PosterSessionOnline

WORLD FEDERATION OF HEMOPHILIA

WFH 2016 World Congress

24-28 July 2016 Orlando

N. Poster

Poster title

Applicant name

Status


1-PP-W	Acquired Von Willebrand Syndrome: Mechanisms and response to treatment	Pu-Lin Luo	Received

1-MP-T	Comprehensive Care Delivery for Bleeding/ Blood disorders through Telemedicine (TM) with a variety of providers at multiple delivery sites	Roshni Kulkarni	Received

2-PP-T	Dont Let My Brain Bleed Decreasing IVH rates in the NICU.	Linda Wyman-Collins	Received

2-LB	Pilot Phase of a World Bleeding Disorders Registry	Jamie OHara	Received

2-PP-W	FVIII activity of OBIZUR can be measured in hemophilic plasma with standard FVIII one-stage clotting assays	Peter L. Turecek	Received

3-PP-T	Joints bleeding management in a developing country.	DIALLO Yacouba	Received

3-PP-W	TREATMENT OF ACUTE HEMARTHROSIS AT THE HEMOPHILIA PATIENTS	Aziza Makhmudova	Received

4-PO-W	NovoSeven(R) in the treatment of acquired haemophilia A: Results from the prospective study (ACQUI-7) in France	Annie Borel-Derlon	Received

4-PP-M	Activation of neutrophils by plasma derived FVIII concentrates	Martin Brodde	Received

4-PP-T	Cost and time effectiveness of telemedicine to deliver collaborative Hemophilia Treatment Centers (HTC) services to remote patients	Witkop Michelle	Received

5-PP-T	Patient organization assessment of care delivery in treatment centres	David Page	Received

6-PP-M	Improved pharmacokinetics and bleeding efficacy of recombinant Factor IX Fc-XTEN in hemophilia-B mice	Arjan van der Flier	Received

6-PO-W	Anti-FVIII IgG1 titers correlate with Bethesda levels in patients with acquired hemophilia	Elizabeth Donnachie	Received

6-PP-T	Parental confidence when dosing children with long acting factor products in relation to sporting activity. A pilot study.	Melanie Wilkinson	Received

7-PP-T	Practice Characteristics of Genetic Counselors Serving the North American Bleeding Disorders Community	Rebecca Malouin	Received

8-PP-T	When health care professionals express themselves: results overview of the qualitative phase of Hero initiative	Harley Souter	Received

9-PP-T	CENTRAL VENOUS CATHETERS IN CHILDREN WITH HEMOPHILIA: A SINGLE CENTRE LONG-TERM EXPERIENCE	Marta Milan	Received

9-PO-W	Acquired haemophilia A in a Jehovahs Witness	Jacek Trelinski	Received

9-PP-M	In silico models for genotype/phenotype correlations of F9 gene mutations causing severe Hemophilia B	Lennon Meléndez Aranda	Received

10-PP-T	Towards a new, patient-centric, model of hemophilia management	Alessandro Gringeri	Received

10-PO-W	Diagnosis of von Willebrand disease in population of Western Mexico	Ara Rebeca Jaloma-Cruz	Received

11-PO-W	Hypofibrinogenemia as the first sign of autoimmune disease	Erica Okazaki	Received

11-PP-M	DNA methylation of Factor VIII secreting endothelial cells and several other endothelial cells in comparision to blood	Muhammad Ahmer Jamil	Received

11-PP-T	National Survey of the 340B Pharmacy Income Program: Quantitative Evaluation of the Services Provided by US Hemophilia Treatment Centers	Marisela Trujillo	Received

12-PO-W	Management of acquired hemophilia: a single center experience.	Eva Ivanová	Received

12-PP-M	Protein aggregates in plasma-derived factor IX (pdFIX) concentrates support platelet activation and microparticle formation in vitro.	Martin Brodde	Received

13-PP-T	Step forward in health care for children with hemophilia in Republic of Macedonia	Zorica Trajkova	Received

13-PP-M	Comparison of Different Prophylaxis Regimens for Moderate/severe Hemophilia A Children	Darintr Sosothikul	Received

13-MP-W	Algorithmic evidence-based phenotype screening and collaborative approach to attacking symptoms of nonadherence in patients with bleeding disorders	Jay Bryant-Wimp, RPh	Received

14-PP-T	Successful pregnancy and delivery in a woman with Severe Hemophilia A	Shadan Lalezari	Received

14-PP-M	The effects of a long-acting factor IX product (N9-GP) on wound healing	Maureane Hoffman	Received

14-MP-W	Effectiveness of the uPatient Platform in Hemophilia Prophylactic Treatment	Glòria Sagarra	Received

15-PP-M	Variations of Factor XIII level during pregnancy	Gianluca Sottilotta	Received

15-PP-T	Carrier Career Counseling: Development of e-learning educational tool for hemophilia carriers and women in hemophilia extraction to support acquiring readiness for change	Akiko Kakinuma	Received

15-PP-W	Collecting clinical data through a care management assessment form during telephone patient encounters: A study among patients of the Gulf States Hemophilia and Thrombophilia Center (GSHTC) in Houston, Texas 2014-2015	Stephanie Gustafson	Received

16-PO-T	Pregnancy and delivery in a woman with von Willebrand Disease type 2 M: successfull treatment with Wilfactin	Dorina Cultrera	Received

16-PP-W	Adherence to treatment in Korean hemophilia patients	Eun Jin CHOI	Received

16-PP-M	Influence of Complement factor H on Factor XIIIA activation: a preliminary study	Sneha Gupta	Received

17-PP-W	Changes in adherence after initiating treatment with prolonged half-life clotting factors for hemophilia	Adi Eldar-Lissai	Received

18-PP-W	Adherence to prophylactic treatment in patients with haemophilia in Germany	Wolfgang Miesbach	Received

18-MP-T	Learning about women with bleeding through data	Cheryl DAmbrosio	Received

19-PP-T	Results of a national registry for hemophilia A and B: Situation of the disease in Colombia	Patricia Sanchez	Received

20-PO-M	Severe Congenital factor V deficiency in the north region of Turkey	canan albayrak	Received

20-PP-T	Developing centralized web-based National Patients Registry: Pakistan Experience	Masood Malik	Received

20-PP-W	perceived barriers to hemophilia treatment-a survey among parents of persons with hemophilia	Anjalin Dsouza	Received

21-PP-T	Public Health Surveillance of People Not Receiving Care at US Federally-funded Hemophilia Treatment Centers: Methods and Demographics of the CHOICE Project	Wendy Owens	Received

21-PO-M	Comparison of FXIII activity and antigen measurement during pregnancy	Mario von Depka	Received

21-PP-W	Assessment of adherence to warfarin anticoagulation using the ratio of vitamin K dependent factors	Sarisha Naidoo	Received

22-PP-T	Establishing a regional haemophilia registry in southern Tunisian	olfa kassar	Received

22-PO-M	guardian5: a prospective non-interventional study of the treatment of severe and moderately severe haemophilia A with turoctocog alfa	AXON Turoctocog	Received

22-PP-W	Validation of a scale of adherence to treatment in patients with hemophilia	Rubén Cuesta-Barriuso	Received

23-PP-W	Adherence and the relationship to frequency of infusions in pediatric patients with hemophilia A and B	Karen Strike	Received

23-PP-T	Associated factors to bleeding episodes in children diagnosed with hemophilia in a comprehensive care program in developing country	YADIRA VALDERRAMA VARGAS	Received

24-PO-W	Adherence to treatment in patients with immune tolerance induction and patients on primary prophylaxis	Luis Cinara	Received

24-PO-M	Safety and efficacy of B-domain deleted 3rd generation recombinant factor VIII (GreenGene F) in Korean patients with haemophilia A: Data from a post-marketing surveillance study	Soon Ki Kim	Received

25-PP-T	Measuring the quality of hemophilia care across different settings: a set of performance indicators derived from demographics data	Mark Brooker	Received

25-PO-M	The extent of VWF:Ag rise during moderate physical activity modulates FVIII half-life in severe haemophilia A subjects	CLEMENCE MERLEN	Received

25-PO-W	Identification of psychological factors that interfere in the adherence to the treatment of patients with Haemophilia.	salguero Mariana	Received

26-PO-M	A Novel Mutation in Child with Severe Congenital Factor X Deficiency	davut albayrak	Received

26-PO-T	Psychosocial Impact of Mild to Severe Hemophilia B on Affected Adults and Children: Methods and Demographics of the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study	Jane Cowley	Received

26-MP-W	A successful nine year journey by a China-Canada professional group to transfer current hemophilia assessment tools to advance pediatric hemophilia care in China	Audrey Abad	Received

27-PO-M	Patients Classification with Hemophilia A by FVIII Cromogenic Assay	Mirta Arias	Received

27-MP-W	Effectiveness of Training Programme on Identification of Cases with Bleeding Disorder among Community Health Workers (CHWs)	sulochana b	Received

27-PO-T	Demographic chracterization of patients older than 35 years with hemophilia, retrospective evaluation in a developing country	Claudia Casas	Received

28-PP-W	Together Improving Haemophilia Healthcare in Kenya	Kibet P. Shikuku	Received

28-PO-M	Evolution of clotting factor consumption over the last fifteen years for ambulatory hemophilia patients in a French comprehensive care center	Florianne Bel	Received

29-PP-T	Joint Outcomes in United States (US) Hemophilia Patients: A Report of the Community Counts Registry	Becky Dudley	Received

29-MP-M	Next Generation DNA sequencing for haemostatic and platelet disorders	Anne Goodeve	Received

29-PP-W	Capacity Building in India - Integrating women into the picture	Gurmeet Khanna	Received

30-PP-W	Importance of School Visits in Management of Hemophilia in Kenya	Phyllis Bartilol	Received

30-PP-T	Korea Hemophilia Foundation registry trends 1991-2014: patient registry, demographics, health services utilization	Soon Ki Kim	Received

30-MP-M	Preliminary Results of a Phase 1/2 Trial of SPK-9001, a Hyperactive FIX Variant Delievered by a Novel Capsid, Demonstrate Safety and Efficacy at the Lowest Dose Cohort	ALVIN LUK	Received

31-PP-M	Discrepancy of F8 and F9 gene variant classifications between clinical laboratories	Michelle Alabek	Received

31-PO-T	Can the use of data derived from different data sources improve regulatory procedures in a rare disease like Hemophilia A?	Christine Keipert	Received

32-PP-M	Biopotency and efficacy of a FVIII gene therapy construct in hemophilia A mice	Werner Hoellriegl	Received

32-PO-T	Comparison of parameters collected from clinical trials (performed in the frame of Marketing Authorization) and registries in severe Hemophilia A patients - A methodological exercise	Carla Jonker	Received

32-PP-W	Establishing a Registry and Improving Diagnostic Capabilities and Treatment Outcomes for Persons with Hemophilia in Jamaica	Audrey Abad	Received

33-PP-M	Development of a lead candidate for Baxaltas AAV8-based FVIII gene therapy program BAX 888	Hanspeter Rottensteiner	Received

33-PP-W	POSITIVE DIARIES: Testimonials of people living with bleeding disorders in Pakistan	Masood malik	Received

34-PP-W	Women Empowerment	Nabila Husseni	Received

34-PP-M	Messenger RNA Analysis and Multiplex Ligation Probe Amplification for Hemophilia A Patients without Found Mutation or Suspected Exon(s) Deletion in Genomic DNA	Yeu-Chin Chen	Received

35-PP-W	Legal aspects: amparo action and compassionate use	Daniel Adolfo Luna	Received

35-PP-M	An unexpected finding: two different coagulation factor VIII gene mutations in brothers	Michael Steiner	Received

35-PO-T	A cross-sectional study of females with congenital bleeding disorders enrolled in the ATHNdataset	Kristina Haley	Received

36-PP-M	Exploring the causes of skewed X-chromosome inactivation: XIST genetic analysis of cases and controls	Claudia Pamela Radic	Received

36-PO-T	Inherited bleeding disorders - experience of a not-for-profit organization in Pakistan	Shabneez Hussain	Received

36-PP-W	Women As Leaders	Nabila Husseni	Received

37-MP-T	Are you HIRT? (Hemophilia Injury Recognition Tool): perceptions of the mobile app on injury self-management from young men with mild hemophilia in Canada	JoAnn Nilson	Received

37-PP-W	BE, A youth employment pilot program: A Canadian HERO initiative	Ann Marie Stain	Received

38-PP-M	Genetic variant analysis in children and adults with hemophilia: experience from a large hemophilia center in the US	Jennifer Lemons	Received

38-PP-T	The role of social media in hemophilia care in Kenya	CHRISTOPHER MWANIKI	Received

38-PP-W	Women with bleeding and leadership - a wicked problem?	Cheryl DAmbrosio	Received

39-PP-W	Final transition of youth to adult hemophilia treatment center-a single center transition care project.	Karolina Lieponis	Received

39-PP-T	Link nurse teaching day to bring haemophilia to ward nurses	Wandai Maposa	Received

40-PP-W	The development of a Youth Ambassador Programme	Luke Pembroke	Received

40-PP-M	Polygenic score analysis to find genetic factors of inhibitor development in Korean severe hemophilia A patients using WES	Hee Jo Baek	Received

41-PP-W	Empowering and developing future community leaders to advocate and create awareness in their countries and in the region of Central America, the Caribbean and Venezuela.	FENDI VALDEZ BISONO	Received

41-PP-T	Responsiveness of people with bleeding disorders and their families to educational modules on psychosocial challenges	Jessica Morrison	Received

42-PO-M	Complexities and resolution of gene variant interpretation in two hemophilia cases	Stefanie Dugan	Received

42-PP-T	Development of a Canadian video-based educational tool for teaching parents of children with hemophilia about joint assessment	Lawren De Marchi	Received

42-PP-W	Factoring In youth: an online approach	Hannah Opeskin	Received

43-PO-M	Systematic molecular analysis in Hemophilia A patients in a cohort from Bogotá, Colombia	Luz Yunis	Received

43-PP-T	Empowering families of hemophiliacs to face challenges	Jayashri kale	Received

44-PO-M	Factor VIII Gene Mutation and Hemophilic Arthropathy in Hemophilia A Patients	Tsung-Ying Li	Received

44-PP-T	Von Willebrand Disease (VWD) Patient Conference in response to the 2014 Strategic Summit on VWD	Jeanette Cesta	Received

44-PP-W	Blood pressure trends in relation to clotting factor utilization in patients with severe hemophilia	Richard Barnes	Received

45-PP-W	a prospective study on vascular diseases in patients with haemophilia 2 years evaluation	Paul van der Valk	Received

45-PO-M	National prevalence of F8 gene intron 1 and 22 inversions and development of inhibitors to factor VIII in Mexican severe hemophilia A patients	Ana Rebeca Jaloma-Cruz	Received

46-PP-W	The orthopaedic treatment of haemophilic arthropathy in patients with inhibitors: a 15-year experience at a single Institution	Christian Carulli	Received

46-PP-T	Use of electronic audience response system (ARS) during Von Willebrand Disease (VWD) patient conference	Jeanette Cesta	Received

47-MP-M	Expanding the knowledge base: a collaboration between Saskatoon and Vancouver bleeding disorder teams	Jennifer King	Received

47-PP-T	Parents Empowering Parents (PEP) Project: Evaluating its impact in providing effective parenting tools to parents of children with bleeding disorder in East and North India	Richa Mohan	Received

47-PP-W	Endothelial activation markers and constitutional hemorrhagic diseases: defining normal STA-Procoag-PPL values	Dominique Desprez	Received

48-PP-M	Hemophilia care in National Institute of Hematology and Blood transfusion, Hanoi, Vietnam	Mai Nguyen Thi	Received

48-PP-T	A US National Program for Orientation of New Staff through the Regional Core Centers	Karen Droze	Received

48-PP-W	Evaluation of bone mineral density in patients with haemophilia in a Colombian population	Edgar David Gomez Lahitton	Received

49-PP-T	Getting closer to our patient: playing, learning and humanizing treatment - an experience of a Brazilian Center	Erica Okazaki	Received

49-PP-W	Thrombotic and Cardiovascular Events in People with Hemophilia. Experience of a Single Hemophilia Centre	Beatriz Delgado	Received

49-PP-M	Impact of Twinning between HTCs: Incremental Gain with Longitudinal Experience	Jonathan Kuriakose	Received

50-PP-M	Bleeding Disorder Patient Perspectives on Information and Services Needs in a Remote US Pacific Island	Tiffany Lin	Received

50-PP-W	Cardiovascular risk assessment in haemophilia patients at University Hospital in Ostrava	Radomira Hrdlickova	Received

50-PP-T	The Bott-Harrington Nursing Fellowship in Bleeding Disorders: Broad dissemination of a nursing education tool kit	Sarah Crymble	Received

51-PP-T	Development of a group intervention in Canada to provide education about joint assessment to adolescents and parents of children with Hemophilia	Celina Woo	Received

51-PP-M	The impact of the World Federation of Haemophilia humanitarian aid program in conducting Circumcision for Haemophilia patients in Kenya.	INJERE AFUDE	Received

51-PO-W	Prevalence of adult-onset medical comorbidities in Korean hemophiliacs	Hugh Kim	Received

52-PP-T	PSYCHOEDUCATION WITH UPDATED FLASHCARDS: LETS PLAY AND LEARN ABOUT INHIBITORS, TREATMENTS AND HAEMOPHILIA	frederica RMY CASSIS	Received

53-PO-T	The educational program Hemonline News	Gianluca Sottilotta	Received

53-PP-M	Twining program Vietnam Hemophilia Association Irish Hemophilia Society	Mai Nguyen Thi	Received

53-PO-W	Coronary by-pass surgery in patients with haemophilia A: single centre experience	Isil Erdogan Ozunal	Received

54-PO-T	Development of a UK Haemophilia Data Managers Programme of Education	Lynne Dewhurst	Received

55-PO-W	Coronary Angioplasty for Treatment of Coronary Artery Disease in mild PWH	Shashikant Apte	Received

55-PO-T	Communication Through Design	Iman Rasheed	Received

55-PP-M	Up-to-date informative sessions: an opportunity of empowerment	Otilia Ragull	Received

56-PP-M	Organisational strategy to support members through 7 Key Life Stages	Liz Carroll	Received

56-PP-T	An assessment of annualized bleed rates and quality of life among severe haemophilia A and B individuals in Europe	Alexandra Khachatryan	Received

57-PP-T	A cost-effectiveness analysis of PK-driven prophylaxis using myPKFiT vs. standard prophylaxis in Haemophilia A	Alessandro Gringeri	Received

57-PP-M	Assessing the Programming Needs of Patients/Clients of the Hemophilia Center at Oregon Health & Science University (HC) and the Hemophilia Foundation of Oregon (HFO)	Mina Nguyen-Driver	Received

57-PO-W	Challenges of Hemophilia care in a developing country	ARCHANA VIJAY	Received

58-PP-T	The relationship between treatment strategy and work productivity in severe haemophilia	Jason Booth	Received

58-PO-W	Non-virus related cancer in people with haemophilia	Basak Koc	Received

59-PP-T	An introduction to The Cost of Haemophilia across Europe - a Socioeconomic Survey (CHESS)	Charlotte Camp	Received

59-PP-M	Causes and consequences in hospitalizations of patients with hemophilia in a hemophilia treatment center in Korea.	Jung Woo Han	Received

60-PP-T	The cost of severe haemophilia in five European countries: the CHESS study	Charlotte Camp	Received

60-PP-W	Rate of central venous line infections in people with bleeding disorders and home care services	Crystal Blankenship	Received

60-PP-M	The Catalan Association of Hemophilia celebrates 40 years	Otilia Ragull	Received

61-PP-W	Twenty-three years of HIV infection in hemophilic patients	Maria Coutinho	Received

61-PP-T	Estimating the potential cost of a high dose immune tolerance induction (ITI) therapy relative to the cost of a combined therapy of a low dose ITI therapy with bypassing agent prophylaxis	Abiola Oladapo	Received

61-PP-M	Medical care provided by a private clinic with the highest number of hemophilia patients in the region	Masue Kajiwara	Received

62-PP-W	Treatment of HCV Infected Young Hemophiliacs Expectations to Cure Hepatitis C	Katalin Koehler-Vajta	Received

62-PP-M	Collaboration between National Member Organisation (NMO), French Hemophilia Society (AFH Comity Midi-Pyrénées) and Belgian Hemophilia Society (AHVH) during diving courses	Patrick Finders-Binje	Received

62-PP-T	The relationship between bleeding frequency and EQ-5D in severe haemophilia	Booth Jason	Received

63-PP-T	Home infusion model can reduce factor consumption	Kirstin Schmidt	Received

63-PP-W	Treatment of chronic hepatitis C (CHC) in haemophiliacs with the new direct acting antiviral drugs (DAAs)	PANAGIOTA IOANNIDOU	Received

63-PP-M	Expectations and Concerns towards the Up-Coming New Long-Acting Products - Results of a Survey among Haemophilia Patients in Switzerland	Sylvia von Mackensen	Received

64-PP-M	Regional hemophilia project in Turkey	Basak Koc	Received

64-PP-T	Impact of mild to severe hemophilia on education and work by US adult men and women and caregivers of children with hemophilia B: the bridging hemophilia B experiences results and opportunities into solutions (B-HERO-S) study	Jane Cowely	Received

65-PO-W	managing infectious complications of hemophilia, the experience of Constantine Center, Algeria	SIHEM KEBAILI	Received

65-PP-T	U. S. Hemophilia Physician Prescribing Practices: Then and Now	Brenda Riske	Received

65-PP-M	Hemophilia : A single-centre experience of 12 years.	HANDE KIZILOCAK	Received

66-PO-M	Be-Coag, the hemophilia card with a basic medical file on the net	Patrick Finders-Binje	Received

66-PP-T	Real world dosing and therapy switching patterns on rFVIII-Fc in the United States	Booth Jason	Received

66-MP-W	Inhibitor risks in Argentine patients with severe HA. F8 genotype, status concordance in sibling pairs and immune gene polymorphisms studies	Claudia Pamela Radic	Received

67-MP-W	Risk factors associated with High-titre Inhibitors development in Previously Untreated Hemophilia A patients (PUPS-HA) born between 2000 and 2013: A single center experience	Arlette Ruiz de Saez	Received

67-PP-T	Use of Adding T2 Mapping Sequence to a Routine MR Imaging Protocol to Evaluate of the Articular Cartilage Changes of the Knee and Ankle Joint with Hemophilia in Children	Ningning Zhang	Received

67-PO-M	Support network for Barcelona family carers: a way of embracing efforts working together between entities	Patricia Cabre	Received

68-PO-M	A new challenge: twinning between the Catalan Association of Hemophilia (ACH) and the Cuban Society of Hemophilia (SCH)	Ana Fernández	Received

68-PP-T	A Comprehensive Online Communication and Education Strategy for Hemophilia Treatment Centers (HTC)	Jerome Teitel	Received

68-PP-W	Preliminary in vitro results from the PredicTGA study: thrombin generation assay (TGA) as a test of haemostatic effectiveness of factor VIII concentrates in patients with Hemophilia A and inhibitors	Armando Tripodi	Received

69-MP-M	Heat treated Bethesda assay in the monitoring of acquired haemophilia A	annette bowyer	Received

69-PP-W	Impact of FVIII source in the Bethesda-Nijmegen inhibitor test result. Difference between FVIII/VWF complex concentrates and concentrates of isolated FVIII	Maria Isabel Bravo	Received

70-PP-W	Combined FEIBA- FVIII therapy a potential treatment for patients with hemophilia and inhibitors- a thrombin generation based study	Tami Livnat	Received

70-PO-T	Testicular haematoma. Diagnostic and monitoring by Magnetic Resonance (MR)	Horacio Caviglia	Received

71-PO-T	Long-Term Health Outcomes Comparison between Prophylaxis and On-Demand aPCC Treatment in Patients with Severe Haemophilia A with Factor VIII Inhibitors in Spain	Juan Pablo Garcia	Received

71-PP-M	Thrombin generation assay triggered with tissue factor or factor XIa in patients with severe haemophilia A	Hassan Naeem	Received

72-MP-T	PROTECT VIII Kids trial results: BAY 94-9027 safety and efficacy in previously treated children with severe hemophilia A	Elena Santagostino	Received

72-PP-M	Clinical application of rotational thromboelastometry (ROTEM) in the diagnostic work-out of thrombocytopenia	Adela Gwozdowska	Received

72-PP-W	Primary prophylaxis and inhibitor development in patients with severe Hemophilia A and B	marilia renni	Received

73-PP-W	Thrombin generation assay (TGA) for testing haemostatic response in patients with Hemophilia A and inhibitors on immune tolerance induction treatment (ITI): preliminary in vivo results from the PredicTGA study	Armando Tripodi	Received

73-MP-T	Is there a difference in inhibitor incidence with recombinant products? A meta-analysis of 2000 previously untreated patients	Alessandro Gringeri	Received

73-PP-M	A validated patient-specific numerical model of thrombin generation for the management of hemophilia	Pierre Chelle	Received

74-MP-T	Individual baseline thrombin generation and bleeding rate during personalized prophylaxis with Nuwiq in previously treated patients with severe haemophilia A	Joris Versteden	Received

74-PP-W	Analytical performance of the Nijmegen assays using different buffered reagents.	Yuen On Wan	Received

75-MP-T	Transition to Fc-fusion recombinant factor IX using a pediatric PK based protocol: Real life individualized prophylaxis	Kimberly Jacobson	Received

75-PP-W	Inhibitor incidence in a cohort of South African people with severe hemophilia A is not higher than for Caucasian patients.	Ziphozonke Mafika	Received

75-PP-M	Thromboelastography may help to define haemostatic safety zones for the practice of sport in patients with severe haemophilia A	Ihosvany Fernandez	Received

76-PP-M	Bleeding Score: normal values for healthy young adults	Karina Meijer	Received

76-MP-T	Validation of the Colorado Adult Joint Assessment Scale in adult patients with severe hemophilia A	Sharon Funk	Received

76-PP-W	REal life MAnagement of children with severe hemophilia A and INhibitors: first results of the REMAIN study.	Maria Elisa Mancuso	Received

77-MP-T	Effect of Moderate Intensity Exercise on Hemostatic Capacity in Adults with Hemophilia A and B: Pilot Study	Michelle Sholzberg	Received

78-PP-W	South Mimms Inhibitor Assay (SMIA): an affordable and improved method for measurement of FVIII inhibitors	Sanj RAUT	Received

78-PP-T	Hematuria is a Frequent Finding on Routine Urinalysis in Pediatric Patients with Hemophilia	Kyle Davis	Received

78-PP-M	Endogenous thrombin generation potential: an added value parameter to individualize prophylaxis treatment in pediatric hemophilic patients?	PHU QUOC LE	Received

79-PP-M	Application of global coagulation assays in Hemophilia B patients to evaluate the hemostatic potential in baseline conditions and after FIX concentrate administration.	Cristina Santoro	Received

79-PP-T	Reduction in Dosing Frequency and ABRs in Previously Treated Pediatric (12 years) Patients With Severe Hemophilia A During Prophylactic Treatment With Pegylated Recombinant Factor VIII Compared to Pre-Study Prophylactic Regimen	Jennifer Doralt	Received

79-PP-W	Bleeding characteristics of patients with congenital hemophilia and inhibitors: data from a postmarketing study of recombinant activated factor VII (SMART-7)	Harley Souter	Received

80-PP-T	Transition to Fc-fusion recombinant factor VIII using a pediatric PK based protocol: Real life individualized prophylaxis	Kimberly Jacobson	Received

80-PP-M	Role of bleeding score and laboratory testing in women with menorrhagia to identify inherited bleeding disorders: the experience of a tertiary care hospital in South India	Annamma Kurien	Received

81-PP-T	Use of Power Doppler Ultrasound in Haemophilia Could Predict Early Relapse of Intra Articular Bleeding after Haemarthrosis: A Prospective Cohort of 27 Haemarthrosis Monitored By Articular Ultrasound	Laurent Frenzel	Received

81-PP-W	Low-titer inhibitors in children with severe hemophilia A: real-life data from the REMAIN study.	Maria Elisa Mancuso	Received

82-PP-T	Dosing Regimens Before and Following Long-Term Treatment With Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Adults and Adolescents With Severe Hemophilia A	Barbara Konkle	Received

82-PP-W	Development and evaluation of a novel FVIII domain-specific multiplex microsphere based immunoassay for characterization of anti-FVIII antibodies	Behnaz Pezeshkpoor	Received

82-PO-M	Evaluation of the Sebia Hydragel von Willebrand factor (VWF) assay compared to an in-house agarose gel electrophoresis method for VWF multimer analysis	KAREN GOODFELLOW	Received

83-PP-W	Prevalence of Inhibitors in Hemophilia - A single centre study.	PARISMRITA BORAH	Received

83-PP-T	Post Hoc Analysis to Evaluate the Effect of Recombinant Factor IX Fc Fusion Protein (rFIXFc) Prophylaxis in Adults and Adolescents with Target Joints and Hemophilia B	Roshni Kulkarni	Received

84-PP-W	Anti- factor VIII IgG4 and intracellular cytokines profile in T and B cells from hemophilia A patients with complete success, failure, or relapse after immune tolerance induction treatment: longitudinal evaluation with five years follow-up	Montalvao Silmara	Received

84-PO-M	Enhancing appropriate utilization of coagulation tests	Michelle Sholzberg	Received

84-PP-T	Efficacy and safety of long-acting recombinant fusion protein linking factor IX with albumin (rIX-FP) in hemophilia B patients undergoing surgery	Carol Hills	Received

85-PP-T	Carriers of Haemophilia B Leyden: Factor IX levels during life	Sophie Aapkes	Received

85-PP-W	Prophylactic treatment and Rituximab subsequent immune tolerance induction therapy to improve inhibitor eradication on resistant ITI in severe hemophilia A patients with inhibitor	Shin-Nan Cheng	Received

85-PO-M	Activated partial thromboplastin time (APTT) of persons with haemophilia A can serve as a surrogate marker of their factor VIII activity	Teruhisa Fujii	Received

86-PP-T	Characteristics of pediatric previously treated patients with severe hemophilia A aged less than 12 years experiencing no bleeds during a 6-month prophylactic treatment regimen with pegylated recombinant factor VIII	Jennifer Doralt	Received

86-PO-M	Postoperative TGA monitoring of haemostasis of haemophilia patients with inhibitor (Second report)	fujihiko MINAMOTO	Received

86-PO-W	Final results of the Prospective Advate ITI Registry (PAIR) Immune Tolerance Induction (ITI) experience with Advate	Jimena Goldstine	Received

87-PP-M	A method to solve the issue of emicizumabs interference with FVIII:C and FVIII inhibitor titer assays	Tetsuhiro Soeda	Received

87-PO-W	Variable Success with Immune Suppressive Therapy in Rescuing Immune Tolerance Induction in Children with Severe Haemophilia A, FVIII inhibitors and unfavorable prognostic factors	Viacheslav Dmitriev	Received

88-PO-W	Prophylaxis with FEIBA three days a week results in safe and effective hemostasis in children with Hemophilia A with inhibitors	Mark Belletrutti	Received

88-PP-T	Immune tolerance induction in adult patients with severe haemophilia A and long lasting inhibitors	Anna Buczma	Received

89-PP-T	Safety and efficacy of a pegylated full-length recombinant factor VIII with extended half-life in previously treated children with hemophilia A	Jennifer Doralt	Received

89-PP-M	Interaction of BAX 826 (PSAylated rFVIII) with VWF and LRP1 An in vitro and in vivo assessment	Gerald Schrenk	Received

90-PP-M	Increasing the in vivo half-life of factor VIIa by attachment of the natural polysaccharide heparosan	Jesper Haaning	Received

90-PO-W	Status of inhibitor hemophilia patients in different age groups	Nadezhda Zozulya	Received

90-PP-T	A Study of the seroprevalence of Adenovirus-Associated Virus Vectorserotype AAV5 neutralizing activity and antibodies in Patients with Haemophilia A	Sophia Stanford	Received

91-PP-T	Effect of factor VIII concentration on the risk of spontaneous bleeding following treatment with rFVIII (turoctocog alfa) in patients with severe hemophilia A	Harley Souter	Received

92-PP-T	Long-Term Safety and Efficacy of Recombinant Factor IX Fc Fusion Protein (rFIXFc) in Adults/Adolescents With Hemophilia B: Longitudinal Analysis of B-LONG and B-YOND	Johnny Mahlangu	Received

92-PP-M	Anti-factor IXa/X bispecific antibody emicizumab (ACE910) does not interfere with antithrombin or TFPI activity	Mariko Noguchi-Sasaki	Received

93-PP-M	Efficacy of BAX 826, a polysialylated full-length rFVIII, in mouse models of hemophilia A	Werner Hoellriegl	Received

93-PO-W	Haemophilia A with inhibitor in children: Experience of a single center in the last 25 years	Zafer Salcioglu	Received

94-PP-M	Structural and functional characterization of preclinical and clinical batches of BAX 826, a PSAylated full-length recombinant FVIII	Gerald Schrenk	Received

95-PO-W	Immune Tolerance Induction in Hemophilia A a Single Center Experience	Maria Coutinho	Received

95-PP-M	FVIIa-CTP, a novel long acting FVIIa, Comprehensive Pharmacokinetics and Pharmacodynamics and Bioavailability evaluation following Subcutaneous (SC) and Intravenous (IV) administration to hemophilic animal models.	Doron Calo	Received

96-PP-M	In-vitro Evaluation of Factor VIIa-CTP, a Novel Long-Acting Coagulation Factor	Doron Calo	Received

96-PP-T	Course of target joint bleeding with prophylaxis of a pegylated full-length recombinant factor VIII with extended half-life in patients with hemophilia A	Lisa Patrone	Received

97-PP-T	Safety and efficacy of turoctocog alfa for prophylaxis and treatment of bleeding episodes in patients with severe hemophilia A: results from the guardian2 trial	Harley Souter	Received

97-PO-W	Long-term course of inhibitors against factor VIII concentrates in hemophilia A patients	KIYOUNG YOO	Received

98-PP-M	Factor VIIa-CTP , a novel FVIIa potentially supporting subcutaneous treatment - comprehensive assessment in Hemophilic animals models in preparation for first in human study.	Doron Calo	Received

98-PO-W	Sequential combined bypassing therapy for refractory bleeding in two adolescent hemophiliacs with inhibitors	Zhre Kaya	Received

98-PP-T	Dosing Regimens Before and Following Long-Term Treatment With Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Children With Severe Hemophilia A	Beatrice Nolan	Received

99-PP-M	Clinical and laboratorial evaluation of recombinant FVIII Fc fusion protein treatment in hemophilia A patients: a real-life in a single center	marion echenagucia	Received

99-PP-T	A case of unexpected moderate haemophilia A in a female neonate within a family with mild haemophilia A in affected males: what happened?	Marjolein Peters	Received

99-MP-W	World-wide field study of FVIII activity assay variability of ADYNOVATE, the PEGlylated form of rFVIII ADVATE, in clinical hemostasis laboratories	Peter L. Turecek	Received

100-PP-M	Video Games addiction as it relates to children with hemophilia in Japan	Kayoko Omura	Received

100-PP-W	Assay Discrepancies for New Generation FIX Products	Elaine Gray	Received

101-PP-M	The importance of immunizations in patients with hemophilia	Maria Sol Cruz	Received

101-PP-W	A modified IS-PCR protocol for easy detection and interpretation of inversion 22 in severe haemophilia A	CLEMENCE MERLEN	Received

101-PP-T	Plasma tissue factor pathway inhibitor (TFPI) levels in healthy subjects and patients with hemophilia A and B	Jian-Ming Gu	Received

102-PP-T	Local and general tolerability of Advate reconstituted in 2-mL rather than 5-mL SWFI: a pediatric post-authorization safety surveillance study	Jimena Goldstine	Received

102-PP-M	A Genetics Day to Facilitate Efficient Enrollment for a National Project	Nancy Hatcher	Received

102-PP-W	Does participation in an External Quality Assessment Scheme impact routine laboratory practice? A review of participant data from CMCEQAS over the last 6 years.	Joy Mammen	Received

103-PO-M	Participation in school events of childrens with haemophilia in the era of prophylaxis in Japan	Tomie FUJII	Received

103-PP-W	Harmonisation of the dilution factor in the Factor VIII Inhibitor test improves the between-laboratories comparability	Piet Meijer	Received

103-PP-T	First report of safety and efficacy of a glycoPEGylated FVIII (N8-GP) in previously treated pediatric patients with severe hemophilia Aresults from the international phase 3 pathfinder5 trial	harley souter	Received

104-PP-W	Relationship between coagulometric tests, clinical symptoms and the PCR test on fVIII haemophilia carriers	Marcela Alejandra Mardones Montanares	Received

105-PP-M	Developing a regional Dental Services Pathway for inherited bleeding disorders in North London, UK	Heather Williams	Received

105-PP-T	Long-term Efficacy of Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Adults/Adolescents With Severe Hemophilia A: United States Subgroup Analysis of A-LONG and ASPIRE	Doris Quon	Received

105-PP-W	Results from a multi-national survey of FVIII activity assay preferences	Peter L. Turecek	Received

106-PP-T	An Integrated Analysis of Long Term Safety of an Extended Half-Life, Pegylated, Full-length Recombinant Factor VIII (BAX 855) in the Treatment of Hemophilia A in 234 Pediatric, Adolescent and Adult Patients	Jacqueline Dyck-Jones	Received

106-PP-W	The application of thrombin generation assays is compromised by low levels of antithrombin III	Sabine Knappe	Received

106-PO-M	Training sessions on dental care for patients with hemophilia and von Willebrand disease	Maria Sol Cruz	Received

107-PP-T	Iliopsoas hemorrhage in congenital factor deficiencies	Zafer Salcioglu	Received

107-PP-W	Selection of trigger conditions influences the effect of Factor VIII on thrombin generation in hemophilia A plasma	Sabine Knappe	Received

107-PO-M	The Wand Single Tooth Anaesthesia System is a safe and effective method of anaesthetising lower molar teeth for restorative treatment in patients with congenital coagulopathy.	Tara Dunseith	Received

108-PP-W	Identification and characterization of the vitamin K binding pocket in human VKORC1	Katrin Czogalla	Received

109-PO-M	Main Manual for dental management of patients with Hemophilia and von Willebrand in Argentina	Maria Sol Cruz	Received

109-PP-W	Hemoglobin variability in anemic adults one and six hours after packed red blood cell (PRBC) transfusions.	Jose Mauricio Garcia Habeych	Received

110-PP-W	Modified primary prophylaxis in previously untreated patients with severe hemophilia A in Iran	Mehran Karimi	Received

110-PO-M	A review on dental practice. Experience from a hemophilia treatment center	Luis Cinara	Received

111-PO-M	Benefits of a swollen surgical site modification during a programmed tooth extraction	Luis Cinara	Received

111-PP-W	Pain assessment and management in hemophilia: a survey among Italian patients and specialist physicians	Gianna Franca Rivolta	Received

111-PP-T	2nd interim analysis results of the global ahead study in hemophilia A patients	Alessandro Gringeri	Received

112-PP-W	Circumcision experience and management of complications in hemophiliac patients	Ilgen Sasmaz	Received

112-PO-M	PREVENTION TREATMENT FOR PATIENTS WITH HEMOPHILIA Design of a Diagnose Survey Model	Miryam Parreira	Received

113-PP-W	Estimation of annual bleeding management cost in severe haemophilia A patients, without inhibitors, treated with on-demand therapy with recombinant factor VIII in Spain.	Juan Pablo Garcia	Received

113-PP-T	Interim results of a Phase IIIb safety and efficacy extension study of a recombinant fusion protein linking coagulation factor IX with albumin (rIX-FP) in patients with hemophilia B	Carol Hills	Received

113-MP-M	Total Ankle Replacement (TAR) in Haemophilic Arthropathy of the Ankle	sanghoon lee	Received

114-PP-M	FRAX and the assessment of fracture probability in patients with severe and moderate Haemophilia A & B.	Alexandra Agapidou	Received

114-PO-W	The Diagnosis and Treatment Status of Children Hemophilia in China	Min Zhou	Received

115-PP-M	Relationship between the ultrasound evaluation and the clinical examination of joints in patients with hemophilia on primary prophylaxis	Luis Cinara	Received

116-PO-W	Respond time in providing clotting factor to patient with hemophilia in Manado	Stefanus Gunawan	Received

116-PP-T	Intracranial haemorrhages (2000-2015): 7 centre pediatric experience in Argentina	Monica Martinez	Received

117-PP-T	Examination of Reduced Volume APCC (activated prothrombin complex concentrate-(FEIBA) for Accelerated Infusion in Adult Hemophilia A or B Patients with Inhibitors	Jennifer Doralt	Received

117-PO-W	Clinical profiles of Malagasy hemophiliac patients with iliopsoas hematoma in the Surgical Intensive Care Unit CHU JRA Antananarivo Madagascar	Rakoto Alson Aimée Olivat	Received

118-PO-T	Articular condition in children and adolescents with severe hemophilia A on prophylaxis: clinical assessment and ultrasound examination	Ihosvany Fernández-Bello	Received

118-PP-M	High-resolution musculoskeletal ultrasound with power Doppler (MSKUS/PD) for hemophilic mouse joints provides a non-invasive model to study location-specific clustering of vascular changes associated with joint bleeding in hemophilia	Esther Cooke	Received

118-PP-W	Preoperative overdosing in mild hemophilia A patients: an analysis of possible risk factors (DAVID studies)	Lisette Schtte	Received

119-PP-M	Reduced Bone Mineral Density in Children and Adolescents with Hemophilia from East Turkey	Murat Sker	Received

119-PO-T	Impact of training of primary care health professionals and patients with hereditary bleeding disorders on quality of treatment	Alessandra Loureiro Prezotti	Received

119-PP-W	Prevalence of discrepancy between one-stage and chromogenic FVIII activity assays and the mutation profile in Polish mild/moderate haemophilia A patients	Beata Baran	Received

120-MP-W	The development of a software for musculoskeletal evaluation database	Janaina Ricciardi	Received

121-PP-W	Comparison of clinical characteristics and health care utilization among individuals with hemophilia A and B in the Hemophilia Utilization Group Studies (HUGS) cohorts	Mimi Lou	Received

121-PP-M	HAEMOcare: an international epidemiological study of musculoskeletal disease burden in haemophilia patients in developing countries	Johnny Mahlangu	Received

122-PO-T	Long-term safety and efficacy of recombinant fusion protein linking coagulation factor IX with albumin (rIX-FP) in previously treated patients with hemophilia B	Carol Hills	Received

122-PP-W	An alternative model of comprehensive care for geographically challenged hemophilia treatment centers in the United States	Michelle Witkop	Received

123-PO-T	Striving for a bleed free world an interim analysis from the AHEAD Global & German studies	Alessandro Gringeri	Received

124-PO-T	The use of turoctocog alfa for the prevention and treatment of bleeds in patients with hemophilia A: efficacy data from European countries included in the guardian2 clinical trial	Harley Souter	Received

124-PP-M	The spectrum of haemophilic pseudotumours:Management at a single centre in India	Sandeep Albert	Received

124-PP-W	Hemophilia Joint Health Score v2.1 in US Adults With Hemophilia in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study	Jane Cowley	Received

125-PO-T	The experience of surgery in hemophilia patients with inhibitors	Ilgen Sasmaz	Received

125-PP-W	Joint outcomes in adults with hemophilia A on prophylaxis in Scandinavia: results from the KAPPA register.	Mehdi Osooli	Received

125-PP-M	TREATMENT VACUUM-ASSISTED CLOSURE SYSTEM (VAC) IN A PATIENT WITH HEMOPHILIC PSEUDOTUMOR IN PELVISA CASE REPORT	Eugenio Quevedo Ramos	Received

126-PP-M	Anterior osteophytes resection of the ankle joint to increase range of the ankle motion in haemophilic patients	Myung Chul Yoo	Received

126-PO-T	Arteriovenous fistulas for clotting factor administration in adults with severe bleeding disorders	Jerome Teitel	Received

127-PP-W	An assessment of anxiety levels in 100 haemophilia patients from Northern India using validated S.T.A.T. scale	Naresh Gupta, M.D.	Received

128-PO-T	Monitoring for efficacy anc safety during switching to new hemophilic products	Hugh Kim	Received

128-PP-W	Reseach on characteristics and causes of death in hemophilia patients managed in National Institute od Hematology and Blood transfusion	Mai Nguyen Thi	Received

129-PP-W	Assessments of Pain in US Adults With Hemophilia Across Patient-Reported Outcomes in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study	Jane Cowley	Received

129-PP-M	Multiple joint procedures (MJP) in haemophilia: benefit of self-reported activities	Piet de Kleijn	Received

130-PO-T	Robust Fed-Batch Manufacturing Process of Long Acting Factor VIIa (MOD-5014) in CHO Cells	Laura Moschcovich	Received

130-PP-M	Factors associated with perioperative complications in orthopedic surgery for patients with hemophilia	Jun Hirose	Received

131-PP-W	Exploring temporal patterns of clotting factor use and associated healthcare utilization in hemophilia	Joanne Wu	Received

131-PP-M	Assessments of Functional Impairment in US Adults with Hemophilia Across Patient-Reported Outcomes in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study	Jane Cowley	Received

132-PP-M	Should VTE prophylaxis be applied after total joint replacement in Hemophilia patients?	Anna Seltser	Received

133-PP-M	Retrospective Study of 14 cases of pseuodotumours in hemophilia From a Comprehensive Haemophilia Care Centre of Western India	chandrakala Shanmukhaiah	Received

133-PO-T	Clinical and biological characteristics of Haemophilic patients in Ouagadougou (Burkina faso)	Michelle Piot	Received

133-PO-W	Physical Activity of Severe Haemophilia A Patients Receiving Prophylaxis with Helixate NexGen	Sylvia von Mackensen	Received

134-PO-T	Global hemostatic assay at different target procoagulant acitivity of factor VIII and factor IX	KIYOUNG YOO	Received

134-PO-W	Comparing findings on physical examination and ultrasound in adults with haemophilia: a pilot study	Merel Timmer	Received

135-PO-T	Clinical phenotype of Thai children with hemophilia A	Bunchoo Pongtanakul	Received

135-PO-W	Daily activities performance of patients with hemophilia in Manado	Stefanus Gunawan Stefanus Gunawan	Received

135-PP-M	Efficacy and safety of point-of-care ultrasound-guided intra-articular steroid joint injections in patients with hemophilic arthropathy	Emily Martin	Received

136-PO-W	Assessment of musculoskeletal function & its association with severity of hemophilia	Suresh Hanagavadi	Received

137-PO-W	Risk management indicators in people with Hemophilia to evaluate results in disease control obtained by health insurers and providers in Colombia	Patricia Sanchez	Received

137-PP-T	Intra-Articular Injection of Platelet-Rich Plasma versus Hyaluronic Acid Viscosupplementation in Treating Haemophilic Arthropathy of the Knee Joints	Tsung-Ying Li	Received

138-PP-T	Pain threshold, central sensitization, and relationships with joint dysfunction in haemophilia patients	Carlos Cruz-Montecinos	Received

138-PO-W	Effect of once-weekly prophylaxis treatment with a recombinant fusion protein linking coagulation factor IX with albumin (rIX-FP) on target joints in patients with hemophilia B during the PROLONG-9FP clinical trial program	Carol Hills	Received

139-PP-T	Patterns of prescription pain medication use among patients with hemophilia (PWH) in the United States based on a commercial insurance claims database	Anshu Shrestha	Received

139-PO-W	Baseline Characteristics in Hemophilia Utilization Group Studies Part VI (HUGS VI): An Adherence Study among Participants with Hemophilia	Mimi Lou	Received

139-PO-M	Experience of knee and hip replacement in patients with haemophilia	Tatyana Polyanskaya	Received

140-PO-M	Total knee arthroplasty when bone ankylosis in a patient suffering from hemophilia A	Vladimir Zorenko	Received

140-PO-W	LOW DOSES PROPHYLAXIS TREATMENT IN ADULT HEMOPHILIA	EMNA GOUIDER	Received

140-PO-T	Pain profile in patients with haemophilia	Steffen Krger	Received

141-PO-M	Does orthopaedic surgery reduce bleeding rate in patients with haemophilia A?	AXON Turoctocog	Received

141-PO-T	Pain management survey in adult patients with severe hemophilia	Maximiliano Berro	Received

141-PP-W	Pharmacokinetics of a plasma-derived von VWF/FVIII concentrate (Voncento) in adult/adolescent and pediatric subjects with severe hemophilia A (SWIFT-HA and SWIFTLY-HA studies)	Wilfried Seifert	Received

142-PP-W	Population pharmacokinetic model of recombinant single-chain factor VIII (rVIII SingleChain) in patients with hemophilia A	Carol Hills	Received

142-PP-T	Excessive menstrual bleeding in adolescents: study of prevalence and characteristics of defects of hemostasis	Aguirre Rioseco	Received

143-PO-M	Avascular necrosis of the talus in children with hemophilia: Can it be prevented? Case report and bibliographic revision	Roberto Bernal-Lagunas	Received

143-PP-T	Home-based factor infusion therapy in hemophilic children	MiKyung Kim	Received

143-PP-W	Pharmacokinetics of a novel extended half-life glycoPEGylated factor IX, nonacog beta pegol (N9-GP) in previously treated adult, adolescent, and paediatric patients with haemophilia B results from two phase 3 trials	Andreas Tiede	Received

144-PP-T	Central Venous Access Device (CVAD) insertion procedure for pediatric patients with severe hemophilia A: trends in Factor VIII (FVIII) replacement therapy	Valerie Cui	Received

144-PP-W	Pharmacokinetic (PK)-guided daily dosing: a significant reduction in weekly clotting factor VIII consumption	Iris van Moort	Received

145-PP-W	Comparison of pharmacokinetic (PK)-guided prophylactic dosing tools in hemophilia A - a pilot study	Tim Preijers	Received

145-PO-M	Hemophilic Arthropathy: Diagnosis and Treatment of Subchondral Knee Cyst.	Luis Cinara	Received

146-PP-W	In silico evaluation of limited blood sampling strategies for individualized recombinant factor IX prophylaxis in hemophilia B patients	Tim Preijers	Received

146-PO-M	Treatment of pseudotumor in patient with hemophilia A and an inhibitor: clinical case.	Vladimir Zorenko	Received

147-PO-M	MECHANISM OF ACTION OF INTRA-ARTICULAR RIFAMPICINE IN PATIENTS WITH HAEMOPHILIA	María Eulalia Landro	Received

147-MP-T	The Star Excursion Balance test as a measure of lower limb function in people with Severe Haemophilia.	Fionnuala Sayers	Received

147-PP-W	The pharmacokinetics characteristics of plasma-derived and recombinant FVIII products in Chinese children with severe hemophilia A.	zhenping chen	Received

148-PP-W	Pharmacokinetic (PK) profiles in boys with hemophilia A assessed using a population PK Program (myPKFiT) and WinNonlin	Audrey Abad	Received

148-PP-T	Screening for falls risk in the older person with haemophilia a pilot study of quantitative measures	David Stephensen	Received

148-PO-M	Hemophilia and reduction of bone mineral density (BMD)	yamina ouarhlent	Received

149-PO-M	Treatment of adult patients with hemophilic arthropathy, Experience in Mexico	Jonathan Gonzalez	Received

149-PP-W	Single center clinical and pharmacokinetic experience with long-acting recombinant factor VIII (rFVIIIFx) and IX (rFIXFc)	Devin Malik	Received

149-PP-T	Swimming exercise prevents bone mass density alteration and modulates bone turnover in an animal model of blood-induced joint damage	Fabio Souza	Received

150-PP-M	Longitudinal Analysis of Annualized Bleeding Rates Among Adults/Adolescents Receiving Weekly Prophylaxis With rFVIIIFc in A-LONG and ASPIRE	Amy Shapiro	Received

150-PP-T	When should we interfere to prevent joint damage in Lebanon?	Haddad Cesar	Received

151-PP-T	Gait analysis by means of accelerometry in patients with haemophilic arthropathy	Sofia Pérez-Alenda	Received

151-PP-W	Population pharmacokinetic modeling of factor IX activity after administration of nonacog alfa in patients with hemophilia B	Joan Korth-Bradley	Received

151-PP-M	Evaluation of long-term prophylaxis with a pegylated full-length recombinant factor VIII with extended half-life in patients with hemophilia A	Lisa Patrone	Received

152-PP-T	Prevalence of gross motor delays in boys with hemophilia ages 4-14: single site study	Grace Hernandez	Received

152-PP-M	ADHERENCE TO PROPHYLAXIS WITH HELIXATE NEXGEN IN CHILDREN, ADOLESCENT AND ADULT WITH SEVERE HAEMOPHILIA A A PROSPECTIVE OBSERVATIONAL, ITALIAN MULTICENTRE SHAPE STUDY	Sylvia von Mackensen	Received

153-PP-T	Measuring Achilles Tendon Stiffness in Patients With Haemophilia and Ankle Arthropathy	Carlos Cruz-Montecinos	Received

153-PP-M	Prophylaxis introduced 13 years ago, retrospective studies, experience in a Brazilian center	JUSSARA ALMEIDA	Received

153-PO-W	Is weight-based adjustment of factor VIII dosage required for underweight or overweight Japanese patients with hemophilia A?	MEGUMI NOGUCHI	Received

154-PP-T	Preliminary results in the quantification of physical activity and the relationship with trough levels determined by myPKFiT	Sofia Pérez-Alenda	Received

155-PP-M	Current status of prophylaxis in haemophilia children ----a multi-center study in China	Ling Tang	Received

155-PP-T	The role of physical therapy in the WFH Twinning program	Eveline P Mauser-Bunschoten	Received

156-PO-W	Pharmacokinetics of factor VIII and individualized prophylaxis for severe hemophilia A children in China- a single center data analysis	zhenping chen	Received

156-PP-M	Successful daily tertiary prophylaxis without increase in factor VIII consumption in a group of severe hemophilia A adolescents	Margareth Ozelo	Received

156-PP-T	Muscle quality analysis in children with severe and mild haemophilia assessed by ultrasonography	Sofia Pérez-Alenda	Received

157-PP-T	The effect of hydrotherapy in haemophilic patients after joint replacement in the lower limb	Dènise Bestetti	Received

157-PP-W	Phenotypic and Genotypic Characterization of MYH9 related Macrothrombocytopenias in four Portuguese Families	Maria Coutinho	Received

158-PP-T	Point of care ultrasonography in hemophilia: impact of prior experience and success on competency assessment/evaluation	Karen Strike	Received

159-PP-W	THE EXPRESSION OF GHRELIN, HSP70, BCL-2 AND BAX PROTEINS IN IDIOPATHIC THROMBOCYTOPENIC PURPURA AT BONE MARROW	Saadet Akarsu	Received

160-PP-W	Diagnosis of platelet disorders despite normal platelet aggregations	Erika Martin	Received

160-PP-M	Bioethical analysis of the Brazilian primary prophylaxis protocol	JUSSARA ALMEIDA	Received

160-PO-T	Joint physical examination (Colorado scale) of osteoporotic hemophilia A patients after resistance training and Pulsed electromagnetic fields	Behrouz Parhampour	Received

161-PO-T	Severe flexed knee treatment by release of the ipsilateral hip in patients with hemophilia	Carla Daffunchio	Received

161-PO-M	Tertiary prophylaxis started in adult hemophiliac: experience of a Brazilian Center	Paula Villaca	Received

162-PO-W	Presence of antiphospholipid antibodies in children with immune thrombocytopenic purpura	Umran Caliskan	Received

162-PO-M	Single centre experience with the use of Arteriovenous Fistula in children with bleeding disorders	Victoria West	Received

162-PO-T	FUNCTIONAL OUTCOMES OF TOTAL KNEE ARTHROPLASTY IN PATIENTS WITH HAEMOPHILIA OPERATED WITHOUT TOURNIQUET	Carla Daffunchio	Received

163-PO-T	Evaluation of Haemophilic arthropathy by thermal images	Sofia Pérez-Alenda	Received

163-PO-M	Prophylaxis analysis of children hemophilia A in Sichuan Province	Xiaojing LI	Received

164-PO-T	Conservative management of unyielding knee deformity	Jayashri Kale	Received

164-PO-M	Identification of the optimal prophylaxis regimen for a physically active child with severe haemophilia A	Rob Herbert	Received

165-PO-T	The experience of physiotherapy for patients with acquired hemophilia A in a single hemophilia center	Satoko Orita	Received

165-PO-M	Low-dose short course tertiary prophylaxis in hemophilia A patients with target joint	Bunchoo Pongtanakul	Received

165-MP-W	Specific therapeutic support and development of the Body Schema in bleeding disorders	NATACHA ROSSO	Received

166-PO-M	Impact of maintaining higher FVIII trough levels with BAX 855: Rationale and design of the PROPEL study	Andrea Hafeman	Received

166-MP-W	Psychosocial care for children with congenital bleeding disorders and their parents in the Netherlands	Perrine Limperg	Received

166-PO-T	Factors influencing knee range of motion after total knee arthroplasty in patients with hemophilia at more than 3 years of follow-up	Minoru Kubota	Received

167-PO-T	Effectiveness of virtual reality on balance rehabilitation in a patient with hemophilia	Glenda Feldberg	Received

167-MP-W	Tackling menorrhagia: A potential target to improve psychosocial wellbeing in women with bleeding disorders	Richa Mohan	Received

168-PO-M	A novel, prospective study reveals the benefit of peak factor VIII protection from the patients perspective	Jason Booth	Received

169-PO-M	Five years of tailored low dose prophylaxis in a small cohort of kids with severe hemophilia A using SD-F cryoprecipitate	Ahmed Elekiaby	Received

169-PP-W	The Age of Multicultural Outreach	Elizabeth Fung	Received

169-PO-T	Haemophilic arthropathy: image evaluation and interobserver reliability	Sofia Pérez-Alenda	Received

170-PO-M	Annual bleeding rate during prophylaxis: our experience in Argentina	Honnorat, Elhelou, Neme Honnorat	Received

170-PP-W	Themes in daily life of young adults with congenital bleeding disorders in the Netherlands: a qualitative study	Perrine Limperg	Received

171-PP-W	Assessments of Anxiety and Depression in US Adult People With Hemophilia Across Patient-Reported Outcomes in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study	Jane Cowley	Received

171-PO-M	A cohort study of the usefulness of primary prophylaxis in patients with severe hemophilia A in our hospital	Chiai Nagae	Received

171-PO-T	Physiotherapy of hemophilia in Japan; a survey for physical therapist	Akiko Shimokawa	Received

172-PP-W	Participation of clinical psychologist in a non-hemophilia treatment center	Jun Yamanouchi	Received

172-PP-T	Influence of activity on ankle joint presentation	Ann McCarthy	Received

172-PO-M	LOW DOSES PROPHYLAXIS TREATMENT IN ADULT HEMOPHILIA	kaouther zahra	Received

173-PP-T	Understanding the Impact of Hemophilia B on Activity of US Children with Hemophilia (CWH) from their Caregivers: The Bridging Hemophilia Experiences Results and Opportunities into Solutions (B-HERO-S Study)	Jane Cowley	Received

173-PP-W	A bright employment future for persons with bleeding disorders	Brittany Zellner	Received

174-PO-M	Approaches to optimization of prophylaxis	Rob Herbert	Received

174-PP-W	Caregiver Burden of Parents of Children with Haemophilia Results from a Single UK Centre	Sylvia von Mackensen	Received

174-PP-T	Impact of mild to severe hemophilia on engagement in recreational activities by US adult men and women with hemophilia B: the bridging hemophilia B experiences results and opportunities into solutions (B-HERO-S) study	Jane Cowley	Received

175-PP-W	Case Construction between the psychologist and nurse staff: the experience in a day hospital for hemophiliac patients	Silvia Grases	Received

175-PP-T	Physical Activity in adult patient with haemophilic arthropathy monitored by Fitbit Charge HR	Sofia Pérez-Alenda	Received

176-PP-W	Perceived ideal roles of hemophilia treatment center social workers in the United States and barriers to those roles	Margaret Geary	Received

176-PP-T	New York City Marathon: a challenge for hemophilic patient	Dènise Bestetti	Received

177-PO-M	Single centre experience in previouly untreated patients with hemophilia	Basak Koc	Received

177-PO-T	Applying individualized care to safe physical activity recommendations: an evidence-based resource for persons with bleeding disorders.	Erin McCabe	Received

178-PP-W	Clinical, Family and Environmental Characterization of in a low income population of person with Hemophilia (PWH) at FUNDOVIDA-Colombia	Antistio Anibal Alviz Amador	Received

178-PO-T	The Sports effect on the motor development of hemophiliacs	JUSSARA ALMEIDA	Received

178-MP-M	Comparison of Health Utilities in Persons with Hemophilia B	Joanne Wu	Received

179-MP-M	Subjective Physical Functioning and Health-Related Quality of Life in Children with Severe Haemophilia in the UK Results of the SO-FIT Study	Sylvia von Mackensen	Received

179-PP-W	You cannot divorce the Hemophilia	Gaby Golan	Received

180-PP-W	Life expectancy and lifetime inequalities by settled areas among hemophiliacs with HIV in Japan	Toshiya Kuchii	Received

180-MP-M	The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Phase 1 Methodology and Feasibility Results	Mark Skinner	Received

180-PO-T	Pharmacokinetic: APTT; FVIII, FIX level. Is the Prophylaxis effective?	JUSSARA ALMEIDA	Received

181-PP-M	Health-related quality of life (HRQOL) in young children with haemophilia B treated with the novel long-acting nonacog beta pegol recombinant factor IX	Harley Souter	Received

181-PP-W	Correlation of pain and life satisfaction among persons with haemophilia	Marko Marinic	Received

182-PP-W	The Effects of Counseling using NLP( Neuro-Linguistic Programming ) for Improvement in Unsociable Tendency and Interpersonal Anxiety of Hemophilic Arthritis Patients	BAK WON-SOOK	Received

182-PP-T	Cryopreserved platelets: results from in vitro and in vivo studies	mariasanta napolitano	Received

182-PP-M	Improvement in health status and quality of life in patients with haemophilia B treated with nonacog beta pegol, an extended half-life glycopegylated recombinant FIX product	Harley Souter	Received

183-PP-M	Economic Rehabilitation	Nabila Husseni	Received

184-PP-W	Depression and Anxiety in Adult Haemophilia Patients: Ege Adult Haemophilia Center Experience	Fahri Sahin	Received

184-PP-T	Shear-dependent interaction of von Willebrand factor with factor VIII and protease ADAMTS13 demonstrated at a single molecule level by atomic force microscopy	Gerald Schrenk	Received

184-PP-M	Impact of Factor Replacement Therapy on Health-Related Quality of Life: an analysis of pooled data from 254 boys with severe hemophilia	Audrey Abad	Received

185-PP-W	Psychosocial issues in mothers of children with hemophilia in india	Meera Suresh Hanagavadi	Received

185-PP-T	Comparison of the pharmacokinetic parameters of a plasma-derived VWF/FVIII concentrate (Voncento) in adult/adolescent and pediatric subjects with von Willebrand disease (SWIFT-VWD and SWIFTLY-VWD study)	Tobias Rogosch	Received

185-PP-M	Association between Quality of life, Adherence and Satisfaction of Treatment in a low income population of person with Hemophilia (PWH) at FUNDOVIDA- Colombia	ANTISTIO ANIBAL ALVIZ AMADOR	Received

186-PP-W	Family Meetings in The Hemophilia Society of Turkey	Basak Koc	Received

186-PP-M	Influence of optimism and resilience on quality of life & general mental health for haemophilia patients	Fiona Brennan	Received

187-PP-T	Indication for use of VWF containing concentrates in patients with von Willebrand disease	Ana Boban	Received

187-PP-M	Inhibitor family camp provides a safe haven for children and families to have a camp experience	Eric Lowe	Received

187-PP-W	Introducing psychodrama as a group psychotherapy with psychosocial benefits in hemophiliacs and their families	Neumann Neumann	Received

188-PP-M	Beliefs about exercise in persons with severe Haemophilia-a qualitative study.	Steph Taylor	Received

189-PP-M	Pain, walking, and mobility play essential roles for activities of HIV/HCV-infected people with hemophilia in Japan	Akiko Kakinuma	Received

189-PP-W	Perception of Self-Esteem of Children with hemophilia from 8 to 12 years according to the degree of arthropathy	Ana Torres-Ortuño	Received

190-PP-M	FVII annual retreats help guide patients and families to a better understanding of living with a rare bleeding disorder	Eric Lowe	Received

190-PO-T	Genotype Characteristics of von Willebrand Disease in Taiwan	Chia-Yau Chang	Received

190-PP-W	Safe circumcision in haemophilia patients:The Kenyatta National Hospital experience Nairobi Kenya	Anastasia Khasiani	Received

191-PO-T	Treatment with a Von Willebrand factor concentrate almost devoid of FVIII in patients with von Willebrand disease on antithrombotic therapy	carlos ramirez	Received

191-PP-M	Healthy living in India... even with hemophilia	NATARAJ SELVARAJ	Received

192-PP-W	Social work caseloads in hemophilia treatment centers in the United States	Margaret Geary	Received

192-PO-M	Influence of aging on QOL of HIV-1-infected Japanese hemophiliacs	MIWA OGANE	Received

193-PO-T	Reliability and validity of the Haemophilia Activities List (HAL) in von Willebrand disease	Karin van Galen	Received

193-PO-M	CAPACITY BUILDING AND LEADERSHIP INITIATIVE: Bringing change by improving access to care and awareness	Masood Malik	Received

193-PP-W	The role of the Hemophilia Treatment Center (HTC) Social Worker in the United States	Ellen Kachalsky	Received

194-PO-M	Summer Camp with Teens	Maria Sol Cruz	Received

194-PO-T	Reliability and validity of the Haemophilia Joint Health Score (HJHS) in von Willebrand disease	Karin van Galen	Received

194-PO-W	Psychosocial factors play a role in the adherence of adult patients with hemophilia	Rubén Cuesta-Barriuso	Received

195-PO-W	NETWORK FOR LIFE	David Andres Cuartas Bolivar	Received

195-PO-M	Correlation between Hemophilia joint health and Patients Quality of life	Haddad Cesar	Received

196-PO-W	The impact of parental expectations with a hemophiliac child undergoing treatment	Silvia Grases	Received

196-PO-M	Change In My Life	Nabila Husseni	Received

197-PO-T	Orthopedic surgery in a patient affected by von Willebrand disease Type 3: benefits of continuous infusion	Dominique Desprez	Received

197-PO-W	The psychosocial impact of Hemophilia	Lamia Jouini	Received

197-PO-M	Evaluation of quality of life in children with hemophilia	Aydogan Gonul	Received

198-PO-T	Women with von Willebrand disease - a group not mentioned enough	Maneka Ghosh	Received

198-MP-W	Management of US Boys and Girls with Hemophilia B: Caregiver Insights from the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study	Jane Cowley	Received

198-PO-M	Quality of life perceived by pediatric hemophilia patients and their parents in Mexico	Maricela Osorio	Received

199-PO-T	Clinical Features and Genotypes of 7 Taiwanese Patients with Type 3 von Willebrand Disease	Chia-Yau Chang	Received

199-MP-M	Pharmacokinetic (PK) Comparison of Two Fibrinogen Concentrates in Patients with Congenital Fibrinogen Deficiency: final analysis.	bruce schwartz	Received

199-PP-W	Management of US adult men and women patients with hemophilia (PWH): the bridging hemophilia B experiences results and opportunities into solutions (B-HERO-S) study	Jane Cowley	Received

200-PP-W	Belfast Adults experience of using a pharmacokinetic personalised treatment regime tool to maximise factor replacement	Helen Manson	Received

200-PO-T	Bleeding score in Type 1 von Willebrand vWD patients using the condensed MCMDM-1 VWD Questionnaire.	ANIL PATHARE	Received

200-MP-M	Recombinant factor XIII is safe and effective for prophylaxis in young children with congenital FXIII A-subunit deficiency: results from the mentor5 international phase 3 trial	Susan Kearney	Received

201-PO-T	Screening for von Willebrand disease in women with puberty menorrhagia	Naresh Gupta, M.D.	Received

201-PP-W	Empowering others to treat; the use of social media for peer support, the benefits, challenges and effectiveness of sharing positive images of intravenous treatment	Cathy Benfield	Received

201-MP-M	Afibrinogenemia: haemorrhagic and/or thrombotic disease?	Claudia Djambas Khayat	Received

202-MP-M	Investigation of possible correlation between clinical and laboratory phenotype in congenital FXI deficiency: results from a single center.	Cristina Santoro	Received

202-PP-W	Home therapy consensus in an under resourced hemophilia setting	Johnny Mahlangu	Received

203-PP-M	Factor VII deficiency: clinical and genetic features in a cohort from Emilia Romagna Region	Gianna Franca Rivolta	Received

203-PP-W	Single center, first study in APAC region, on empowering prophylaxis nave families of PWH on self-infusion as home therapy for improved compliance and medical outcomes	chandrakala Shanmukhaiah	Received

203-PP-T	Kinetics of recombinant Von Willebrand Factor (rVWF) clearance and ADAMTS13-mediated multimer proteolysis in severe Von Willebrand Disease (VWD)	Miranda Chapman	Received

204-PP-W	Continuous infusion method for life threatening hemorrhage of hemophilia patient	Kun Lee	Received

204-MP-T	Talking Red. A campaign for women with bleeding disorders	Christina Burgess	Received

205-MP-T	Gynecologic conditions in post-menarchal adolescents with congenital bleeding disorders (CBD) when compared to adult women a surveillance report of the Female Universal Data Collection project in United States Hemophilia Treatment Center Network	Jane Geyer	Received

205-PP-M	Molecular basis of factor VII deficiency in a Canadian population study	Julie Gauthier	Received

206-PP-T	FXI levels and coagulation parameters in women with heavy menstrual bleeding	Sophie Wiewel-Verschueren	Received

206-PP-M	Phenotype Report on Patients with Congenital Factor V Deficiency in Southern Iran	Mehran Karimi	Received

206-PO-W	Experience of Self-infusion and Prophylaxis in Pediatric Hemophilia Patients	EM&304;NE TRKKAN	Received

207-PO-W	Central venous access devices in bleeding disorders in children: experience in Argentina centres.	Monica Martinez	Received

207-PP-T	Carrier perceptions regarding care and resources elicited from the Carriers: Assessment of REsources (CARE) focus group	Michelle Alabek	Received

207-PP-M	SPECTRUM OF RARE BLEEDING DISORDERS IN PAKISTAN: CLINICAL PRESENTATION AND PRIMARY CARE	sehar khaliq	Received

208-PP-T	Reproductive health in females with inherited bleeding disorder	Shabneez Hussain	Received

209-PP-M	Inhibitor elimination in a high titer haemophilia A patient during long-term prophylaxis with aPCC (FEIBA)	Dr. Carmen Escuriola Ettingshausen	Received

209-PP-W	Sexual Health in Hemophilia: Identifying and Responding to Healthcare Providers Needs	Lane Shannon	Received

209-PP-T	A multidisciplinary clinic for women with bleeding disorders: the administration perspective	Antonette Travas	Received

210-PP-W	Is sexual health education in men with hemophilia needed? The University of California at San Francisco experience	Patricia Tobase	Received

210-PP-T	A single-centre review of late amniocentesis reliability & satisfaction in carriers of haemophilia	Kayleen Coutts	Received

211-PP-T	Building Each Other, One Country At A Time	Andrea Trinidad Echavez	Received

211-PP-W	Activities and participation in sexuality and bleeding disorders	Eveline Mauser-Bunschoten	Received

212-PO-M	The treatment and prophylaxis with cryoprecipitate of spontaneous intracranial bleeding in a patient with mild inherited factor XIII deficiency	Ebru Yilmaz	Received

212-PO-T	Association of factor V Leiden G1691A and prothrombin gene G20210A mutation with adverse pregnancy outcomes	Sidra Asad Ali	Received

213-PO-T	The Lioness and the young Lion A case report	Gina Goldstein	Received

214-PO-M	Assessment of ed ROTEM parameters, kinetics of fibrinogen polymerization and plasmin amidolytic activity in patients with congenital fibrinogen defects	Jacek Trelinski	Received

WFH 2016 World Congress

24-28 July 2016 Orlando

About us

Only for moderated posters (ID’s: XX-MP-M; XX-MP-T and XX-MP-W). If you have already uploaded your poster and you need to upload your presentation by slides, please click here and enter your email to upload your slides.

Search and consult posters online
in an exclusive section
for each poster

ACTIVE FROM 25/07/2016 TO 24/07/2021

Poster
Gallery

Upload
Poster

Featured Poster

Vote poster

Poster Discussion
Forum

DOI: 10.3252/pso.eu.WFH2016.2016



		Digital Object Identifier. Official code used to identify documents published on internet; similar to ISBN for books. You may use this code to reference your poster in future scientific publications or CVs. It can be found from anywhere in the world. To find the poster page, log onto www.medra.org and enter the DOI, or enter in your internet browser https://dx.doi.org/ followed by the DOI string asigned to your congress.

About us

Terms and Conditions

Special Access

Commercial Web Access