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WFH 2016 World Congress

 

24-28 July 2016 Orlando
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Discussion forum - WFH 2016 World Congress
    Topic - Databases & Registries

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 Thread / Poster  Author  Replies  Last reply
Korea Hemophilia Foundation registry trends 1991-2014: patient registry, demographics, health services utilization  Soon Ki Kim Soon Ki Kim 1      7/8/2016 5:44:00 AM  
A cross-sectional study of females with congenital bleeding disorders enrolled in the ATHNdataset  Kristina Haley 1      7/7/2016 10:04:00 PM  
Joint Outcomes in United States (US) Hemophilia Patients: A Report of the Community Counts Registry  Marilyn Manco-Johnson 1      7/7/2016 7:29:00 PM  
Comparison of parameters collected from clinical trials (performed in the frame of Marketing Authorization) and registries in severe Hemophilia A patients - A methodological exercise  Carla Jonker 1      7/7/2016 11:38:00 AM  
Can the use of data derived from different data sources improve regulatory procedures in a rare disease like Hemophilia A?  Christine Keipert 1      7/7/2016 9:23:00 AM  
Inherited bleeding disorders - experience of a not-for-profit organization in Pakistan  Shabneez Hussain 1      7/5/2016 1:03:00 PM  
       




Most viewed poster for this congress
Poster: 13
Visits: 590
Title: Algorithmic evidence-based phenotype screening and collaborative approach to attacking symptoms of nonadherence in patients with bleeding disorders
Authors: Jay Bryant-Wimp , Jay Bryant-Wimp, RPh
Centre: Integrite Solutions

Poster most viewed in this topic
Poster: 31
Visits: 64
Title: Can the use of data derived from different data sources improve regulatory procedures in a rare disease like Hemophilia A?
Authors: Christine Keipert , Christine KeipertCarla J. JonkerH. Marijke van den BergAnneliese Hilger
Centre: Paul-Ehrlich-Institut


 






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