DNase in a large adult cystic fibrosis centre: a quality improvement review | Alison Orr | ![]() |
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P-187 | Measuring the effect of airway clearance in adults with cystic fibrosis a systematic review | Gemma Stanford | ![]() |
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P-188 | Non-invasive ventilation use and management of adult cystic fibrosis patients at end of life | Lucy E Wadsworth | ![]() |
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P-189 | Impact of triple CFTR modulation therapy on non-invasive ventilation use in adults with cystic fibrosis | Lucy E Wadsworth | ![]() |
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P-190 | Adherence 50 to prescribed nebulisers in children with cystic fibrosis is associated with increased hospital admissions and lower FEV1 Z-Score | Kieren James Lock | ![]() |
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P-191 | The use of technology and web-based exercise programmes to improve engagement and quality of exercise sessions delivered to paediatric inpatients during an admission | Louisa Wallbridge | ![]() |
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P-192 | The introduction of a quality improvement focus group in a large UK adult cystic fibrosis centre | Jocelyn Choyce | ![]() |
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P-193 | Audit of cough swab sampling techniques in children with cystic fibrosis | Zoe Johnstone | ![]() |
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P-194 | Implementation of a cystic fibrosis-specific virtual pulmonary rehab program | Catherine Fordyce | ![]() |
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P-195 | Using remote access musculoskeletal consultations within a cystic fibrosis specialist physiotherapy service: a pilot | Becky Dunphy | ![]() |
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P-196 | Evaluation of the efficiency of Frequencer and Vest airways clearance devices in adult cystic fibrotic patients | Peter Borka | ![]() |
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P-197 | Dysglycaemia and changes in aerobic function in cystic fibrosis | Owen Tomlinson | ![]() |
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P-198 | Physical activity is associated with aerobic capacity and lung function in adults with cystic fibrosis | Maire Curran | ![]() |
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P-199 | Assessing the effectiveness of a six-month partially supervised outpatient exercise programme for adults with cystic fibrosis: a service evaluation | Ann Banks | ![]() |
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P-200 | Supporting exercise services in cystic fibrosis: five years of the UK CF & Exercise Network | Owen Tomlinson | ![]() |
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P-201 | The effectiveness of exercise interventions to increase physical activity in cystic fibrosis: a systematic review | Maire Curran | ![]() |
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P-202 | The evaluation of sinonasal and health symptoms in children with cystic fibrosis on Orkambi or Symkevi using the SNOT-22 | Gemma Murray | ![]() |
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P-203 | Fertile ground: pregnancies in a post-Kaftrio pandemic era | Aoife Lillis | ![]() |
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P-204 | The what-ifs....considering the psychological impacts of CFTR modulators | Michele Puckey | ![]() |
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P-205 | Patient-reported outcome measures in the current context of new generation modulator therapies in cystic fibrosis | Kate Hayes | ![]() |
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P-206 | Patient feedback following the introduction of a dedicated Symkevi Initiation Clinic prior to starting modulator therapy | Lynette Haigh | ![]() |
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P-207 | Depression and inflammation in people with cystic fibrosis: a pilot study | Fabiana Ciciriello | ![]() |
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P-208 | Anxiety, depression and resilience during COVID-19 in Dutch patients with cystic fibrosis or primary ciliary dyskinesia and their caregivers | Marieke Verkleij | ![]() |
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P-209 | Key priorities in mental health research: results of a community and provider survey across the US | Beth Smith | ![]() |
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P-210 | COACH project - screening for psychological comorbidity in adolescents with cystic fibrosis | Svenja Temming | ![]() |
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P-211 | Use of telemedicine for mental health screening during the COVID-19 pandemic | Heather Bruschwein | ![]() |
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P-212 | Understanding (the experiences of) how mindfulness is used by people with cystic fibrosis: barriers and enablers | Sophia Kauser | ![]() |
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P-213 | Can we attend anywhere? Evaluation of multi-disciplinary team (MDT) remote consultations | Lisa Morrison | ![]() |
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P-214 | Virtual cystic fibrosis doctor: design, development, and user experience pilot study | David Morrissy | ![]() |
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P-215 | Contrasting patient and paediatric cystic fibrosis team perception of telemedicine consultations | Ema Kavaliunaite | ![]() |
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P-217 | Delivering quality improvement coaching in a virtual world: the use of digital technology to empower and engage CFDigiCare clinicians to undertake quality improvement activities nationally | Charlotte Carolan | ![]() |
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P-218 | Detection of anxiety and depression through mental health screening questionnaires in cystic fibrosis patients and their families during the COVID-19 pandemic | Ana Morales Tirado | ![]() |
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P-219 | Before and during the COVID-19 pandemic: a review of health of our paediatric cystic fibrosis patients | Lois Powell | ![]() |
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P-220 | Experiences of virtual cystic fibrosis clinics during the Covid-19 pandemic at one UK adult cystic fibrosis centre | Louise Warnock | ![]() |
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P-221 | Quality of life in adult and children with cystic fibrosis during the COVID-19 pandemic in Croatia | Tihana Odobasic Palkovic | ![]() |
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P-222 | Supporting children with cystic fibrosis: building social networks through the pandemic | Ellie Mindel | ![]() |
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P-223 | The role of psychologist in a cystic fibrosis centre during the COVID-19 pandemic experience of a Polish paediatric centre | Urszula Borawska-Kowalczyk | ![]() |
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P-224 | Change in care during the COVID-19 pandemic: single-centre experience in a middle-income setting | Ilektra Toulia | ![]() |
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P-225 | Parents feedback on virtual paediatric cystic fibrosis clinics during Covid-19 pandemic | Rachel Evans | ![]() |
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P-226 | A survey of family experience of cystic fibrosis care during the COVID-19 pandemic | Jill Watkinson | ![]() |
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P-227 | Cystic fibrosis social workers experience of working during COVID-19 | Fiona Dowdall | ![]() |
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P-228 | Concerns for people with cystic fibrosis when travelling pre-COVID-19 | Cherie Millar | ![]() |
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P-229 | Children and young people with cystic fibrosis enhanced multi-disciplinary pathways to address their educational needs during the evolving COVID-19 pandemic | Chandran Suja | ![]() |
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P-230 | A review of paediatric cystic fibrosis care during the COVID-19 pandemic | Lois Powell | ![]() |
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P-231 | Patient experience of accessing a virtual cystic fibrosis service during the 2020 SARS-CoV-2 pandemic in Blackpool, North West of England | Tarek Saba | ![]() |
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P-232 | The impact of COVID-19 on the relationships between parents of young people diagnosed with cystic fibrosis and the cystic fibrosis multidisciplinary team | Steve Jones | ![]() |
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P-233 | Treatment outcome preferences among people with cystic fibrosis: a discrete choice experiment | Rory Cameron | ![]() |
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P-234 | CFHealthHub a digital learning health system supporting virtual clinics and self-care across 60 of UK adult CF centres: a survey to understand benefits amongst the national CFDigiCare community | Josie Cunningham | ![]() |
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P-235 | Using a 1,500-patient learning health system (LHS) to support virtual clinics and medicines optimisation: a UK seven-centre Patient and Public Involvement (PPI) project to understand user experience | Sophie Dawson | ![]() |
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P-236 | Quantifying the under-served or hard to reach but reachable people with cystic fibrosis (CF) in two UK adult CF centres | Sophie Dawson | ![]() |
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P-237 | The role of beliefs in predicting adherence to nebulised medications in adolescents with cystic fibrosis | Bronwyn Stirzaker | ![]() |
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P-238 | EMBRACEing Medicines Optimisation: working collaboratively to identify barriers and share solutions in the medication pathway across 12 sites within the CFHealthHub | Charlotte Carolan | ![]() |
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P-239 | Pulmonary medication adherence among children and adults with cystic fibrosis | Elpis Hatziagorou | ![]() |
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P-240 | Improving the accuracy of nebulizer prescriptions (and update where necessary) during the medication reconciliation process on CFHealthHub (within 24-hours) | Rianna White | ![]() |
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P-241 | Middle-aged cystic fibrosis patients experiences of living with cystic fibrosis: a qualitative study | Lena Backstrm Eriksson | ![]() |
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P-242 | Ageing with cystic fibrosis: how do older adults with cystic fibrosis adapt to change? | Steven Stirk | ![]() |
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P-243 | The psychological impact of the late diagnosis of atypical cystic fibrosis patients | Guergana Petrova | ![]() |
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P-244 | Moving from paediatric to adult care: resources to support transition | Jacqueline Ali | ![]() |
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P-246 | Transition in cystic fibrosis: international trends | Daniel Office | ![]() |
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P-247 | Improved quality of care increases lung function and growth parameters in children with cystic fibrosis | Fabien Beaufils | ![]() |
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P-248 | Patient Science: a new citizen science approach for health and medical research involving people affected by cystic fibrosis | Johanna Gardecki | ![]() |
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P-249 | Mens health in cystic fibrosis in the modern era: a qualitative study | Traci Kazmerski | ![]() |
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P-250 | Correlation between care allowance levels and antibiotic treatment at the Stockholm Cystic Fibrosis Centre | Eleonora Falk | ![]() |
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P-251 | The experience of adults with cystic fibrosis engaging in a complex health management regime: a meta-ethnography | Steven Stirk | ![]() |
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P-252 | Evaluation of a dashboard-style 1-page coloured CF annual review summary as a novel feedback method to improve communication with families and aid MDT working. | Alison Coates | ![]() |
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P-253 | Share the Sunshine to Improve Staff Wellbeing | Sarah Simmons | ![]() |
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P-254 | Development of a primary palliative care model that includes a novel approach to address the needs of caregivers of adults with cystic fibrosis - improving life with cystic fibrosis: a primary palliative care partnership | Anna Georgiopoulos | ![]() |
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P-255 | Parenthood experience of cystic fibrosis patients and their spouses - An explorative study | Anne Jacob | ![]() |
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P-256 | Waiting for double lung transplantation: psychological impact (review) | Trudy Havermans | ![]() |
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P-257 | Directions of psychological and pedagogical support of children with cystic fibrosis | Sviridova Tatiana | ![]() |
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P-258 | Integrating a diabetes service within the Adult Cystic Fibrosis Service at Blackpool Victoria Hospital, UK | Julie Knowles | ![]() |
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Digital Object Identifier. Official code used to identify documents published on internet; similar to ISBN for books. You may use this code to reference your poster in future scientific publications or CVs. It can be found from anywhere in the world. ![]() To find the poster page, log onto www.medra.org and enter the DOI, or enter in your internet browser https://dx.doi.org/ followed by the DOI string asigned to your congress. ![]() |
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