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WFH 2016 World Congress

 

24-28 July 2016 Orlando
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Discussion forum - WFH 2016 World Congress
    Topic - Data and Demographics

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Poster: 18
Visits: 262
Title: Learning about women with bleeding through data
Authors: Cheryl DAmbrosio , Ms. Cheryl DAmbrosio, Nita Radhakrishnan, MD, Ms. Richa Mohan, Ms. Nabila Husseni
Centre: MyGirlsBlood

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LEARNING ABOUT WOMEN WITH BLEEDING THROUGH DATA

Cheryl DAmbrosio
Thread initiator
Subspeciality
Reg: 5/7/2010 10:47:00 PM

Comment# 1

Women diagnosed as carrier of congenital bleeding disorders are stigmatized in many countries: this prevents an early diagnosis and a proper treatment plan. In many cases the bleeding diseases are not correctly diagnosed because the hemorrhages are erroneously considered normal when they occur in more family members, especially in case of prolonged menstrual bleedings. For all these reasons it is important to find a way to bring women into the open conversation and obtain more data about them. This will allow those who are interested in studying, researching, supporting, and funding a much better understanding of the problems that must be solved.

Comment added on 5/20/2016 4:39:00 AM 
     
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Most viewed poster for this congress
Poster: 13
Visits: 590
Title: Algorithmic evidence-based phenotype screening and collaborative approach to attacking symptoms of nonadherence in patients with bleeding disorders
Authors: Jay Bryant-Wimp , Jay Bryant-Wimp, RPh
Centre: Integrite Solutions

Poster most viewed in this topic
Poster: 18
Visits: 262
Title: Learning about women with bleeding through data
Authors: Cheryl DAmbrosio , Ms. Cheryl DAmbrosio, Nita Radhakrishnan, MD, Ms. Richa Mohan, Ms. Nabila Husseni
Centre: MyGirlsBlood


 






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