PosterSessionOnline

WORLD FEDERATION OF HEMOPHILIA

WFH 2012 World Congress

8-12 July, 2012 Paris, FRANCE

N. Poster

Poster title

Applicant name

Status


0-Mo	Registry of Clotting Factor Concentrates	Mark Brooker	Received

1-We	Prevalence of Cardiovascular Disease or its Equivalents in Patients withInherited Coagulopathies	M. CEM AR	Received

2-Mo	Patterns of bleeding, comorbidities and clinical courses in Acquired HemophiliaA(AHA) and in Acquired von Willebrand Disease (AVWD): experience from a singleHemophilia Center of Pavia	Gabriella Gamba	Received

2-We	Carotid endarterectomy in two persons with Haemophilia	Louise Bowles	Received

3-We	DESCRIBING OCCURRENCE OF CORONARY EVENTS AND TREATMENT IN HAEMOPHILIACS (DOCETHREGISTRY): REPORT OF 27 PATIENTS.	Antonio Coppola	Received

3-Mo	Acquired hemophilia - clinical course and treatment outcomes in 25 patients	Denisa Jankovicova	Received

4-LB	Trends in invasive orthopedic interventions for individuals with a bleeding disorder enrolled in the Universal Data Collection	Patricia Tobase	Received

4-Mo	ACQUIRED HAEMOPHILIA AT CHRIS HANI BARAGWANATH ACADEMIC HOSPITAL	MOOSA PATEL	Received

4-Tu	INTEGRATING AGEING WITH A BLEEDING DISORDER INTO CANADIAN HEMOPHILIA SOCIETY(CHS) STRATEGIES	Clare Cecchini	Received

5-We	Cataract surgery in haemophilia	Dietje Fransen van de Putte	Received

6-Tu	THE IMPORTANCE OF MULTIDISCIPLINARY APPROACH TO PATIENTS WITH HEMOPHILIA	Glbahar Keskin	Received

6-We	Ageing and quality of life in persons with hemophilia	Marko Marinic	Received

7-We	Nursing the aging haemophiliac:Cardiovascular challenges	Cathy Mumby	Received

7-Mo	HIGH DOSE OF FVIII CONCENTRATE AS FIRST LINE THERAPY IN FOUR PATIENTS AFFECTEDBY ACQUIRED HAEMOPHILIA A AND CARDIOVASCULAR DISEASE	Ezio Zanon	Received

7-Tu	A Recruitment Plan for Volunteers	Brian OMahony	Received

8-Tu	Canadian Hemophilia Society Involvement in Canadas Blood System	David Page	Received

8-We	Newly emerging problems among aging patients with hemophilia in Japan	Azusa Nagao	Received

9-We	The Elderly Hemophilia Population - A Nordic Patient Organisation Prospective	Suzanne Ceder	Received

10-We	Patterns of gastrointestinal hemorrhage in hemophilia.	ajmi naourez	Received

11-We	The medical and economic burden of mild hemophilia in comparison to the severetype: long term data from a german single center	Christoph Bidlingmaier	Received

12-Tu	Prospective and challenges of pediatric hematology at KFSH&RC, Riyadh, Saudi Arabia	MAHASEN SALEH	Received

12-We	Technical issues in implementing prophylaxis in children with hemophilia: aninternational survey	Christoph Bidlingmaier	Received

13-Tu	Impact of training the trainers in haemophilia care in Pakistan	Tahira Zafar	Received

14-Mo	The European Haemophilia Network (EUHANET) project	Michael Makris	Received

14-We	CAUSES OF DEATH IN PATIENTS WITH HEMOPHILIA ATTENDED AT THE NATIONAL HEMOPHILIACENTER OF VENEZUELA (1989- 2011)	Apsara Boadas de Sanchez	Received

15-Tu	EXPERIENCE IN THE TREATMENT OF CUBAN PATIENTS WITH SEVERE BLEEDING USINGRECOMBINANT FVIIA	Dunia de la Caridad Castillo González	Received

15-We	CARDIAC SURGERY IN HAEMOPHILIACS : REPORT OF 14 CONSECUTIVE CASES	Marie-Elisabeth Briquel	Received

16-Mo	Patient Organisation involvement in management of Hepatitis C	Brian OMahony	Received

17-Mo	Muoviamoci (Italian Musculoskeletal Global Project)	Gianluigi Pasta	Received

18-Mo	Fostering collaboration in hemophilia care	Jayson Stoffman	Received

19-We	Evaluation of the utilization of factor concentrate and frequency of bleedsamong the patients with severe and moderate Factor VIII and Factor IX deficiency	Roya Dolatkhah	Received

19-Mo	Mild Haemophilia may hide severe haemophilia.	Philippe BEURRIER	Received

20-Tu	Variable Activation Kinetics of Different Recombinant Full Length and B-DomainDeleted Factor VIII Concentrates	Saskia Pahl	Received

20-Mo	Pregnancy outcome in haemophilia A carriers over a 5 year period in a UKHaemophilia Comprehensive care centre (CCC)	Deepa Ranjani Jayakody Arachchillage	Received

21-We	Usefulness of Multidetector Computed Tomography Angiography (MDCTA) inhemophilic patients previous to embolization of the middle geniculate artery(MGA)	Matilde Hernandez-Trejo	Received

21-Tu	One Year Clinical Experience with Mini-Pool Solvent/Detergent-filtered (SD-F)Plasma	El Ekiaby Magdy	Received

23-We	Comprehensive Spectrum of inherited bleeding disorders from South West Iran	Bijan Keikhaei	Received

24-We	Role of angiogram and embolisation in patients with haemophilia	Shyamkumar Keshava	Received

25-Mo	Hemophilia in Taiwan: a Population-Based Study on Epidemiology, Age atDiagnosis, Mortality, and 13-year Trend by National Health Insurance ResearchDatabase 1997-2009	Chia-Yau Chang	Received

25-Tu	CTP - A CLINICALLY VALIDATED TECHNOLOGY FOR ELONGATING THE HALF LIFE OF COAGULATION FACTORS, ENABLING A PROLONGED HAEMOSTATIC ACTIVITY IN HEMOPHILIC ANIMAL MODEL	Gili Hart	Received

26-We	Obesity and Haemophilia - Review of an MDT weight management service.	Paul McLaughlin	Received

29-Mo	Updating the National Registry of People with clotting deficiencies in Mexico	Carlos Gaitán-Fitch	Received

29-We	Correcting Dilutional Coagulopathy in Haemophilia	Renu Riat	Received

30-We	Prevalence of sporadic and familial severe haemophilia: is anything changed?	riccardi federica	Received

30-Tu	Analysis of the Composition of a Factor VIII Concentrate, Optivate	Sarah Kingsland	Received

31-We	CLINICAL AND EPIDEMIOLOGICAL PROFILE OF CONGENITAL COAGULOPATHY PATIENTSATTENDING AT GENERAL EMERGENCY DEPARTMENT	M. Angelica Rivera	Received

33-Mo	Long-term course of the severe haemophilia A or B patients in Sweden: Results from a cohort register study	Susanna Lvdahl	Received

33-Tu	In vitro reversal of the direct Xa inhibitor Rivaroxaban using High Purityfactor X concentrate (FACTOR X)	Joanne Lloyd	Received

34-Tu	In vitro Characterisation of FACTOR X in Global Haemostasis Tests	Joanne Lloyd	Received

34-Mo	REALITY OF THE HEMOPHILIAS IN PANAMA	MORENO BELGICA	Received

35-We	Hemophilia in developing countries: clinical profile of Cameroonian patients	Tayou Tagny Claude	Received

35-Mo	Australian Bleeding Disorders Registry(ABDR) - an update	Joihn Rowell	Received

36-Tu	Repeated Application of a new Recombinant Factor IX in Rats and Macaques	Eva Muchitsch	Received

37-Tu	Preclinical Safety of a new Recombinant Factor VIIa	Eva Muchitsch	Received

38-Tu	Safety of a PEGylated variant of recombinant factor VIII after repeated application in rats and macaques	Eva Muchitsch	Received

39-Tu	Absorption, Metabolism, Distribution, and Excretion of a PEGylated Variant ofRecombinant Factor FVIII Following Intravenous Administration to Rats	Eva Muchitsch	Received

39-We	Intracranial bleeds in bleeding disorders: a Northern Pakistan experience	Tahira Zafar	Received

40-Tu	Pharmacokinetics (PK) of recombinant and plasma-derived factor VIII (FVIII) products in pediatric patients with severe hemophilia A	Melanie Steele	Received

41-We	The importance of the pediatric hemostaseologist:cohort of pediatrichemostaseology patients in a tertiary german out-patient center	Sabine Irene Heine	Received

42-We	Synoviorthesis with rifampicin as a adjuvant treatment of hemophilic arthropathy	Pan Ru-Yu	Received

43-Tu	Roman Numerals to Denote Clotting Factors: A Potential Source of Medical Errors	David Page	Received

43-We	Nutritional study in haemophilic patients by using social networks	Gianluca Sottilotta	Received

43-Mo	National plan of control of heamophilia. The Moroccan national plan	El Khorassani Mohamed	Received

44-Mo	Cost assessment of implementation of ITI in Iran	PEYMAN ESHGHI	Received

44-Tu	CRYOPRECIPITATE TRANSFUSION IN ON-PUMP CARDIAC SURGERY	Katerina Pavenski	Received

44-We	Experience on the management of malignancy in hemophilia patients.	Paula Villaca	Received

45-Mo	Evidence for mobilizing policy on hemophilia in India : I. Utility of hemophiliaregistry data from Maharashtra, 1989-2009	Anita Kar	Received

45-Tu	Characterization of the binding properties of recombinant FVIII concentrateswith von Willebrand Factor	Daniele Pillitteri	Received

46-Mo	Evidence for mobilizing policy on hemophilia in India: II. An estimate of treatment gap in Maharashtra	Anita Kar	Received

46-Tu	Factor XIII levels in Haemophilia; Treatment Implications	Ole Halfdan Larsen	Received

47-We	Nutritional Intake and Bone Mineral Density in Boys with Severe Hemophilia.	Cecily Bos	Received

47-Mo	Indirect Costs Among Persons With Hemophilia B: Hemophilia Utilization Group Study Part Vb (HUGS Vb)	Mimi Lou	Received

48-We	Low Bone Mineral Density and Increased Fat Mass in Boys with Severe Hemophilia.	Cecily Bos	Received

48-Tu	Efficacy of a Recombinant Factor IX in Mouse Models of Hemophilia B	Eva-Maria Muchitsch	Received

48-Mo	Economic impact of an efficient inclusive national tender system for factorconcentrates	Brian OMahony	Received

49-Tu	Efficacy of a New Recombinant Factor VIIa in Animal Models of Hemophilia	Eva-Maria Muchitsch	Received

49-Mo	Characterising Excessive School and Work Absenteeism in Hemophilia A: Hemophilia Utilization Group Study Part Va (HUGS Va)	Jiat Ling Poon	Received

50-Tu	Efficacy of a PEGylated Variant of Recombinant Factor VIII in Mouse Models ofHemophilia A	Eva-Maria Muchitsch	Received

50-Mo	A NEW METHODOLOGY TO ASSESS UTILITY IN HAEMOPHILIA USING QUALITY OF LIFEMEASURES IN PARENTS AND CAREGIVERS: THE CAREGIVERS BURDEN STUDY	silvia riva	Received

51-Mo	COST OF IMMUNE TOLERANCE INDUCTION IN HEMOPHILIA A PATIENTS: RESULTS FROM THE ITER STUDY	silvia riva	Received

52-Mo	PHARMMACOECONOMIC EVALUATION WITH AN ACTIVATED PROTHROMBIN COMPLEX CONCENTRATE(APCC) IN PATIENTS WITH HAEMOPHILIA AND INHIBITORS (PRO-FEIBA STUDY)	silvia riva	Received

52-Tu	Collaborative Study for the Establishment of Korean Standard for Blood Products(Factor IX Concentrate)	JiSuk Seo	Received

52-We	Managing major surgical operations in a large haemophilia centre in NorthernIndia	Naresh Gupta	Received

53-Mo	COST OF ILLNESS ANALYSIS OF HAEMOPHILIA A: RESOURCES USE AND DIRECT COSTS INITALY	Michele Schino	Received

53-Tu	The stability of FVIII in cold condition	Rahajuningsih Dharma Setiabudy	Received

54-Tu	A case of inhibitor to factor IX in a two years old boy with severe congenitalhaemophilia B.	skhiri rania	Received

55-Mo	Budget impact of FVIII concentrates taking into account the incidence of de novoinhibitor formation in PTPs: a breakeven analysis applied to ADVATE in theItalian context.	Giuseppe Turchetti	Received

56-Mo	A cost-effective provincial redistribution system to prevent wastage of clottingfactor concentrates	Sarah Crymble	Received

57-Tu	2D-DIGE As a Tool to Analyze Lot-to-Lot Consistency of Complex TherapeuticProducts Such As BAX 855, a PEGylated Recombinant FVIII	Peter L. Turecek	Received

58-Tu	Influence of expression of recombinant human ADAMTS13 in cell lines fromdifferent species on its glycosylation pattern and pharmacokinetics	Peter L. Turecek	Received

58-Mo	Antihemophilic factors (AH) : comparative analysis and monitoring of spending atthe University Hospital of Dijon	ELODIE PHILIPPE	Received

59-Tu	Establishment of a manufacturing process for recombinant human ADAMTS13retaining high specific activity	Peter L. Turecek	Received

59-We	Safety of continuous rFVIII-FS infusions via 8-hour 250cc 0.9 IV bag	Angela Lambing	Received

59-Mo	Disarray to Distinction: fast track restructuring of hemophilia care in HongKong.	Wing Au	Received

60-Tu	Susceptibility of von Willebrand factor from different mammalian species tocleavage by human recombinant ADAMTS13	Peter L. Turecek	Received

60-Mo	Telemedicine in Haemophilia: Virtual Consultation for the haematologist atpatients home.	JOSÉ ANTONIO AZNAR	Received

61-Mo	A project to establish a clinical and social assistance infrastructure inAfghanistan	Franco backhaus	Received

62-Tu	Development of a large scale production process for BAX 855, a PEGylated rFVIIIproduct	Peter L. Turecek	Received

63-Tu	Functional characterization of BAX 855, a PEGylated recombinant FVIII	Peter L. Turecek	Received

64-Tu	Assessment of preclinical safety for BAX 326, Baxters recombinant human factorIX	Peter Turecek	Received

65-Tu	Structural characterization of BAX 855, a PEGylated recombinant FVIII	Peter L. Turecek	Received

65-Mo	How to manage a heamophilia treatment centre in an emergent country. TheMoroccan experience.	El Khorassani Mohamed	Received

66-Mo	A National Infrastructure for Rare Blood Disorders: An Evaluation of Staffing,Training and Services in the US Federally-supported Hemophilia Treatment Centers	Ann Forsberg	Received

66-Tu	Characterization of BAX 817 a recombinant FVIIa drug candidate	Peter L. Turecek	Received

67-Tu	Characterization of BAX 326 a recombinant human factor IX drug candidate	Peter L. Turecek	Received

67-Mo	Governing as governance in a NMO	Daniel-Aníbal García-Diego	Received

68-Mo	Unique just like you	Eduardo Garzon	Received

68-Tu	Safety of BAX 855, a polyethylene glycol (PEG) conjugated full-lengthrecombinant Factor VIII product	Peter Turecek	Received

70-We	Restorative dentistry and third molar surgery in patient with an inhibitor toFVIII. A case report.	Bozidar Brkovic	Received

71-Tu	Contribution of chromatography to virus and TSE removal in the FactorVIII/VWFOptivate process	Peter Feldman	Received

71-Mo	From nothing to comprehensive hemophilia care -an experience of Karnataka Hemophilia Society	sandeep H S	Received

71-We	Caries study, oral hygiene and changes on dental surfaces associated withfructose consumption in haemophilic patients and Von Willebrand	Evelyn González de Delgado	Received

72-We	A review of dental surgical operations in 64 patients from a large haemophiliacentre in Northern India	Naresh Gupta	Received

72-Mo	Strategic Advocacy program to involve Government in Hemophilia care: anexperience from India	Suresha Hanagavadi	Received

73-Mo	Collaborative Working: The Newcastle Initiative	Chris James	Received

73-We	Dental Surgery with minimal factor support update assessment of 120 patients	Ian Hewson	Received

74-We	A specialized dental care programme for people with congenital coagulopathiesoffered in the Hemophilia Unit of Vall dHebron Hospital	Rafael Parra	Received

74-Mo	Developing Recommendations for the UK Government on Haemophilia services & NHSReform	Chris James	Received

74-Tu	USE OF HIGH DOSES FVIII/ VON WILLEBRAND FACTOR CONCENTRATE IN A PATIENT WITHTYPE III VON WILLEBRAND DISEASE AND HIGH LEVEL INHIBITOR	M Nieves Alonso Escobar	Received

75-Mo	Encouraging positive change for people with bleeding disorders through a national awards scheme	Chris James	Received

75-We	Periodontal management of Malagasy hemophiliacs	Simone RAKOTO ALSON	Received

76-Mo	Asha Kiran - Summer camps to empower persons with hemophilia and their families.	Annamma Joseph	Received

76-We	Oral Health Status and Oral Health Related Quality of Life in IranianHemophilic Pediatric Patients	Katayoun Salem	Received

77-Mo	Kite flying - A unique idea for public awareness and fund raising. Experience from a rural hemophilia centre in India.	Annamma Joseph	Received

77-Tu	Adaptation in hemophilia A patients during long term prophylactic treatment	Anna Balandina	Received

78-We	A minimally invasive method for the diagnosis of lesions affecting the jaws	Federico Stolbizer	Received

79-We	DENTAL MANAGEMENT OF CHILDREN WITH BLEEDING DISORDERS - THE KUALA LUMPURHOSPITAL EXPERIENCE	NORAINI NUN NAHAR YUNUS	Received

80-We	Statistics of Dental Attention Provided to Pediatric Patients with Hemophiliaand Von Willebrand Disease at the Dental Clinic of the Hospital del Niño,Panama.	SOL LAIZ TORRES	Received

80-Mo	Australia and New Zealand Inhibitors Workshop: Meeting the Challenges	Colleen McKay	Received

81-Tu	Platelet procoagulant activity and thrombin generation in patients with severehemophilia	Amy Dunn	Received

81-We	Through an ethical lens: ethics, pain management and family centered care	Liz Bishop	Received

81-Mo	National educational programme in haemophilia in Ukraine	Galyna Moroz	Received

82-Mo	Hemophilia patient outreach: Experience of Vietnam	Nguyen Thi Mai	Received

82-We	Mothers of Children with Haemophilia: An Exploration of Their Experiences	Simon Brown	Received

83-We	Understanding the challenges of distance and parenting a child with Haemophilia	Simon Brown	Received

83-Mo	Twinning Programme between the Panamanian Foundation of Hemophilia and the CatalanAssociation of Hemophilia	Felipe Ortega	Received

85-We	Guidelines for Growing: An action plan for parents of children with bleedingdisorders	Chad Feay	Received

85-Tu	Concept Maps : an educational tool for teenagers with haemophilia ?	Céline Chenuel	Received

85-Mo	MANAGEMENT OF PATIENTS WITH INHERITED BLEEDING DISORDERS IN THE EMERGENCYDEPARTMENT	Gianna Franca Rivolta	Received

86-Mo	Challenges Faced to Develop Comprehensive Hemophilia Care in India & its Remedies	DEVILA SAHU	Received

87-Mo	The HEMONLINE Project: preliminary results	Gianluca Sottilotta	Received

89-We	Re-PEP Programme in New Zealand - an opportunity to review, re-visit, reflectand refresh.	Colleen McKay	Received

89-Mo	Improved hemophilia care in developing countries through the World Federation ofHaemophilia twinning programmes: the case of Yaoundé and Geneva	Tayou Tagny Claude	Received

89-Tu	Evaluation of the therapeutic education of 35patients with hemophilia	Amina Krim	Received

90-Tu	Developing the design of a educational game for children with Hemophilia.	MARCIA APARECIDA PICCOLOTO MATTA	Received

90-We	Family issues faced by women with bleeding disorders and importance ofpsychological help in overcoming them	Priyanka Rawat	Received

91-We	FACTOR IX SECRETION IN HUMAN ADIPOSE-DERIVED STEM CELLS BY NON-VIRAL GENETRANSFER	ANTONIO LIRAS	Received

91-Tu	OPTIMIZE THE HEMOPHILIA ATTENTION, IN THE EMERGENCY ROOM, THROUGH A EDUCATIONMANUAL TO PRIMARY PHYSICIANS AND NURSES IN PANAMA	MORENO BELGICA	Received

92-Tu	Severe Bleeding Disorder Alert Cards	Brian OMahony	Received

93-Tu	MULTIDISCIPLINARY FORMATION AND TREATMENT IN HEMOPHILIA. A MEXICAN PILOT PROJECTCONTRIBUTION FROM THE HEALTH PSYCHOLOGY	Maricela Osorio	Received

93-We	The impact of home treatment in the management of hemophilia in developingcountries	El Khorassani Mohamed	Received

93-Mo	INTRACEREBRAL HEMORRHAGES IN PATIENTS WITH HEMOPHILIA: THREE YEARS OF FOLLOW-UPAT THE COMPREHENSIVE CARE PROGRAM IN CUBA (2008-2010).	Dunia de la Caridad Castillo González	Received

94-Tu	Dont Push Your LuckBoard Game for Childrens Decision Making in their Hemophilia Care	Lisa Semple	Received

95-Tu	HEMOPHILIA: TEACHING PROGRAM AT THE UNIVERSITY OF VALENCIA (SPAIN)	QUEROL FUENTES FELIPE	Received

95-Mo	Clinical outcome in a cohort of HIV/HCV coinfected patients. HCV RNA presenceassociated to higher GGT levels.	Aloisi Zavala Natalia	Received

96-Mo	Distribution of IL28b gene polymorphisms and presence of 32bp CCR5 deletion in acohort of HIV/HCV coinfected patients.	Maria Cecilia Monzani	Received

96-Tu	The Development of a Tool to Assist Patients in Identifying Health Care Coverage- Personal Health Insurance Toolkit	Michelle Rice	Received

96-We	Home clinical assistance: ITALIAN SURVEY OF HCA SUPPORT FOR THE MANAGMENT OF CVCIN PEDIATRIC HEMOPHILIC PATIENTS IN PROPHYLAXIS.	Ezio Zanon	Received

97-Tu	Pedagogical practices with the use of Informatics resources for people withHemophilia	Cristiane Santos	Received

97-Mo	Evaluation of liver fibrosis in haemophilia patients with HCV infection usingtransient elastography - Fibrotest.	Angelika Batorova	Received

98-We	Effect of in vivo induction of regulatory T cells forimmune toleristaion andeffect on FVIII inhibitor anamnestic response	Simon Brown	Received

99-We	Factor VIII product-dependent recognition of anti-factor VIII antibodies	Saulius Butenas	Received

100-We	HOW MANY PATIENTS WITH HIGH-RESPONDING INHIBITORS DO/DID NOT UNDERGO IMMUNETOLERANCE INDUCTION IN ITALY? WHY NOT?	Antonio Coppola	Received

101-Tu	NEW Teaching strategy: educational MANUAL of Hemophilia and VON WILLEBRAND forparents and patients in PANAMA.	VILLALAZ LUZ	Received

101-We	RISK OF BLEEDING AND INHIBITOR DEVELOPMENT AFTER CIRCUMCISION OF PREVIOUSLYUNTREATED(PUPs) OR MINIMALLY TREATED(MTPs) SEVERE HEMOPHILIA A PATIENTS	Mohsen Elalfy	Received

102-Tu	Development of an educational tool for haemophiliacs : advices of the pharmacist	Anne-Sophie Leromain	Received

102-We	Plasma-exchange and immunosuppressive therapy in a patient with mild hemophiliaA and inhibitors complicated by severe muscular bleeding and compartmentalsyndrome	Chiara Ambaglio	Received

103-Mo	The development of Japanese blood program for assuring safety in supplying domestic coagulation blood products: A case study of the Japanese Red Cross Society	Masatake Hongo	Received

104-We	Presence and evolution of anti-factor VIII (FVIII) catalytic activity in severe,mild or moderate hemophilia patients with FVIII inhibitors	Sandrine Grosbois	Received

104-Tu	Education: effective tool in the prevention of complications and appropriatemanagement of Haemophilias patient in Panama.	FRNCO ANAYANSI	Received

105-Tu	BENEFITS FROM WHF TWINNING AND TEACHING PROGRAMS,OUR EXPERIENCE.	GUADALUPE VIVERO	Received

106-Mo	Like a curse: Outcomes of the New Zealand 2011 People with Haemophilia andHepatitis C Survey	Chantal Lauzon	Received

106-Tu	Use of short message service (SMS) to document bleeding episodes in childrenwith haemophilia	Carolyn Broderick	Received

107-Tu	BLOOD 4 : A blog to cope with Hemophilia with the use of images	Frederica R.M.Y cassis	Received

108-Tu	Remote Control: Is it enough?	Desdemona Chong	Received

111-Mo	Number of Patients with Coagulation Disorders in Japans 2010 Annual Report fromthe Research Committee for the National Surveillance on Coagulation Disordersin Japan	SHINOBU TATSUNAMI	Received

111-Tu	Social Network for Girls and Women with Bleeding Disorders	Cheryl DAmbrosio	Received

112-Mo	The running infection of hepatitis C virus (HCV) diagnosis is too late in femalewith Severe Hereditary Clotting Factor Disorders (SHCFD): French single Centreexperience.	peynet peynet	Received

113-Mo	An attempt to analyze the narrative world of the life-stories of doctors andpatients involved in the HIV tainted blood product incident in Japan	Masatake Hongo	Received

114-Mo	Decrease of microparticles (MP) after the treatment in hemophilia A patients:Coincidence or causation?	Jovan P Antovic	Received

114-Tu	Role of Telemedicine in managing Bleeding disorders in rural Pakistan	Tahira Zafar	Received

115-Mo	Characterizing Global Hemostasis Throughout the FVIII Prophylaxis DosingInterval: A Pilot Study	Donald Brophy	Received

116-Mo	A CIRCULATING HEPARIN-LIKE ANTICOAGULANT WITH NO BLEEDING COMPLICATIONS: CASE REPORT	Desiree Coen Herak	Received

117-Tu	Successful Orthotopic Liver Transplantation in a Patient with Severe HaemophiliaA and High Titre Factor VIII Inhibitor	Richard Gregg	Received

118-Mo	Hemophilia A prenatal diagnosis by factor VIII clotting activity usingpercutaneous umbilical blood sampling	Yunhai Fang	Received

119-Mo	Haemophilia - a missed diagnosis	Naresh Gupta	Received

119-We	Successful Immune Suppression Followed by Immune Tolerance Induction in a Factor9 Patient Who had Developed an Anaphylactic Reaction to Factor 9.	Nancy Hodgson	Received

119-Tu	Life itself. Different visions of hemophilia	Otilia Ragull	Received

120-Mo	Investigation of a prolonged APTT: Date from a UK NEQAS for Blood Coagulationexercise	Ian Jennings	Received

120-We	Plasma Exchange and Continuous Infusion of Factor VIII for Life-Saving Surgeryin Hemophilia A with High-Titer Inhibitor: Two Case Reports	Rungrote Natesirinilkul	Received

120-Tu	Caring for Mild Hemophilia: A Challenge to Comprehensive Hemophilia TreatmentCenters	M Dawn Goodyear	Received

121-We	Successful low-dose immune tolerance induction regimen using multiple plasma-derived factor VIII concentrates.	Marina Pereira Colella	Received

121-Tu	Development and Evaluation of a Self-assessment Pathway for Young Men with Mild Hemophilia	JoAnn Nilson	Received

122-Mo	NEW QUANTITATIVE aPTT WAVEFORM ANALYSIS ON BEHRING COAGULATION SYSTEM	Marija Milos	Received

122-We	IgG4 subclass of anti-FVIII antibodies is correlated to high-titer inhibitor,whereas IgG1 subclass is related to low-titer inhibitor in hemophilia Apatients.	Margareth Ozelo	Received

123-We	Genetic risk factors for inhibitor development in a Brazilian severe hemophiliaA population	Margareth Castro Ozelo	Received

123-Mo	UTILITY OF NEW QUANTITATIVE aPTT WAVEFORM ANALYSIS IN LABORATORY MANAGEMENT OFHEMOPHILIA A PATIENTS	Marija Milos	Received

124-Mo	Validating the Role of Thrombelastography and the Thrombin Generation Assay forRoutine Clinical Care in Children with Haemophilia	Manfred Rauh	Received

124-We	Sequential therapy with activated prothrombin complex concentrate andrecombinant factor VIIa in the treatment of unresponsive bleeding in patientswith hemophilia and inhibitors in a single center experience	Young Shil Park	Received

125-Tu	The Royal Family: A Project to Increase Awareness of Hemophilia in Slovakia	Jaroslav Janovec	Received

125-Mo	Modified Inverse shifting-PCR (IS-PCR) to investigate Intron 22 Inversion	federica riccardi	Received

126-Mo	Molecular Analysis of mild haemophilia patients: the experience of a singlecentre	federica riccardi	Received

126-Tu	Cerebral hemorrhage in a Malagasy with haemophilia B	AIMEE OLIVAT RAKOTO ALSON	Received

127-We	Resolution of Nephrotic Syndrome Following Rituximab Therapy in a PatientUndergoing Immune Tolerance Induction	Susan Kearney	Received

128-Tu	Bile Acid deficiency as cause of VKCFD in a Newborn	Matthias Watzka	Received

128-We	Impact of HLA and cytokines polymorphisms on inhibitors development in childrenwith severe Haemophilia A	Helen Pergantou	Received

129-Tu	Benefits of an Individual Communication Strategy from a National Haemophilia Society	Anne Duffy	Received

129-Mo	Evaluation of Hemostatic Effect of BAY 86-6150, a Recombinant FVIIa Variant, inAntibody-Induced Hemophilic Whole Blood Under Flow Conditions	Mitsuhiko Sugimoto	Received

130-We	Experience of surgery in patients with haemophilia with inhibitors	Tatiana Polyanskaya	Received

131-Mo	Stability of clotting factors in fresh frozen plasma in the University TeachingHospital of Yaoundé, Cameroon	Tayou Tagny Claude	Received

132-Mo	Thromboelastography as screening test for the diagnosis of Scott Syndrome.	paula villaca	Received

132-We	Identification of potential T-cell epitopes in factor VIII using peptidemicroarrays	Kathleen Pratt	Received

133-We	A Canadian survey on the incidence and risk factors for inhibitor development insevere hemophilia A PUPs: 2005-2010.	Georges-Etienne Rivard	Received

134-We	F8 genotype and not polymorphisms in IL10, TNFA and CTLA4 influences inhibitor development in Argentine patients with severe HA.	Liliana Rossetti	Received

135-We	Circumcision experience in severe hemophilia patients with inhibitors	Sasmaz Ilgen	Received

136-Mo	Heterozygote frequencies of common polymorphic markers of factor VIII (F8) and factor IX (F9) genes in indigenous Nepali population	Shrimati Shetty	Received

137-We	Prospective ADVATE Immune Tolerance Induction Registry (PAIR) in Hemophilia APatients with Inhibitors: Interim Report	Gerald Spotts	Received

138-We	ALLELE POLYMORPHISMS OF IMMUNE RESPONSE GENES IN SEVERE HAEMOPHILIA A PATIENTSWITH INHIBITORS IN UKRAINE	Oleksandra Stasyshyn	Received

138-Mo	Various genetic mechanisms resulting in phenotypic expression of haemophilia A in three females	Virginie Barbay	Received

139-We	Case series report - low-dose immune tolerance (ITI) in Iran	shirin Tehrani Tarighat	Received

140-Mo	Duplications Xq28 and Hemophilia are questionable for genetic counselling	Catherine Costa	Received

140-Tu	Differences in the Bleeding Phenotypes of Haemophilia A and B	Berthold Siegmund	Received

141-Mo	Spectrum of mutations in 407 unrelated haemophilia B patients	Costa Catherine	Received

143-Mo	A third rearrangement caused by homologous recombination between inverted repeats at Xq28 cause severe hemophilia A	Behnaz Pezeshkpoor	Received

145-Mo	Inversion 22 in Hemophilia A in the North Indian Population: a New cDNA BasedProtocol	Praveen Kumar	Received

145-We	Genotype-phenotype Correlation in Hemophilia A and Risk of Inhibitors of F8 genemutations	kiyoung yoo	Received

145-Tu	The method of concentration of blood clotting factor VIII usingcross-galvanization in patients with hemophilia A	Kate Kabaeva	Received

146-Tu	A New Clinical Tool to Measure Balance and Mobility in Hemophilia: the CommunityBalance and Mobility Scale.	Cecily Bos	Received

149-Mo	INTRACELLULAR TRAFFICKING ANALYSIS OF C111Y AND C111S MUTATIONS IDENTIFIED INFACTOR IX FROM MEXICAN PATIENTS WITH SEVERE HEMOPHILIA B	JOHANNA MANTILLA CAPACHO	Received

149-We	Prevalence of inhibitor antibodies in the Mazandaran(North of Iran) haemophiliaA population.	Hassan Mahmoodi Nesheli	Received

150-Mo	GENETICS DEFECTS IN VON WILLEBRAND DISEASE.	Rosario Pérez Garrido	Received

150-We	USE OF FACTOR VIII CONCENTRATES IN LIFE-THREATENING BLEEDING IN HEMOPHILICPATIENTS WITH INHIBITOR	Hugh C Kim	Received

150-Tu	ADVATE HaEmophlia A Outome Database (AHEAD): A long-term registry focusing onjoint health outcomes and health-related quality of life	Gerald Spotts	Received

151-Tu	A Post-Authorisation Safety Surveillance of ADVATE, Recombinant Antihemophilic Factor, Plasma/Albumin-Free Method (rAHF-PFM) in Hemophilia A	Jenny Chou	Received

151-We	Intracranial Hemorrhage (ICH) in a 5-years-old Child with Severe Hemophilia Band Inhibitors with Anaphylaxis: Treatment Issues	Carvalho Manuela	Received

151-Mo	Absence of active F8 protein despite high F8 mRNA expression levels in a severeHaemophilia A patient	Behnaz Pezeshkpoor	Received

152-We	Prevalence of inhibitor in a prospective cohort of hemophilic children under 4years of age from a single center.	Florencia Tisi Baña	Received

152-Mo	IDENTIFICATION OF MUTATIONS ASSOCIATED WITH HAEMOPHILIA A: A FRENCH CARIBBEANEXPERIENCE	Serge PIERRE-LOUIS	Received

152-Tu	Estimated Annual Infusion Volume Reduction with a 2 mL Reconstitution Volume forADVATE	josh epstein	Received

153-Mo	The Canadian National Program for Hemophilia Mutation Testing database: aten-year anniversary review.	Natalia Rydz	Received

153-We	Successful use of negative pressure wound therapy in a patient with severeHemophilia A and an inhibitor	Vicky Hanneman	Received

154-Tu	Pain in Haemophilia. Assessment of type of pain, coping styles and analgesicuse.	bj ramsay	Received

155-We	RADIOACTIVE SYNOVECTOMY of the SHOULDER JOINT in PATIENTS with HAEMOPHILIA	Semih Aydogdu	Received

155-Tu	Pain and Meaning: from the injury to the experience of pain	Ceres Lotito	Received

156-Mo	Clinical implementation of Clinician-oriented locus specific mutation detectionand deposition system	kiyoung yoo	Received

156-We	The management of domiciliary acute haemarthrosis by ultrasonography: experiencein a single center.	AZNAR LUCEA JOSE ANTONIO	Received

157-We	Autologous stem cell treatment in hemophilic arthropathy.	Aymara Baganet Cobas	Received

158-We	KNEE ON FLEXION: OSTEOTOMY OF FEMORAL EXTENTION IN PEDIATRIC PATIENTS WITH HAEMOPHILIA	ROBERTO BERNAL-LAGUNAS	Received

159-Mo	Gene rearrangements and mutations in Malaysian patients with Haemophilia A	maimiza zahari	Received

159-We	Abnormal inter-extremity difference (AIED) of quadriceps muscle strength and relationship to patellar tendon thickness and joint status in PWH	Alexander Brunner	Received

159-Tu	Central Venous Line Insertion and Factor Replacement Therapy in Patients with Haemophilia A: a local experience.	Adriana Fonseca	Received

160-Tu	Obesity management in boys with severe haemophilia: What works?	Nicola Hamilton	Received

161-Mo	Role of nurse in improving hemophilia care	Fayal Bouaballou	Received

162-Mo	Inherited Bleeding Disorders- The Nursing Experience of Patient and Family CareNeeds in the Paediatric Setting.	Gill Doyle	Received

163-Tu	Constraints and challenges in treating a young haemophiliac with exceptionallyhigh inhibitor titers.	Andromachi Papagianni	Received

163-Mo	The needs and support measures of Japanese haemophilic careers(JHC): discussionfrom literature review.	tomie fujii	Received

165-We	Frequency , risk factors and consequences of Decreased Bone mineral Density inchildren with Hemophilia A and B	PEYMAN ESHGHI	Received

165-Tu	A Survey of Current Canadian Practice in the Care of Newborn Boys withHemophilia	Paul Moorehead	Received

165-Mo	Evaluation of methods of identifying carriers of haemophilia.	Anne Gillham	Received

166-We	Pseudotumours in mild haemophiliacs - a rare pathology.	joanna farrant	Received

168-Mo	Optimising health outcomes for childrenliving with Haemophilia in rural communitiesby forging partnerships betweenHaemophilia Treatment Teams and Local Health Networks	Anne Jackson	Received

169-We	Total Knee Replacement in patients with Hemophilia - a follow-up of 30 patients	Bjoern Habermann	Received

170-We	Autologous Chondrocyte Implantation in a patient with severe Hemophilia	Bjoern Habermann	Received

172-Mo	Using motivational interviewing techniques to enhance therapeutic relationshipswith adult and pediatric hemophilia clients	Lois Logie	Received

172-We	Iliopsoas haemorrhage in patients with haemophilia.	Denisa Jankovic	Received

173-Mo	A Successful Model of a Nursing Short Message System (SMS) for ImprovingHemophilia Care in South China	Jing SUN	Received

173-Tu	Preclinical safety pharmacology of a PEGylated variant of recombinant factor VIII	Eva Muchitsch	Received

174-Tu	Pharmacokinetics of a Recombinant Factor VIIa in Factor VIII ko Mice, Rats andMacaques	Eva-Maria Muchitsch	Received

174-We	ETPS - AN EFFECTIVE MODALITY IN CHRONIC SYNOVITIS TO ENHANCE ACTIVITY	Dr. Jayashri Kale	Received

175-Tu	Single Dose Pharmacokinetics of a PEGylated Variant of Recombinant FVIII inFactor VIII ko Mice, Rats and Macaques	Eva-Maria Muchitsch	Received

175-We	Factor IX (FIX) deficiency and a swollen knee: not always a bleed	Susan Karp	Received

176-Tu	Single Dose Pharmacokinetics of Recombinant FIX in Factor IX ko Mice, Rats andMacaques	Eva-Maria Muchitsch	Received

176-Mo	Networking in Hemophilia and other Bleeding Disorders Care:The Canada-Germany Nurse Experience	Nancy Hodgson	Received

177-Tu	Preclinical safety pharmacology of a new recombinant factor IX	Eva Muchitsch	Received

178-Mo	Self-modification of Regimens by Hemophilia Patients in Japan	Kayoko Omura	Received

178-Tu	Evolution of management of pregnancies at-risk for haemophilia in France in the last ten years: Impact of non-invasive foetal sex determination	Catherine Costa	Received

179-We	Radiosynovectomy in Chronic Recurrent Haemophilic Haemarthrosis: The NorthEastExperience.	Munir Khan	Received

180-We	Results of ankle prosthesis in patients with severe haemophilic arthropathy -follow up	Manuela Krause	Received

180-Mo	EXPERIENCE IN VENOUS CENTRAL CATHETER (PORT-A-CATH) IN PEDIATRICS, FORTREATMENT OF HEMOPHILIA AND VON WILLEBRAND DISEASE IN PANAMA.	VILLALAZ LUZ	Received

181-Mo	Experience of the use of Veinviewer for DIVA patients with hemophilia	kiyoung yoo	Received

182-Mo	Case report of Heart surgery of the patient with bleeding disorder	roxana kabiri movahhed	Received

182-We	Joint Preservation Post Ankle Arthrodesis in Hemophilia: A Review	Heidi Lane	Received

182-Tu	Observational study for improving adherence with prophylaxis in haemophilia	KAGEHIRO AMANO	Received

183-We	Outcomes in Activity, Participation and Body Structure Following AnkleArthrodesis in Persons with Hemophilia: Analyses Using the Universal DataCollection Surveillance Project	Heidi Lane	Received

183-Mo	QUALITY OF LIFE FOR PATIENTS WITH HEMOPHILIA	Glbahar Keskin	Received

184-We	Intra-Articular Hyaluronic Acid in Treating of Haemophilic Knee Arthropathy	Tsung-Ying Li	Received

184-Tu	SECONDARY PROPHYLAXIS IN ADULT SEVERE HAEMOPHILIC PATIENTS: A PROSPECTIVE STUDYIN A SINGLE CENTER.	JOSÉ ANTONIO AZNAR	Received

185-Mo	Study of adherence to prophylactic treatment in severe A haemophilic patients	JOSÉ ANTONIO AZNAR	Received

185-Tu	Pharmacokinetic-Pharmacodynamic (PK/PD) Modeling of Factor VIII (FVIII) Usingits Plasma Concentration and Global Hemostasis Biomarkers:	Donald Brophy	Received

185-We	Haemophilic Arthropathy and Health-Related Quality of Life in Haemophilic Patients in Taiwan	Tsung-Ying Li	Received

186-Tu	COMPARISON TWO LABORATORY ASSAYS IN MONITORING EFFICACY OF DIFFERENTPROPHILAXIS REGIMENS FOR SEVERE HAEMOPHILIA	Irena Djunic	Received

187-Tu	Successful Secondary Prophylaxis in Haemophilia with Inhibitors using rFVIIaThree Times per Week	Monica Martinez	Received

188-Tu	Bleeding Patterns In Severe Hemophilia A Infants and Toddlers On Prophylaxis VsOn Demand Therapy:A Prospective Randomized Observational Study	Mohsen Elalfy	Received

188-We	SUBPERIOSTEAL/INTRAMUSCULAR PSEUDOTUMOUR- SURGICAL TREATMENT BY INTRALESIONALCURRETTAGE OR WIDE EXCISION	SHUBHRANSHU MOHANTY	Received

189-We	Hemarthrosis results in an increase in Synovial Fibrinolytic activity in Hemophilia Mice	laurens nieuwenhuizen	Received

189-Mo	Multicenter study of pediatric quality of life and psychomotor development inparents of children with severe and moderate hemophilia who receive primaryprophylaxis treatment in public hospitals in Chile	Claudia Bularte	Received

190-We	Identification - and differences in expression - of the iron regulatorsFerroportin, Hepcidin, Hemoglobin Scavenger Receptor CD163, Heme Carrier Protein1, and Heme Exporter FLVCR in Healthy, Osteoarthritic, Rheumatoid, andHemophilic Synovium.	Laurens Nieuwenhuizen	Received

190-Mo	The Impact of Pediatric Psychology on Identification of Psychosocial Needs	Cathliyn Buranahirun	Received

191-Mo	Pedagogical attention programme. Results after 18 year s experience.	Patricia Cabré	Received

192-Tu	Adherence to Prophylaxis Treatment Regimens among Persons with Severe Hemophilia A and B: Results from a 1-Year, Single Institution Study	Miguel Escobar	Received

192-Mo	Social Participation in Boys with Hemophilia	Aubrey Chiu	Received

193-We	Prospective Evaluation of Safety and Efficacy of Radioactive Synovectomy with90Yttrium-Hidroxyapatite and 153Samarium-Hidroxyapatite in Chronic HemophilicSynovitis	JANAINA BOSSO J SILVA	Received

193-Tu	Prophylaxis with increasing doses, our experience about 8 cases	FAIZA MEZHOUD	Received

194-We	Conservative Treatment of Severe Knee Flexion Contracture in Two Patients withSevere Hemophilia A Patients with High-responding Inhibitors	Margareth Ozelo	Received

195-We	Surgical treatment of the hemophilic pseudotumor:a single center experience	Joannis Panotopoulos	Received

195-Mo	Childhood and subjective timings: growing up with hemophilia	Silvia Grases	Received

196-Mo	Psycho-social issues in haemophilia- 100 case studies	Naresh Gupta	Received

196-Tu	SECONDARY PROPHYLAXIS IN HEMOPHILIAC ADULTS WITH ARTHROPATHY. DESCRIPTION OF ACOHORT.	Carlos Ramírez	Received

197-Tu	SECONDARY PROPHYLAXIS WITH ANTI INHIBITOR COAGULANT COMPLEX (AICC): FROMANECDOTE TO REALITY	Maria Helena Solano	Received

197-Mo	:Psychosocial Issues-support for People With Hemophilia & their families inIndia:	Meera Suresh Hanagavadi	Received

198-Tu	Tailored primary prophylaxis with dose-escalation in Iranian haemophilia A	shirin Tehrani Tarighat	Received

198-Mo	THE PSYCHOLOGY WORK AT CENTRO DOS HEMOFLICOS DO ESTADO DE SO PAULO - CHESP	Reiko Hanashiro	Received

199-We	ULTRASONOGRAPHY PROTOCOL FOR DIAGNOSIS AND CONTROL OF ACUTE HEMARTHROSIS INHAEMOPHILIC PATIENTS	QUEROL FUENTES FELIPE	Received

200-We	Does prophylaxis have an effect on bone strength beyond physical activity?	Anne Mkipernaa	Received

201-Tu	Long-term low-dose secondary prophylaxis for severe and moderate hemophiliachildren with arthropathy: A single-center prospective study in China	Ada Xu	Received

202-Tu	Hemophilic arthropathy in pediatric patients with hemophilia A: comparison ofearly and late prophylaxis.	kiyoung yoo	Received

202-Mo	Restructuring and improving QOL in Japanese HIV victims with hemophilia andtheir families: How do we rebuild our life with effective support?	Akiko Kakinuma	Received

203-We	Bone mineral density in hemophiliac patients	Nader Roushan	Received

204-Tu	Prophylaxis vs. On Demand Treatment in Adults with Severe Hemophilia A.	Cecily Bos	Received

206-Mo	Mind Inhibitors	Walid Kobisi	Received

206-Tu	What do Canadian men living with Hemophilia need to know to facilitate optimaldisease management? A mixed methods approach	Shannon Lane	Received

207-Tu	The Effect of yoga technique on quality of life in children and adolescentswith haemophilia referring to Dastgheib hospital .1389 Shiraz University OfMedical Siences SHIRAZ-IRAN	Noushin Beheshtipoor	Received

208-We	Long-term studies of hemophilic arthropathy by Petterssons score - Evidencesthat joint damages in hemophiliacs occur predominantly in early years of life	Ming-Ching Shen	Received

208-Mo	A NEW TOOL TO ASSESS COPING AND PERCEPTION OF CHILDREN WITH HAEMOPHILIA	Perrine Limperg	Received

209-Mo	HEALTH RELATED QUALITY OF LIFE OF BOYS WITH HAEMOPHILIA AND PARENTS ILLNESS PERCEPTIONS	Perrine Limperg	Received

210-We	Age-related changes of joint status in adults with severe haemophilia in Germany	Franziska Staeuber	Received

211-Mo	Social support and economic stability as major determinants of self-esteem amongpersons with hemophilia	Marko Marinic	Received

211-Tu	Quality of life of hemophilic children on prophylactic or on demand treatmentregimens in Iran	PEYMAN ESHGHI	Received

212-Tu	The Place of the Pictorial Blood Assessment Chart in the appreciation of qualityof life in women with inherited bleeding disorders.	Anis Fadhlaoui	Received

212-We	Osteochondral lesions of the ankle joint in patients with hemophilia A. A retrospective case series.	Karen Strike	Received

213-Tu	Quality of life during menstruations in women with inherited bleeding disorders(About 31 patients)	Anis Fadhlaoui	Received

213-Mo	A 10-year follow up of an HIV/HCV co-infected hemophilia A after living donorliver transplantation	Eiichi Mizukoshi	Received

214-Mo	At a loss as to where to go from here?	Daryl Pollock	Received

215-We	Arthroscopic synovectomy with joint distraction using a patella tendon bearingbrace for severe hemophilic ankle arthropathy	YASUHITO TANAKA	Received

215-Mo	Oral Mucosal Bleeding: A Nurses View	bj ramsay	Received

216-Tu	FACTORS RELATED TO QUALITY OF LIFE IN HEMOPHILIA PATIENTS.	Miwa Goto	Received

216-We	Radiosynovectomy with Yttrium and Samarium. 488 patients/842 injections. Preliminary report on radiation safety	Sylvia Thomas	Received

216-Mo	Youth With Hemophilia In Pakistan	Sheikh Moin Riaz	Received

217-Tu	Health Related Quality of Life Among Hemophilia Patients in North East Region ofIndonesia	Stefanus Gunawan	Received

217-We	Blood coagulation aggravates joint damage after an experimental hemorrhage in acanine knee	Monique van Meegeren	Received

218-We	Four-day continuous blood exposure leads to prolonged joint damage in a caninein vivo model, whereas intermittent blood exposure does not	Monique van Meegeren	Received

219-Mo	Psychosocial Issues and support for PWH & their families in India	Meera Suresh Hanagavadi	Received

220-Mo	COMPARATIVE STUDY OF FUNCTIONING FAMILY IN PATIENTS WITH HEMOPHILIA AND OTHERFAMILIES WITH DISEASE	Ana Torres-Ortuño	Received

221-Mo	SCHOOLS OF FAMILIES FOR PARENTS OF CHILDREN WITH HEMOPHILIA	Ana Torres	Received

223-We	Experimental evaluation of cartilage damage by hematic synovitis in rabbits byNuclear Magnetic Resonance control	Ana Laura Douglas Price	Received

223-Mo	The Psychologic and Disease burden assessment in hemophilia children witharthropathy: a single-center study in China	Ada Xu	Received

223-Tu	PATIENT REPORTED OUTCOMES IN CLINICAL HAEMOPHILIA PRACTICE	Perrine Limperg	Received

224-We	PRELIMINARY RESULTS OF A PHYSIOTHERAPY PROTOCOL IN THE SECONDARY PROPHYLAXIS OFADULTS WITH HAEMOPHILA	QUEROL FUENTES FELIPE	Received

224-Tu	Income and Anxiousness of Working Hemophiliacs in Japan	Takeshi Matsumoto	Received

225-Tu	Treatment outcome in young adults survey of 8 Countries - Preliminary Results	Brian OMahony	Received

226-Mo	Auto care for childrens	YURI ANDREA ARANGO BERNAL	Received

227-Tu	HEALTH RELATED QUALITY OF LIFE (HrQoL) IN BLEEDING PROPHYLAXIS WITH AN ACTIVATEDPROTHROMBIN COMPLEX CONCENTRATE (APCC): RESULTS FROM THE PRO-FEIBA STUDY	silvia riva	Received

227-Mo	ECONOMIC AND PSYCHO-SOCIAL CARE FOR HAEMOPHILIA PATIENTS IN MARTINIQUE, A FRENCHCARIBBEAN EXPERIENCE	Serge PIERRE-LOUIS	Received

228-Tu	Linking Quality of Life Measures with the ICF/ICF-CY in Young People withHaemophilia	silvia riva	Received

228-Mo	Screening of the Von Willebrand disease in the west Algeria.	BENLALDJ DRISS	Received

229-We	A baseline assessment of physical disabilities in 372 haemophilia patients inNorthern India	Naresh Gupta	Received

229-Tu	Difficulties faced by haemophilic students in Japan	Yukiko Seki	Received

230-Tu	Description of a Canadian Cohort of Youth and Young Men with Hemophilia Based onHealth-Related Quality of Life Measures.	Jean St-Louis	Received

230-We	Hemophilia at Physical Medicine and Rehabilitation, assessment of physical,functional and psychological aspects: Prospective study conducted at Oran hospital - Algeria	khaled layadi	Received

231-Mo	SINGLE CENTRE EXPERIENCE OF THE GP1B LATEX IMMUNOASSAY AND RISTOCETIN COFACTOR ASSAY - A COMPARATIVE STUDY.	David Davies	Received

231-Tu	Impact of Life Events and Transitions on Health-Related Quality of LifeMeasurements in Youth and Young Adults with Hemophilia.	Jean St-Louis	Received

232-Tu	Quantitative word mapping of hemophiliac patients opinions based on free-answerdescriptions on a quality-of-life questionnaire	SHINOBU TATSUNAMI	Received

232-We	Assessment of Functional Independence Score In Hemophilia in Indian Children with Hemophilia	Sandeep H S	Received

233-Mo	PARAPROTEIN SPECIFIC BINDING FOR PLATELET RECEPTOR GLYCOPROTEIN Ib AS A CAUSE OFACQUIRED VON WILLEBRAND SYNDROME IN MONOCLONAL GAMMOPATHIES	Irena Djunic	Received

234-Tu	Understanding the Impact of Hemophilia on the Family: A Pilot Study of thePedsQL-Family Impact Module	Vicky Breakey	Received

234-Mo	Expression Studies of von Willebrand Factor Missense Mutations Causing Type 1 orType 2 VWD	Hamideh Yadegari	Received

235-Tu	Has the quality of life improved for children with haemophilia A?	Vaughan Williams	Received

236-We	Strength training and stretching muscles of lower limbs in patients withhemophilia and arthropathy of the ankle. A pilot study.	RUBÉN CUESTA-BARRIUSO	Received

236-Tu	HAEMO-QOL QUESTIONNAIRE FOR ADOLESCENTS: ASSESSING THE ITEM BLEEDING	Claudia Lorenzato	Received

237-Tu	QUALITY OF LIFE IN RELATION TO SOCIAL AND EMOTIONAL SELF CONCEPT AND LIFE SATISFACTION	Luis Vañó Gisbert	Received

237-We	Efficacy and safety of traction articular ankle arthropathy. A pilot study	RUBEN CUESTA-BARRIUSO	Received

238-We	Clinical improvement of chronic arthropathy of the knee with manual therapy. Apilot study.	RUBÉN CUESTA-BARRIUSO	Received

238-Tu	Swimming as a strategy to promote rehabilitation, physical fitness, mentalhealth and social inclusion to people and families suffering of Hemophilia andVon Willebrand.	YURI ANDRES ARANGO BERNAL	Received

238-Mo	A pregnant woman with von Willebrand disease (VWD) type 2B: laboratory findingsand peripartal bleeding management	Katharina Holstein	Received

239-We	In-hospital rehabilitation after multiple joint procedures (MJP) of the lowerextremities in persons with hemophilia (PWH)	Piet Kleijn, de	Received

239-Tu	Psychometric properties of the Quality of Life Questionnaire in PediatricPatients with Hemophilia Mexico (QoLHMEX)	Maricela Osorio	Received

240-Tu	Online Anthology of Individual Experiences by Girls and Women with BleedingDisorders	Cheryl DAmbrosio	Received

240-Mo	Clinical diagnosis and laboratory screening in vWD pediatric patients of theNorthwestern of Mexico	Ana Rebeca Jaloma-Cruz	Received

240-We	The Use of a Carbon-fiber Ankle Foot Orthosis and Therapeutic Exercise forManaging Pain in An Adolescent with Severe Blood-induced Ankle Joint ArthropathySecondary to Type 3 von Willebrand Disease	Sharon Funk	Received

241-We	Recovery of the gait ability after total knee arthroplasty	Minoru Kubota	Received

242-Mo	On demand therapy after ITT failure in a patient with von Willebrand diseasetype 3 and alloantibodies	Manuela Krause	Received

243-We	Use of the Exergaming (Nintendo Wii) in the Rehabilitation of Patients withHemophilia.	JANAINA BOSSO JOSÉ DA SILVA	Received

243-Tu	Prophylactic treatment in factor XI deficiency patients undergoing invasiveprocedures.	Philippe BEURRIER	Received

244-We	Postural control in children with hemophilia.	Fabio Souza	Received

245-We	Successful treatment outcome for an eight year old hemophilia boy withChronic Regional Pain Syndrome (CRPS)	Rachel Tiktinsky	Received

245-Tu	Rare Inherited Bleeding Disorders: from a single centre in Pakistan.	MUNIRA BORHANY	Received

246-Tu	Mutations causing severe Factor XIII deficiency in Pakistan	MUNIRA BORHANY	Received

247-Mo	Prevalence of von Willebrand disease in Koreans	Sangkyu Park	Received

247-We	The effect of 8-week aquatic exercise on Strength, Balance and Gait speed inhemophilia	kiyoung yoo	Received

248-We	Improvement of walking ability of three inhibitors by rehabilitation	shimokawa akikko	Received

249-Mo	Changes in von Willebrand factor level and von Willebrand activity with age in type 1 von Willebrand disease.	Natalia Rydz	Received

250-Tu	The Canadian Experience: Severe Factor V Deficiency	M Dawn Goodyear	Received

251-We	Serial casting on deformity with excercises is more effective than conventionalphysiotherapy treatment in people with hemophilia	Geeta Suri	Received

252-We	THE OXIDATIVE STRESS AND ANTIOXIDANT STATUS AT CHILDREN WITH IMMUNETHROMBOCYTOPENIC PURPURA: ENDOTHELIAL NITRIC OXIDE SYNTHASE Glu298Asp GENEPOLYMORPHISM	Saadet Akarsu	Received

253-Mo	Molecular Pathology of severe von Willebrand disease in Indian population	Shrimati Shetty	Received

253-We	NORMAL PLATELET PARAMETERS IN CHILDHOOD PERIOD FROM NEWBORNS TO ADOLESCENTS	Saadet Akarsu	Received

253-Tu	Laboratory Diagnosis of FXIII deficiency: Data from a UK NEQAS (BloodCoagulation) exercise	Ian Jennings	Received

254-Mo	Polymorphic markers in VWF gene: Application in genetic diagnosis of affectedfamilies with VWD	Shrimati Shetty	Received

255-We	Hemarthrosis an Unusual Presentation of Glanzmanns thrombasthenia	Bijan Keikhaei	Received

256-Tu	Inherited Factor VII deficiency - perioperative replacement therapy is notnecessary in most cases	Robert Klamroth	Received

256-Mo	Development of an automated VWF:RCo assay for measuring plasma samples with lowactivity	Peter L. Turecek	Received

257-Mo	Analysis of the French cohort of 65 patients with type 2N von Willebrand diseaseidentifies distinct molecular/clinical entities.	Agnès VEYRADIER	Received

258-Mo	French cohort of 37 patients with type 3 von Willebrand disease: molecular andclinical features	Agnès VEYRADIER	Received

258-We	Identification of 5 new mutations in 9 Glanzmann Thrombasthenia patients	Ann-Kathrin Pilgrimm-Thorp	Received

259-Tu	Factor XIII deficiency in Sistan and Baluchestan of Iran	Majid Naderu	Received

260-Tu	Frequency & clinical spectrum of rare bleeding disorder in Pakistan,A multi centre study	Arshi Naz	Received

260-We	Neurosurgery in a patient with Bernard-Soulier Syndrome	Elianna Saidenberg	Received

261-Mo	Persistent acquired von Willebrand disease cases despite underlying neoplasmaremission.	Maria Eva Mingot Castellano	Received

261-Tu	PROPHYLACTIC TREATMENT WITH ACTIVATED PROTHROMBIN COMPLEX CONCENTRATE IN APATIENT WITH SEVERE FACTOR X - FX- DEFICIENCY.	Jorge Peña Siado	Received

262-We	5 years Treatment report of hospitalized children with Glanzmannsthrombasthenia in a comprehensive hemophilia care center (2006-2011)	PEYMAN ESHGHI	Received

262-Tu	Phenotypic classification of the mutations in coagulation factor IX segregate to different locations in its protein structure	Pavithra Meena Rallapalli	Received

262-Mo	Thrombosis in patients with von Willebrands disease	Mirjana Mitrovic	Received

263-Mo	Pregnancy outcomes in women with, and carriers of, inherited bleeding disordersin a London obstetric unit with Haemophilia Comprehensive Care Centre.	Imelda Balchin	Received

264-Tu	Genotype-Phenotype correlation in families with mild factor VII deficiency	federica riccardi	Received

265-Mo	CODEROUGE 2012 - 1st CANADIAN CONFERENCE ON BLEEDING DISORDERS IN WOMEN	Clare Cecchini	Received

265-We	Physical and psychosocial benefits of exercise for patients with haemophilia	Lisa Blain	Received

266-We	Haemophilia & Exercise Project (HEP): Subjective and objective physical performance in adult haemophilia patients after one year sports therapy programme	Doerte Czepa	Received

268-Tu	THROMBOSIS OF THE ABDOMINAL AORTA IN CONGENITAL AFIBRINOGENEMIA.	Maria Teresa sartori	Received

268-We	Development of a bleeds risk calculator	Rob Herbert	Received

269-Mo	Current Postpartum Treatment Strategies for Von Willebrand Disease May NotAdequately Replace von Willebrand Factor	Andra James	Received

269-Tu	Efficacy of a Recombinant ADAMTS13 in a Mouse Model of ThromboticThrombocytopenic Purpura	Eva-Maria Muchitsch	Received

270-Mo	Pregnancy outcome of women with congenital bleeding disorders managed bymultidisciplinary team in a UK Haemophilia Comprehensive care centre over 3-yearperiod	DEEPA ARACHILLAGE	Received

270-Tu	Delayed vitamin k deficiency related bleeding : is it genetically linked ?	Shrimati Shetty	Received

270-We	Patterns of physical activity in Australian children with haemophilia.	Jane Latimer	Received

271-Tu	Intracranial hemorrhage in an infant with severe Factor V deficiency	Jayson Stoffman	Received

271-We	Quantifying the challenge: Proposal for evaluation of musculoskeletal system inswimmers with hemophilia undergoing intensive training.	MARIA MATILDE ROSAS CHACON	Received

272-Tu	Factor XI deficiency: importance of von Willebrand factor level on haemorrhagicphenotype.	Fabienne VOLOT	Received

272-We	Importance of Youth Groups in an National Member Organization	MUKESH GARODIA	Received

274-Mo	Haemostatic Variations in Normal Women: The Role of Electronic Bleeding Questionnaire, Electronic Pictorial Chart and a Global Haemostatic Assay in Predicting Mild Bleeding Disorders in Women	Kimberly MacEachern	Received

274-We	Understanding health and treatment decision making among youth with hemophilia:a qualitative approach	Shannon Lane	Received

275-We	Participation of Children in National Haemophilia Conferences	Brian OMahony	Received

275-Mo	Hematological and Gynecological Assesment in Haemophilia Carriers	Carlos Ramírez	Received

276-Mo	Successful IVF and pregnancy in Glanzmanns thrombasthenia under cover of recombinant factor VIIa	Peter Staritz	Received

276-Tu	Molecular analysis of congenital factor XI deficiency by High-Resolution Melting	federica riccardi	Received

277-Mo	A Strategy for Women with Bleeding Disorders The Irish Experience	Debbie Greene	Received

277-We	A Feasibility Study of Managing Hemophilia Online, An Internet-basedself-management and transitional care program for teens.	Vicky Breakey	Received

278-Tu	Are They Really Rare?Prevalence of Rare Bleeding Disorders (RBDs) in North East of Iran	Zahra Badiei	Received

279-We	Patients attitude to dental care	Andrew Brewer	Received

296-LB	Evaluation of a 4-year External Quality Assessment Program on the Laboratory Diagnosis of Hemophilia in Brazil	Silmara Aparecida Lima	Received

WFH 2012 World Congress

8-12 July, 2012 Paris, FRANCE



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