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WFH 2014 World Congress
11-15 May 2014 Melbourne
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WFH 2014 World Congress
Topic -
Quality of Life
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Thread / Poster
Author
Replies
Last reply
My experience as an Accompanying Parent
Soledad Rivero Haedo
1
4/23/2014 10:28:00 PM
Psychosocial functioning and health related quality of life of boys with hemophilia 8-12 years
Perrine Limperg
1
4/23/2014 5:21:00 PM
Employment and workplace issues in haemophilia in Northern India- a review of 95 case studies
Naresh Gupta
1
4/23/2014 4:59:00 PM
Surviving and Thriving: Living with von Willebrands Disease and Platelet Aggregation Dysfunction
Julie Heinrich
1
4/23/2014 4:07:00 PM
The Trajectory of Health-Related Quality of Life in Youth and Men with Hemophilia A
Jean St-Louis
1
4/23/2014 3:55:00 PM
The Good Life: Quality of Life among Danish PWBD
Karen Holm
1
4/22/2014 3:45:00 PM
Predictors of Quality of Life among Adolescent and Young Adults with a Bleeding Disorder
John McLaughlin
1
4/22/2014 3:15:00 AM
Love, Sexuality and Communication in Hemophilia: A Psychosocial and Patient Perspective Book Developed for Adolescents, Adults, and Carriers
Frederica cassis
1
4/22/2014 1:24:00 AM
Nutritional assessment and adherence to treatment of Hemophilia A and B patients in Integral IPS Medellin Colombia
Gloria Marcela Echeverri Hincapie
1
4/22/2014 12:12:00 AM
Development of a First Hemophilia-Specific Burden Scale for Caregivers of Children with Hemophilia in the US the HEMOphilia associated Caregiver Burden Scale (HEMOCABTM)
Sylvia von Mackensen
1
4/21/2014 4:08:00 PM
Factors Influencing Quality of Life in Chinese Adults with Haemophilia: Results from the HERO Study
Jing Sun
1
4/21/2014 3:58:00 PM
Preference-based Measures of Health-related Quality of Life for Adults with Severe Hemophilia: Implications for the Cost-effectiveness of Prophylaxis
Yamini Ashokkumar
1
4/21/2014 8:46:00 AM
Knowledge and attitudes of pain management in US hemophilia providers
Michelle Witkop
1
4/21/2014 1:26:00 AM
Tami Wisniewski
1
4/16/2014 8:00:00 PM
Pain Management: Do We Offer Appropriate Care for Men With Pain Due to Hemophilic Arthropathy?
Michelle Sims
1
4/16/2014 6:15:00 PM
Use of home videos to communicate significant changes
Cheryl DAmbrosio
1
3/16/2014 2:25:00 PM
A Study of Art and Breathing Activities for Children with Hemophilia
Ekawat Suwantaroj
1
2/18/2014 5:18:00 PM
Most viewed poster for this congress
Poster:
1
Visits:
2526
Title:
A WEB SITE TO IMPROVE MANAGEMENT OF PATIENTS WITH INHERITED BLEEDING DISORDERS IN THE EMERGENCY DEPARTMENT: RESULTS AT 2 YEARS
Authors:
Annarita Tagliaferri ,
Centre:
Centro di Riferimento Regionale per la cura dellEmofilia
Poster most viewed in this topic
Poster:
5
Visits:
345
Title:
Preference-based Measures of Health-related Quality of Life for Adults with Severe Hemophilia: Implications for the Cost-effectiveness of Prophylaxis
Authors:
Scott Grosse , Shraddha Chaugule, B.Pharm.Sc, MSEmail: chaugule@usc.eduphone: 1 858 337 6642Joel W HayEmail: jhay@usc.eduPhone: 1 8183385433
Centre:
University of Southern California and CDC
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