WORLD FEDERATION OF HEMOPHILIA
WFH 2025 Comprehensive Care Summit23-25 April 2025 Dubai
N. Poster
Poster title
Applicant name
Status
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| 1-PP | Quality of diagnosis and lab monitoring of people with hemophilia and other bleeding disorders across the continents: WFH IEQAS programme results over the last 8 years | Silmara Montalvao |  Received |
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| 3-PP | The genetic landscape of factor 8 in people with Haemophilia A from central South Africa | Jean Kloppers | Received |
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| 4-PP | Inhibitor screening of hemophilia A patients at HTC at PIMS Pakistan | Farwa Sijjeel | Received |
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| 5-PO | Genotype-phenotype analyses of Iranian patients with and without hemophilia B Leyden: A single-center study | Shadi Tabibian | Received |
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| 8-PO | Innovation in Education: Interactive Model of Blood Clotting Cascade and Hemophilia | Ahmed Saeed | Received |
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| 9-PP | WFH Programs in Eastern Mediterranean Region | Ellia Tootoonchian | Received |
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| 11-PP | World Federation of Hemophilia (WFH) Path to Access to Care and Treatment (PACT) Program Advocacy Academy Global Impact | Salome Mekhuzla | Received |
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| 12-PP | 50 years of history: key milestones in access to better treatment in Uruguay | Juan Andrés Pereira De Souza | Received |
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| 14-PO | Generational exchange in Uruguay: lessons learnt and the key to success | Juan Andrés Pereira De Souza | Received |
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| 15-PO | Women Now: Identify and register hemophilia carriers when no diagnosis is available | Isabel Sorondo | Received |
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| 18-PP | Teaching Multidisciplinary Health Care Providers on Hemophilia and other Rare bleeding disorders in Kenya | IRENE KHAEMBA | Received |
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| 21-PP | Prenatal testing versus Prophylaxis with newer drugs in severe haemophilia patients in India: cost assessment. | Rucha Patil | Received |
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| 22-PP | Navigating Surgical Challenges: Best Practices for Managing Hemophilia Patients in the Operating Room | Prisha Nankana | Received |
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| 23-PP | Overview of adults and children with hemophilia in Hemophilia Treatment Center of Sfax | Maha Charfi | Received |
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| 25-PP | A proposal to measure the gross motor development of infants with haemophilia | Dimitrios Syrengelas | Received |
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| 26-PP | Announcing the diagnosis of a benign chronic disease the case of hemophilia : A Moroccan Case Study | Mohamed El Khorassani | Received |
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| 27-PO | Is there a silver lining in Glanzman Thrombasthenia after puberty? | Ahmad Tarawah | Received |
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| 28-PO | FVIII Half-Life Products: a Real-World Experience | Ezio zanon | Received |
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| 29-PP | Tunisian experience Center with Emicizumab | Ons Ghali | Received |
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| 31-PP | Hematuria in Paediatric Hemophilia A Local Malaysian Experience (Main Centre) | Liana Yusof | Received |
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| 33-PO | Ulcerative colitis in two brothers with severe haemophilia A | Monika Biernat | Received |
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| 39-PO | Bilateral Haemophilic Pseudotumors in Both Thighs with Haemophilic Knee Arthropathy: A Twisted Parallelism | Pranav Keswani | Received |
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| 40-PO | Complex Primary Total Knee Arthroplasty in Haemophilic Arthropathy with Extraarticular Deformity | Pranav Keswani | Received |
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| 42-PO | Acquired hemophilia A Post-COVID-19 Vaccination successfully treated with low dose of rituximab | wafa chenbah | Received |
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| 43-PP | The A-MOVE study easily explained: the value of regular joint assessments in individuals with haemophilia | Markus Fusser | Received |
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| 44-PP | Long-term outcomes of prophylaxis with efanesoctocog alfa in adults and adolescents previously treated on demand: second interim analysis of XTEND-ed | Helena Palmborg | Received |
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| 45-PP | Plain language summary of two-year results of weekly efanesoctocog alfa treatment in children with severe haemophilia A: Interim analysis of the XTEND-ed phase 3 study | Graham Neill | Received |
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| 46-PP | Plain language summary: Efanesoctocog alfa treatment outcomes over 3 years in adults & adolescents with severe haemophilia A in the long-term XTEND-ed study | Elena Santagostino | Received |
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| 47-PP | A Natural History Study of Bleeding Symptoms and Treatment Outcomes in Patients with Glanzmann Thrombasthenia The Pakistan Site Experience | Shelby Domino | Received |
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| 49-PP | Comparison of the haemorrhagic phenotype between female and male patients affected by Autosomal Inherited Bleeding Disorders in a single-centre cohort | Tiziano Martini | Received |
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| 50-PP | A prospective, observational longitudinal study of functional outcome of radionuclide synoviorthesis in haemophilic arthropathy | Pranav Keswani | Received |
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| 54-PP | The need to improve diagnostic capacity in low- middle-income countries: lessons from the WBDR and Nigeria as a case study | Ellia Tootoonchian | Received |
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| 55-PP | Aziza Othmana HTC experience with hemophilia and World Bleeding Disorder Registry (WBDR) | Emna Gouider | Received |
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| 56-PP | Hemophilia life stages and changes global survey for people with hemophilia, caregivers and hematologists: survey design and demographics | Tom Martin | Received |
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| 57-PP | Innovative Approaches to Managing Hemophilia in Economically Disadvantaged Patients: Lessons from a Resource-Limited Setting | Vishakha Dongare | Received |
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| 58-PP | Launch of the Economics and Patient Outcomes in China in Haemophilia (EPOCH) Study Online Platform and First Patient Enrolled | Brian OMahony | Received |
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| 59-PP | Real-life demographic landscape of congenital hemophilia in Romania | Simina Pirv | Received |
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| 60-PP | Knowledge Transfer Program in NMOs. Statistical analysis of our reality. | Antonio Gomez Cavallini | Received |
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| 61-PO | WFH Initiative on Gene Editing for Hemophilia | Mayss Naccache | Received |
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| 62-PO | Comprehensive care planning for commercial gene therapy patients: Psychosocial, physical and medical considerations | Mosi Williams | Received |
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| 63-PP | HEMCOSTING : A Customizable Cost-Effectiveness Microsimulation Model to Compare the Costs and Effects of Several Hemophilia A and B Treatment Strategies in Any Context | Nancy Bolous | Received |
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| 64-PP | A Comprehensive Societal Costing Checklist to Guide Health Economic Analyses in Haemophilia | Nancy Bolous | Received |
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| 65-PP | Is haemophilia classification restricting clinicians from providing optimal care for joint health in non-severe haemophilia? A case study series. | Alfie McBrien | Received |
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| 66-PP | Knowledge, Attitudes, and Practices Regarding Home Based Treatment of Hemophilia Among Healthcare Professionals in Morocco | Fatima Zahra Ben Fouila | Received |
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| 69-PP | HEAD-US and HJHS in Comparison with MRI for the Evaluation of Joint Health in Children with Haemophilia A: a Single Centre Experience | Athina Dettoraki | Received |
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| 70-PP | The value of ultrasound in detecting subclinical abnormalities in joints of patients with hemophilia | Xinjuan Guo | Received |
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| 72-PP | Clinical Application Value of the Chinese Expert Consensus on Ultrasound Assessment of Hemophilic Arthropathy | Jun Li | Received |
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| 73-PP | Dual Immune Regulation: Exploring the Role of Regulatory T Cells and Regulatory B Cells in Modulating Inhibitor Development in people with Hemophilia A | Rashmi Kushwaha | Received |
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| 76-PP | High responding inhibitors in patient with hemophilia: A single center experience in south Tunisia | Maha Charfi | Received |
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| 80-PP | Thromboelastometry Clotting Profiles and Plasma Emicizumab Levels in Hemophilia A Patients on Low-Dose Emicizumab Prophylaxis for two to four years | Rucha Patil | Received |
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| 81-PP | Usability evaluation of a novel point of care platform to simultaneously test FVIII activity and Thrombin generation | Aernoud Bavinck | Received |
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| 82-PP | Turoctocog alpha Pegol in patients with Hemophilia A undergoing surgical procedures: A single center experience from North India | Akshay Middinti | Received |
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| 83-PP | Cost-effectiveness and outcomes of radioactive synovectomy versus arthroscopy in hemophilic synovitis: a Brazilian perspective | Mariana Battazza | Received |
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| 84-PP | The evaluation of sarcopenia in people with hemophilia over 40 years of age in Japan. | Kumiko Ono | Received |
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| 85-PP | TKA in PwH at a Tertiary Care Centre- An experience with 112 patients with a medium term follow-up | Shubhranshu MOHANTY | Received |
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| 86-PP | Total Hip replacement 50 years of experience in a single center | Maria Landro | Received |
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| 87-PP | Joint Prosthetic Surgery in Patients with Hemophilia A: clinical-functional outcomes and quality of life | ezio zanon | Received |
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| 88-PP | Extended tibial tuberosity osteotomy to facilitate implant removal in difficult knee revisions arthroplasty. Our experience with haemophilic patients | Dimitrios Kalatzis | Received |
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| 91-PP | Postoperative outcomes of total knee arthroplasty in patients with hemophilic knee arthropathy a prospective study | Janie Barry | Received |
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| 92-PP | Musculoskeletal complications in patients with hemophilia : A single-center experience | Maha Charfi | Received |
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| 93-PO | Heterotopic ossification in Haemophilia: an 18-year single-centre case series | Adam Hussain | Received |
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| 94-PP | Treatment of orthopedic complications of hemophilia in Azerbaijan | Mehpara Kazimova | Received |
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| 95-PO | Major bleeding after Total Knee Replacement in PWH. How to avoid it | Maria Landro | Received |
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| 96-PO | Efficacy of Treatment Modalities in Hemophilia Patients with Joint Pain: A Retrospective Analysis | Farwa Sijjeel | Received |
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| 98-PP | Management of Perioperative Hemostasis in two patients with severe Hemophilia A with Inhibitors on Prophylaxis with Emicizumab using Global Hemostasis Assays | Gisela Barros Garcia | Received |
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| 99-PP | Weekly Nordic Walking training improves joint health at one year in patients with haemophilia | Elena Anna Boccalandro | Received |
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| 101-PP | Association between arthropathy and peripheral neuropathies in adults with hemophilia | Aidee Gibraltar Conde | Received |
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| 102-PP | Conditioned pain modulation in patients with hemophilic arthropathy of the lower limbs. Multicentre cross-sectional cohort study. | Rubén Cuesta-Barriuso | Received |
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| 103-PP | Finding the Right Flow: Acute Responses to Autoregulated vs. Non-Autoregulated Blood Flow Restriction in Elbow Rehabilitation for Hemophilia | Joaquín Calatayud | Received |
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| 104-PP | Neuromotor reprogramming in people with Hemophilia (Allyane Method) | Mauro Dyntino | Received |
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| 105-PP | Blood flow restriction in patients with hemophilic arthropathy. A pilot safety study | Rubén Cuesta-Barriuso | Received |
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| 106-PP | Expanding HJHS: a full body assessment may provide more information on musculoskeletal health | Elena Anna Boccalandro | Received |
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| 107-PP | Spinal Stenosis: The need to adapt physiotherapy approaches to older persons with haemophilia | Mark Mcgowan | Received |
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| 108-PP | Creating physiotherapy guidelines for the management of iliopsoas haematomas in people with bleeding disorders | Richard Davis | Received |
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| 109-PP | Comparative Efficacy of Guided Physical Therapy and Home-Based Care on Joint Health and Physical Function in Patients with Mild Hemophilia | Sandeep Kumar | Received |
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| 110-PP | Overview Joint Health Status in haemophilia patients: a single Centre experience in Argentina | Estanislao Vera Santos | Received |
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| 111-PP | Intra-articular injection of platelet-rich plasma (PRP) in addition to hyaluronic acid (HA) in the treatment of hemophilic artropathy | Cecilia Gallardo | Received |
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| 112-PP | Comprehensive Rehabilitation Plan (RP) for Haemophilia Patients: Enhancing Joint Mobility, Quality of Life and Long-Term Stability | Martin Kaal | Received |
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| 113-PO | Clinical Impact Of Recurrent Bleeding Episode On Joint Health And Functional Independence In Factor Vll Deficiency: A Retrospective Cause Report | Adithya TS | Received |
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| 115-PO | Physiotherapy clinic: a single-center experience in musculoskeletal health management for patients with haemophilia | Elena Anna Boccalandro | Received |
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| 116-PO | IMPACT OF PHYSIOTHERAPY ON HEMOPHILIC JOINT HEALTH SCORE | Manisha Syal | Received |
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| 117-PO | EFFECT OF TAILOR-MADE EXERCISE PROTOCOL ON JOINT HEALTH AND PHYSICAL ACTIVITY IN CHILDREN WITH HEMOPHILIA | Smati Sambyal | Received |
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| 118-PP | Standard dose Vs Low dose Emicizumab Prophylaxis in patients with Hemophilia A with Inhibitors - Single centre, Prospective Observational study | Shailendra Verma | Received |
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| 119-PP | REAL-WORLD EXPERIENCE OF PROPHYLAXIS WITH EMICIZUMAB IN CHILDREN WITH HAEMOPHILIA A: A SINGLE CENTRE EXPERIENCE | Athina Dettoraki | Received |
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| 120-PP | Nonacog beta pegol prophylaxis in pediatric patients with severe Hemophilia B: A single centre experience from North India | Shailendra Verma | Received |
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| 122-PO | Denial of Prophylaxis in early adulthood leads to increased bleed rates and college absenteeism in a resource limited setting. | Rema Ganapathi | Received |
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| 123-PO | Prophylactic treatment of hemophilia A patients in Azerbaijan | Gunel Alizade | Received |
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| 124-PP | A pilot study investigating specific types of sexual difficulties in Tunisian Hemophiliacs. | wafa chenbah | Received |
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| 125-PP | Degree of burden in primary caregivers of patients with hemophilia in Mexico | Ezequiel Martínez Martínez | Received |
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| 126-PP | PACT Project: Empowering Women and Girls with Bleeding Disorders by Multidisciplinary Awareness and Psychosocial Support | Hina Fatima | Received |
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| 127-PP | Walk and Talk Group: A supportive MDT community-based initiative for adults within the Bleeding Disorders Network Wales, UK | Kathleen Moore | Received |
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| 128-PP | Psychological well-being of informal caregivers of people with coagulopathies in Mexico | Ezequiel Martínez Martínez | Received |
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| 130-PP | A multidisciplinary nonmedical management approach to improve the quality of life of hemophilia, beyond medical treatment | Fariba Shokri | Received |
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| 131-PP | Intra-articular injection of biological factors for the management of hemophilic arthropathy. | Dimitrios Kalatzis | Received |
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| 132-PP | Quality of life of patients with hemophilia in Madagascar | Lindsay Kouatie Njonger | Received |
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| 133-PP | Development of the Hemophilia Life Interference Questionnaire (HLIQ): A tool to evaluate the impact of hemophilia B and its treatment on patient lives | Sheena Thakkar | Received |
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| 135-PP | Achieving Zero Annual Bleed Rate and Assessing Joint Health in Children with Hemophilia on Emicizumab Prophylaxis: Insights from a Low- and Middle-Income Country | Shigy Francis | Received |
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| 136-PP | Successful Liver Transplantation in a Patient with Hemophilia A and Inhibitors: A Case Report | Abdulrahman Nasiri | Received |
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| 137-PP | Treatment adherence, satisfaction and quality of life in adult patients with hemophilia A: A real-world survey of physicians and patients in the Kingdom of Saudi Arabia | Sheena Thakkar | Received |
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| 138-PP | Prevalence of Depression in Adults with Hemophilia Using the Patient Health Questionnaire-9 (PHQ-9) | wafa chenbah | Received |
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| 139-PP | Impact of Home Education and Self-Management Strategies on Quality-of-Life in Patients with Hemophilia: Preliminary Report of a Systematic Review and Meta-Analysis of Randomized Controlled Trials | Jose Santacruz-Arias | Received |
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| 140-PO | Sports participation and psychosocial condition of patients with haemophilia in Hong Kong | Henry Hon-Wai Lam | Received |
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| 141-PO | Assessment of Quality of Life in Tunisian Hemophilia Patients Using the EQ-5D Questionnaire | wafa chenbah | Received |
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| 142-PO | Impact of Bernard-Soulier Syndrome on Patient Quality of life::A comprehensive Assessment using EQ-5D-5LTool | AJAI THOMAS | Received |
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| 144-PP | Real-world effectiveness and safety of damoctocog alfa pegol in patients with a history of inhibitors: Fifth interim analysis of the HEM-POWR study | Amanda Ward | Received |
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| 145-PP | Fifth interim analysis of the HEM-POWR study: A post hoc analysis of real-world effectiveness and safety of damoctocog alfa pegol in patients with mild and moderate haemophilia A | Amanda Ward | Received |
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| 146-PP | Real-world effectiveness and safety of damoctocog alfa pegol in adolescent and older patients with haemophilia A in the fifth interim analysis of the HEM-POWR study | Amanda Ward | Received |
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| 147-PP | The role of global hemostasis testing in the diagnosis and management of rare bleeding disorders: A six-year experience from a single tertiary care center in Kerala | Bitty Kurian | Received |
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| 148-PP | Characteristics of Factor XIII Deficiency in Childhood: A Retrospective Study in Medina, Saudi Arabia | Noura Alsaid | Received |
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| 149-PP | PATIENTS WITH PLATELET DISORDERS IN TUNISIA: WHERE ARE WE? | Meriem Achour | Received |
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| 150-PP | Revolutionizing Rare Bleeding Disorder Management with Prophylactic Factor Replacement: Experience from a Tertiary care Centre in North India | Prisha Nankana | Received |
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| 151-PP | Clinical phenotype, Thromboembolic complication and quality of life in a cohort of patients with afibrinogenemia | Meriem Bensadok | Received |
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| 152-PP | Clinical spectrum and treatment outcomes of Rare Bleeding Disorders in females: A two-center experience in North Pakistan | muhammad usman | Received |
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| 155-PP | Epidemiological and clinical-biological aspects of factor XIII deficiency in southern Tunisia | Imen Frikha | Received |
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| 158-PO | Unveiling the Spectrum: Rare Bleeding Disorders in Eastern Uttar Pradesh, India | Rashmi Kushwaha | Received |
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| 161-PO | MUSCULOSKELETAL LESIONS IN PATIENTS WITH FVII DEFICIENCY: EXPERIENCE IN VENEZUELA | Apsara Boadas | Received |
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| 162-PO | Perioperative management for patients with congenital factor VII deficiency | IMEN Ben amor | Received |
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| 165-PP | Quality of care for Hemophilia in Colombia: Ten Years of the Colombian Hemophilia Registry | Adriana Linares | Received |
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| 166-PP | Effectiveness of post physiotherapy Gym protocol in enhancing fitness, psycho social well being and self confidence in young adult patients with hemophilia: a pilot Study | Geeta Suri Sharma | Received |
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| 168-PP | Experience in treatment patients with severe hemophilia A who receving emicizumab during musculoskeletal surgeries | Tatyana Polyanskaya | Received |
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| 169-PP | Giant hemophilic pseudotumor of the femur: 2-stages hip disarticulation | Ignacio Soncini | Received |
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| 170-PO | Patient-Specific Cutting Guides for Total Knee Arthroplasty in Hemophilic Patients: A Surgeon-Driven Solution for Precision and Hemostasis | Salim Fourmas | Received |
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| 171-PO | Effectiveness and advantages of Turoctocog alfa pegol in the perioperative management of cardiac surgery in a patient with mild hemophilia A | ezio zanon | Received |
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| 172-PO | Long-term outcome of postoperative Range of Motion in Total Knee Replacement | Carla Daffunchio | Received |
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| 173-PO | Evolution of Surgical Management and Multidisciplinary Care in Hemophilia: A 15-Year Retrospective Analysis | Salim Fourmas | Received |
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| 175-PO | Minimally invasive treatment for orthopaedic pathology. 40 years of experience. | Maria Landro | Received |
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| 176-PO | Detection of ankle joint microbleeds with magnetic resonance imaging in patients with severe haemophilia A on prophylactic treatment | Polona Klavar | Received |
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| 177-PO | Observational and Phase 1 studies in the Development of Novel Therapies for Von Willebrand Disease: The VELORA Research Program | Jigar Amin | Received |
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| 178-PO | A Phase 2 Study to Evaluate the Safety, Tolerability, Pharmacokinetics, Pharmacodynamics, and Efficacy of HMB-001 in Glanzmann Thrombasthenia: A Trial in Progress | Jigar Amin | Received |
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| 179-PO | SHINE study design: An interventional, open-label, Phase 4 study investigating changes in synovial hypertrophy in patients with haemophilia A on efanesoctocog alfa prophylaxis | Sana Yaar | Received |
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| 180-PP | Comprehensive analysis of demographic and clinical profiles in people with von willebrand disease: insights from the WFH World Bleeding Disorders Registry | Donna Coffin | Received |
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| 181-PP | Von Willebrand disease follow-up and WBDR | Ons Ghali | Received |
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| 182-PO | Gynecological Bleeding in Women with Congenital Bleeding Disorders: A Comprehensive Cohort from Iran | Shadi Tabibian | Received |
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| 183-PO | Clinical and Treatment Features of Von Willebrand Deficiency | Huseyin Avni Solgun | Received |
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| 185-PP | Joint status of Women with bleeding disorders | Carla Daffunchio | Received |
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| 186-PP | Audit of the Management of Heavy Menstrual Bleeding in Women and Girls with Inherited Bleeding Disorders | Lugain Abdalla | Received |
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| 187-PP | Development of Women, Girls, and People Who Have or Had the Potential to Menstruate (WGPPM) questionnaire for PROBE study | Dawn Rotellini | Received |
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| 188-PP | Impact of bleeding on physical activity amongst Women and Girls with Bleeding Disorders in Ireland | Megan Kennedy | Received |
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| 189-PP | SCREENING OF BLEEDING DISORDERS IN ADOLESCENTS /YOUNG ADULT WOMEN PRESENTING WITH HEAVY MENSTRUAL BLEEDING-A PROSPECTIVE STUDY FROM A SINGLE TERTIARY CARE CENTRE IN KERALA | Bitty Kurian | Received |
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| 190-PP | Enhancing the Diagnosis of Hemophilia Carriers in Tunisia, Do we need molecular study? È | Eya Drissi | Received |
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| 191-PP | Hemophilia Foundation of Michigans National Womens Conference: Empowering Change: Transforming Awareness, Advocacy and Care for Women with Hemophilia and Rare Factor Deficiencies | Susan Lerch | Received |
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| 192-PP | Bleeding manifestations in haemophilia carriers in India | Sharda Shanbhag | Received |
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| 194-PP | Gynecological and obstetrical hemorrhages in Women with rare bleeding disorders | Nawel Ferroudj | Received |
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| 195-PP | Gender differences in bleeding disorders in Aziza Othmana HTC from Tunisia | Emna Gouider | Received |
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WFH 2025 Comprehensive Care Summit
23-25 April 2025 Dubai
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Poster submission deadline 20/04/2025
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