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WFH 2016 World Congress
24-28 July 2016 Orlando
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WFH 2016 World Congress
Topic -
Quality of Life
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Thread / Poster
Author
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Last reply
Influence of optimism and resilience on quality of life & general mental health for haemophilia patients
Fiona Brennan
1
7/19/2016 2:14:00 PM
Health-related quality of life (HRQOL) in young children with haemophilia B treated with the novel long-acting nonacog beta pegol recombinant factor IX
Jeremy Lambert
1
7/19/2016 1:00:00 PM
Impact of Factor Replacement Therapy on Health-Related Quality of Life: an analysis of pooled data from 254 boys with severe hemophilia
Koyo Usuba
1
7/18/2016 2:48:00 PM
Evaluation of quality of life in children with hemophilia
Gonul Aydogan
1
7/15/2016 3:21:00 PM
Correlation between Hemophilia joint health and Patients Quality of life
Cesar Haddad
1
7/8/2016 11:06:00 AM
FVII annual retreats help guide patients and families to a better understanding of living with a rare bleeding disorder
Janet Brewer
1
7/7/2016 10:19:00 PM
Inhibitor family camp provides a safe haven for children and families to have a camp experience
Janet Brewer
1
7/7/2016 10:15:00 PM
Subjective Physical Functioning and Health-Related Quality of Life in Children with Severe Haemophilia in the UK Results of the SO-FIT Study
Kate Khair
1
7/7/2016 6:17:00 PM
Improvement in health status and quality of life in patients with haemophilia B treated with nonacog beta pegol, an extended half-life glycopegylated recombinant FIX product
Jeremy Lambert
1
7/7/2016 5:43:00 PM
Comparison of Health Utilities in Persons with Hemophilia B
Mimi Lou
1
7/7/2016 5:40:00 PM
Healthy living in India... even with hemophilia
Nataraj Selvaraj
1
7/7/2016 8:23:00 AM
Influence of aging on QOL of HIV-1-infected Japanese hemophiliacs
MIWA OGANE
1
7/6/2016 12:40:00 PM
Summer Camp with Teens
Maria Sol Cruz
1
7/6/2016 12:59:00 AM
The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Phase 1 Methodology and Feasibility Results
Mark Skinner
1
7/5/2016 5:03:00 PM
Pain, walking, and mobility play essential roles for activities of HIV/HCV-infected people with hemophilia in Japan
Akiko Kakinuma
1
6/30/2016 4:19:00 AM
Beliefs about exercise in persons with severe Haemophilia-a qualitative study.
Stephanie Taylor
1
6/22/2016 6:09:00 PM
Quality of life perceived by pediatric hemophilia patients and their parents in Mexico
Maricela Osorio
1
6/20/2016 8:50:00 PM
CAPACITY BUILDING AND LEADERSHIP INITIATIVE: Bringing change by improving access to care and awareness
Masood Fareed
1
6/7/2016 8:01:00 PM
Change In My Life
Nabila Husseni
1
5/24/2016 2:07:00 PM
Economic Rehabilitation
Nabila Husseni
1
5/24/2016 2:02:00 PM
Association between Quality of life, Adherence and Satisfaction of Treatment in a low income population of person with Hemophilia (PWH) at FUNDOVIDA- Colombia
Antistio Anibal
1
5/6/2016 10:37:00 PM
Most viewed poster for this congress
Poster:
13
Visits:
590
Title:
Algorithmic evidence-based phenotype screening and collaborative approach to attacking symptoms of nonadherence in patients with bleeding disorders
Authors:
Jay Bryant-Wimp , Jay Bryant-Wimp, RPh
Centre:
Integrite Solutions
Poster most viewed in this topic
Poster:
180
Visits:
65
Title:
The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Phase 1 Methodology and Feasibility Results
Authors:
Mark Skinner , Mark Skinner, Randall Curtis, Neil Frick, Alfonso Iorio, Michael Nichol, Declan Noone, Brian OMahony, David Page, Jeffrey Stonebraker
Centre:
Institute for Policy Advancement Ltd
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