MP-001 | F8 Mutation spectrum in a large cohort of Hemophilia A patients from an Italian Regional Reference Centre: an update | Federica Riccardi | Received |
PP-001 | Genetic etiology of a cohort of Uruguayan hemophilic patients and carriers | Yasser Vega | Received |
PP-002 | Molecular insights into the mechanism of large F9 deletions in three families with severe hemophilia B | Liliana Rossetti | Received |
MP-002 | KOHEM summer camp, recovery of Korea bleeding disorder community after the pandemic | Nam-il Lee | Received |
LBAPP-002 | Variant pHis118Arg in a patient with Severe Hemophilia A determines the presence of a mild phenotype | Gisela Barros Garcia | Received |
PO-002 | In silico evaluation of Danazol for bleeding disorders: The good, the bad and the ugly | Yara Maria Da Silva Pires | Received |
MP-003 | PACT - Bridging Hemophilia Care Gaps | Lubna Zafar | Received |
PP-003 | Unleashing the Power of Large Language Models Specific for Hemophilia Research | Tiago Lopes | Received |
PO-003 | My Opinion | Tania Maria Onzi Pietrobelli | Received |
LBAPP-003 | Replacement therapy outcomes in patients with haemophilia receiving antithrombotic therapy | Matteo Di Minno | Received |
MP-004 | Development of an online educational case-based tool to supplement hematology trainee understanding of hemostatic disorders and their management. | Kelsey Uminski | Received |
PP-4 | Detection of intron 1 and 22 inversions in the factor VIII gene by IS-PCR modified by capillary electrophoresis in patients and carriers of severe hemophilia A | Ana-Rebeca Jaloma-Cruz | Received |
PO-4 | Equality, its in our blood | Mark Ward | Received |
LBAPP-004 | Multicenter retrospective and prospective analysis of Emicizumab and FVIII prophylaxis in children with severe hemophilia A. | Tamer Hassan | Received |
MP-005 | Being a patient researcher for one day: an original proposition to celebrate the World Haemophilia Day | Thomas Sannié | Received |
PO-5 | Cocreating to improve patient experience in a pediatric hemophilia unit | Rubén Berrueco | Received |
PP-005 | Dominant negative effects of Gln50Arg mutation in the EGF-1 domain of factor IX causes severe Hemophilia B that negatively affects factor IX replacement therapy | Tirsa van Duijl | Received |
LBAPP-005 | Effectiveness of kinesiologic taping on function and pain in patients with Hemophilia A | Elif Güler Kazanci | Received |
PO-006 | Care Models In The Management Of Bleed Events In Persons With Hemophilia In Western Kenya | Nancy Midiwo | Received |
PP-006 | CATALYZING CARE: The Inauguration of Quetta Chapter under WFH-PACT | Masood Fareed Malik | Received |
MP-006 | Its Now: The Place of Youth in Hemophilia Spaces | Mateo Palladino Miserere | Received |
MP-007 | Driving an educational programme for teenagers living with haemophilia: importance of a partnership between AFH resource patients and healthcare professionals | Thomas Sannié | Received |
PO-007 | The development and expansion of the nurse-led genetic counselling service for female carriers | janet Cleary | Received |
PP-007 | Permanent Training Center in Hemophilia Hnos. Manuel and Javier Moreno | Javier Montoya Nicolas | Received |
PP-008 | Educational and informative materials for primary care health professionals, affected and families. | Javier Montoya Nicolas | Received |
PO-008 | Patient and Caregiver Preferences for Hemophilia A Treatment in Taiwan: A Discrete Choice Experiment | Jiaan-Der Wang | Received |
PO-009 | Use of drugs in the management of Malagasy patients with hemophilia | Tamby Rakoto Alson Andrianjafiarinoa | Received |
PP-009 | Effectiveness of the National Bleeding Disorders Foundation support of state chapter advocacy programs | Nathan Schaefer | Received |
MP-009 | Building the future of advocacy: Uruguays inclusion of young leaders | Juan Andres Pereira de Souza | Received |
PP-010 | Formation of leaders in the Americas:results of the strategic alliance | Antonio Gomez Cavallini | Received |
PO-010 | Satisfaction survey for people with hemophilia (PWH) | Kaouther Zahra | Received |
MP-010 | Social media strategy as a key to success in NMO advocacy plans/campaigns: Uruguay best practice | Mathias Guerreiro | Received |
PO-011 | Assessment of access to factor VIII and factor IX to persons with Hemophilia during emergencies: a quality improvement study | Kara Burge | Received |
PP-011 | Hemophilia A Rapid card testing in outreach programs: Experience from a single tertiary care centre in Kerala | Bitty Kurian | Received |
PP-012 | A Pilot Study on the Effectiveness of the World Federation of Hemophilia (WFH) Shared Decision-Making (SDM) Tool | Donna Coffin | Received |
PO-013 | Three-year interim analysis results of AOZORA study | Midori Shima | Received |
MP-013 | Three years of achievements and challenges in care of people with moderate haemophilia: results from a nationwide registry | Sergio Cáceres | Received |
PP-013 | Assessment of Canadian standards of care | David Page | Received |
PP-014 | Introduction of an outpatient pathway for ankle arthrodesis surgery for people with severe haemophilia | Deirdre Gorman | Received |
PO-014 | Real-world data on treatment regimen and medical use among patients with hemophilia B in South Korea | Eun Jin Choi | Received |
MP-14 | Implementation of Home Therapy in Mauritius | Janaki Sonoo | Received |
MP-015 | Quality improvement initiative involving electronic health records to improve the safety of bleeding disorder patients in the emergency department | Nancy Hodgson | Received |
PO-015 | Efanesoctocog alfa treatment for children below 12 years of age with severe haemophilia A: A plain language summary of the XTEND-Kids study | Costello Medical | Received |
PP-015 | Emicizumab: Real world experience from a single center | Lubna Zafar | Received |
PO-016 | Safety, tolerability, pharmacokinetics and pharmacodynamics of Mim8 in patients with haemophilia A: FRONTIER1 extension | Pratima Chowdary | Received |
MP-016 | Low-dose Prophy and chemical synovectomy : A new concept of optimal prophylaxis to preserve joint health for severe hemophilic patients living in resource-limited countries. | Laurent Frenzel | Received |
PP-016 | Healthcare professionals view on the use-case scenarios for point-of-care testing in hemophilia A patients in a home-setting | Aernoud Bavinck | Received |
PP-017 | Overview of medical care and support for patients living with haemophilia in the Democratic Republic of Congo, Kinshasa in 2023 | Jonathan Kukila | Received |
PP-018 | Progress in hemophilia care in the Democratic Republic of Congo from 2017 to today. | Gueth KUNDABI AKOTO Bill | Received |
PO-18 | A Natural History Cohort Study of the Safety, Effectiveness, and Practice of Treatment in People with Non-Neoplastic Hematologic Disorders | Tammuella Chrisentery-Singleton | Received |
MP-018 | Active lifestyle in patients with haemophilia A or B with and without inhibitors on once-daily subcutaneous concizumab prophylaxis: Results from the phase 3 explorer7 and explorer8 trials | Víctor Jiménez-Yuste | Received |
MP-19 | Prevalence of venous thromboembolism in people with inherited bleeding disorders: Real world data from the ATHNdataset | Shreya Agarwal | Received |
PO-019 | Clinical Profile and Cardiovascular Rrisk Factors among Hemophilians followed at University Clinics of Kinshasa | Gueth KUNDABI AKOTO Bill | Received |
PP-020 | Epidemiology of initial severe bleeding revealing a rare bleeding disorder: a francecoag network study | Sandrine Meunier | Received |
MP-020 | Biliary disorders among people with hemophilia: Findings from a case-control claims analysis | Steven Pipe | Received |
PO-020 | Direct Data Transfer of People with Hereditary Bleeding Disorders from the Hereditary Bleeding Disorder Registry in Thailand to the World Bleeding Disorders Registry and the Annual Global Survey of the World Federation of Hemophilia | Ampaiwan Chuansumrit | Received |
PP-021 | Summercamp for children with hemophilia in Murcia (2023) | Sara Caracena López | Received |
PO-021 | Improved quality of life in people with hemophilia A following gene therapy with dirloctocogene samoparvovec (SPK-8011) | Helen Miller | Received |
MP-021 | Global efforts in uniting all stakeholders, including regulatory agencies, in ensuring safety of hemophilia gene therapy patients: the World Federation of Hemophilia Gene Therapy Registry | Mayss Naccache | Received |
MP-022 | Haemophilia Gene therapy: a proposed structure, process and timeline for patient discussion for a truly informed decision | Enrico Ferri Grazzi | Received |
PP-22 | Real experience of prophylaxis with emicizumab in patients with congenital hemophilia A with and without FVIII inhibitors in the HCUVA | Ángela Heredia Cano | Received |
PP-23 | Evolution of patient profile in the last twenty years in the Summercamp La Charca | Angela Heredia Cano | Received |
MP-23 | Clinical efficacy of interventions for adult patients with moderately severe to severe hemophilia B: An indirect treatment comparison with fidanacogene elaparvovec | Valeria Merla | Received |
PO-023 | Bioethical aspects of gene therapy in patients with hemophilia | JORGE MARTIN CAMPOY | Received |
MP-024 | Value contribution of etranacogene dezaparvovec for the treatment of severe and moderately severe Haemophilia B in Spain through Multicriteria Decision Analysis (MCDA) | Daniel-Aníbal García Diego | Received |
PO-24 | Patients personal insights following a gene therapy clinical trial for hemophilia A | Christina Kirkegard | Received |
PP-024 | Real-world effectiveness and safety of damoctocog alfa pegol in patients with haemophilia A and a history of factor VIII inhibitors: a post-hoc analysis of the ongoing HEM-POWR study | María Teresa Álvarez-Román | Received |
PP-025 | Real-World Effectiveness of pegylated, recombinant Antihemophilic Factor (rurioctocog alfa pegol) Prophylaxis in Patients with Hemophilia A in Canada: A Retrospective, Intra-Patient Comparison with a Before-After Design | Arun Keepanasseril | Received |
MP-025 | Long-term evaluation of external quality assessment results for Factor VIII and Factor IX | Piet Meijer | Received |
PO-25 | ATHN Transcends Hemophilia Gene Therapy Outcomes Arm: A Long-Term Follow-Up Study on Safety and Effectiveness of Gene Therapy on People with Hemophilia | Tammuella Chrisentery-Singleton | Received |
PO-026 | Point-of-care Musculoskeletal Ultrasound Utilization and Outcomes in a Hemophilia Treatment Center | Curtis Yee | Received |
MP-026 | Performance control of eleven aPTT reagents for the quantification of an extended half-life factor IX | Pablo Martinez | Received |
PP-026 | Self-reflections, lessons learned, and suggestions for data quality assurance from a retrospective data analysis from the Canadian Bleeding Disorders Registry. | Arun Keepanasseril | Received |
PO-027 | Acquired hemophilia and human immunodeficiency virus: Case reports | Carole Kilach | Received |
PP-27 | The disruptive impact of extensive adoption of emicizumab on the clinical validation of new therapeutic agents in hemophilia A | Cedric Hermans | Received |
MP-027 | The use of different collagen binding assays aids in the diagnosis of von Willebrand disease | Fiona Shepherd | Received |
PP-028 | Management of Persons with Inherited Hemophilia Requiring Antithrombotic Therapy: A Canadian Modified Delphi Study. | Kelsey Uminski | Received |
MP-028 | Dose escalation of the anti-tissue factor pathway inhibitor marstacimab in participants with severe hemophilia without inhibitors: results from the phase 3 BASIS and long-term extension trials | Andrew Palladino | Received |
PO-028 | Management of life-threatening bleeding in a hemophilia B patient with high responder inhibitors: A case report | Te-Fu Weng | Received |
PP-029 | Application of self-monitoring smart devices to improve the health status in hemophiliacs | Soyon Kim | Received |
MP-029 | Efanesoctocog alfa treatment outcomes in subjects =50 years of age from the XTEND-1 trial | Hannah Nelson | Received |
PP-030 | Non-invasive evaluation of arterial stiffness and characterization of cardiovascular risk factors in a patients with hemophilia cohort in Uruguay | Joaquín Ferreira | Received |
MP-30 | Reduced recovery of turoctocog alfa pegol is not always associated with antidrug antibodies against polyethylene glycol: data from three patients | Gianna Franca Rivolta | Received |
PP-031 | Bleeding patterns and clotting factor concentrates utilisation in haemophilia patients treated at Kamuzu Central Hospital, Malawi | Francis Mkwenembera | Received |
MP-031 | Evaluation of access to Care for Women/Carriers of Hemophilia in Hemophilia Treatment Centres: A Multinational Experience | Marlène Beijlevelt | Received |
MP-032 | Teaching health care staff about hemophilia: four educational resources to learn about bleeding disorders | Shamshah Aratia | Received |
PO-032 | F8 gene synonymous variants and their clinical correlation: our experience at La Paz University Hospital | Mikel Fernandez Artazcoz | Received |
PO-033 | Emicizumab prophylaxis: a single center clinical experience | Cristina Santoro | Received |
PP-033 | Clinicohematological profile of hemophilia patients at a tertiary care center in Eastern India | Ruchi Sinha | Received |
MP-033 | Intramuscular vs subcutaneous vaccination in children with haemophilia. Has the evidence changed since COVID19? | Charlotte Beeton | Received |
PP-034 | Enrollment of Malagasy Patients with Hemophilia in the World Bleeding Disorders Registry | Tendry Isaia Rakoto ANDRIANJAFIARINOA | Received |
PO-034 | Protein Design and Deep Learning: A New Frontier in Hemophilia B Management | Arthur Pimenta | Received |
MP-034 | Bridging the Practice Gaps in Hemophilia: Usability Study of HemoCopilot a Comprehensive Digital Self-assessment Solution | Emilie Guilpain | Received |
PP-35 | Case Series: Acquired hemophilia in Colombian patients | Sandro Parra Soto | Received |
PO-035 | Effect of intra-articular application of Platelet Rich Plasma-Ozonated in chronic hemophilic arthropathy. | Armando Raúl Hernández Salgado | Received |
MP-035 | Towards Tailoring the use of emicizumab for Hemophilia A children in China: a retrospective clinical data from a comprehensive care center of China | Qianqian Mao | Received |
MP-036 | Children with bleeding disorders who developed excess weight gain during the COVID-19 pandemic revert to their pre-pandemic weight and BMI percentiles a prospective follow-up of 76 children | Teodora Markovic | Received |
PO-036 | Effectiveness and safety of prophylaxis with emicizumab in Cuban patients with hemophilia A followed for two years | Dunia Castillo González | Received |
PP-037 | Socio-economic determinants and their impact on patients and families living with Hemophilia in a low- and middle-income country: An experience from a tertiary care center in Northern India | Pragya Kafley | Received |
PO-037 | Furniture and ludic elements design: musculoskeletal training for individuals with coagulopathies | Luis Porras | Received |
MP-038 | Hemotrack: Musculoskeletal Management in Hemophilia with Physiotherapist-Driven Digital Solutions | Sofía Pérez-Alenda | Received |
PP-038 | Exploring the Relationship between Economic Development and Underreported Bleeding Disorders | Richard Kelly | Received |
MP-039 | Preliminary results of OPG/RANKL levels in Haemophilia A patients (PWHA) on Emicizumab | Styliani-Despoina Christidi | Received |
PO-040 | Advanced practice registered nurses in coagulopathies in Spain: does it exist without a legal framework? | Sara García Barcenilla | Received |
MP-040 | Joint health outcomes in severe haemophilia A patients on primary prophylaxis and the influence of early bleeding phenotype and treatment | Alexandros Arvanitakis | Received |
PP-040 | Sociodemographic profile and socioeconomic level of patients at the Monterrey hemophilia care center, an inside look at the families | Laura Páez | Received |
MP-041 | Gender Differences in Parenting Stress and Social Support Among Hemophilia Families | Carletha Gates | Received |
PO-041 | Burden on parents of children with von Willebrand disease | Linda Myrin Westesson | Received |
PO-042 | Nurses perception of their work environment in Hemophilia and Congenital Coagulopathies Units. | Nuria Caballero | Received |
MP-042 | Qualitative research to the experience and needs surrounding pregnancy and childbirth in women with von Willebrand disease | Corinne Liem | Received |
PP-042 | Exploring Varied Clinical Profiles in Mild Hemophilia: Insights from the Castilla-La Mancha, Spain Hemophilia Registry | Sonia Herrero Martín | Received |
MP-043 | The Effects of Counseling using CBT(Cognitive-Behavioral-Therapy) on reducing irrational belief and interpersonal anxiety of Hemophilic Arthritis Patients - Comparative Study of Individual Counseling and Group Counseling= | WONSOOK BAK | Received |
PP-043 | Five-year analysis of laboratory services in hemostasis from a resource-limited setting: Experience from a single tertiary care center in Kerala, Southern India | Bitty Kurian | Received |
PP-44 | Exploring the clinical spectrum of factor VII deficiency in India: a retrospective study | Gohul Jalajakumari | Received |
MP-044 | Mental Health and Quality of Life in Children and Adolescents Living with Hemophilia, a Single Center Study in Pakistani Sample | Tahira Zafar | Received |
PO-044 | Nurse role and systematic collection of information in the visit to the patient with hemophilia. | Diego José Ramos Galindo | Received |
PO-045 | Nursing role as coordinator in a multidisciplinary team in patients with congenital coagulopathy during elective surgeries | Gemma Guillen Peramos | Received |
MP-045 | Training and coexistence days for children with coagulopathies in Spain | Daniel-Aníbal García Diego | Received |
PP-045 | Evolution of hemophilia care: analyzing factor VIII usage trends and the impact of novel therapies | Ellia Tootoonchian | Received |
MP-046 | Strengthening our life skills HAVI | David Cuartas | Received |
PO-046 | Nurse role in clinical trials of patients with congenital coagulation disorders | Diego José Ramos Galindo | Received |
PP-046 | Factors associated with delayed diagnostic of inherited bleeding disorders in LMIC. | Saliou Diop | Received |
PP-047 | Population Pharmacokinetics in Hemophilia: Availability and Implementation in Latin-America. Results of the CLAHT-WFH Survey. | Jesus Ardila Novoa | Received |
PO-047 | Manage emotions to improve adaptation to haemophilia | Alfonso Castro-Blanco | Received |
MP-047 | Sexual Dysfunction and Anxiety in Women With Hereditary Bleeding Disorders | Basak Koc | Received |
PO-048 | The role of nursing in hemophilia camps | Alfonso Castro-Blanco | Received |
MP-048 | Depression among patients with hemophilia | Ana Paola Abreu Bastar | Received |
PP-049 | Factor VIII in Female Patients with Hemophilia A (PwH): A Laboratory Analysis. | Gloria Ramos Ramos | Received |
PO-049 | Learning to self-administer treatment through play | M Carmen García-Rivera | Received |
MP-049 | Health-Related Quality of Life in People with Hemophilia in Italy: a Single-Center Cross-Sectional survey | Angelo Claudio Molinari | Received |
PP-050 | Gene Therapy Education Program - A CHS comprehensive information program | Chantal Raymond | Received |
MP-050 | Mental health outcomes from the Learning to Live with Non-severe Haemophilia study: Combining coreHEM Mental Health Outlook and qualitative interviews | Simon Fletcher | Received |
PO-051 | Health Improvement in an Adolescent with Type A Hemophilia using Emicizumab | Camila Stephanes | Received |
MP-051 | Health-Related Quality of Life and Chronic Pain Burden on a Cohort of People with Haemophilia in 5 European Countries: an Updated Snapshot from the Cost of Haemophilia in Europe: a Longitudinal Socio-Economic Survey (CHESS) | Enrico Ferri Grazzi | Received |
PP-051 | Gene Therapy for Hemophilia Clearing House: a single repository of resources for hemophilia | Taryn Bosquez-Berger | Received |
PP-052 | The World Federation of Hemophilia Living Guidelines Model | Mona Mayla | Received |
MP-052 | WiSH-QoL Study Health-Related Quality of Life (HRQoL) in adults with von Willebrand Disease (VWD) in France: Women cohort results | Marie-Hélène ANDRE-BONNET | Received |
PO-52 | Prevention through minimal invasion | Maria Mercedes Alba Bensich | Received |
PP-053 | A conceptual roadmap to an optimal Model of Care for effective and efficient gene therapy delivery in the UK: a multi-disciplinary multi-stakeholder approach | Enrico Ferri Grazzi | Received |
PO-053 | Management and Complete Oral Rehabilitation Under General Anaesthesia Including Extraction in a Patient with Suspected Factor I and Factor VIII Deficiencies: A Case Report | Abdulmajeed Alrumi | Received |
MP-53 | The needs of people living with extremely rare bleeding disorders and bleeding disorders of unknown cause | Maja Johanne Sndergaard Knudsen | Received |
MP-054 | A unique case of recurrent venous thromboembolism in severe factor XIII deficiency | Lize van Vulpen | Received |
PO-054 | Heterotopic Ossification in Bleeding Disorders: A Multicenter Case Series | Bruno Steiner | Received |
PP-054 | Long-term retention plan through myGTR a patient engagement tool from World Federation of Hemophilia Gene Therapy Registry | Toong Youttananukorn | Received |
PP-055 | Question and answer guide on gene therapy in hemophilia | Lourdes Pérez | Received |
MP-055 | Therapeutic elbow arthroscopy for advanced haemophilic arthropathy - A haemophilia tertiary centre experience | Rory Hammond | Received |
MP-056 | Comparing DDAVP response classifications in 149 children with von Willebrand disease | Michael Shu | Received |
PP-056 | A multi-stakeholder, collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey: insights from a patient advisory board | Karen Pinachyan | Received |
PO-056 | Platelet-Rich Plasma for chronic synovitis treatment, clinical outcomes over the years | María Landro | Received |
MP-057 | Evaluation of bleeding score in haemophilia carriers | Gabriela Sliba | Received |
PP-057 | Cost of factor concentrates for low dose prophylaxis in severe phenotype hemophilia A under National Health Security Office schemes in Thailand | Bunchoo Pongtanakul | Received |
PO-057 | Joint disease profile of cameroonian haemophiliac | Annick Ndoumba Nkengue | Received |
PP-058 | Comparative Cross-Sectional Study on BMI in Children Aged 8 to 12 Years with Hemophilia | JORGE MARTIN CAMPOY | Received |
MP-058 | Development of two unmet needs assessment tools for young women with a bleeding disorder and heavy menstrual bleeding | Jaime Chase | Received |
PO-058 | Destructive arthropathy due to hemarthrosis in a patient with Glanzmann thrombasthenia. case report | Mohamed Sharif | Received |
PO-059 | Treatment of hemophilic pseudotumor, with and without high-response inhibitor, report of two cases. | Armando Raúl Hernández Salgado | Received |
PP-059 | Role of a NMO in the P&R process | Miguel Ángel MARTÍN DOMINGUEZ | Received |
MP-060 | Hemophilia carriers in Tunisia: Where are we? | EYA DRISSI | Received |
PO-060 | Safety of radiosynovectomy with Yttrium-90 and Samarium-153 in patients with haemophilia | Rodrigo Pagnano | Received |
PO-61 | Patient Related Outcome Measures in Indian Hemophiliac PATIENTS after Elective Arthroplasty | Apeksha Kumar | Received |
PP-061 | The importance of Ultrasound as an objetive method for treatment modification | Mauro Davoli | Received |
MP-061 | Factor VIII Level in Mothers of Patients with Severe Hemophilia A and its Impact on Bleeding and Joint Status | Azza Tantawy | Received |
MP-062 | Needs of women and girls with coagulopathies in Spain | Lourdes Pérez | Received |
PP-062 | Critical role of Ultrasonography in hemophilia patients in developing countries: Revealing the inconspicuous. | Manali Bafna | Received |
PO-062 | Effect of a Physiotherapy Exercise Program on Quality Of Life and Pain in Iranian Patients With Severe Hemophilia | Vida Marzban | Received |
MP-63 | Use of recombinant von Willebrand factor concentrate for peri-partum haemostatic management of women with type 2 VWD; a case series | Daniel Daniel | Received |
MPE-064 | Incidence rates of arterial and venous thrombosis among people with hemophilia A or B | Guy Young | Received |
PO-064 | Exercise and physical conditioning in hemophilia: guidance booklets | Diogo Dias | Received |
PP-064 | Acquired hemophilia in the postpartum period: experience from two Italian hemophilia centres. | Gianluca Sottilotta | Received |
PP-65 | Prediction of inhibitor risk in Hemophilia A using Machine Learning | Tiago Lopes | Received |
PO-065 | Joint health and treatment received in a group of patients with hemophilia A from the National Hemophilia Center Venezuela 2023 | Laura Aponte | Received |
MPE-065 | Adults with haemophilia B and history of chronic HCV/HBV infection receiving etranacogene dezaparvovec gene therapy in the HOPE-B clinical trial demonstrate long-term bleeding protection and sustained FIX Activity 3 years after administration | Claire Crouchley | Received |
PP-066 | severe inherited hemophilia A with inhibitors combined with a platelet function disorder case from Kuwait | Hadeel Mohammad | Received |
MPE-066 | Improved Joint Health After Gene Therapy with Dirloctocogene Samoparvovec (SPK-8011) in People with Hemophilia A | Kristen Jaworski | Received |
PP-067 | Type 3 von Willebrand disease with inhibitors (VWD3i) hemostatic control and transfusional complications. | Catarina Camara | Received |
MPE-067 | A novel gene editing lexicon strategy for the haemophilia community | Emily Tang | Received |
PO-067 | The value of home visits during a Twinning visit | Lize van Vulpen | Received |
MPE-068 | HIV comorbid Infection and etranacogene dezaparvovec therapy: efficacy and safety results from phase 2b and pivotal phase 3 HOPE-B trials 3 years after Administration | Claire Crouchley | Received |
PP-068 | FVIII post infusion monitoring Survey: Results & analysis of Extended half-life (EHL) FVIII/FIX products and laboratory performance for the external quality control assessment programmes of International External Quality Assessment Scheme (IEQAS) | Anna Williams | Received |
PO-068 | Escalating low-dose individualized haemophilia prophylaxis: A focus in China at Dawn of a new era of cost effective Individualized prophylaxis | Wanru Yao | Received |
PP-069 | FVIII post infusion monitoring global study: Results & analysis of newer and extended half-life (EHL) FVIII products across external quality assessment programmes of ECAT, UK NEQAS BC & RCPAQAP. | Anna Williams | Received |
PO-069 | Emicizumab prophylaxis: A novel alternative therapy for severe hemophilia A patients with and without inhibitors | Munira Borhany | Received |
MPE-69 | Epidemiological Insights into Hepatitis C Virus Infection among Patients with Inherited Bleeding Disorders: A 30-Year Evolution in a Brazilian Cohort | Nivia Foschi | Received |
PP-070 | Genetic mutation of haemophilia in Singapore in relation to its severity and inhibitor | SL Tien | Received |
MPE-071 | Multicenter evaluation of the haemostatic activity of emicizumab in patients with severe haemophilia A | Laurie Josset | Received |
PO-071 | Paradigm shift for haemophilia prophylactic treatment in a uruguayan adult haemophilia treatment centre | Maximiliano Berro | Received |
PP-071 | Platelet analysis by flow cytometry: EDTA or citrate sample? | Nour Mziou | Received |
PO-72 | Low Dose Prophylaxis in Haemophilia Using Extended Half- Life Factor Concentrates | Tahira Zafar | Received |
MPE-072 | PRO management and collection outside clinical research: why is it so difficult? | Laura González-Rodríguez | Received |
PP-72 | Global comparative antithrombin (AT) field study: Impact of laboratory assay variability on the assessment of AT activity measurement | Ekta Chhabra | Received |
PP-073 | Long-term performance of Factor VIII and Factor IX testing by laboratories of the Italian Hemophilia Centers | Piet Meijer | Received |
PO-73 | Real world experience with use of Emicizumab in haemophilia A patients: Case series report from Malawi | Francis Mkwenembera | Received |
MPE-073 | Functional and radiographic assessment in haemophilic arthropathy: is there a dissociation? | Rodrigo Pagnano | Received |
PP-74 | Factor IX activity measurement of recombinant FIX Fc fusion protein eftrenonacog alfa with one-stage clotting and chromogenic substrate assay | Marie Prudkova | Received |
PO-074 | Control of haemophilia treatment with extended half-life factors in Rosario, Argentina | Mariana Raviola | Received |
MPE-074 | Effects of resistance training on muscle strength in adults with haemophilia: a systematic review and meta-analysis | Rodrigo Núñez-Cortés | Received |
PP-075 | Comparisons of serum osteoprotegerin (OPG) and RANKL in Children, Adolescents and Adult patients with hemophilia: are there any differences? | AIKATERINI MICHALOPOULOU | Received |
PO-075 | The association between factor VIII pharmacokinetic parameters and clinical outcomes: design of the MoHem 2 study | Darwin Health Communications | Received |
MPE-075 | Enhancing hemophilia assessment and monitoring with novel digital biomarkers | Sébastien Lobet | Received |
MPE-076 | Generation of a viable mouse model of factor V deficiency: a mild disease phenotype | Andrea Miguel Batuecas | Received |
PP-76 | Real world variability in drug concentration during emicizumab therapy. | Susan Guy | Received |
PO-076 | Relationship between adherence and pain in patients on Emicizumab. Experience of a center in Rosario, Argentina. | Mariela Pasquero | Received |
PO-077 | Educational program for haemophilia in Gabon: development of prophylaxis for patients living with haemophilia. | Stan Marc Koumba Mihindou | Received |
PP-077 | Pitfalls encountered during inhibitor testing in travelled samples from peripheral camps | Savitri Singh | Received |
MPE-077 | HMB-001: A Phase 1/2, First-in-Human Study to Investigate the Safety, Tolerability, Pharmacokinetics, Pharmacodynamics, and Efficacy in Participants with Glanzmann Thrombasthenia | Jigar Amin | Received |
PO-078 | Initial experience with Emicizumab prophylaxis in adults with severe Haemophilia A in a Uruguayan haemophilia treatment centre | Maximiliano Berro | Received |
PP-78 | Discrepancies in laboratory assays for extended half-life factor VIII/Factor IX products monitoring: experience from a single pediatric center in Argentina | Rodolfo Sueldo | Received |
PP-79 | Cut off for aFVIII inhibitor screening test | Rodolfo Sueldo | Received |
PO-079 | Challenges and burdens of long-lasting intravenous prophylaxis in adult haemophilia patients: a study from one centre | Jelena Bodrozic | Received |
PP-080 | A substudy to evaluate the feasibility and effectiveness of marstacimab administration using a prefilled pen injection device | Andrew Palladino | Received |
PO-080 | Conversation circle with patients taking emicizumab: an experience report | Alice Oliver Sacramento | Received |
PO-081 | Engaging with the great outdoors - a pilot project | Claire Forde | Received |
PP-081 | ENHANCING HEMOPHILIA CARE: Experiences with Emicizumab via World Federation of Hemophilias Humanitarian Aid Program | Masood Fareed Malik | Received |
PO-082 | CompartilHEMOS Experiences: Psychology Meeting of Psychologists from reference teams in the care of people with hemophilia in Brazil | Diogo Dias | Received |
PP-082 | Prophylaxis with emicizumab in 50 children and adolescents with severe hemophilia A without inhibitor in Uruguay. National experience. | Felipe Lemos | Received |
PP-084 | Breaking Barriers in Hemophilia A Care: One-Year Real-World Experience with Emicizumab Prophylaxis at Civil Service Hospital, Kathmandu, Nepal | bishesh sharma poudyal | Received |
PP-085 | Western States Regional Hemophilia Network (WSRHN) nursing tele-mentoring program | Mary Lesh | Received |
PO-085 | WFH-HUMANITARIAN AID: Enhancing the Quality of Life for Persons with Bleeding Disorders in Pakistan | Shahla T Sohail | Received |
PO-086 | Burden of disease and impact on quality of life in hereditary factor X deficiency patients who have experienced menorrhagia | Kim Clark | Received |
PP-086 | Haemophilia Nurse Consultant Role in adult haemophilia treatment centre in South Australia a 12 month analysis. | Yu-hsuan LIN | Received |
PO-087 | Burden of disease and impact on quality of life in hereditary factor X deficiency patients receiving prophylaxis | Kim Clark | Received |
PP-087 | Changes in the life of people with hemophilia A using emicizumab: nursing perceptions | Sonia Ferreira | Received |
PP-088 | Strategies to Promote Autonomy in Children, Adolescents, and Families Treated with Emicizumab | Florencia Gomez | Received |
PO-089 | Health-related quality-of-life, treatment burden and preference in patients with haemophilia: Results from the concizumab phase 3 explorer7 & 8 studies | Gary Benson | Received |
PO-090 | Living with Hemophilia in Latin America: An Evaluation of Youth Development Interventions to Improve Quality of Life | Deniece Chevannes | Received |
PP-090 | The use of Peripherally Inserted Central Catheter (PICC) Line for people with Haemophilia and other bleeding disorders:a single centre experience | Elsa Aradom | Received |
PO-091 | Quality of Life in Korean Hemophilia Patients: A Systematic Review | chang jihun | Received |
PP-091 | Cinical oral conditions in pediatric patients with inherited bleeding disorders in relation to hemorrhagic phenotype | Laura Beatriz Isidro Olán | Received |
PP-092 | Clinical features of hemophilic arthropathy of the elbow that progresses to irreversible lesions during childhood | Atsuki Yamashita | Received |
PO-092 | Treatment-related clinical and humanistic unmet needs in haemophilia A without inhibitors | Amy Shapiro | Received |
PP-093 | Low bone mineral density and vitamin D deficiency in patients with hemophilia in Taiwan | Tsung-Ying Li | Received |
PO-093 | SEEK Sharing Experience, Expanding Knowledge: A digital platform for patient-driven research in bleeding disorders | Luke Pembroke | Received |
PP-094 | World Federation of Hemophilia aid in orthopaedic surgeries: translational outcomes and real-world data from a single tertiary hemophilia care centre in India | Sandeep Abhijit Pattnaik | Received |
PO-094 | Evaluation of health-related quality of life in adolescents and adults with hemophilia treated in a rehabilitation unit. | Aideé Conde | Received |
PO-095 | Evaluation of Quality of Life in Patients with Von Willebrand Disease in a Health Institution in Colombia | Juan David Wilches Gutierrez | Received |
PP-096 | The frequency of bleeding in pediatric patients with moderate and mild hemophilia A and B- Polish experience | Pawel Laguna | Received |
PO-096 | Hemophilia and physical activity: impact of sport on the quality of life of people with Hemophilia | Carlos Pemán Asín | Received |
PO-097 | Addressing Iron Deficiency Anemia in Bleeding disorder patients: Lessons from a Single Center Perspective | Munira Borhany | Received |
PP-097 | Clinical and laboratory characteristics of children with platelet function disorders seen at a paediatric centre | Joyce Lam | Received |
PP-098 | Spectrum of Genetic Mutations in Haemophilia A and B Patients at a Paediatric Haemophilia Treatment Centre in Singapore | Chiew Ying Lim | Received |
PO-098 | Health-Related Quality of Life among Children and Adolescent Patients with Hemophilia: a Study in Argentinian Population | Maria Arrieta | Received |
PO-099 | Comparative study on health-related quality of life in children and adolescents with hemophilia in Argentina | Maria Elizabeth Arrieta | Received |
PP-99 | A survey of the experiences of parents of children with severe haemophilia, recently commenced on Hemlibra | Beatrice Nolan | Received |
PO-100 | Diagnosing and treating Bleeding Disorder of Unknown Cause (BDUC): an illustrated review on current practice and future directions (BDUC-iN study group and SYMPHONY consortium) | Amaury Monard | Received |
PO-101 | Long term reductions in haemarthrosis in Boys with severe haemophilia A: results of a three years follow up study on the China haemophilia secondary individualized prophylaxis study (CHIPS) | Wanru Yao | Received |
PP-101 | Factors related to quality of life in children with hemophilia A: a study in West Java, Indonesia | Sindy Febrianti | Received |
PO-102 | Glanzmann Thrombasthenia: identification of two novel mutations in Tunisia | gouider emna | Received |
PP-102 | Characteristics and Functional Impairment Level of Persons with Hemophilia with Peripheral Nerve Injuries | Easmin Doly | Received |
PO-103 | Evaluation of thromboelastometry, thrombin generation assay and bleeding score in patients with hereditary factor VII and factor XI deficiency | Petr Smejkal | Received |
PP-103 | Multidisciplinary survey of hemophilia treatment in Latin America: results from 17 reference centers | Carla Daffunchio | Received |
PP-104 | Physiotherapy in patients with hemophilia with virtual reality device | Cecilia Gallardo Pérez | Received |
PO-105 | Management of acquired hemophilia A cases using emicizumab and immunosuppressive therapy: A case-series | Varun Bafna | Received |
PP-105 | The Impact of dynapenia on handgrip force control in people with haemophilia | Rodrigo Núñez-Cortés | Received |
PO-106 | Safety and Efficacy of Long-Term Treatment of Type 1 Plasminogen Deficiency Patients with Intravenous Plasminogen Replacement Therapy | Amy D. Shapiro | Received |
PP-106 | Gross motor development in infants with haemophilia. Comparisons with full-term and preterm infants of the same nationality | Dimitrios Syrengelas | Received |
PO-107 | An overview of Glanzmann Thrombasthenia in Portugal | Sara Morais | Received |
PP-107 | Haemophilia Physiotherapy A Challenge For Physiotherapist - A Real Time Experience From A Developing Country HTC | Dinkar Viswam | Received |
PP-108 | Assesment with Biopsychosocial Approach in Patients with Hereditary Bleeding Disorder | Tuge Poyraz Isleyen | Received |
PO-109 | Glanzmanns thrombasthenia and meningioma: a neurosurgical journey | Filipa Pires | Received |
PP-109 | Creating a work choice booklet: A Physical Therapist Collaboration | Jennifer Newman | Received |
PP-110 | Creating a sustainable network of physical therapists: Hemophilia Treatment Center Physical Therapy Collaborative. | Jennifer Newman | Received |
PO-110 | ATHN Transcends: Natural History Cohort Study of Bleeding Symptoms and Treatment Outcomes in Patients with Glanzmann Thrombasthenia | Tammuella Singleton | Received |
PO-111 | Surgical outcomes for people living with hemophilia in a resource constrained setting | Carole Kilach | Received |
PP-112 | Patients satisfaction on Rehabilitation Program (RP) in Kuressaare Hospital, Estonia | Martin Kaal | Received |
PO-113 | WFH Humanitarian Aid Program: Expanded Support for Hemophilia Care in Enugu, Nigeria | Theresa Nwagha | Received |
PP-114 | Monitoring people with hemophilia on low dose prophylaxis with Hemophilia joint health score | Emna Gouider | Received |
PO-114 | Development of a Comprehensive Questionnaire to Assess Disease Awareness in People with Hemophilia | Mariela Pasquero | Received |
PP-115 | Gene therapy for hemophilia: musculoskeletal transformations, patient experiences, and physiotherapist perspectives | JANAINA RICCIARDI | Received |
PO-115 | Paediatric population with moderate or severe von Willebrand disease in Sweden | Linda Myrin Westesson | Received |
PP-116 | Determination of cardiovascular risk in adult patients with hemophilia using the Framingham risk score and the artherosclerotic cardiovascular disease score | Aideé Gibraltar | Received |
PO-116 | Digital therapeutic education program for people concerned by Von Willebrand disease | Nicolas GUERIN | Received |
PO-117 | Management of patients with monoclonal gammopathy of undetermined significance and acquired von Willebrand disease | Gianluca Sottilotta | Received |
PP-117 | Impact of physical exercise in persons with congenital coagulopathies: Hemovement Project | JOSE MANUEL CALVO VILLAS | Received |
PO-118 | Real-world efficacy and safety of plasma-derived von Willebrand factor-containing FVIII concentrates in patients with Von Willebrand Disease in Italy: the RECLASFAWILL study | Augusto B Federici | Received |
PP-118 | Validation of a systematic review to evaluate the measurement properties of performance-based outcomes for the functional assessment of people with haemophilia | Catherine Holdsworth | Received |
PP-119 | Evaluation of Balance and Proprioception in adult and paediatric haemophilia patients | Daniel Zaldumbide | Received |
PO-119 | Safety and efficacy of the use of Fanhdi in patients with von Willebrand disease: a prospective, observational, post-authorization study | Alejhandra Lei | Received |
PP-120 | Lung function in adult hemophilia | Daniel Zaldumbide | Received |
PO-120 | Clinical, biochemical, and molecular characterization of Mexican patients with von Willebrand disease | Ana Jaloma | Received |
PO-121 | Long-term monitoring and multidisciplinary management of abnormal uterine bleeding in teenagers with type 3 von Willebrand disease | Novie Amelia Chozie | Received |
PP-121 | Joint manipulation and sliding in patients with severe hemophilia and ankle arthropathy. A controlled pilot study | Rubén Cuesta-Barriuso | Received |
PP-122 | Conditioned pain modulation in patients with hemophilic arthropathy. A cross-sectional cohort study. | Roberto Ucero-Lozano | Received |
PO-122 | Trauma and Taboo. Family story of WBD in 20th century Poland. | Bernadetta Pieczynska | Received |
PO-123 | Phenotype assessment and genetic study to the detection of Haemophilia B carriers. | Maria Veronica Arrieta | Received |
PP-123 | Safety and efficacy of blood flow restriction in patients with hemophilic knee arthropathy. A randomized pilot study. | Elena Donoso-Úbeda | Received |
PP-124 | Dependence of adult patients with haemophilia on instrumental activities of daily living. A cross-sectional cohort study | Rubén Cuesta-Barriuso | Received |
PO-124 | A case series of girls with hemophilia A | Fitri Primacakti | Received |
PP-125 | The Characteristics and Treatment Patterns in Hemophilia B Patients Receiving Recombinant Coagulation Factor IX | Sang Kyu Park | Received |
PO-125 | Hemophilia B Patient Journey | Tania Maria Onzi Pietrobelli | Received |
PP-126 | Racing against the odds: Comparing two types of prophylaxis in the context of Hemophilia A and marathon running | Michelle Bech | Received |
PP-127 | Comparison of spontaneous bleeding incidents despite use of prophylactic factor treatments in the era of Emicizumab use over 12 months for patients with Moderate or severe Haemophilia A in an adult haemophilia treatment centre South Australia | Yu-hsuan LIN | Received |
PO-128 | Experiences in dentistry surgeries of greater complexity in patients with hemophilia A and B in province of Salta, Argentina | maria sol cruz | Received |
PP-128 | Effectiveness of starting emicizumab in routine clinical practice for patients with severe hemophilia A without FVIII inhibitor: results using PicnicHealth data in the US | Letizia Polito | Received |
PO-129 | Clinical Outcomes of Total Knee Arthroplasty in patients with Hemophilic Arthropathy a prospective study | Hugo Saint-Yves | Received |
PP-129 | DIffusion of prophylaxis and introduction of innovative products in haemophilia: data from the Emilia-Romagna Regional Registry, 2003-2022 | Gianna Franca Rivolta | Received |
PO-130 | LADIES: Bleeding Disorders in Women - Health Care and Support | Mariana Battazza | Received |
PP-130 | Nonacog Beta Pegol in Adolescents and Adults with Hemophilia B: Insights from an Experience in Tertiary Care Centre in Maharashtra | Varun Bafna | Received |
PP-131 | Sixteen years real life experience of with low dose prophylaxis in a hemophilia treatment center | Ons Ghali | Received |
PP-132 | First year of emicizumab prophylaxis: Preliminary results of the Brazilian Registry of Emicizumab (EMCase Study) | José Sávio Santos Ferreira Filho | Received |
PP-133 | Effectiveness and safety of every-5-days damoctocog alfa pegol prophylaxis in haemophilia A in phase 3, phase 4 and real-world studies | Darwin Health Communications | Received |
PO-134 | Correlation between age at diagnosis with clinical and joint health outcomes in patients with severe and moderate haemophilia at Kenyatta National Hospital | Anastasia Khasiani | Received |
PP-134 | Bleeding episodes and surgical procedures in children and adults with haemophilia A on prophylaxis with emicizumab - the experience of a Portuguese Centre. | Catarina Camara | Received |
PO-135 | A CASE SERIES OF THE FIRST UNDER 5-YEARS OLD PATIENTS WITH SEVERE HEMOPHILIA A AFTER USING EMICIZUMAB AT THE LARGEST CHILDRENS HOSPITAL OF PANAMA | Benilda González | Received |
PP-135 | Pharmacokinetic study of FIX extended half-life concentrate using differents models | Olga Benítez Hidalgo | Received |
PO-136 | Degree of overload in primary caregivers of patients with hemophilia.Preliminary results. | Ezequiel Martínez | Received |
PP-136 | Transitioning from standard to extended half-life factor VIII concentrates correlating dosing strategy with subsequent pharmacokinetic study and bleeding events | Pamela Tan | Received |
PP-137 | Safety and Efficacy of Emicizumab in Patients with Severe Hemophilia A and Severe Clinical Phenotypes: Retrospective Data from Nigeria | Theresa Nwagha | Received |
PO-138 | Incidence and Prevalence Trends of Hemophilia and Complications in Armenia: A Comprehensive 13-Year Retrospective Analysis (2010-2022) | Heghine Khachatryan | Received |
PP-138 | Use of Emicizumab in Patients with Haemophilia A: Experience from a Treatment Centre in, Ghana West Africa | Diana Dwuma-Badu | Received |
PO-139 | Challenges in the diagnosis and management of rare coagulation disorders in a country in crisis. | Roula Farah | Received |
PP-140 | Access to Prophylaxis Therapy in Hemophilia A: Results of the CLAHT-WFH Survey for Latin-America. | Jesus Ardila Novoa | Received |
PO-140 | Analysis of the musculoskeletal profile of patients with hemophilia, evaluated by the physiotherapy sector, at the Belo Horizonte blood center of the Hemominas foundation | Eder Santos | Received |
PP-141 | Paternal function difficulties and hemophilia | Veronica Cerutti | Received |
PO-142 | The changing paradigm of severe haemophilia A management in East Mediterranean: A survey from haemophilia treatment centres in the region. | khadiga Yehia Elalfy | Received |
PO-143 | Mental Health Art Contest for Adolescents with Heavy Menstrual Bleeding a Quality Improvement Initiative | Sabrina Farina | Received |
PP-143 | Piloting a transition readiness programme for children with haemophilia | Sheryl Seet | Received |
PP-144 | Bleeding Beyond the Veins | Midhat Khalid | Received |
PP-145 | Inclusive summer camps for children with hemophilia: 40 years of experience in the Catalan Association of Hemophilia | Felipe Ortega | Received |
PP-146 | The Psychosocial Aspects of Hemophilia: A Comprehensive Study | Md Shohanur Rahman Mithun | Received |
PP-149 | Impact of haemophilia on family functioning | Anna-Maria Tsilia | Received |
PP-150 | The Hemophilia Society of Türkiye Model- Newly Diagnosed Hemophilia Family Camp | Basak Koc | Received |
PP-151 | Depression Screening & Education for Patients with Bleeding Disorders | Denise Lowery | Received |
PP-152 | Impact of the COVID-19 Pandemic on weight gain in a pediatric and adult population with bleeding disorders: A single center study | Kim Schafer | Received |
PP-153 | Chess Game A Strategic and Therapeutic Paradigm for School-Age Individuals Navigating Hemophilia Challenges | SAMUEL MBUNYA | Received |
PP-154 | Empowering Patients and Families | Richa Mohan | Received |
PP-155 | Glanzmann Thrombasthenia Adversely Impacts Psychosocial Outcomes: The Glanzmanns 360 mixed methods study | Kate Khair | Received |
PP-156 | Interim results from the Lived Experience of People with Factor VII Deficiency (FVIID 360) study | Kate Khair | Received |
PP-157 | Development of a Core Outcome Set for von Willebrand Disease: The coreVWD Initiative | Elizabeth Clearfield | Received |
PP-158 | Quality of life of children, adolescents with hemophilia A and its caregivers, facing change of treatment with emicizumab. Experience in Uruguay | Felipe Lemos | Received |
PP-159 | Ultrasound exam for assessment tool for joint disease within people with hemophilia | Dorra Rhim | Received |
PP-160 | Health-related quality of life improvements following valoctocogene roxaparvovec gene therapy in people without bleeds or target joints at baseline: a post hoc analysis from GENER8-1 | Sandra Santos | Received |
PP-161 | Physical functioning and pain in older men with haemophilia | Suzanne OCallaghan | Received |
PP-162 | Summary data from first collaboration of PROBE and Drustvo Hemofilikov Slovenije an ongoing quality of life study. | Alexandra Kucher | Received |
PP-163 | Beyond the bleeding: examining the health and quality of life of hemophilia A patients within ASHEMADRID | Richard Paul Habis Khoury | Received |
PP-164 | Gene therapy with the Padua variant of a codon-optimized human factor IX gene etranacogene dezaparvovec in people with hemophilia B: effects on patient-oriented outcomes measured using the Patient Reported Outcomes, Burdens and Experiences (PROBE) questio | Meghan Booth | Received |
PP-165 | PROBE: Brazil data | Tania Maria Onzi Pietrobelli | Received |
PP-166 | QOL improvement project for adult hemophilia patients using smart watch | Seung Geun Kim | Received |
PP-167 | National Member Organizations PROBE Data Dashboard Update Adding A Pain Dashboard Page for Better Understanding of the Pain Impact in People with Hemophilia. | Alexandra Kucher | Received |
PP-168 | An innovative approach to helping people living with rare bleeding disorder (RBD) to initiate and retounr to behaviours that promote joint health. | thomas sannié | Received |
PP-169 | Quality of life (QoL) of people with hemophilia (PwH) in Madagascar | Stephania Niry Manantsoa | Received |
PP-171 | Characteristics of the health-related quality of life in patients with severe hemophilia A treated with Emicizumab at the National Institute of Hematology and Blood Transfusion (NIHBT) in 2021 | Mai Nguyen | Received |
PP-172 | The quality of life among hemophilia patients in South Kalimantan, Indonesia | Wulandewi Marhaeni | Received |
PP-173 | Perioperative Management of a Series of Patients with Hereditary Factor X Deficiency | Diana Patiño-Culma | Received |
PP-174 | Cardiovascular risk factors profile in adult patients with Haemophilia in Morocco | Mouad Lamtai | Received |
PP-175 | Acquired hemophilia A in Portugal in the last 18 years the experience of the 5 Haemophilia Centres | Cristina Catarino | Received |
PP-176 | Intracranial hemorrhage in children with hemophilia : a 7-years retrospective study in a single-center in Indonesia | Novie Amelia Chozie | Received |
PP-177 | Impact of the G403T mutation in coagulation factor XI deficiency: insights from a southern Tunisia patient cohort. | Mohamed Elloumi | Received |
PP-178 | Enhancing Hemostasis in Severe Hemophiliacs with Rheumatic Heart Disease: A Pilot Study on Comprehensive Surgical Management | Shruti Mishra | Received |
PP-179 | Lower doses of bypass agents achieve satisfactory haemostasis during major surgery in patients with haemophilia and inhibitors | Aby Abraham | Received |
PP-180 | VWDtest.com continues promoting global awareness of von Willebrand disease | Fernando Corrales-Medina | Received |
PP-181 | Spectrum of bleeding manifestations in patients with type 3 von Willebrand disease | Dinesh Chandra | Received |
PP-182 | Assessment of ISTH-BAT score in von Willebrand disease patients | Agoritsa Varaklioti | Received |
PP-183 | Assessing the hemostatic effect of factor replacement therapies under blood flow conditions in Von Willebrand disease | Elena G Arias-Salgado | Received |
PP-184 | Validation of a Rapid Diagnostic Approach in Inherited and Acquired defects of VWF by Automatic Tests assessed before and after DDAVP trial: Results from the Chinese-Italian CREWILACT Study | Augusto B Federici | Received |
PP-186 | Significance of joint ultrasound examination in a medical check-up for hemophilic carriers | Teruhisa Fujii | Received |
PP-187 | Creating a multidisciplinary supporting group for female hemophilia carriers | Patricia Cabré | Received |
PP-188 | Abnormal haemostasis and bleeding problems seen in possible carriers of haemophilia A: a pilot study | Taiwo Kotila | Received |
PP-189 | Characterization of hemostasis disorders in patients with menorrhagia | Dunia Castillo González | Received |
PP-190 | Changing perspectives about women in bleedings disorders community, role and participation | amanda brito del pino | Received |
PP-191 | The accurate classification of women with hemophilia and the importance of genetic studies. | Liliana Rossetti | Received |
PP-192 | Reasons for consultation among women and girls with bleeding disorders in Venezuela: review of the last two years | Apsara Boadas de Sánchez | Received |
PP-194 | Semiological assessment and use of scales in patients with excessive menstrual bleeding in primary care: a pending task. | BOLIVAR LUIS DIAZ JORDAN | Received |
PP-195 | Women diagnosed with postpartum hemophilia, more than an anecdotal fact: Retrospective analysis in a single center | BOLIVAR LUIS DIAZ JORDAN | Received |
PP-196 | Once upon a time UNSEEN LIFE: Stories of Women Carriers of Hemophilia in Latin America | Maria Belén Robert | Received |
PP-197 | Update on the diagnosis of haemophilia carrier women: experience from a centre | Daniela Neme | Received |
PP-198 | Trauma and Taboo. Family story of women with bleeding disorder in Poland. | Bernadetta Pieczynska | Received |
PP-199 | Commission of Women with Coagulopathies of the Spanish Federation of Hemophilia (Fedhemo) | Laura Quintas | Received |
PP-200 | Findings from the WFH NMO survey on women and girls with bleeding disorders | Salome Mekhuzla | Received |
PP-205 | Health Education Needs in Hematological Orphan Diseases for Sick People and Caregivers in Ibagué, Tolima, Colombia | NADIA ESPERANZA PERDOMO OLARTE | Received |
PP-212 | Women with low rate hemophilia A carrier or severe von Willebrand disease: how facing up in low-income countries? | Laurent Frenzel | Received |
21 - 24 April 2024, Madrid
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