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WFH 2016 World Congress

 

24-28 July 2016 Orlando
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Discussion forum - WFH 2016 World Congress
    Topic - Carrier and prenatal diagnosis

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Poster: 15
Visits: 15
Title: Carrier Career Counseling: Development of e-learning educational tool for hemophilia carriers and women in hemophilia extraction to support acquiring readiness for change
Authors: Akiko Kakinuma , Akiko KakinumaToshiya KuchiiTomosato IwanoKatsumi Ohira
Centre: Social Welfare Corporation Habataki Welfare Project

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CARRIER CAREER COUNSELING: DEVELOPMENT OF E-LEARNING EDUCATIONAL TOOL FOR HEMOPHILIA CARRIERS AND WOMEN IN HEMOPHILIA EXTRACTION TO SUPPORT ACQUIRING READINESS FOR CHANGE

Akiko Kakinuma
Thread initiator
Subspeciality
Reg: 6/21/2012 7:06:00 AM

Comment# 1

Hemophilia gene carriers or women in hemophilia extraction tend to isolate themselves from society or family due to guilty feeling. In addition, those women who have hemophilia children have burden as mother to raise them as well as siblings of hemophilia children, while mental social support is very scarce. These problems characteristically emerge at life stages such as their own hemorrhagic condition, gene examination, marriage, and family planning. In Japan, due to damage by the fallout from the HIV-tainted- blood scandal, the issues surrounding hemophilia gene carriers tend not to come up to the surface, and such social background have pushed the need for genetic counselling or any support before they go to medical institution. It has been found that closely-attached parental care by those mothers would affect self-sustainability of hemophilia patients.

Comment added on 6/30/2016 4:14:00 AM 
     
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Most viewed poster for this congress
Poster: 13
Visits: 590
Title: Algorithmic evidence-based phenotype screening and collaborative approach to attacking symptoms of nonadherence in patients with bleeding disorders
Authors: Jay Bryant-Wimp , Jay Bryant-Wimp, RPh
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Poster most viewed in this topic
Poster: 15
Visits: 15
Title: Carrier Career Counseling: Development of e-learning educational tool for hemophilia carriers and women in hemophilia extraction to support acquiring readiness for change
Authors: Akiko Kakinuma , Akiko KakinumaToshiya KuchiiTomosato IwanoKatsumi Ohira
Centre: Social Welfare Corporation Habataki Welfare Project


 






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