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WFH 2016 World Congress


24-28 July 2016 Orlando
Discussion forum - WFH 2016 World Congress
    Topic - Quality of Life

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 Thread / Poster  Author  Replies  Last reply
Influence of optimism and resilience on quality of life & general mental health for haemophilia patients  Fiona Brennan 1      7/19/2016 2:14:00 PM  
Health-related quality of life (HRQOL) in young children with haemophilia B treated with the novel long-acting nonacog beta pegol recombinant factor IX  Jeremy Lambert 1      7/19/2016 1:00:00 PM  
Impact of Factor Replacement Therapy on Health-Related Quality of Life: an analysis of pooled data from 254 boys with severe hemophilia  Koyo Usuba 1      7/18/2016 2:48:00 PM  
Evaluation of quality of life in children with hemophilia  Gonul Aydogan 1      7/15/2016 3:21:00 PM  
Correlation between Hemophilia joint health and Patients Quality of life  Cesar Haddad 1      7/8/2016 11:06:00 AM  
FVII annual retreats help guide patients and families to a better understanding of living with a rare bleeding disorder  Janet Brewer 1      7/7/2016 10:19:00 PM  
Inhibitor family camp provides a safe haven for children and families to have a camp experience  Janet Brewer 1      7/7/2016 10:15:00 PM  
Subjective Physical Functioning and Health-Related Quality of Life in Children with Severe Haemophilia in the UK Results of the SO-FIT Study  Kate Khair 1      7/7/2016 6:17:00 PM  
Improvement in health status and quality of life in patients with haemophilia B treated with nonacog beta pegol, an extended half-life glycopegylated recombinant FIX product  Jeremy Lambert 1      7/7/2016 5:43:00 PM  
Comparison of Health Utilities in Persons with Hemophilia B  Mimi Lou 1      7/7/2016 5:40:00 PM  
Healthy living in India... even with hemophilia  Nataraj Selvaraj 1      7/7/2016 8:23:00 AM  
Influence of aging on QOL of HIV-1-infected Japanese hemophiliacs  MIWA OGANE 1      7/6/2016 12:40:00 PM  
Summer Camp with Teens  Maria Sol Cruz 1      7/6/2016 12:59:00 AM  
The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Phase 1 Methodology and Feasibility Results  Mark Skinner 1      7/5/2016 5:03:00 PM  
Pain, walking, and mobility play essential roles for activities of HIV/HCV-infected people with hemophilia in Japan  Akiko Kakinuma 1      6/30/2016 4:19:00 AM  
Beliefs about exercise in persons with severe Haemophilia-a qualitative study.  Stephanie Taylor 1      6/22/2016 6:09:00 PM  
Quality of life perceived by pediatric hemophilia patients and their parents in Mexico  Maricela Osorio 1      6/20/2016 8:50:00 PM  
CAPACITY BUILDING AND LEADERSHIP INITIATIVE: Bringing change by improving access to care and awareness  Masood Fareed 1      6/7/2016 8:01:00 PM  
Change In My Life  Nabila Husseni 1      5/24/2016 2:07:00 PM  
Economic Rehabilitation  Nabila Husseni 1      5/24/2016 2:02:00 PM  
Association between Quality of life, Adherence and Satisfaction of Treatment in a low income population of person with Hemophilia (PWH) at FUNDOVIDA- Colombia  Antistio Anibal 1      5/6/2016 10:37:00 PM  

Most viewed poster for this congress
Poster: 13
Visits: 590
Title: Algorithmic evidence-based phenotype screening and collaborative approach to attacking symptoms of nonadherence in patients with bleeding disorders
Authors: Jay Bryant-Wimp , Jay Bryant-Wimp, RPh
Centre: Integrite Solutions

Poster most viewed in this topic
Poster: 180
Visits: 65
Title: The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Phase 1 Methodology and Feasibility Results
Authors: Mark Skinner , Mark Skinner, Randall Curtis, Neil Frick, Alfonso Iorio, Michael Nichol, Declan Noone, Brian OMahony, David Page, Jeffrey Stonebraker
Centre: Institute for Policy Advancement Ltd


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