WORLD FEDERATION OF HEMOPHILIA

WFH 2024 World Congress

 

21 - 24 April 2024, Madrid
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N. Poster
Poster title
Applicant name
Status
  MP-001 F8 Mutation spectrum in a large cohort of Hemophilia A patients from an Italian Regional Reference Centre: an update Federica Riccardi Received Received
  PP-001 Genetic etiology of a cohort of Uruguayan hemophilic patients and carriers Yasser Vega Received Received
  PP-002 Molecular insights into the mechanism of large F9 deletions in three families with severe hemophilia B Liliana Rossetti Received Received
  MP-002 KOHEM summer camp, recovery of Korea bleeding disorder community after the pandemic Nam-il Lee Received Received
  LBAPP-002 Variant pHis118Arg in a patient with Severe Hemophilia A determines the presence of a mild phenotype Gisela Barros Garcia Received Received
  PO-002 In silico evaluation of Danazol for bleeding disorders: The good, the bad and the ugly Yara Maria Da Silva Pires Received Received
  MP-003 PACT - Bridging Hemophilia Care Gaps Lubna Zafar Received Received
  PP-003 Unleashing the Power of Large Language Models Specific for Hemophilia Research Tiago Lopes Received Received
  PO-003 My Opinion Tania Maria Onzi Pietrobelli Received Received
  LBAPP-003 Replacement therapy outcomes in patients with haemophilia receiving antithrombotic therapy Matteo Di Minno Received Received
  MP-004 Development of an online educational case-based tool to supplement hematology trainee understanding of hemostatic disorders and their management. Kelsey Uminski Received Received
  PP-4 Detection of intron 1 and 22 inversions in the factor VIII gene by IS-PCR modified by capillary electrophoresis in patients and carriers of severe hemophilia A Ana-Rebeca Jaloma-Cruz Received Received
  PO-4 Equality, its in our blood Mark Ward Received Received
  LBAPP-004 Multicenter retrospective and prospective analysis of Emicizumab and FVIII prophylaxis in children with severe hemophilia A. Tamer Hassan Received Received
  MP-005 Being a patient researcher for one day: an original proposition to celebrate the World Haemophilia Day Thomas Sannié Received Received
  PO-5 Cocreating to improve patient experience in a pediatric hemophilia unit Rubén Berrueco Received Received
  PP-005 Dominant negative effects of Gln50Arg mutation in the EGF-1 domain of factor IX causes severe Hemophilia B that negatively affects factor IX replacement therapy Tirsa van Duijl Received Received
  LBAPP-005 Effectiveness of kinesiologic taping on function and pain in patients with Hemophilia A Elif Güler Kazanci Received Received
  PO-006 Care Models In The Management Of Bleed Events In Persons With Hemophilia In Western Kenya Nancy Midiwo Received Received
  PP-006 CATALYZING CARE: The Inauguration of Quetta Chapter under WFH-PACT Masood Fareed Malik Received Received
  MP-006 Its Now: The Place of Youth in Hemophilia Spaces Mateo Palladino Miserere Received Received
  MP-007 Driving an educational programme for teenagers living with haemophilia: importance of a partnership between AFH resource patients and healthcare professionals Thomas Sannié Received Received
  PO-007 The development and expansion of the nurse-led genetic counselling service for female carriers janet Cleary Received Received
  PP-007 Permanent Training Center in Hemophilia Hnos. Manuel and Javier Moreno Javier Montoya Nicolas Received Received
  PP-008 Educational and informative materials for primary care health professionals, affected and families. Javier Montoya Nicolas Received Received
  PO-008 Patient and Caregiver Preferences for Hemophilia A Treatment in Taiwan: A Discrete Choice Experiment Jiaan-Der Wang Received Received
  PO-009 Use of drugs in the management of Malagasy patients with hemophilia Tamby Rakoto Alson Andrianjafiarinoa Received Received
  PP-009 Effectiveness of the National Bleeding Disorders Foundation support of state chapter advocacy programs Nathan Schaefer Received Received
  MP-009 Building the future of advocacy: Uruguays inclusion of young leaders Juan Andres Pereira de Souza Received Received
  PP-010 Formation of leaders in the Americas:results of the strategic alliance Antonio Gomez Cavallini Received Received
  PO-010 Satisfaction survey for people with hemophilia (PWH) Kaouther Zahra Received Received
  MP-010 Social media strategy as a key to success in NMO advocacy plans/campaigns: Uruguay best practice Mathias Guerreiro Received Received
  PO-011 Assessment of access to factor VIII and factor IX to persons with Hemophilia during emergencies: a quality improvement study Kara Burge Received Received
  PP-011 Hemophilia A Rapid card testing in outreach programs: Experience from a single tertiary care centre in Kerala Bitty Kurian Received Received
  PP-012 A Pilot Study on the Effectiveness of the World Federation of Hemophilia (WFH) Shared Decision-Making (SDM) Tool Donna Coffin Received Received
  PO-013 Three-year interim analysis results of AOZORA study Midori Shima Received Received
  MP-013 Three years of achievements and challenges in care of people with moderate haemophilia: results from a nationwide registry Sergio Cáceres Received Received
  PP-013 Assessment of Canadian standards of care David Page Received Received
  PP-014 Introduction of an outpatient pathway for ankle arthrodesis surgery for people with severe haemophilia Deirdre Gorman Received Received
  PO-014 Real-world data on treatment regimen and medical use among patients with hemophilia B in South Korea Eun Jin Choi Received Received
  MP-14 Implementation of Home Therapy in Mauritius Janaki Sonoo Received Received
  MP-015 Quality improvement initiative involving electronic health records to improve the safety of bleeding disorder patients in the emergency department Nancy Hodgson Received Received
  PO-015 Efanesoctocog alfa treatment for children below 12 years of age with severe haemophilia A: A plain language summary of the XTEND-Kids study Costello Medical Received Received
  PP-015 Emicizumab: Real world experience from a single center Lubna Zafar Received Received
  PO-016 Safety, tolerability, pharmacokinetics and pharmacodynamics of Mim8 in patients with haemophilia A: FRONTIER1 extension Pratima Chowdary Received Received
  MP-016 Low-dose Prophy and chemical synovectomy : A new concept of optimal prophylaxis to preserve joint health for severe hemophilic patients living in resource-limited countries. Laurent Frenzel Received Received
  PP-016 Healthcare professionals view on the use-case scenarios for point-of-care testing in hemophilia A patients in a home-setting Aernoud Bavinck Received Received
  PP-017 Overview of medical care and support for patients living with haemophilia in the Democratic Republic of Congo, Kinshasa in 2023 Jonathan Kukila Received Received
  PP-018 Progress in hemophilia care in the Democratic Republic of Congo from 2017 to today. Gueth KUNDABI AKOTO Bill Received Received
  PO-18 A Natural History Cohort Study of the Safety, Effectiveness, and Practice of Treatment in People with Non-Neoplastic Hematologic Disorders Tammuella Chrisentery-Singleton Received Received
  MP-018 Active lifestyle in patients with haemophilia A or B with and without inhibitors on once-daily subcutaneous concizumab prophylaxis: Results from the phase 3 explorer7 and explorer8 trials Víctor Jiménez-Yuste Received Received
  MP-19 Prevalence of venous thromboembolism in people with inherited bleeding disorders: Real world data from the ATHNdataset Shreya Agarwal Received Received
  PO-019 Clinical Profile and Cardiovascular Rrisk Factors among Hemophilians followed at University Clinics of Kinshasa Gueth KUNDABI AKOTO Bill Received Received
  PP-020 Epidemiology of initial severe bleeding revealing a rare bleeding disorder: a francecoag network study Sandrine Meunier Received Received
  MP-020 Biliary disorders among people with hemophilia: Findings from a case-control claims analysis Steven Pipe Received Received
  PO-020 Direct Data Transfer of People with Hereditary Bleeding Disorders from the Hereditary Bleeding Disorder Registry in Thailand to the World Bleeding Disorders Registry and the Annual Global Survey of the World Federation of Hemophilia Ampaiwan Chuansumrit Received Received
  PP-021 Summercamp for children with hemophilia in Murcia (2023) Sara Caracena López Received Received
  PO-021 Improved quality of life in people with hemophilia A following gene therapy with dirloctocogene samoparvovec (SPK-8011) Helen Miller Received Received
  MP-021 Global efforts in uniting all stakeholders, including regulatory agencies, in ensuring safety of hemophilia gene therapy patients: the World Federation of Hemophilia Gene Therapy Registry Mayss Naccache Received Received
  MP-022 Haemophilia Gene therapy: a proposed structure, process and timeline for patient discussion for a truly informed decision Enrico Ferri Grazzi Received Received
  PP-22 Real experience of prophylaxis with emicizumab in patients with congenital hemophilia A with and without FVIII inhibitors in the HCUVA Ángela Heredia Cano Received Received
  PP-23 Evolution of patient profile in the last twenty years in the Summercamp La Charca Angela Heredia Cano Received Received
  MP-23 Clinical efficacy of interventions for adult patients with moderately severe to severe hemophilia B: An indirect treatment comparison with fidanacogene elaparvovec Valeria Merla Received Received
  PO-023 Bioethical aspects of gene therapy in patients with hemophilia JORGE MARTIN CAMPOY Received Received
  MP-024 Value contribution of etranacogene dezaparvovec for the treatment of severe and moderately severe Haemophilia B in Spain through Multicriteria Decision Analysis (MCDA) Daniel-Aníbal García Diego Received Received
  PO-24 Patients personal insights following a gene therapy clinical trial for hemophilia A Christina Kirkegard Received Received
  PP-024 Real-world effectiveness and safety of damoctocog alfa pegol in patients with haemophilia A and a history of factor VIII inhibitors: a post-hoc analysis of the ongoing HEM-POWR study María Teresa Álvarez-Román Received Received
  PP-025 Real-World Effectiveness of pegylated, recombinant Antihemophilic Factor (rurioctocog alfa pegol) Prophylaxis in Patients with Hemophilia A in Canada: A Retrospective, Intra-Patient Comparison with a Before-After Design Arun Keepanasseril Received Received
  MP-025 Long-term evaluation of external quality assessment results for Factor VIII and Factor IX Piet Meijer Received Received
  PO-25 ATHN Transcends Hemophilia Gene Therapy Outcomes Arm: A Long-Term Follow-Up Study on Safety and Effectiveness of Gene Therapy on People with Hemophilia Tammuella Chrisentery-Singleton Received Received
  PO-026 Point-of-care Musculoskeletal Ultrasound Utilization and Outcomes in a Hemophilia Treatment Center Curtis Yee Received Received
  MP-026 Performance control of eleven aPTT reagents for the quantification of an extended half-life factor IX Pablo Martinez Received Received
  PP-026 Self-reflections, lessons learned, and suggestions for data quality assurance from a retrospective data analysis from the Canadian Bleeding Disorders Registry. Arun Keepanasseril Received Received
  PO-027 Acquired hemophilia and human immunodeficiency virus: Case reports Carole Kilach Received Received
  PP-27 The disruptive impact of extensive adoption of emicizumab on the clinical validation of new therapeutic agents in hemophilia A Cedric Hermans Received Received
  MP-027 The use of different collagen binding assays aids in the diagnosis of von Willebrand disease Fiona Shepherd Received Received
  PP-028 Management of Persons with Inherited Hemophilia Requiring Antithrombotic Therapy: A Canadian Modified Delphi Study. Kelsey Uminski Received Received
  MP-028 Dose escalation of the anti-tissue factor pathway inhibitor marstacimab in participants with severe hemophilia without inhibitors: results from the phase 3 BASIS and long-term extension trials Andrew Palladino Received Received
  PO-028 Management of life-threatening bleeding in a hemophilia B patient with high responder inhibitors: A case report Te-Fu Weng Received Received
  PP-029 Application of self-monitoring smart devices to improve the health status in hemophiliacs Soyon Kim Received Received
  MP-029 Efanesoctocog alfa treatment outcomes in subjects =50 years of age from the XTEND-1 trial Hannah Nelson Received Received
  PP-030 Non-invasive evaluation of arterial stiffness and characterization of cardiovascular risk factors in a patients with hemophilia cohort in Uruguay Joaquín Ferreira Received Received
  MP-30 Reduced recovery of turoctocog alfa pegol is not always associated with antidrug antibodies against polyethylene glycol: data from three patients Gianna Franca Rivolta Received Received
  PP-031 Bleeding patterns and clotting factor concentrates utilisation in haemophilia patients treated at Kamuzu Central Hospital, Malawi Francis Mkwenembera Received Received
  MP-031 Evaluation of access to Care for Women/Carriers of Hemophilia in Hemophilia Treatment Centres: A Multinational Experience Marlène Beijlevelt Received Received
  MP-032 Teaching health care staff about hemophilia: four educational resources to learn about bleeding disorders Shamshah Aratia Received Received
  PO-032 F8 gene synonymous variants and their clinical correlation: our experience at La Paz University Hospital Mikel Fernandez Artazcoz Received Received
  PO-033 Emicizumab prophylaxis: a single center clinical experience Cristina Santoro Received Received
  PP-033 Clinicohematological profile of hemophilia patients at a tertiary care center in Eastern India Ruchi Sinha Received Received
  MP-033 Intramuscular vs subcutaneous vaccination in children with haemophilia. Has the evidence changed since COVID19? Charlotte Beeton Received Received
  PP-034 Enrollment of Malagasy Patients with Hemophilia in the World Bleeding Disorders Registry Tendry Isaia Rakoto ANDRIANJAFIARINOA Received Received
  PO-034 Protein Design and Deep Learning: A New Frontier in Hemophilia B Management Arthur Pimenta Received Received
  MP-034 Bridging the Practice Gaps in Hemophilia: Usability Study of HemoCopilot a Comprehensive Digital Self-assessment Solution Emilie Guilpain Received Received
  PP-35 Case Series: Acquired hemophilia in Colombian patients Sandro Parra Soto Received Received
  PO-035 Effect of intra-articular application of Platelet Rich Plasma-Ozonated in chronic hemophilic arthropathy. Armando Raúl Hernández Salgado Received Received
  MP-035 Towards Tailoring the use of emicizumab for Hemophilia A children in China: a retrospective clinical data from a comprehensive care center of China Qianqian Mao Received Received
  MP-036 Children with bleeding disorders who developed excess weight gain during the COVID-19 pandemic revert to their pre-pandemic weight and BMI percentiles a prospective follow-up of 76 children Teodora Markovic Received Received
  PO-036 Effectiveness and safety of prophylaxis with emicizumab in Cuban patients with hemophilia A followed for two years Dunia Castillo González Received Received
  PP-037 Socio-economic determinants and their impact on patients and families living with Hemophilia in a low- and middle-income country: An experience from a tertiary care center in Northern India Pragya Kafley Received Received
  PO-037 Furniture and ludic elements design: musculoskeletal training for individuals with coagulopathies Luis Porras Received Received
  MP-038 Hemotrack: Musculoskeletal Management in Hemophilia with Physiotherapist-Driven Digital Solutions Sofía Pérez-Alenda Received Received
  PP-038 Exploring the Relationship between Economic Development and Underreported Bleeding Disorders Richard Kelly Received Received
  MP-039 Preliminary results of OPG/RANKL levels in Haemophilia A patients (PWHA) on Emicizumab Styliani-Despoina Christidi Received Received
  PO-040 Advanced practice registered nurses in coagulopathies in Spain: does it exist without a legal framework? Sara García Barcenilla Received Received
  MP-040 Joint health outcomes in severe haemophilia A patients on primary prophylaxis and the influence of early bleeding phenotype and treatment Alexandros Arvanitakis Received Received
  PP-040 Sociodemographic profile and socioeconomic level of patients at the Monterrey hemophilia care center, an inside look at the families Laura Páez Received Received
  MP-041 Gender Differences in Parenting Stress and Social Support Among Hemophilia Families Carletha Gates Received Received
  PO-041 Burden on parents of children with von Willebrand disease Linda Myrin Westesson Received Received
  PO-042 Nurses perception of their work environment in Hemophilia and Congenital Coagulopathies Units. Nuria Caballero Received Received
  MP-042 Qualitative research to the experience and needs surrounding pregnancy and childbirth in women with von Willebrand disease Corinne Liem Received Received
  PP-042 Exploring Varied Clinical Profiles in Mild Hemophilia: Insights from the Castilla-La Mancha, Spain Hemophilia Registry Sonia Herrero Martín Received Received
  MP-043 The Effects of Counseling using CBT(Cognitive-Behavioral-Therapy) on reducing irrational belief and interpersonal anxiety of Hemophilic Arthritis Patients - Comparative Study of Individual Counseling and Group Counseling= WONSOOK BAK Received Received
  PP-043 Five-year analysis of laboratory services in hemostasis from a resource-limited setting: Experience from a single tertiary care center in Kerala, Southern India Bitty Kurian Received Received
  PP-44 Exploring the clinical spectrum of factor VII deficiency in India: a retrospective study Gohul Jalajakumari Received Received
  MP-044 Mental Health and Quality of Life in Children and Adolescents Living with Hemophilia, a Single Center Study in Pakistani Sample Tahira Zafar Received Received
  PO-044 Nurse role and systematic collection of information in the visit to the patient with hemophilia. Diego José Ramos Galindo Received Received
  PO-045 Nursing role as coordinator in a multidisciplinary team in patients with congenital coagulopathy during elective surgeries Gemma Guillen Peramos Received Received
  MP-045 Training and coexistence days for children with coagulopathies in Spain Daniel-Aníbal García Diego Received Received
  PP-045 Evolution of hemophilia care: analyzing factor VIII usage trends and the impact of novel therapies Ellia Tootoonchian Received Received
  MP-046 Strengthening our life skills HAVI David Cuartas Received Received
  PO-046 Nurse role in clinical trials of patients with congenital coagulation disorders Diego José Ramos Galindo Received Received
  PP-046 Factors associated with delayed diagnostic of inherited bleeding disorders in LMIC. Saliou Diop Received Received
  PP-047 Population Pharmacokinetics in Hemophilia: Availability and Implementation in Latin-America. Results of the CLAHT-WFH Survey. Jesus Ardila Novoa Received Received
  PO-047 Manage emotions to improve adaptation to haemophilia Alfonso Castro-Blanco Received Received
  MP-047 Sexual Dysfunction and Anxiety in Women With Hereditary Bleeding Disorders Basak Koc Received Received
  PO-048 The role of nursing in hemophilia camps Alfonso Castro-Blanco Received Received
  MP-048 Depression among patients with hemophilia Ana Paola Abreu Bastar Received Received
  PP-049 Factor VIII in Female Patients with Hemophilia A (PwH): A Laboratory Analysis. Gloria Ramos Ramos Received Received
  PO-049 Learning to self-administer treatment through play M Carmen García-Rivera Received Received
  MP-049 Health-Related Quality of Life in People with Hemophilia in Italy: a Single-Center Cross-Sectional survey Angelo Claudio Molinari Received Received
  PP-050 Gene Therapy Education Program - A CHS comprehensive information program Chantal Raymond Received Received
  MP-050 Mental health outcomes from the Learning to Live with Non-severe Haemophilia study: Combining coreHEM Mental Health Outlook and qualitative interviews Simon Fletcher Received Received
  PO-051 Health Improvement in an Adolescent with Type A Hemophilia using Emicizumab Camila Stephanes Received Received
  MP-051 Health-Related Quality of Life and Chronic Pain Burden on a Cohort of People with Haemophilia in 5 European Countries: an Updated Snapshot from the Cost of Haemophilia in Europe: a Longitudinal Socio-Economic Survey (CHESS) Enrico Ferri Grazzi Received Received
  PP-051 Gene Therapy for Hemophilia Clearing House: a single repository of resources for hemophilia Taryn Bosquez-Berger Received Received
  PP-052 The World Federation of Hemophilia Living Guidelines Model Mona Mayla Received Received
  MP-052 WiSH-QoL Study Health-Related Quality of Life (HRQoL) in adults with von Willebrand Disease (VWD) in France: Women cohort results Marie-Hélène ANDRE-BONNET Received Received
  PO-52 Prevention through minimal invasion Maria Mercedes Alba Bensich Received Received
  PP-053 A conceptual roadmap to an optimal Model of Care for effective and efficient gene therapy delivery in the UK: a multi-disciplinary multi-stakeholder approach Enrico Ferri Grazzi Received Received
  PO-053 Management and Complete Oral Rehabilitation Under General Anaesthesia Including Extraction in a Patient with Suspected Factor I and Factor VIII Deficiencies: A Case Report Abdulmajeed Alrumi Received Received
  MP-53 The needs of people living with extremely rare bleeding disorders and bleeding disorders of unknown cause Maja Johanne Sndergaard Knudsen Received Received
  MP-054 A unique case of recurrent venous thromboembolism in severe factor XIII deficiency Lize van Vulpen Received Received
  PO-054 Heterotopic Ossification in Bleeding Disorders: A Multicenter Case Series Bruno Steiner Received Received
  PP-054 Long-term retention plan through myGTR a patient engagement tool from World Federation of Hemophilia Gene Therapy Registry Toong Youttananukorn Received Received
  PP-055 Question and answer guide on gene therapy in hemophilia Lourdes Pérez Received Received
  MP-055 Therapeutic elbow arthroscopy for advanced haemophilic arthropathy - A haemophilia tertiary centre experience Rory Hammond Received Received
  MP-056 Comparing DDAVP response classifications in 149 children with von Willebrand disease Michael Shu Received Received
  PP-056 A multi-stakeholder, collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey: insights from a patient advisory board Karen Pinachyan Received Received
  PO-056 Platelet-Rich Plasma for chronic synovitis treatment, clinical outcomes over the years María Landro Received Received
  MP-057 Evaluation of bleeding score in haemophilia carriers Gabriela Sliba Received Received
  PP-057 Cost of factor concentrates for low dose prophylaxis in severe phenotype hemophilia A under National Health Security Office schemes in Thailand Bunchoo Pongtanakul Received Received
  PO-057 Joint disease profile of cameroonian haemophiliac Annick Ndoumba Nkengue Received Received
  PP-058 Comparative Cross-Sectional Study on BMI in Children Aged 8 to 12 Years with Hemophilia JORGE MARTIN CAMPOY Received Received
  MP-058 Development of two unmet needs assessment tools for young women with a bleeding disorder and heavy menstrual bleeding Jaime Chase Received Received
  PO-058 Destructive arthropathy due to hemarthrosis in a patient with Glanzmann thrombasthenia. case report Mohamed Sharif Received Received
  PO-059 Treatment of hemophilic pseudotumor, with and without high-response inhibitor, report of two cases. Armando Raúl Hernández Salgado Received Received
  PP-059 Role of a NMO in the P&R process Miguel Ángel MARTÍN DOMINGUEZ Received Received
  MP-060 Hemophilia carriers in Tunisia: Where are we? EYA DRISSI Received Received
  PO-060 Safety of radiosynovectomy with Yttrium-90 and Samarium-153 in patients with haemophilia Rodrigo Pagnano Received Received
  PO-61 Patient Related Outcome Measures in Indian Hemophiliac PATIENTS after Elective Arthroplasty Apeksha Kumar Received Received
  PP-061 The importance of Ultrasound as an objetive method for treatment modification Mauro Davoli Received Received
  MP-061 Factor VIII Level in Mothers of Patients with Severe Hemophilia A and its Impact on Bleeding and Joint Status Azza Tantawy Received Received
  MP-062 Needs of women and girls with coagulopathies in Spain Lourdes Pérez Received Received
  PP-062 Critical role of Ultrasonography in hemophilia patients in developing countries: Revealing the inconspicuous. Manali Bafna Received Received
  PO-062 Effect of a Physiotherapy Exercise Program on Quality Of Life and Pain in Iranian Patients With Severe Hemophilia Vida Marzban Received Received
  MP-63 Use of recombinant von Willebrand factor concentrate for peri-partum haemostatic management of women with type 2 VWD; a case series Daniel Daniel Received Received
  MPE-064 Incidence rates of arterial and venous thrombosis among people with hemophilia A or B Guy Young Received Received
  PO-064 Exercise and physical conditioning in hemophilia: guidance booklets Diogo Dias Received Received
  PP-064 Acquired hemophilia in the postpartum period: experience from two Italian hemophilia centres. Gianluca Sottilotta Received Received
  PP-65 Prediction of inhibitor risk in Hemophilia A using Machine Learning Tiago Lopes Received Received
  PO-065 Joint health and treatment received in a group of patients with hemophilia A from the National Hemophilia Center Venezuela 2023 Laura Aponte Received Received
  MPE-065 Adults with haemophilia B and history of chronic HCV/HBV infection receiving etranacogene dezaparvovec gene therapy in the HOPE-B clinical trial demonstrate long-term bleeding protection and sustained FIX Activity 3 years after administration Claire Crouchley Received Received
  PP-066 severe inherited hemophilia A with inhibitors combined with a platelet function disorder case from Kuwait Hadeel Mohammad Received Received
  MPE-066 Improved Joint Health After Gene Therapy with Dirloctocogene Samoparvovec (SPK-8011) in People with Hemophilia A Kristen Jaworski Received Received
  PP-067 Type 3 von Willebrand disease with inhibitors (VWD3i) hemostatic control and transfusional complications. Catarina Camara Received Received
  MPE-067 A novel gene editing lexicon strategy for the haemophilia community Emily Tang Received Received
  PO-067 The value of home visits during a Twinning visit Lize van Vulpen Received Received
  MPE-068 HIV comorbid Infection and etranacogene dezaparvovec therapy: efficacy and safety results from phase 2b and pivotal phase 3 HOPE-B trials 3 years after Administration Claire Crouchley Received Received
  PP-068 FVIII post infusion monitoring Survey: Results & analysis of Extended half-life (EHL) FVIII/FIX products and laboratory performance for the external quality control assessment programmes of International External Quality Assessment Scheme (IEQAS) Anna Williams Received Received
  PO-068 Escalating low-dose individualized haemophilia prophylaxis: A focus in China at Dawn of a new era of cost effective Individualized prophylaxis Wanru Yao Received Received
  PP-069 FVIII post infusion monitoring global study: Results & analysis of newer and extended half-life (EHL) FVIII products across external quality assessment programmes of ECAT, UK NEQAS BC & RCPAQAP. Anna Williams Received Received
  PO-069 Emicizumab prophylaxis: A novel alternative therapy for severe hemophilia A patients with and without inhibitors Munira Borhany Received Received
  MPE-69 Epidemiological Insights into Hepatitis C Virus Infection among Patients with Inherited Bleeding Disorders: A 30-Year Evolution in a Brazilian Cohort Nivia Foschi Received Received
  PP-070 Genetic mutation of haemophilia in Singapore in relation to its severity and inhibitor SL Tien Received Received
  MPE-071 Multicenter evaluation of the haemostatic activity of emicizumab in patients with severe haemophilia A Laurie Josset Received Received
  PO-071 Paradigm shift for haemophilia prophylactic treatment in a uruguayan adult haemophilia treatment centre Maximiliano Berro Received Received
  PP-071 Platelet analysis by flow cytometry: EDTA or citrate sample? Nour Mziou Received Received
  PO-72 Low Dose Prophylaxis in Haemophilia Using Extended Half- Life Factor Concentrates Tahira Zafar Received Received
  MPE-072 PRO management and collection outside clinical research: why is it so difficult? Laura González-Rodríguez Received Received
  PP-72 Global comparative antithrombin (AT) field study: Impact of laboratory assay variability on the assessment of AT activity measurement Ekta Chhabra Received Received
  PP-073 Long-term performance of Factor VIII and Factor IX testing by laboratories of the Italian Hemophilia Centers Piet Meijer Received Received
  PO-73 Real world experience with use of Emicizumab in haemophilia A patients: Case series report from Malawi Francis Mkwenembera Received Received
  MPE-073 Functional and radiographic assessment in haemophilic arthropathy: is there a dissociation? Rodrigo Pagnano Received Received
  PP-74 Factor IX activity measurement of recombinant FIX Fc fusion protein eftrenonacog alfa with one-stage clotting and chromogenic substrate assay Marie Prudkova Received Received
  PO-074 Control of haemophilia treatment with extended half-life factors in Rosario, Argentina Mariana Raviola Received Received
  MPE-074 Effects of resistance training on muscle strength in adults with haemophilia: a systematic review and meta-analysis Rodrigo Núñez-Cortés Received Received
  PP-075 Comparisons of serum osteoprotegerin (OPG) and RANKL in Children, Adolescents and Adult patients with hemophilia: are there any differences? AIKATERINI MICHALOPOULOU Received Received
  PO-075 The association between factor VIII pharmacokinetic parameters and clinical outcomes: design of the MoHem 2 study Darwin Health Communications Received Received
  MPE-075 Enhancing hemophilia assessment and monitoring with novel digital biomarkers Sébastien Lobet Received Received
  MPE-076 Generation of a viable mouse model of factor V deficiency: a mild disease phenotype Andrea Miguel Batuecas Received Received
  PP-76 Real world variability in drug concentration during emicizumab therapy. Susan Guy Received Received
  PO-076 Relationship between adherence and pain in patients on Emicizumab. Experience of a center in Rosario, Argentina. Mariela Pasquero Received Received
  PO-077 Educational program for haemophilia in Gabon: development of prophylaxis for patients living with haemophilia. Stan Marc Koumba Mihindou Received Received
  PP-077 Pitfalls encountered during inhibitor testing in travelled samples from peripheral camps Savitri Singh Received Received
  MPE-077 HMB-001: A Phase 1/2, First-in-Human Study to Investigate the Safety, Tolerability, Pharmacokinetics, Pharmacodynamics, and Efficacy in Participants with Glanzmann Thrombasthenia Jigar Amin Received Received
  PO-078 Initial experience with Emicizumab prophylaxis in adults with severe Haemophilia A in a Uruguayan haemophilia treatment centre Maximiliano Berro Received Received
  PP-78 Discrepancies in laboratory assays for extended half-life factor VIII/Factor IX products monitoring: experience from a single pediatric center in Argentina Rodolfo Sueldo Received Received
  PP-79 Cut off for aFVIII inhibitor screening test Rodolfo Sueldo Received Received
  PO-079 Challenges and burdens of long-lasting intravenous prophylaxis in adult haemophilia patients: a study from one centre Jelena Bodrozic Received Received
  PP-080 A substudy to evaluate the feasibility and effectiveness of marstacimab administration using a prefilled pen injection device Andrew Palladino Received Received
  PO-080 Conversation circle with patients taking emicizumab: an experience report Alice Oliver Sacramento Received Received
  PO-081 Engaging with the great outdoors - a pilot project Claire Forde Received Received
  PP-081 ENHANCING HEMOPHILIA CARE: Experiences with Emicizumab via World Federation of Hemophilias Humanitarian Aid Program Masood Fareed Malik Received Received
  PO-082 CompartilHEMOS Experiences: Psychology Meeting of Psychologists from reference teams in the care of people with hemophilia in Brazil Diogo Dias Received Received
  PP-082 Prophylaxis with emicizumab in 50 children and adolescents with severe hemophilia A without inhibitor in Uruguay. National experience. Felipe Lemos Received Received
  PP-084 Breaking Barriers in Hemophilia A Care: One-Year Real-World Experience with Emicizumab Prophylaxis at Civil Service Hospital, Kathmandu, Nepal bishesh sharma poudyal Received Received
  PP-085 Western States Regional Hemophilia Network (WSRHN) nursing tele-mentoring program Mary Lesh Received Received
  PO-085 WFH-HUMANITARIAN AID: Enhancing the Quality of Life for Persons with Bleeding Disorders in Pakistan Shahla T Sohail Received Received
  PO-086 Burden of disease and impact on quality of life in hereditary factor X deficiency patients who have experienced menorrhagia Kim Clark Received Received
  PP-086 Haemophilia Nurse Consultant Role in adult haemophilia treatment centre in South Australia a 12 month analysis. Yu-hsuan LIN Received Received
  PO-087 Burden of disease and impact on quality of life in hereditary factor X deficiency patients receiving prophylaxis Kim Clark Received Received
  PP-087 Changes in the life of people with hemophilia A using emicizumab: nursing perceptions Sonia Ferreira Received Received
  PP-088 Strategies to Promote Autonomy in Children, Adolescents, and Families Treated with Emicizumab Florencia Gomez Received Received
  PO-089 Health-related quality-of-life, treatment burden and preference in patients with haemophilia: Results from the concizumab phase 3 explorer7 & 8 studies Gary Benson Received Received
  PO-090 Living with Hemophilia in Latin America: An Evaluation of Youth Development Interventions to Improve Quality of Life Deniece Chevannes Received Received
  PP-090 The use of Peripherally Inserted Central Catheter (PICC) Line for people with Haemophilia and other bleeding disorders:a single centre experience Elsa Aradom Received Received
  PO-091 Quality of Life in Korean Hemophilia Patients: A Systematic Review chang jihun Received Received
  PP-091 Cinical oral conditions in pediatric patients with inherited bleeding disorders in relation to hemorrhagic phenotype Laura Beatriz Isidro Olán Received Received
  PP-092 Clinical features of hemophilic arthropathy of the elbow that progresses to irreversible lesions during childhood Atsuki Yamashita Received Received
  PO-092 Treatment-related clinical and humanistic unmet needs in haemophilia A without inhibitors Amy Shapiro Received Received
  PP-093 Low bone mineral density and vitamin D deficiency in patients with hemophilia in Taiwan Tsung-Ying Li Received Received
  PO-093 SEEK Sharing Experience, Expanding Knowledge: A digital platform for patient-driven research in bleeding disorders Luke Pembroke Received Received
  PP-094 World Federation of Hemophilia aid in orthopaedic surgeries: translational outcomes and real-world data from a single tertiary hemophilia care centre in India Sandeep Abhijit Pattnaik Received Received
  PO-094 Evaluation of health-related quality of life in adolescents and adults with hemophilia treated in a rehabilitation unit. Aideé Conde Received Received
  PO-095 Evaluation of Quality of Life in Patients with Von Willebrand Disease in a Health Institution in Colombia Juan David Wilches Gutierrez Received Received
  PP-096 The frequency of bleeding in pediatric patients with moderate and mild hemophilia A and B- Polish experience Pawel Laguna Received Received
  PO-096 Hemophilia and physical activity: impact of sport on the quality of life of people with Hemophilia Carlos Pemán Asín Received Received
  PO-097 Addressing Iron Deficiency Anemia in Bleeding disorder patients: Lessons from a Single Center Perspective Munira Borhany Received Received
  PP-097 Clinical and laboratory characteristics of children with platelet function disorders seen at a paediatric centre Joyce Lam Received Received
  PP-098 Spectrum of Genetic Mutations in Haemophilia A and B Patients at a Paediatric Haemophilia Treatment Centre in Singapore Chiew Ying Lim Received Received
  PO-098 Health-Related Quality of Life among Children and Adolescent Patients with Hemophilia: a Study in Argentinian Population Maria Arrieta Received Received
  PO-099 Comparative study on health-related quality of life in children and adolescents with hemophilia in Argentina Maria Elizabeth Arrieta Received Received
  PP-99 A survey of the experiences of parents of children with severe haemophilia, recently commenced on Hemlibra Beatrice Nolan Received Received
  PO-100 Diagnosing and treating Bleeding Disorder of Unknown Cause (BDUC): an illustrated review on current practice and future directions (BDUC-iN study group and SYMPHONY consortium) Amaury Monard Received Received
  PO-101 Long term reductions in haemarthrosis in Boys with severe haemophilia A: results of a three years follow up study on the China haemophilia secondary individualized prophylaxis study (CHIPS) Wanru Yao Received Received
  PP-101 Factors related to quality of life in children with hemophilia A: a study in West Java, Indonesia Sindy Febrianti Received Received
  PO-102 Glanzmann Thrombasthenia: identification of two novel mutations in Tunisia gouider emna Received Received
  PP-102 Characteristics and Functional Impairment Level of Persons with Hemophilia with Peripheral Nerve Injuries Easmin Doly Received Received
  PO-103 Evaluation of thromboelastometry, thrombin generation assay and bleeding score in patients with hereditary factor VII and factor XI deficiency Petr Smejkal Received Received
  PP-103 Multidisciplinary survey of hemophilia treatment in Latin America: results from 17 reference centers Carla Daffunchio Received Received
  PP-104 Physiotherapy in patients with hemophilia with virtual reality device Cecilia Gallardo Pérez Received Received
  PO-105 Management of acquired hemophilia A cases using emicizumab and immunosuppressive therapy: A case-series Varun Bafna Received Received
  PP-105 The Impact of dynapenia on handgrip force control in people with haemophilia Rodrigo Núñez-Cortés Received Received
  PO-106 Safety and Efficacy of Long-Term Treatment of Type 1 Plasminogen Deficiency Patients with Intravenous Plasminogen Replacement Therapy Amy D. Shapiro Received Received
  PP-106 Gross motor development in infants with haemophilia. Comparisons with full-term and preterm infants of the same nationality Dimitrios Syrengelas Received Received
  PO-107 An overview of Glanzmann Thrombasthenia in Portugal Sara Morais Received Received
  PP-107 Haemophilia Physiotherapy A Challenge For Physiotherapist - A Real Time Experience From A Developing Country HTC Dinkar Viswam Received Received
  PP-108 Assesment with Biopsychosocial Approach in Patients with Hereditary Bleeding Disorder Tuge Poyraz Isleyen Received Received
  PO-109 Glanzmanns thrombasthenia and meningioma: a neurosurgical journey Filipa Pires Received Received
  PP-109 Creating a work choice booklet: A Physical Therapist Collaboration Jennifer Newman Received Received
  PP-110 Creating a sustainable network of physical therapists: Hemophilia Treatment Center Physical Therapy Collaborative. Jennifer Newman Received Received
  PO-110 ATHN Transcends: Natural History Cohort Study of Bleeding Symptoms and Treatment Outcomes in Patients with Glanzmann Thrombasthenia Tammuella Singleton Received Received
  PO-111 Surgical outcomes for people living with hemophilia in a resource constrained setting Carole Kilach Received Received
  PP-112 Patients satisfaction on Rehabilitation Program (RP) in Kuressaare Hospital, Estonia Martin Kaal Received Received
  PO-113 WFH Humanitarian Aid Program: Expanded Support for Hemophilia Care in Enugu, Nigeria Theresa Nwagha Received Received
  PP-114 Monitoring people with hemophilia on low dose prophylaxis with Hemophilia joint health score Emna Gouider Received Received
  PO-114 Development of a Comprehensive Questionnaire to Assess Disease Awareness in People with Hemophilia Mariela Pasquero Received Received
  PP-115 Gene therapy for hemophilia: musculoskeletal transformations, patient experiences, and physiotherapist perspectives JANAINA RICCIARDI Received Received
  PO-115 Paediatric population with moderate or severe von Willebrand disease in Sweden Linda Myrin Westesson Received Received
  PP-116 Determination of cardiovascular risk in adult patients with hemophilia using the Framingham risk score and the artherosclerotic cardiovascular disease score Aideé Gibraltar Received Received
  PO-116 Digital therapeutic education program for people concerned by Von Willebrand disease Nicolas GUERIN Received Received
  PO-117 Management of patients with monoclonal gammopathy of undetermined significance and acquired von Willebrand disease Gianluca Sottilotta Received Received
  PP-117 Impact of physical exercise in persons with congenital coagulopathies: Hemovement Project JOSE MANUEL CALVO VILLAS Received Received
  PO-118 Real-world efficacy and safety of plasma-derived von Willebrand factor-containing FVIII concentrates in patients with Von Willebrand Disease in Italy: the RECLASFAWILL study Augusto B Federici Received Received
  PP-118 Validation of a systematic review to evaluate the measurement properties of performance-based outcomes for the functional assessment of people with haemophilia Catherine Holdsworth Received Received
  PP-119 Evaluation of Balance and Proprioception in adult and paediatric haemophilia patients Daniel Zaldumbide Received Received
  PO-119 Safety and efficacy of the use of Fanhdi in patients with von Willebrand disease: a prospective, observational, post-authorization study Alejhandra Lei Received Received
  PP-120 Lung function in adult hemophilia Daniel Zaldumbide Received Received
  PO-120 Clinical, biochemical, and molecular characterization of Mexican patients with von Willebrand disease Ana Jaloma Received Received
  PO-121 Long-term monitoring and multidisciplinary management of abnormal uterine bleeding in teenagers with type 3 von Willebrand disease Novie Amelia Chozie Received Received
  PP-121 Joint manipulation and sliding in patients with severe hemophilia and ankle arthropathy. A controlled pilot study Rubén Cuesta-Barriuso Received Received
  PP-122 Conditioned pain modulation in patients with hemophilic arthropathy. A cross-sectional cohort study. Roberto Ucero-Lozano Received Received
  PO-122 Trauma and Taboo. Family story of WBD in 20th century Poland. Bernadetta Pieczynska Received Received
  PO-123 Phenotype assessment and genetic study to the detection of Haemophilia B carriers. Maria Veronica Arrieta Received Received
  PP-123 Safety and efficacy of blood flow restriction in patients with hemophilic knee arthropathy. A randomized pilot study. Elena Donoso-Úbeda Received Received
  PP-124 Dependence of adult patients with haemophilia on instrumental activities of daily living. A cross-sectional cohort study Rubén Cuesta-Barriuso Received Received
  PO-124 A case series of girls with hemophilia A Fitri Primacakti Received Received
  PP-125 The Characteristics and Treatment Patterns in Hemophilia B Patients Receiving Recombinant Coagulation Factor IX Sang Kyu Park Received Received
  PO-125 Hemophilia B Patient Journey Tania Maria Onzi Pietrobelli Received Received
  PP-126 Racing against the odds: Comparing two types of prophylaxis in the context of Hemophilia A and marathon running Michelle Bech Received Received
  PP-127 Comparison of spontaneous bleeding incidents despite use of prophylactic factor treatments in the era of Emicizumab use over 12 months for patients with Moderate or severe Haemophilia A in an adult haemophilia treatment centre South Australia Yu-hsuan LIN Received Received
  PO-128 Experiences in dentistry surgeries of greater complexity in patients with hemophilia A and B in province of Salta, Argentina maria sol cruz Received Received
  PP-128 Effectiveness of starting emicizumab in routine clinical practice for patients with severe hemophilia A without FVIII inhibitor: results using PicnicHealth data in the US Letizia Polito Received Received
  PO-129 Clinical Outcomes of Total Knee Arthroplasty in patients with Hemophilic Arthropathy a prospective study Hugo Saint-Yves Received Received
  PP-129 DIffusion of prophylaxis and introduction of innovative products in haemophilia: data from the Emilia-Romagna Regional Registry, 2003-2022 Gianna Franca Rivolta Received Received
  PO-130 LADIES: Bleeding Disorders in Women - Health Care and Support Mariana Battazza Received Received
  PP-130 Nonacog Beta Pegol in Adolescents and Adults with Hemophilia B: Insights from an Experience in Tertiary Care Centre in Maharashtra Varun Bafna Received Received
  PP-131 Sixteen years real life experience of with low dose prophylaxis in a hemophilia treatment center Ons Ghali Received Received
  PP-132 First year of emicizumab prophylaxis: Preliminary results of the Brazilian Registry of Emicizumab (EMCase Study) José Sávio Santos Ferreira Filho Received Received
  PP-133 Effectiveness and safety of every-5-days damoctocog alfa pegol prophylaxis in haemophilia A in phase 3, phase 4 and real-world studies Darwin Health Communications Received Received
  PO-134 Correlation between age at diagnosis with clinical and joint health outcomes in patients with severe and moderate haemophilia at Kenyatta National Hospital Anastasia Khasiani Received Received
  PP-134 Bleeding episodes and surgical procedures in children and adults with haemophilia A on prophylaxis with emicizumab - the experience of a Portuguese Centre. Catarina Camara Received Received
  PO-135 A CASE SERIES OF THE FIRST UNDER 5-YEARS OLD PATIENTS WITH SEVERE HEMOPHILIA A AFTER USING EMICIZUMAB AT THE LARGEST CHILDRENS HOSPITAL OF PANAMA Benilda González Received Received
  PP-135 Pharmacokinetic study of FIX extended half-life concentrate using differents models Olga Benítez Hidalgo Received Received
  PO-136 Degree of overload in primary caregivers of patients with hemophilia.Preliminary results. Ezequiel Martínez Received Received
  PP-136 Transitioning from standard to extended half-life factor VIII concentrates correlating dosing strategy with subsequent pharmacokinetic study and bleeding events Pamela Tan Received Received
  PP-137 Safety and Efficacy of Emicizumab in Patients with Severe Hemophilia A and Severe Clinical Phenotypes: Retrospective Data from Nigeria Theresa Nwagha Received Received
  PO-138 Incidence and Prevalence Trends of Hemophilia and Complications in Armenia: A Comprehensive 13-Year Retrospective Analysis (2010-2022) Heghine Khachatryan Received Received
  PP-138 Use of Emicizumab in Patients with Haemophilia A: Experience from a Treatment Centre in, Ghana West Africa Diana Dwuma-Badu Received Received
  PO-139 Challenges in the diagnosis and management of rare coagulation disorders in a country in crisis. Roula Farah Received Received
  PP-140 Access to Prophylaxis Therapy in Hemophilia A: Results of the CLAHT-WFH Survey for Latin-America. Jesus Ardila Novoa Received Received
  PO-140 Analysis of the musculoskeletal profile of patients with hemophilia, evaluated by the physiotherapy sector, at the Belo Horizonte blood center of the Hemominas foundation Eder Santos Received Received
  PP-141 Paternal function difficulties and hemophilia Veronica Cerutti Received Received
  PO-142 The changing paradigm of severe haemophilia A management in East Mediterranean: A survey from haemophilia treatment centres in the region. khadiga Yehia Elalfy Received Received
  PO-143 Mental Health Art Contest for Adolescents with Heavy Menstrual Bleeding a Quality Improvement Initiative Sabrina Farina Received Received
  PP-143 Piloting a transition readiness programme for children with haemophilia Sheryl Seet Received Received
  PP-144 Bleeding Beyond the Veins Midhat Khalid Received Received
  PP-145 Inclusive summer camps for children with hemophilia: 40 years of experience in the Catalan Association of Hemophilia Felipe Ortega Received Received
  PP-146 The Psychosocial Aspects of Hemophilia: A Comprehensive Study Md Shohanur Rahman Mithun Received Received
  PP-149 Impact of haemophilia on family functioning Anna-Maria Tsilia Received Received
  PP-150 The Hemophilia Society of Türkiye Model- Newly Diagnosed Hemophilia Family Camp Basak Koc Received Received
  PP-151 Depression Screening & Education for Patients with Bleeding Disorders Denise Lowery Received Received
  PP-152 Impact of the COVID-19 Pandemic on weight gain in a pediatric and adult population with bleeding disorders: A single center study Kim Schafer Received Received
  PP-153 Chess Game A Strategic and Therapeutic Paradigm for School-Age Individuals Navigating Hemophilia Challenges SAMUEL MBUNYA Received Received
  PP-154 Empowering Patients and Families Richa Mohan Received Received
  PP-155 Glanzmann Thrombasthenia Adversely Impacts Psychosocial Outcomes: The Glanzmanns 360 mixed methods study Kate Khair Received Received
  PP-156 Interim results from the Lived Experience of People with Factor VII Deficiency (FVIID 360) study Kate Khair Received Received
  PP-157 Development of a Core Outcome Set for von Willebrand Disease: The coreVWD Initiative Elizabeth Clearfield Received Received
  PP-158 Quality of life of children, adolescents with hemophilia A and its caregivers, facing change of treatment with emicizumab. Experience in Uruguay Felipe Lemos Received Received
  PP-159 Ultrasound exam for assessment tool for joint disease within people with hemophilia Dorra Rhim Received Received
  PP-160 Health-related quality of life improvements following valoctocogene roxaparvovec gene therapy in people without bleeds or target joints at baseline: a post hoc analysis from GENER8-1 Sandra Santos Received Received
  PP-161 Physical functioning and pain in older men with haemophilia Suzanne OCallaghan Received Received
  PP-162 Summary data from first collaboration of PROBE and Drustvo Hemofilikov Slovenije an ongoing quality of life study. Alexandra Kucher Received Received
  PP-163 Beyond the bleeding: examining the health and quality of life of hemophilia A patients within ASHEMADRID Richard Paul Habis Khoury Received Received
  PP-164 Gene therapy with the Padua variant of a codon-optimized human factor IX gene etranacogene dezaparvovec in people with hemophilia B: effects on patient-oriented outcomes measured using the Patient Reported Outcomes, Burdens and Experiences (PROBE) questio Meghan Booth Received Received
  PP-165 PROBE: Brazil data Tania Maria Onzi Pietrobelli Received Received
  PP-166 QOL improvement project for adult hemophilia patients using smart watch Seung Geun Kim Received Received
  PP-167 National Member Organizations PROBE Data Dashboard Update Adding A Pain Dashboard Page for Better Understanding of the Pain Impact in People with Hemophilia. Alexandra Kucher Received Received
  PP-168 An innovative approach to helping people living with rare bleeding disorder (RBD) to initiate and retounr to behaviours that promote joint health. thomas sannié Received Received
  PP-169 Quality of life (QoL) of people with hemophilia (PwH) in Madagascar Stephania Niry Manantsoa Received Received
  PP-171 Characteristics of the health-related quality of life in patients with severe hemophilia A treated with Emicizumab at the National Institute of Hematology and Blood Transfusion (NIHBT) in 2021 Mai Nguyen Received Received
  PP-172 The quality of life among hemophilia patients in South Kalimantan, Indonesia Wulandewi Marhaeni Received Received
  PP-173 Perioperative Management of a Series of Patients with Hereditary Factor X Deficiency Diana Patiño-Culma Received Received
  PP-174 Cardiovascular risk factors profile in adult patients with Haemophilia in Morocco Mouad Lamtai Received Received
  PP-175 Acquired hemophilia A in Portugal in the last 18 years the experience of the 5 Haemophilia Centres Cristina Catarino Received Received
  PP-176 Intracranial hemorrhage in children with hemophilia : a 7-years retrospective study in a single-center in Indonesia Novie Amelia Chozie Received Received
  PP-177 Impact of the G403T mutation in coagulation factor XI deficiency: insights from a southern Tunisia patient cohort. Mohamed Elloumi Received Received
  PP-178 Enhancing Hemostasis in Severe Hemophiliacs with Rheumatic Heart Disease: A Pilot Study on Comprehensive Surgical Management Shruti Mishra Received Received
  PP-179 Lower doses of bypass agents achieve satisfactory haemostasis during major surgery in patients with haemophilia and inhibitors Aby Abraham Received Received
  PP-180 VWDtest.com continues promoting global awareness of von Willebrand disease Fernando Corrales-Medina Received Received
  PP-181 Spectrum of bleeding manifestations in patients with type 3 von Willebrand disease Dinesh Chandra Received Received
  PP-182 Assessment of ISTH-BAT score in von Willebrand disease patients Agoritsa Varaklioti Received Received
  PP-183 Assessing the hemostatic effect of factor replacement therapies under blood flow conditions in Von Willebrand disease Elena G Arias-Salgado Received Received
  PP-184 Validation of a Rapid Diagnostic Approach in Inherited and Acquired defects of VWF by Automatic Tests assessed before and after DDAVP trial: Results from the Chinese-Italian CREWILACT Study Augusto B Federici Received Received
  PP-186 Significance of joint ultrasound examination in a medical check-up for hemophilic carriers Teruhisa Fujii Received Received
  PP-187 Creating a multidisciplinary supporting group for female hemophilia carriers Patricia Cabré Received Received
  PP-188 Abnormal haemostasis and bleeding problems seen in possible carriers of haemophilia A: a pilot study Taiwo Kotila Received Received
  PP-189 Characterization of hemostasis disorders in patients with menorrhagia Dunia Castillo González Received Received
  PP-190 Changing perspectives about women in bleedings disorders community, role and participation amanda brito del pino Received Received
  PP-191 The accurate classification of women with hemophilia and the importance of genetic studies. Liliana Rossetti Received Received
  PP-192 Reasons for consultation among women and girls with bleeding disorders in Venezuela: review of the last two years Apsara Boadas de Sánchez Received Received
  PP-194 Semiological assessment and use of scales in patients with excessive menstrual bleeding in primary care: a pending task. BOLIVAR LUIS DIAZ JORDAN Received Received
  PP-195 Women diagnosed with postpartum hemophilia, more than an anecdotal fact: Retrospective analysis in a single center BOLIVAR LUIS DIAZ JORDAN Received Received
  PP-196 Once upon a time UNSEEN LIFE: Stories of Women Carriers of Hemophilia in Latin America Maria Belén Robert Received Received
  PP-197 Update on the diagnosis of haemophilia carrier women: experience from a centre Daniela Neme Received Received
  PP-198 Trauma and Taboo. Family story of women with bleeding disorder in Poland. Bernadetta Pieczynska Received Received
  PP-199 Commission of Women with Coagulopathies of the Spanish Federation of Hemophilia (Fedhemo) Laura Quintas Received Received
  PP-200 Findings from the WFH NMO survey on women and girls with bleeding disorders Salome Mekhuzla Received Received
  PP-205 Health Education Needs in Hematological Orphan Diseases for Sick People and Caregivers in Ibagué, Tolima, Colombia NADIA ESPERANZA PERDOMO OLARTE Received Received
  PP-212 Women with low rate hemophilia A carrier or severe von Willebrand disease: how facing up in low-income countries? Laurent Frenzel Received Received
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WFH 2024 World Congress

 

21 - 24 April 2024, Madrid
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