PosterSessionOnline

WORLD FEDERATION OF HEMOPHILIA

WFH 2022 World Congress

May 8-11 2022 Montreal

N. Poster

Poster title

Applicant name

Status


PP-01	Prevalence of Bleeding Disorders in Nicaragua in the period 2004-2020.	Sergio Luis Gustavo Aguilera Covarrubias	Received

LR-01	Transition Readiness among Adolescents and Young Adults with Hemophilia in the Netherlands	Martijn Brands	Received

PO-01	Beginning of the Hemophilic Arthropathy in children of 7 to 11 years old in Nicaragua in the absence of replacement treatment: Series of 9 cases.	Sergio Luis Gustavo Aguilera Covarrubias	Received

VLR-01	TSUBASA: a prospective study evaluating the association between physical activity and bleeding events in people with hemophilia A during emicizumab prophylaxis	Katie Smith	Received

LBPP-01	HemActive study: Beliefs and attitudes towards physical activity and treatment concordance by persons with hemophilia (PwH) from Colombia	Ingrid Koo	Received

LR-01	Safety of eptacog beta: Comparing the 225 g/kg and 75 g/kg dosing regimens across pivotal clinical trials	Manuel Carcao	Received

LR-02	No Significant Differences in Physical Activity During the Covid-19 Pandemic in Adults with Moderate and Severe Haemophilia: The Irish Personalised Approach to the Treatment of Haemophilia (iPATH) study	Megan Kennedy	Received

LR-02	Ambulatory Care Transformation to Telehealth Mode during the COVID-19 Pandemic: Experience from Pediatric Non-Malignant Blood Disorder Service at A Tertiary Care Centre	Viqaruddin Mohammed Khaja	Received

PO-02	Behavior of Von Willebrands Disease in patients treated at the Manuel de Jesús Rivera La Mascota Childrens Hospital in Managua-Nicaragua in the period from January 2015 to June 2020	Jairo F Campos Castilblanco	Received

VLR-02	WFH Survey on Impact Covid-19 Pandemic Impact on the Bleeding Disorders Community	Salome Mekhuzla	Received

LBPP-02	Haemophilia-mediated bleeding induces red pulp macrophage expansion	Heike Hawerkamp	Received

PP-02	Development and validation of the Physiotherapy Therapeutic RElationship Measure in people with bleeding disorders	Erin McCabe	Received

VLR-03	Narratives of Families of Children Living with Hemophilia and Other Bleeding Disorders: Balancing Life During and Between Bleeds	Roberta L Woodgate	Received

VLR-03	Spontaneous Bleeding Incidence Associated with Psychosocial Factors in Hemophilia Patients in Colombia	Mario M Barbosa-Rengifo	Received

LR-03	The SCORE-Project: a survey on COVID-19 resilience of Brazilian hemophilics during pandemic	Mariana Freire	Received

PP-03	Three-Decade Ongoing Establishment of Care for Women/Girls with Haemophilia Carrier and Haemophilia	Ampaiwan Chuansumrit	Received

PO-03	An mHealth App (WeThrive) to identify heavy menstrual bleeding in adolescents with bleeding disorders: App Design and Development	Meghan Pike	Received

LBPP-03	Analysis of FIX Activity Following Addition of Exogenous FIX to Plasma From Participants Treated With Fidanacogene Elaparvovec	Marion James	Received

VLR-04	Major Orthopaedic Surgery In Subjects With And Without Inhibitors In Regimen With Emicizumab: A Mid-Term Follow-Up At A Single Haemophilia Center	Christian Carulli	Received

VLR-04	Immersive VR visualization to improve joint pain in patients with hemophilic ankle arthropathy.	Roberto Ucero-Lozano	Received

PO-04	Multidisciplinary experience in the development of the Declaration of Recommendations for the Emicizumab Prophylaxis Program in Nicaragua.	Engels Rolando Reyes Sanchez	Received

VLR-04	The Efficacy of Arthropathy Identification Using Diagnostic Ultrasound in People with Haemophilia	Wing-Yun Bud	Received

LBPP-04	Quality of life in pediatric hemophilia, Chile	Isabel Villalobos	Received

PP-04	Physical Fitness Improvement by Smart-Watch Monitoring in Hemophiliac during COVID-19 Pandemic A Nationwide Study	Nawachai Lertvivatpong	Received

VLR-05	Orthopedic surgery in a boy with severe haemophilia A and inhibitors on prophylaxis with emicizumab: the success of the first case in Portugal	Catarina Jacinto Correia	Received

PP-05	Health Seeking Behaviours and Associated Factors Among People Living With Hemophilia In Western Uganda.	Joshua Bwambale	Received

LR-05	Acquired haemophilia A: a 15-year population based review of incidence rate, patient demographics, and treatment outcomes of Acquired haemophilia A patients in Manitoba, Canada	Chantal Tian	Received

VLR-05	Rescue immune tolerance induction strategyLow-dose FVIII combining with second round immunosuppressants agent(s)	Runhui Wu	Received

PO-05	Quality of life of people with hemophilia in Nicaragua: A case series with PROBE survey	Ivonne Leyton	Received

LBPP-05	Use of immunosuppressives in patients with hemophilia receiving gene therapy: Evidence generation using a mixed-methods approach	Alexa Zayadi	Received

PP-06	Study design for B-LIEVE, a Phase 1/2 dose-confirmation trial of FLT180a gene therapy for hemophilia B	Amie Hedges	Received

LR-06	Telehealth and COVID-19 Impact on Patient Satisfaction with US Hemophilia Treatment Centers	Virginie L Sirianna	Received

VLR-06	An exploration of virtual healthcare. How CANHCOR is interacting with patients during a pandemic?	Sarah Crymble	Received

LR-06	Cost of Clinical Care for Patients with Severe Hemophilia in Six Low- and Middle-Income Countries	Nancy Bolous	Received

LBPP-06	Transforming Transition in a Virtual World	Clare James	Received

PO-06	Burden of menstrual bleeding and use of the pictorial blood assessment chart in Japanese women and girls with inherited bleeding disorders: a validation study	Azusa Nagao	Received

LR-07	Ambitious training of patients, parents and healthcare providers for the design of educational workshops for patients and families living with a rare bleeding disorder.	Thomas Sannié	Received

PP-07	Ultrasound in addition to clinical evaluation changes treatment decisions in persons with hemophilia with acute musculoskeletal complaints	Flora van Leeuwen	Received

LR-07	Research Group on Hemorrhagic Disorders: A Strategy to Educate College Students and People with Coagulopathies	Francisco Careta	Received

LBPP-07	Cost-effectiveness of Gene Therapy for Persons with Severe Hemophilia A and B (PWsH) in Six Low- and Middle-Income Countries (LMICs)	Nancy Bolous	Received

PO-07	Treatment and care of individuals with non-severe haemophilia time for improvement	Gerry Dolan	Received

LR-07	Integration of the Mexican Registry of Coagulopathies (RMC) with PROBE	Alexandra Kucher	Received

PO-08	Seed training model Hand by hand with hemophilia and willebrand disease: In 5 years, 1689 new professionals committed to our cause.	Engels Rolando Reyes Sanchez	Received

LR-08	Joint Health Status monitoring in Children and Adolescents with Haemophilia using the combination of Clinical, Imaging and Self-assessment methods.	Aikaterini Michalopoulou	Received

VLR-08	Assessment of Joint Health Using Point of Care Musculoskeletal Ultrasound (POC-MSKUS) in Female Hemophilia Carriers: The CUP Study-Interim Analysis	Rachel Kronenfeld	Received

PP-08	Further genotypic elucidation of discrepant hemophilia A	Emma Li	Received

VLR-08	European Principles of Care for Physiotherapy Provision for People with Bleeding Disorders: Perspectives of Physiotherapists and Patients	David Stephensen	Received

VLR-09	Preliminary field study results suggest differences in FIX activity based on assay from gene therapy trial patients expressing R338L high-activity variant of FIX	Debra Pittman	Received

PO-09	Joint And Functional Status Of Patients Under low dose Secondary/Tertiary Prophylaxis and Physiotherapy A 5 year Experience From A Limited Resource Setting	Viswam Dinkar	Received

PP-09	An expedition of tolerance and resilience amidst hardships: Experience of a child with factor VII inhibitor	ROHINI T	Received

LR-09	Haemophilic Arthropathy in a Novel Mouse Model of Haemophilia A	Aoife Yeow	Received

VLR-09	Mutation characteristics of haemophilia A and haemophilia B patients in the National Institute of Haematology and Blood Transfusion, Hanoi, Vietnam.	Khanh Q Bach	Received

PP-10	Efficacy of low dose immune tolerance induction (ITI) in Haemophilia A adults with inhibitors	May Anne Cheong	Received

LR-10	Fitusiran Prophylaxis Improves Health-Related Quality of Life in People with Hemophilia A or B without Inhibitors: Results of Phase 3 ATLAS-A/B Randomized Control Trial	Kaan Kavakli	Received

VLR-10	Epidemiological profile of bleeding disorders population in Tabasco, Mexico.	Laura Olán	Received

VLR-10	Real-world Persistence with and Adherence to Emicizumab Prophylaxis in People with Hemophilia A Results from Two Secondary Claims Database Analyses	Rahul Khairnar	Received

PO-11	Health related quality of life In severe Hemophilia A patients prophylaxis versus on demand treatment	AJAI THOMAS	Received

VLR-11	Management of patients presenting with an elevated Self-Administered Bleeding Assessment Tool (Self-BAT) score or other bleeding symptoms in a primary care setting	Katie Yeung	Received

VLR-11	Bleeding symptoms in carriers of hemophilia	Daniela Neme	Received

LR-11	Von Willebrand Disease (VWD) incidence among patients with bleeding manifestations in Egypt - a study cohort from VWD Registry	Sonia Adolf	Received

PP-11	Real-World Experience with the Use of Emicizumab in Paediatric Haemophilia A Patients With and Without Inhibitors	Joyce Ching Mei Lam	Received

VLR-12	The role of the specialist haemophilia nurses in switching patients to Emicizumab: Experience from a large haemophilia comprehensive care centre (CCC) in the UK	Janette Kemp	Received

PP-12	Short versions of the pedHAL and HAL: validation in Dutch children and adults with haemophilia	Isolde Kuijlaars	Received

VLR-12	The Red Box as a Tool to Provide Practical Help for Women and Girls with Bleeding Disorders During their Period	Willie van Greevenbroek	Received

VLR-12	Improving patient experience and outcomes for women with inherited bleeding disorders	Bella Madan	Received

PO-13	Getting Ready for Hemophilia Gene Therapy; Nursing Perspective	Mahmoud Abu-Riash	Received

PP-13	Advancing Care for Women with Bleeding Disorders - support provided by a female healthcare team.	Helena Landa	Received

PO-14	Coagulation Factor Levels and Postpartum Blood Loss: Preliminary Results of the Canadian Hemophilia Carriers Study-Postpartum (CHIC-P)	Michaela Spence	Received

PP-14	MRI evidence of Subclinical Bleeding; preliminary results of the BEGIN-study	Flora H van Leeuwen	Received

PP-15	Review of long-term efficacy and safety of recombinant factor VIII Fc in individualised prophylactic treatment	Cédric Hermans	Received

PO-15	Virtual consultation project for patient with Hemophilia.	Claudia Raffo	Received

PP-16	Fc-fusion technology beyond half-life extension review of potential immunomodulatory and anti-inflammatory effects of rFVIIIFc in haemophilia A	Sébastien Lacroix-Desmazes	Received

PP-17	Using the World Federation of Hemophilia Gene Therapy Registry for the Long-term Follow-up of Hemophilia Patients Treated with Gene Therapy	Mayss Naccache	Received

PO-17	Overview of the Mim8 FRONTIER clinical development program	Irina Matytsina	Received

PO-18	Managing Joint Health in Haemophilia: Perspectives from Patients, Caregivers, and Healthcare Professionals to Create a Patient-Reported Outcome (PRO) Tool for Patients Aged 8 Years and Older	Nisa Khan	Received

PP-18	Legal advice for hemophilia patients: 12 years of experience	Daniel Adolfo Luna	Received

PP-19	Estimation of a Recombinant, Humanized, Bi-specific Monoclonal Antibody Plasma Level in Countries Where No Commercial Calibrator is Available	German Detarsio	Received

PO-19	Hemophilia and Covid-19 infection: real-life experiences	Gianluca Sottilotta	Received

PP-20	Factor VIII:C measurement by different chromogenic and one stage assays in two Acquired Haemophilia patients treated with recombinant porcine factor VIII.	Susan Guy	Received

PO-20	Acquired hemophilia A following allogeneic stem cell transplantation for acute lymphoblastic leukemia	Kelsey Uminski	Received

PP-21	How to assess parallelism in factor assays: CV of results with different dilutions or Slope Ratio?	Susan Guy	Received

PO-21	Demographics, clinical profile and treatment landscape of patients with Hemophilia B in China	Wenhui Zhang	Received

PO-22	Point-of-Care Ultrasound Assessment for a Paedaitric Patient with Haemophilic Arthropathy in Joint Haemophilia Clinic	Wing-Wai Dr. chan	Received

PP-22	Involvement in care decisions and community engagement of people with hemophilia in Europe: Insights from the CHESS II study	Hanlu Zhang	Received

PP-23	Conducting a Virtual Home Infusion Workshop at the Time of COVID	Chiew Ying Lim	Received

PO-23	Sexual Health of Persons with Hemophilia	Marko Marini&263;	Received

PO-24	coagulation factor 8 concentrations required for different activity in children with severe hemophilia A: A single-center clinical study	Di Ai	Received

PP-24	The Pearls and Perils of Virtual Community Education during the Pandemic	Ruthrolen Martinez	Received

PP-25	A Quantitative Systems Pharmacology (QSP) Model to Compare the Non-clinical Biodistribution and Efficacy Between Recombinant Factor IX (rIX) Therapies	Oliver Ghobrial	Received

PO-25	Severe hemophilia A children with severe joint disease need for higher target trough concentrations of preventive therapy: A single-center clinical study	Di Ai	Received

PO-26	The influence of dead space in blood sampling needle on FVIII level and pharmacokinetic profiles in hemophiliac boys	Kun Huang	Received

PP-26	Study on demographic, clinical and therapeutic characteristics of hemophilia patients at National Institute of Hematology and Blood transfusion 2019 - 2020	Nguyen Thi Mai	Received

PO-27	Substantial reduction of cost of care of PWH by add on homoeopathic medicine reduced the parental anxiety and stress	Tapas Kundu	Received

PP-27	From collective trauma to singular trauma	Trinidad Valente	Received

PP-28	New book for families with hemophiliac children: Children with hemophilia: family and school	Patricia Cabre Sala	Received

PO-28	The switch from plasma-derived to recombinant Factor VIII concentrates: Experience of the southern Tunisian hemophilia treatment center	Olfa Kassar	Received

PP-29	Quality of Life and Joint Health Changes in Severe Hemophilia A Patients Switching to an Emicizumab Prophylaxis Regimen	Alyson Trillo	Received

PO-30	Bleeding Outcomes and Musculoskeletal Function after Switching from On-Demand to Intermediate Dose of FVIII as Tertiary Prophylaxis in Severe Hemophilia A Children with Joint Arthropathy: A Case Series	Raisa Cecilia Sarita	Received

PP-30	Pain Relief With Eptacog Beta in Hemophilia Patients With Inhibitors	cedric HERMANS	Received

PO-31	Treatment must go on	Jae Chung Song	Received

PP-31	Quality of life and outcome improvement in adolescents with bleeding disorders receiving medical management for heavy menstrual bleeding.	Kelly Tickle	Received

PP-32	Quality of life and some related factors of hemophilia patients treated at the National Institute of Hematology and Blood Transfusion in 2020	Nguyen Thi Mai	Received

PO-32	Surgical treatment of hemophilic pseudotumors: a case series	Agustin Colombo	Received

PP-33	Awareness and Education Matters	Mohommad Nurul Islam	Received

PO-33	Yttrium-90 synovectomy is feasible, safe and effective for chronic hemophilic synovitis in adolescents on secondary prophylaxis in a resource limited setting	Nittu Panjikaran	Received

PO-34	Iliopsoas bleed : A case series from a Haemophilia treatment centre	Shigy Francis	Received

PO-35	A comparison of adult to pediatric hemostatic response to emicizumab therapy within the same institution	Erika J Martin	Received

PO-36	Supporting Patient-Centered Research in China: Planning of the EPOCH Project	Elizabeth Clearfield	Received

PP-36	General self efficacy in parents of children with haemophilia in Poland.	Pawel Laguna	Received

PP-37	HeRo Bears Camp - adventure and team building camp for young people with haemophilia.	Tudor Bucur	Received

PO-37	Natural history of Hepatitis C virus (HCV) infection in Korean hemophilic cohort	Hugh Chul Kim	Received

PO-38	Capacity building by bringing change by improving access to healthcare and awareness	Muhammad Nadeem Zahid	Received

PP-38	Digitising Data Collection to Improve Haemophilia Care: Creating a Bespoke, Interdisciplinary Data Management System	Richard Davis	Received

PP-39	An observational French survey to compare perceived and observed accessibility to therapeutic drugs used for treating patients with inherited bleeding disorders	Valérie Chamouard	Received

PO-39	Self-induced myofascial release in patients with hemophilic ankle arthropathy.	Rubén Cuesta-Barriuso	Received

PP-40	Experience of establishing National Hemophilia Helpline in Pakistan	Masood F Malik	Received

PO-40	Carotid Intima-Media Thickness (cIMT) as a Marker of Subclinical Atherosclerosis in Adolescents with Severe Hemophilia Undergoing a Prophylaxis Regimen	Alyson Trillo	Received

PO-41	Regular Virtual Meetings Organized by the Hemophilia Society in the COVID-19 Pandemic	Bulent Zulfikar	Received

PP-41	First nursing intervention guide for patients with coagulation disease	Josefina Santillán	Received

PP-42	Platelet- Rich Plasma treatment on chronic synovitis haemophilic patients - ultrasound evaluation	Carla Daffunchio	Received

PO-42	The Adequacy of the ACH Psychological Service during the pandemic SARS CoV-2: Telephone or virtual attention?	Silvia Grases	Received

PO-43	Management of hemophilia in pandemic of COVID: Experience of the southern Tunisian hemophilia treatment center	Olfa Kassar	Received

PO-44	What do people with haemophilia (PwH) really need? Patient perspectives on terminology, information channels, and experience to refine communication and the future of haemophilia care in the post-COVID era	Danai Krithinidi	Received

PO-45	Benefits from the use of Extended Half-Life (EHL) against Standard Half-Life (SHL) coagulation Factors in Total Knee Replacement in Haemophilia patients	Anna Kouramba	Received

PP-45	Surveillance of State Registry of People with Hemophilia in Kerala	Sheena Mathew	Received

PO-46	Experience in Surgical Management for Persons with Hemophilia A and with Inhibitors in Western Kenya	Carole J Kilach	Received

PP-47	Emicizumab Prophylaxis in PWH with Inhibitor and bleeds in a resource limited setting	Sheena Mathew	Received

PO-47	Why does the Catalan Association of Hemophilia (ACH) offer physiotherapy as one of its programms?	Cristian Morte	Received

PO-48	Real-World Experience on the Use of rVIII-SingleChain in Patients with Hemophilia A: Interim Results of Safety Data from a Prospective, Non-Interventional Study in Germany and Austria	Eleanor Broadberry	Received

PP-49	The many opportunities of the WFH twinning program: Experience of the Abidjan-Brussels collaboration	Catherine Lambert	Received

PO-49	Experience with 10 pediatric patients with hemophilia A and FVIII inhibitors treated with immune tolerance induction (ITI) at Tawam hospital, UAE	Muhammad Faisal Yousuf Khanani	Received

PO-50	Real-world experience of rIX-FP prophylaxis at dosing intervals of up to 14 days in a pediatric patient with hemophilia B during the COVID-19 pandemic	BOLIVAR LUIS DIAZ JORDAN	Received

PP-50	Niger, a first evaluation of patients needs by Afath	Amadou Djibrilla	Received

PO-51	Healthcare Resource Use, Depression, and Anxiety Among Adult Males With Hemophilia B: Observed Differences for Those With and Without Medically Recorded Bleeding Episodes in the United States	Margit Rezabek	Received

PP-51	Improvement of outcome measures following total joint replacement surgery in severe hemophilic arthropathy of the knee	Anna Kouramba	Received

PP-52	Aquatic Rehabilitation Program for patients with Hemophilia submitted to Total Joint Arthroplasty.	Glenda Feldberg	Received

PO-52	Identification of the Intron 1 and Intron 22 Inversions of the Factor VIII Gene in patients with severe Hemophilia A in Uruguay	Yasser Vega	Received

PP-53	Learn through what you go though HTC Aluva model home therapy in hemophilia	Syamraj Santhappan	Received

PO-53	Clinical Application of Extended Half-Life Pegylated Factor VIII in Ten Children with Haemophilia A	Athina Dettoraki	Received

PP-54	Afath webinars: illustration of partnership in care model	Thomas Sannié	Received

PP-55	Virtual healthcare during a Global Pandemic: Patient Perspectives	Sarah Crymble	Received

PP-56	Self-Reported Migraine in Subjects with von Willebrand Disease	Corey MacGregor	Received

PO-56	Antifragility within fragility. Women & hemophilia.	Bernadetta Pieczy&324;ska	Received

PO-57	The Least Expected Guest: Acute Compartment Syndrome in Haemophilia	A.Patricia Nally	Received

PP-57	Awareness campaign for women and girls with rare constitutional bleeding disorders (WGBD) Women bleed too a new way of communication	Yannick Collé	Received

PP-58	Formation of national member organization (NMO) and consolidation of centralized patients data for efficient treatment in Pakistan	Muhammad Nadeem Zahid	Received

PO-58	How to conduct effective online training in NMOs: tips that work	Juan Andrés Pereira de Souza	Received

PO-59	Implementing Culturally-Appropriate translations of the Self-BAT to increase awareness of the prevalence of Bleeding Disorders in India Implementing Culturally-Appropriate translations of the Self-BAT to increase awareness of the prevalence of Bleeding Di	Hiral Thakkar	Received

PP-59	Examining preferences for gene therapy treatment in haemophilia: attribute elicitation for a discrete choice experiment	Shahid Malik	Received

PO-60	Physiotherapeutic evaluation of joint health of hemophiliac patients through HJHS, referred to radioactive synovectomy, in Brazil.	Fernando Eduardo Zikan	Received

PP-60	Feasibility of integrating PROBE (Patient Reported Outcomes, Burdens and Experiences) into a clinical care pathway to facilitate transformation to a Value-Based Health Care Model in hemophilia.	Federico Germini	Received

PP-61	Prevalence and characteristics of non-neutralizing FVIII-specific antibodies in persons with hemophilia A preliminary results	Ilja Oomen	Received

PO-61	Physiotherapy, Hemophilia and International Classification of Functionality (ICF) - WE HAVE EVIDENCE?	Fernando Eduardo Zikan	Received

PP-62	Diagnosis Recognition Associated with Comprehensive Management Program Adherence in Hemophilia Patients in Colombia	Mario M Barbosa-Rengifo	Received

PO-62	Inter-individual variability in pharmacokinetics and clinical features in pediatric patients with severe hemophilia A	Kun Huang	Received

PO-63	A real-world data of Children hemophilia A with inhibitors conducting low-dose ITI strategy in China	Zhengping LI	Received

PP-63	COVID-19 experience with inherited bleeding disorders similar to the country population	Basak Koc	Received

PP-64	Impact of Emicizumab on Annualized Bleeding Rates in Persons with Hemophilia A in Western Kenya	Carole J Kilach	Received

PO-64	On Mountain Trails - psycho-physical-educational project to change mentalities of stakeholders in haemophilia and other rare bleeding disorders	Valentin Brabete	Received

PO-65	F8 Gene Mutation Profile of Chinese Hemophilia A Children with Inhibitors: A Large-cohort Data Analysis from A Single Center of China	Jie Sun	Received

PO-66	The Prevalence and Risk Factors for Inhibitor Development in Patients with Hemophilia A in Northern Pakistan.	Tahira Zafar	Received

PP-67	Comprehensive distance treatment focused on physical rehabilitation in patients with hemophilia in Mexico	Cecilia Gallardo Pérez	Received

PO-67	Mental Health Of Patient With Bleeding Disorder	Ms. Midhat Khalid	Received

PO-68	The effect of a LDP regimen on bleeding episodes and development of inhibitors in patients with Hemophilia A.	Tahira Zafar	Received

PP-68	Use of emicizumab in Venezuelan hemophilia A patients: preliminary report	Apsara Boadas	Received

PO-69	Implementation of an institutional quality management project in the Hemophilia Foundation of Salta	Maria Sol cruz	Received

PP-69	Haemophilia in the Central and Northern Regions of Malawi an Epidemiological Study	Loviisa Mulanje	Received

PP-70	Project Phoenix: the need for sharing experience in bleeding disorder care	Sandra Dodgson	Received

PO-70	Aspects of social reality of patients with hemophilia in Salta Province	maría sol cruz	Received

PO-71	Health-related quality of life among adults with hemophilia China:A cross-sectional survey	Wenhui Zhang	Received

PP-71	Clot Waveform Analysis In Patients With Hemophilia A	Malek Terras	Received

PP-72	PROBE Results Show Continued Burden of Disease in Canadians with Hemophilia A and B	David Page	Received

PO-72	Two Decades Diagnosing Acquired Inhibitors in a Tertiary Centre: Changing Over Time?	Sofia Teixeira	Received

PP-73	Long term follow up of low dose prophylaxis in Tunisian patients with hemophilia	Rabeb Jaied	Received

PO-73	Vitamin D insufficiency and its relation with bone mineral density in children with hemophilia A.	Samantha Fierro Sáenz	Received

PO-74	Review of eleven-year examination of patients with severe hemophilia that present intracranial hemorrhage	JUAN PABLO Ortíz	Received

PP-74	Pain and quality of life in Mexican pediatric patients	Maricela Osorio Guzmán	Received

PO-75	Assessment Of Intron-22 Inversion Mutation And Phenotypic Variation In Plasma Levels Of Factor VIII In Person With Haemophilia A In South East Nigeria	Theresa Nwagha	Received

PP-75	Changing Community Needs for Those with a Bleeding Disorder in Poland	Elizabeth Clearfield	Received

PP-76	A Retrospective Analysis of the Management of Iliopsoas Haematomas in Persons with Haemophilia	David Stephensen	Received

PO-76	Experience related to the use of digital tools for virtual communication implemented by the Hemophilia Foundation of Salta in times of Covid-19 pandemic.	Josefina Santillán	Received

PO-77	Hemophilic elbow arthropathy and upper limb functionality in patients treated with extended half-life clotting factor. An observational study.	Rubén Cuesta-Barriuso	Received

PP-77	Does the Use of an Online Screening Tool affect Referral Outcomes? Preliminary Results of the Lets Talk Period Project	Julie Grabell	Received

PO-78	Musculoskeletal status of lower limbs in patients with prophylactic treatment using extended half-life clotting factor	Rubén Cuesta-Barriuso	Received

PP-78	Comparison of Change in Number of Identified People With Hemophilia A and Factor VIII Use Per Patient Over Time	Ellia Tootoonchian	Received

PP-79	Conceptualization and Development of Quality of Life Scale for PWH Living in India	Richa Mohan	Received

PO-79	VWD Connect Foundation U.S. Severe Von Willebrand Disease Patient Registry	Jeanette Cesta	Received

PP-80	Monitoring Emicizumab-data from a World Federation of Haemophilia International External Quality Assessment Scheme exercise.	Christopher Reilly-Stitt	Received

PO-80	Clinical and laboratory characteristics of patients with isolated factor VII deficiency at the National Institute of Hematology - Blood Transfusion	Nguyen Thi Mai	Received

PO-81	Hemophilic knee arthropathy. Is self-induced myofascial release an effective therapeutic option?	Rubén Cuesta-Barriuso	Received

PP-81	Reaching Undiagnosed Women and Girls: Outcomes from 5 Years of the Better You Know Outreach Campaign	Dawn Rotellini	Received

PP-82	Challenges and Knowledge Gaps facing Hemophilia Carriers: Perspectives from Patients and Healthcare Providers	Monique Botros	Received

PO-82	Risk factor to dental caries by Cambra in a pediatric bleeding disorders population.	Laura B Isidro-Olán	Received

PO-83	First on-line dentistry training for the treatment of patients with hemophilia and von Willebrand.	Laura Forzani	Received

PP-83	Diagnosis of von Willebrand disease and its relationship with bleeding disorders. Ecuador Case	Marcela A Mardones	Received

PP-84	Evaluation of an automated von Willebrand Factor Activity Assay without ristocetin	Amine Sfaxi	Received

PO-84	Conference on dental surgery in patients with bleeding disorder of Salta Province	Laura Forzani	Received

PO-85	Sports in hemophilic patients, expectation versus reality	gabriela Sliba	Received

PP-85	Re-revision surgery after total knee arthroplasty in haemophilic patients: a multidisciplinary challenging case series	Gianluigi Pasta	Received

PP-86	The ex vivo effects of varying factor VIII concentrations on clot formation and structure in Haemophilia A patients	Joachim Potgieter	Received

PO-86	Multidisciplinary Work Team: Comprehensive Care of Haemophilia	A.Patricia Nally	Received

PO-87	Arnica Montana: three years of therapeutic experience in patients with bleeding diseases	Maria del Valle Bertoni	Received

PP-87	Bleeding in Hemophilia Carriers : Tunisian Center Experience	Eya Drissi	Received

PO-89	Efficacy and safety characteristics of emicizumab in the prevention of bleeding in patients with hemophilia A with inhibitors	Nguyen Thi Mai	Received

PO-90	Evaluation of the effectiveness of emicizumab in preventing bleeding and safety in patients with hemophilia A without inhibitors	Nguyen Thi Mai	Received

PO-91	The use of clinical hypnosis on the psychological impact of hemophilia in the family	Jonathan Giovani Navarro Sanchez	Received

PO-92	Being present with the families as soon as the diagnosis is announced	Yannick Collé	Received

PO-93	The latest news of bleeding disorders in Korean at a glance	Tai-il Kim	Received

PO-98	Hemophilia in Palestine:Reality and Chalenges	Osama Najjar	Received

PO-99	Trends in Product Use since Approval of Novel Therapies at a Paediatric Haemophilia Treatment Center	Nur Insyirah Abdul Kadir	Received

PO-100	Perioperative management in non-severe hemophilia patients	Carmen Rodríguez Lefler	Received

PO-102	Address the needs of women and girls with rare congenital bleeding disorder (WGBD): an unprecedented partnership between 20 specialized healthcare professionals (HCP) and the womens committee to publish an informative brochure.	Yannick Collé	Received

PO-104	Lower dose prophylaxis and home therapy A 5 Year real-world experience from Hemophilia Treatment Centre, Aluva in a resource-limited setting	Syamraj Santhappan	Received

PO-106	Incidence of articular osteophytes of the ankle in PWH with symptomatic joint	Horacio Caviglia	Received

PO-108	Impact of moderate/severe Haemophilia A on German patients daily activities	Vanessa Kratzer	Received

PO-109	Accquired vs Inherited haemophilia A 3 year coagulation work up based review in a single south Indian centre	Bitty Kurian	Received

PO-111	Current Joints Condition of Patients with Haemophilia in Hong Kong	Henry Hon-Wai Lam	Received

PO-112	Good laboratory communication: A cost effective networking model for patient management in coagulation laboratory	Bitty Kurian	Received

PO-113	Dose optimisation of routine prophylaxis with rIX-FP to improve bleeding control and convenience in hemophilia B	Cathy Farrelly	Received

PO-114	How did patients with a rare bleeding disorder organise their own care during the Covid-19 crisis?	Nicolas Giraud	Received

PO-115	Platelet-Rich Plasma: 5 years of practice	María E Landro	Received

PO-117	Inhibitor Testings An Analysis in HTC with limited resource setting	Meena Beebi	Received

PO-118	coreHEM Mental Health PROM Development: Updating the Conceptual Framework as a Step in Content Validation	Elizabeth Clearfield	Received

PO-119	Restrictions in daily life among adults with severe haemophilia in Europe: CHESS II dataset analysis	Shahid Malik	Received

PO-120	The AFH en route for the Jacques Vabre Transatlantic yachting race thanks to Clara Fortin	Yannick Collé	Received

PO-121	Homemade Adaptive Device Ensures Successful Medication Delivery	Mary Jane Frey	Received

PO-123	Cost-analysis in people who have moderate-to-severe hemophilia A with and without inhibitor in Thailand: How to manage in a limited-resource country	Rungrote Natesirinilkul	Received

PO-124	Impact of the pandemic on the continuity of the educational process of persons with hemophilia in a middle-income country	Laura I Páez Briseño	Received

PO-125	European accreditation of haemophilia treatment and gene therapy centres	Ana Boban	Received

PO-126	Combined Hindfoot Endoscopy and Ankle Arthroscopy Improves Patient Reported Outcomes in the Treatment of Hemophilic Involvement	Semih Aydogdu	Received

PO-127	Therapeutic adherence in hemophilia, linguistic adaptation of the Veritas-pro in Mexican population	Carlos Prado Romero	Received

PO-128	Developing a genetic counselling outreach program for PWBD in South Africa	Julie Malan	Received

PO-129	Plasminogen Deficiency; 12 Cases in one center in Turkey	Canan Albayrak	Received

PO-131	Clinical status evaluation of hemophilia A patients with and without inhibitor	Tatsiana Talako	Received

PO-132	Congenital Fibrinogen Deficiency In A Portuguese Haemophilia Center Diagnosis; Clinical Manifestations And Management Of Bleeding And Surgeries	Carolina Peixoto	Received

PO-133	Successful treatment of acquired hemophilia A in patients with hematological malignancy, autoimmune disease and pregnancy-associated: A case series	Katsiarina Kabayeva	Received

PO-134	The Influence of the Coronavirus Pandemic on the Perceived Mental Health of Persons with Inherited Bleeding Disorders and their Parents/Guardians An International Comparison	Sylvia von Mackensen	Received

PO-135	Recurrent thrombosis associated with increased level of von Willebrand factor: A case report	Tatsiana Talako	Received

PO-136	Twinning during the pandemic: pure loss, or some gains?	Philip Kuriakose	Received

PO-138	Prophylaxis in Women with von Willebrand disease. Experience in a center in Colombia	Claudia Casas	Received

PO-139	Successful management of intracranial bleeding in hemophilia b children with suspected inhibitor F IX	Ganda Ilmana	Received

PO-140	Factor VIII level comparison in patients with severe hemophilia A on emicizumab with inhibitors with one stage, bovine and human chromogenic assays and the factor VIII equivalency of emicizumab using in vivo global hemostasis assays	Hande Kizilocak	Received

PO-141	Arthrodesis or Arthroplasty for the Treatment of End-Stage Hemophilic Ankle Arthropathy: A Systematic Review	Margareth Ozelo	Received

PO-142	Vaginal Blood Loss: A patient- and trainee-centered mixed-methods research program	Fartoon Siad	Received

PO-143	Acquired hemophilia in association with the Covid-19 vaccine	Petr Dulí&269;ek	Received

PO-144	Characteristics of visceral hemorrhages in patients with hemophilia in southern Tunisia	maha charfi	Received

PO-145	eSanjeevani, a National Tele consultation service benefited to hemophilia patients for home therapy of factor infusions during covid pandemic -A real world experience from HTC Aluva	Syamraj Santhappan	Received

PO-146	The Effect of Manual Therapy in People with Hemophilia with Ankle Arthropathy	Andressa Ornelas	Received

PO-148	Prevalence of Obesity in the Hemophilic Population in Tunisia	Mariem Ghazouani	Received

PO-150	Treatment Of Severe Hemorrhagic Syndrome In JBS Thrombopathy.	Cherif hosni Aicha	Received

PO-151	Evaluation of adherence, quality of life, bleeding events, and joints status of patients with hemophilia A and inhibitor trated with Emicizumab. Experience of a specialized center in Argentina.	Mauro Davoli	Received

WFH 2022 World Congress

May 8-11 2022 Montreal

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