0-W-P | Evaluation on effects of early home treatment of bleeding in hemophilia patients | Nguyen Thi Mai | Received |
1-T-P | Successful carrier identification by messenger RNA analysis for one hemophilia A family without found DNA mutations | Chia-Yau Chang | Received |
1-M-MP | Severe bleeding diatheses in two patients with autoantibodies against factor XIII A subunit | KRISZTINA PÉNZES | Received |
1-LB-P | Body mass index was found to be the best predictor for the pharmacokinetics of recombinant factor VIII | Alison Plummer | Received |
1-W-P | Safety of long-term prophylaxis with BAY 94-9027: interim results of 5 years of treatment in the PROTECT VIII extension trial | Ana Russell | Received |
2-LB-P | Combining Data from Hemophilia Registries; A Proof of Concept Study | Mayss Naccache | Received |
2-T-P | Psychological profile of carriers and need for active genetic counseling for female family members of hemophilia. | Hugh Kim | Received |
3-T-P | A mother of a sporadic hemophilia A patient was carrying two different mutations which were in different origin of X chromosome | Keiko Shinozawa | Received |
3-M-P | An evaluation of hemostatic abnormalities in patients with hemophilia according to the activated partial thromboplastin time waveform | Takeshi Matsumoto | Received |
3-W-P | Does the use of an online screening tool affect referral outcomes? Preliminary results of the Lets Talk Period project | Julie Grabell | Received |
4-M-P | The result of Chinese acquired hemophilia registry(CARE):conditions and challenges | Boyang Sun | Received |
4-T-P | Genetic evaluation of sporadic hemophilia through carrier diagnosis in Japan | Keiko Shinozawa | Received |
4-W-P | Individualized prophylaxis can contribute to decreasing annualized bleeding ratio (ABR) in adult persons with hemophilia A | Teruhisa Fujii | Received |
5-W-P | The correlation between overall haemostatic potential with bleeding severity in haemophilia A | Danijela Mikovic | Received |
5-T-P | HEMOPHILIA A CARRIER DETECTION IN NATIONAL INSTITUTE OF HEMATOLOGY AND BLOOD TRANSFUSION, HANOI, VIETNAM | Nguyen Thi Mai | Received |
6-W-P | Platelet rich plasma for synovitis treatment: 1 year follow up | Maria Landro | Received |
6-T-P | Managment of deliveries in carriers for haemophila A and low FVIII levels with recombinant FVIIIFc fusion protein | Susan Halimeh | Received |
7-W-P | Demographics of haemophilia in the Ivory Coast in 2017. Data collection in the setting of the WFH twinning program. | Catherine Lambert | Received |
7-T-P | Identification of and Recommendations for At-Risk Female Relatives of Pediatric Hemophilia Treatment Center Patients | Katie Bergstrom | Received |
7-M-P | Acquired hemophilia A: a benign chronic disease? | Filipa Santos | Received |
8-T-P | Characterization of hemophilia carrier status in women of childbearing age: the experience of the Hub Hemophilia Center of Parma (Emilia-Romagna Region, Italy) | FEDERICA RICCARDI | Received |
8-W-P | Surgical prophylaxis using long acting factor concentrate in a cohort of haemophilia patients | Aby Abraham | Received |
9-W-P | Continued benefit demonstrated with BAY 81-8973 prophylaxis in children with severe hemophilia A: interim analysis of the LEOPOLD Kids extension study | Gili Kenet | Received |
9-T-P | The Differences Between Intracranial Hemorrhage in Hemophilia A and Hemophilia B and Its Outcome | Basak Koc | Received |
9-M-P | Lessons from a systematic review of recombinant factor VIIa in acquired hemophilia | Sharon Eastwood | Received |
10-M-P | Ischemic events are rare among ageing patients with hemophilia: results of a cross-sectional study from at centers treating hemophiliacs in Japan | Azusa Nagao | Received |
10-T-P | Prevalence of adult-onset medical comorbidities in Korean Hemophliacs and active intervention via WEB-based monitoring | Hugh Kim | Received |
10-W-P | BAY 94-9027 prophylaxis improves quality of life: Haemo-QoL-A data from the PROTECT VIII study | Ana Russell | Received |
11-M-P | Pigs with Von Willebrand disease show altered expression of VEGF and VEGFR-2 in the gastrointestinal tract | Carsten Detering | Received |
11-T-P | Comorbidities in hemophilia patients | Anabela Aires | Received |
11-W-P | A prospective randomized double blind trial of celecoxib versus acetaminophen in haemophilic arthropathy | Aby Abraham | Received |
12-M-MP | Reduced cardiovascular events in haemophilia - results from a 5 year prospective study | Paul van der Valk | Received |
12-T-MP | Prevalence of depression and anxiety disorders in patients with hemophilia: A nationwide cohort study | Yung-Chieh Huang | Received |
12-W-P | Efficacy of twice-weekly prophylaxis with BAY 81-8973 in Chinese patients with severe hemophilia A enrolled in the LEOPOLD II trial | Ana Russell | Received |
13-M-P | The Association Between Hepatitis C and Elevated Blood Pressures in Patients with Hemophilia | Richard Barnes | Received |
13-W-MP | mRNA Analysis and Multiplex Ligation-dependent Probe Amplification in Hemophilia A Patients without Mutation in Genomic DNA | Yeu-Chin Chen | Received |
13-T-MP | The WFH World Bleeding Disorders Registry | Mayss Naccache | Received |
14-T-P | CBDR and MyCBDRAdvancing Hemophilia Nursing Practice in Canada | Chris Czaniecki | Received |
14-W-P | Germline and somatic mosaicisms of factor VIII gene mutation identified in an asymptomatic grandfather | Ming-Ching Shen | Received |
14-M-P | Cardiovascular Risk Factors in Patients with Haemophilia | Ludmila Elhelou | Received |
15-M-P | Pulmonary vein isolation in patients with hemophilia or von Willebrand disease: A feasible option, but mind the groin. A case serie. | Paul van der Valk | Received |
15-W-P | F8 and F9 gene mutations profile in haemophilia patients | Margarida Antunes | Received |
15-T-P | Korea Hemophilia Foundation Registry Trends 1991-2016: Patient registry and demographics, with the changes of hemarthropathies, contagious diseases, and inhibitor incidence | Soon Ki Kim | Received |
16-T-P | Development of a Prospective, Outcomes-Based Bleeding Disorders Registry: A Pilot Study | Nur Insyirah Abdul Kadir | Received |
16-M-P | Coronary artery bypass surgery in patients with haemophilia B | Theoni Kanellopoulou | Received |
17-W-P | Molecular genotyping of hemophilia C in Poland | Edyta Odnoczko | Received |
17-T-P | A Retrospective Data Review of Haemophilia patients registered at Haemophilia centers across Czech Republic (CR) since the past 6 years | Arun Jayarame Gowda | Received |
17-M-P | Reducing unnecessary coagulation testing in outpatients: A quality improvement project | Fatima Khadadah | Received |
18-M-P | Study of fibrin clot ultrastructure of varying concentrations of FVIII deficient plasma using scanning electron microscopy | Rachelle Li | Received |
19-W-P | Missense mutations and predicted effects on splicing in Factor XI deficiency | FEDERICA RICCARDI | Received |
20-M-P | Use of High-Purity Factor X (Coagadex) for On-demand Treatment of Bleeding Episodes in Factor X Deficient Patients: Results from a Multicenter, Retrospective, Data Collection Study | rick Kemmerer | Received |
20-W-P | Correlation between Genotype and Phenotype in Hispanic Patients with Hemophilia A | Laura Villarreal Martinez | Received |
21-M-P | Recombinant FVIIa therapy for heavy menstrual bleedings in patient with severe FV deficiency | ZHRE KAYA | Received |
22-T-P | Overview of severe Haemophilia A treatment from a single European Centre | Eugénia Cruz | Received |
22-W-MP | Hemarthrosis in FVIII-Deficient Mice Causes Systemic Gene Expression Changes that are Improved with FVIII Prophylaxis | Esther Cooke | Received |
23-W-MP | Effects of Prophylactic Clotting Factor Replacement on Synovial Gene Expression after Hemarthrosis in FVIII-Deficient Mice | Esther Cooke | Received |
23-M-MP | Molecular Design of MG1121, a Novel vWF-Independent Long-Acting FVIII | Injae Oh | Received |
24-M-P | Risk of inhibitor and purity of FVIII: the apparent paradox of plasma derived concentrates? | Yves GUILLAUME | Received |
25-T-P | Evolution of Korea Hemophilia Foundation for twenty five years; role in hemophilia care in Korea | Hwi-Joong Yoon | Received |
25-W-P | Investigating the genetic variations of antiphospholipid syndrome by high-throughput exome sequencing | JI YOON KIM | Received |
25-M-P | Real-World expenditures associated with Prophylactic Factor IX replacement in Severe Hemophilia B patients in the US: A comparison between standard and extended half-life products | Bill DeVita | Received |
26-W-P | Correlation of Large Mutations with Inhibitor Development in Cases with Hemophilia A | Nuzhat Husain | Received |
26-T-P | Central line placement challenges and management heterogeneity in pediatric patients with hemophilia | Loren DAngelo | Received |
27-W-P | 3D Structure prediction of the (FVII) coagulation factor with a novel mutation and its potential repercussions on the proteins interactions | amira amira | Received |
28-W-MP | Use of rotational thromboelastometry to monitor boys with severe haemophilia A and inhibitors on treatment with emicizumab | Saket Badle | Received |
29-M-P | Bayesian pharmacokinetic individualization of prophylaxis with recombinant factor VIII in severe or moderate hemophilia A | Juan Eduardo Megías-Vericat | Received |
29-T-P | Clinical efficacy of recombinant factor VIII Fc fusion protein in hemophilia A patient receiving on demand treatment only, a cross sectional study | Tahira Zafar | Received |
30-W-P | Assays for von Willebrand factor (VWF) a need for further standardisation? | Ian Jennings | Received |
30-T-P | SPINAL EPIDURAL HEMATOMA IN HEMOPHILIA | zlem arman bilir | Received |
31-M-P | Scottish experience introducing extended half-life factor concentrates in Haemophilia A and Haemophilia B patients. | David McLaughlin | Received |
32-M-P | Annualized Bleeding Rates: their importance, implication and impact from a Regulatory perspective | Christine Keipert | Received |
32-T-P | Muscle hematomas in patients with hemophilia. Experience in a Comprehensive Hemophilia Treatment Center in Colombia. | Augusto Posada | Received |
33-W-P | Truncated live calibration in one-stage and chromogenic assays improves accuracy and precision | Susan Guy | Received |
34-W-P | Mixing based Inhibitor Screening in Hemophilia A: Challenges in interpretation | NAMRATA AWASTHI | Received |
35-M-P | An en-masse switch to extended half life recombinant factor IX replacement therapy in Irish adults with Haemophilia B | Niamh OConnell | Received |
35-T-P | Epidemiology of a population with hemophilia in Colombia: pharmacotherapy and sequelae. | Jorge Machado-Alba | Received |
37-W-P | Musculoskeletal Ultrasound Reveals that Patient-Derived Symptom Assessment Questionnaires are Unreliable for the Diagnosis of Hemarthrosis in Patients with Hemophilia | Srila Gopal | Received |
37-T-P | Optimal management of haemarthrosis in patients with hemophilia in emergency room | Jose Luis Lopez | Received |
37-M-P | A companion protein, click chemistry approach to extended half life FVIII | James Kelly | Received |
38-W-P | Intracranial Hemorrhage in Young Children with Hemophilia: A Report of Hemophilia Study Group of Taiwan Society of Hemostasis and Thrombosis. | Te-Fu Weng | Received |
39-T-P | Central nervous system bleeding in children with hemophilia | Patcharee Komvilaisak | Received |
40-T-P | Inherited bleeding disorders in women | Anabela Aires | Received |
41-W-P | Bone Health screening and treatment in a complete cohort of patients with severe haemophilia in a single national comprehensive care centre. | Niamh OConnell | Received |
41-T-P | Clinical screening for underlying bleeding disorder in Nigerian women | Theresa Nwagha | Received |
41-M-P | Combined therapy of plasma derived FVIIa/FX and recombinant FVIIa was highly effective in 2 cases of hemophilia with inhibitor | Yushi Chikasawa | Received |
42-W-P | Severe subgaleal hemorrhage is the first clinical manifestation of neonatal hemophila A: report of two cases. | Bunchoo Pongtanakul | Received |
43-M-P | Development of a Bayesian model for plasma-derived factor VIII/VWF | Juan Eduardo Megías-Vericat | Received |
44-T-P | High-risk neuroblastoma managed with aggressive treatments including surgery, chemotherapy and autologous hematopoietic transplantation, in which severe hemophilia A wasnt an aggravating factor of prognosis | Sara Morais | Received |
44-W-P | Complications of Haemophilia in First Years of Life: a Single Center Report | Ludmila Elhelou | Received |
46-M-P | Efficacy of Rifampicin for Chemical Synoviorthesis in Target Joints in Patients of Hemophilia: A single centre experience from Pakistan | Lubna Zafar | Received |
46-W-P | Iliopsoas as a bleeding site of hemophilia | Aimee Olivat Rakoto Alson | Received |
47-W-P | Clinical spectrum of intracranial bleeds in patients with bleeding disorders at a tertiary care center in Karnataka | Meera Varadarajan | Received |
47-M-P | BONE PROPERTIES IN CHILDREN WITH HAEMOPHILIA A ASSESSED BY WHOLE BODY AND SPINAL DXA: COMPARISON WITH pQCT MEASUREMENTS | Panagiota Xafaki | Received |
47-T-P | Clinical effectiveness of recombinant activated factor VII in bleeding disorders | Sharon Eastwood | Received |
48-T-P | Barriers for fast treatment of bleeds and challenges in the non-haemophilia treatment centre hospital setting | Caroline Cook | Received |
48-M-P | Haemophilia Joint Health Score in Children with Haemophilia on Prophylaxis (Preliminary Study) | Helen Pergantou | Received |
48-W-P | The spectrum of inherited coagulation disorders and their symptoms and treatment strategies among female patients in a developing country; one centre study | Tahira Zafar | Received |
49-T-P | Population PK is the useful kit to determine hemostatic control schedule for surgery in hemophilia | Kumiko Ono | Received |
49-M-P | Molecular analysis and clinical assessment of severe haemophilia B in Poland | Anna Buczma | Received |
50-M-P | Comparisons in physical activity and bleed rate among severe hemophilia A and B patients on prophylactic treatment with rFVIIIFc/rFIXFc vs conventional rFVIII/rFIX | Nanxin Li | Received |
50-T-P | Joint outcomes of the elbow, knee and ankles evaluated by Hemophilia Joint Health Score in patients with hemophilia : Trends by age and clinical predictors | Chia-Yau Chang | Received |
51-W-P | Prednisolone treatment does not regulate FVIII expression in mice treated with valoctocogene roxaparvovec (BMN 270) | Aji Nair | Received |
51-T-P | Risk of Deep Venous Thrombosis after Total Knee Arthroplasty in patients with haemophilia A | Kumiko Ono | Received |
52-M-P | Turoctocog alfa is stable during storage at 40C and multiple sequences of temperature cycling | Alison Plummer | Received |
52-T-P | Muscle function of the upper limb in patients with hemophilia: results of surface electromyography (sEMG) analysis | Axel Seuser | Received |
53-T-P | Outcomes Following Total Joint Arthroplasty in Persons with Hemophilia: Analyses Using the CDCs Universal Data Collection Surveillance Project | Heidi Lane | Received |
54-W-P | THE EMERGING ROLE OF VIRTUAL REALITY PLATFORMS IN PHYSIOTHERAPY REHABILITATION FOR HEMOPHILIA PATIENTS | Alheli Lucia Bremer | Received |
54-T-P | Bilateral, Simultaneous Total Knee Replacement (TKR) Surgery for Hemophilia A with Eloctate A Feasible and Cost Effective Approach | SHASHIKANT APTE | Received |
55-T-P | Is it possible to forget the joint after total knee replacements in hemophiliacs? | Elcil Kaya Bicer | Received |
56-T-P | 18F-FDG PET/CT Imaging of Hemophilic Arthropathy Correlates with Power Doppler Ultrasonography | Tsung-Ying Li | Received |
57-W-P | Stability of reconstituted eptacog alfa (activated) in automated infusion pump | AXON Communications | Received |
57-T-P | Medial Patellofemoral Ligament Lesion in Patients with Hemophilia | Maria Eulalia Landro | Received |
58-T-P | Arthroscopic Treatment of Anterior Ankle Osteophyte in Patients with Haemophilia | Horacio Caviglia | Received |
58-W-P | Screening of Bleeding Disorders in School-Age Children by Using Thai Pediatric Bleeding Questionnaire (TPBQ) | Nongnuch Sirachainan | Received |
59-T-P | Total bilateral knee replacement in severe haemophilia arthropaty with flexion contracture | Horacio Caviglia | Received |
59-M-P | Agreement between a chromogenic modified Nijmegen-Bethesda Assay and a qualitative ELISA test in detection of Factor VIII inhibitors in plasma from Persons with Hemophilia A (PwHA) | Elaine Benoit | Received |
60-W-P | A Tale of Two Cities - Comparison of Perioperative Practices for Placement of Central Venous Access Devices (CVAD) in Paediatric Haemophilia Patients | JOYCE LAM | Received |
60-T-P | Application of Botulinum toxin type A for the treatment of knee flexion contracture in PWH Is it a useful treatment ? | Carla Daffunchio | Received |
60-M-P | Determinants involved in the development of inhibitors in patients with hemophilia in Colombia: A nested case-control study | Jorge Machado-Alba | Received |
61-M-P | Prevalence of FVIII Inhibitors in Cases with Hemophilia A receiving on- demand therapy | SANYA ARSHAD | Received |
62-T-P | Experience on the utility of the HEAD US method in the assessment of patients with hemophilia in a University Hospital at Bogotá, Colombia in 2017 | David Gomez | Received |
62-W-P | Fibrinolysis defects in adolescents with excessive menstrual bleeding (EMB) | NOEMI AGUIRRE | Received |
63-M-P | Implementation of Immune Tolerance Induction among Hemophiliacs with High Inhibitor using Blood Products ranging from Lyophilized Cryoprecipitate to Fc Fusion Recombinant Concentrate | Ampaiwan Chuansumrit | Received |
63-W-MP | Evaluation of the effect on endogenous factor VIII activity (FVIII:C) after recombinant von Willebrand factor (rVWF) administration during the elective surgery study in patients with severe von Willebrand disease (VWD) | Margit Rezabek | Received |
63-T-P | Knee Fat Pad Volumes in Patients with Hemophilia and their Relationship with Osteoarthritis | Richard Barnes | Received |
64-M-P | Successful Use of a Plasma Derived VWF/FVIII Product in the Treatment of High and Low Titre Inhibitors in Hemophilia A | Heather Perkins | Received |
65-W-P | Data Collected at USA National Type 3 Von Willebrand Disease Conference | Jeanette Cesta | Received |
66-W-P | The Management of Menorrhagia in Von Willebrand Disease: Single Center Experience | Can Balkan | Received |
66-M-P | Hospitalizations and bleeding managements for hemophilia patients with inhibitors in a tertiary care center of Korea. | Jung Woo Han | Received |
67-T-P | Regaining mobility after stiff total knee replacements in hemophiliacs | Elcil Kaya Bicer | Received |
67-M-P | Prevalence of the inhibitor in people with hemophilia in Tunisia | hejer Elmahmoudi | Received |
68-W-P | Why we have to suspect and diagnose von Willebrand disease in early life? | KUN LEE | Received |
68-T-P | Complications of ankle arthroscopy synovectomy | Horacio Caviglia | Received |
69-W-P | Using ISTH-BAT Bleeding Scores to predict type of Von willebrand disease | Darintr Sosothikul | Received |
70-M-P | Long term experience on bleeding control effect with activated prothrombin complex concentration a child with hemophilia B and inhibitor | Alphan Kupesiz | Received |
71-M-P | Critical assessment of the methodologies used to collect data in congenital hemophilia with inhibitors: lessons learned from a systematic literature review on recombinant FVIIa | Sharon Eastwood | Received |
71-T-P | Does the arthroplasty meet the expectations in haemophilic patients? | Daniel Zaldumbide | Received |
71-W-P | VON WILLEBRAND DISEASE:A SINGLE-CENTER EXPERIENCE | Serap Karaman | Received |
72-M-P | Outcomes of Haemophilia A patients who develop inhibitors in Australia between 1996 and 2016 | Sumit PARIKH | Received |
72-W-P | Outreach of the von Willebrand disease in Tunisia. | Hejer Elmahmoudi | Received |
72-T-P | In situ release of ulnar nerve tunnel syndrome in haemopiliac patients | Horacio Caviglia | Received |
73-T-P | Ankle impingement, open or arthroscopic synovectomy. | Horacio Caviglia | Received |
73-W-P | Identifying inherited bleeding disorders in women presenting Menorrhagia without organic cause in Colombia. | Sergio Hinestroza Lamus | Received |
74-T-P | Low Bone Mineral Density and Associated Factors in Patients with Hemophilia in Colombia. | Claudia Sossa | Received |
75-T-P | Total bilateral total arthroplasty in severe hemophilic arthropathy with inhibitors; Report of two cases | Jonathan Gonzalez_Martinez | Received |
76-M-P | Immune Tolerance Induction with moroctocog-alpha (Refacto/Refcto AF) in a population of haemophilia A patients and high-titre inhibitors: data from the REF.IT Registry | Samantha Pasca | Received |
77-M-P | Economic impact of recombinant factor VIII Fc fusion protein (rFVIIIFc) compared to conventional factor VIII for immune tolerance induction (ITI) in Hemophilia A patients with inhibitors | Nanxin Li | Received |
78-T-MP | Uptake of subsidised Hepatitis C direct acting antiviral treatment among patients with bleeding disorders in Australia | Sumit PARIKH | Received |
78-M-P | High risk of intracranial haemorrhage in adult mild haemophiliac patients: data from the EMO.REC Registry | Samantha Pasca | Received |
79-W-P | Knowledge Transfer of Musculoskeletal (MSK) Outcome Measures (OMs) to Improve Assessment of MSK disease in Persons with Hemophilia (PWH) | Rungrote Natesirinilkul | Received |
81-W-P | A Single Centre Study to Investigate the Impact of Autism on the Management of Severe Haemophilia in Children | Clare James | Received |
81-M-P | Application of a DDAVP test regimen in adult hemophilia A patients utilizing subcutaneous administration | Deborah Gue | Received |
82-T-P | Cross-cultural adaptation of a Quality of Life measure (CHO-KLAT) for boys with haemophilia in the Ivory Coast. | Catherine Lambert | Received |
82-W-P | Delivering Clinical Trial Opportunities At A Haemophilia Treatment Centre | Sarah Johns | Received |
83-M-P | Single centre experience of switching from standard half-life to extended half-life products in patients with severe haemophilia A and B | Jayanthi Alamelu | Received |
83-T-P | Outcome of perioperative hemostatic management in patients with hemophilia without inhibitors undergoing 161 invasive or surgical procedures | Jiaan-Der Wang | Received |
84-M-P | An Observational study to evaluate hemostatic action of Velseal - T in hemophilia patients with external bleeding | Anupam Dutta | Received |
85-M-P | Experience of major orthopaedic surgery in Severe Haemophilia A with extended half life FVIII product | Mahmoud Hellal | Received |
85-W-P | Use of ultrasound for assessment of musculoskeletal disease in persons with hemophilia: Results of a global survey | Saunya Dover | Received |
86-W-P | Girdlestone procedure in a 50 year old woman with Type 3 von Willebrand Disease (VWD) reducing pain, restoring function and maintaining independence: the value of patient-centered care by the Multidisciplinary Team (MDT) | Thuvia Flannery | Received |
86-M-MP | Do dental students have sufficient knowledge and confidence to manage patients with inherited bleeding disorders? A comparison between students in the UK and Brazil | Rajaishree Armugam | Received |
87-W-P | Impact of a nursing home support program for prophylactic factor administration in children with severe haemophilia | Mark Belletrutti | Received |
87-T-MP | UKPK trial interim analysis: Use of Pharmacokinetic interventionto optimise Factor VIII prophylaxis in severe haemophilia A | Saket Badle | Received |
88-W-P | How good a healthcare professional should be? An empirical study on the acquired and required psychosocial competences for comprehensive haemophilia care | Sonia Brondi | Received |
88-M-P | IMPACT OF FIBRIN GLUE APPLICATION ON ORAL CAVITY BLEEDING IN PATIENTS WITH INHERITED BLEEDING DISORDERS (IBD) IN A RESOURCED LIMITED SETTING | Shabneez Hussain | Received |
90-M-P | Dental care program in early chilhood on patients with bleeding disorders in Tabasco, Mexico. | Laura Beatriz Isidro Olan | Received |
90-W-P | The measurement of therapeutic relationship in the care of patients with haemophilia: a scoping review | Erin McCabe | Received |
91-M-P | Prevalence of gingivitis in a von Willebrand disease population of Tabasco, México. | Laura Beatriz Isidro Olan | Received |
91-T-P | Optimizing the treatment: the precision medicine using MyPKfit in a population of patients with moderate or severe hemophilia A | Samantha Pasca | Received |
92-M-P | Dental Implants in a patient with Glanzmann Thrombasthenia | Miryam Parreira | Received |
92-T-P | Predictable and reliable individualized pharmacokinetic profiling for BAY 94-9027 using population pharmacokinetics analysis | Ana Russell | Received |
93-M-P | An Option to Deal with Orthodontists Challenges: Mini Screw in patients with Hemophilia | Miryam Parreira | Received |
94-M-P | A Preventive Project for Patients with Hemophilia | Miryam Parreira | Received |
94-T-P | Pharmacokinetic predictions of N8-GP show that patients dosed every 34 days in all age groups had factor VIII (FVIII) activity levels above 5 for the majority of treatment intervals | Alison Plummer | Received |
95-T-P | Use of the WAPPS model for BAY 81-8973: external validation of the Web-Accessible Population Pharmacokinetic Service - Hemophilia (WAPPS-Hemo) platform to determine individual BAY 81-8973 pharmacokinetics | Josh Silvertown | Received |
95-M-P | Oral Health and Management of the Challenging Bleeding Disorder in Saudi Arabia | Zikra Alkhayal | Received |
96-W-P | Evaluation of healthcare resources for haemophilia in the UK 2017-2018 | Cathy Harrison | Received |
97-M-MP | Simple and fixed N8-GP dosing regimen associated with measurable trough levels and low annualised bleed rates in children and adolescents/adults treated with N8-GP prophylaxis | Alison Plummer | Received |
98-W-MP | Utilization of a Virtual Reality based tool in Hemophilia Education | Dominder Kaur | Received |
98-M-MP | Low Dose (20 iu/kg/week),Single Infusion Prophylaxis Using Long Acting FVIIIc (ELOCTATE) in Severe Hemophilia A | SHASHIKANT APTE | Received |
99-W-MP | A novel patient educational strategy for families with children with hemophilia | Tongpil Min | Received |
99-T-P | Comparison of Platelet Nucleotide Assays and Lumiaggregometry in the Diagnosis of Storage Pool Disorder | Hanna Renshaw | Received |
99-M-MP | Influence of Age of Prophylaxis Initiation on Hemophilia Joint Health Scores in Hemophilia A | Beth Boulden Warren | Received |
100-W-MP | Newly Diagnosed Family weekends | Tracy Hyland | Received |
100-T-P | Determination of effective vitamin K concentrations to reverse the coagulation phenotype in VKCFD1 patients | Suvoshree Ghosh | Received |
101-T-P | A novel FGG missense mutation possibly leading to fibrinogen storage disease | Marie-Claude Pelland-Marcotte | Received |
101-M-P | Results from a prospective, dose escalating, prophylaxis study in young boys with severe hemophilia A in China: the China Hemophilia Individualized Prophylaxis Study (CHIPS) | Jia Shi | Received |
101-W-MP | Evaluation of a program to improve identification of new hemophilic patients in Mali: Lessons and Challenges. | DIALLO Yacouba L. | Received |
102-W-MP | Patient perspectives on and preferences for future treatments for haemophilia | Erna van Balen | Received |
102-T-P | Novel approaches to the diagnosis and classification of anti-FXIII allo-, and autoantibodies | László Muszbek | Received |
103-W-P | Bleeding Disorders Education Day for School Nurses | Ruthrolen Martinez | Received |
103-T-P | Retrospective evaluation of phenotype and management of A/Hypo-Fibrinogenemia in a cohort of Italian patients | Cristina Santoro | Received |
104-T-P | Retrospective evaluation of phenotype and management of Dysfibrinogenemia and Hypodysfibrinogenemia in a cohort of Italian patients | Cristina Santoro | Received |
105-T-P | Collaborative Crowd Advocacy for Families with Rare Diseases For Molecular Diagnostic Services | Janet Brewer | Received |
105-W-P | Educational Puppets for Hemophilia: The old versus the new | Tammy Bourque | Received |
106-W-P | Development, Evaluation and Updates of HIRT? (Hemophilia Injury Recognition Tool) | JoAnn Nilson | Received |
107-W-P | Experience of basic course of physical therapy in haemophilia in South America | Carlos Cruz | Received |
107-M-P | Prophylactic Care of Adult Patients with Hemophilia A National Survey on Physician Perspectives | Avery Longmore | Received |
107-T-P | Clinical outcomes of prophylaxis in patients with rare bleeding disorders in southern Iran | Mehran Karimi | Received |
108-M-P | Cost-effectiveness of efmoroctocog-alpha in the treatment of severe haemophilia A patients: a single Centre experience | Samantha Pasca | Received |
108-W-P | eLearning of pharmacokinetic monitoring in hemophilia with application in the clinical practice | Juan Eduardo Megías-Vericat | Received |
110-W-P | Von Willebrand in Pictures | Sue Ann Hawes | Received |
110-T-P | CONGENITAL RARE FACTOR DEFICIENCIES: A SINGLE-CENTER EXPERIENCE | Zeynep Karakas | Received |
111-W-P | Bringing families affected by Factor XIII deficiency together for a novel educational program | Sarah Waite-Ardini | Received |
112-W-P | Factor X deficiency consumer education programs inaugural year | Sarah Waite-Ardini | Received |
112-M-P | Clinical Audit of low dose prophylaxis in Nigerian children with Haemophilia | Theresa Nwagha | Received |
113-W-P | Inhibitor Teams: building stronger connections and deeper learning | Sarah Waite-Ardini | Received |
113-T-P | Clinical Spectrum of the Rare Autosomal recessive Bleeding Disorders from a tertiary center in South India | Meera Varadarajan | Received |
114-W-P | The age of Technology: Skype Vs face to face teaching | Trupti Bhandari | Received |
114-T-P | Genotype and phenotype relationships in 25 Tunisian patients with inherited factor VII deficiency | Ouardani Cherifa | Received |
115-M-P | Daily Prophylaxis in Pediatric Patients with Severe Hemophilia A | Celina Woo | Received |
115-T-P | Overview of clinical and epidemiological characteristics of factor XI deficiency in 24 Tunisian patients | Maroua Gharbi | Received |
116-T-P | Bleeding frequencies and Hospitalizations in rare bleeding disorders | Jung Wan Han | Received |
117-M-MP | A Canadian perspective: use of the self-report VERITAS-Pro to document adherence levels in individuals with hemophilia on prophylaxis | Erica Crilly | Received |
118-M-P | Adherence rate among severe hemophilia patients in a Brazilian city | Maria Roberti | Received |
118-T-P | Factor VII deficiency and anticoagulant treatment: a case series | GABRIELE QUINTAVALLE | Received |
119-M-P | Adherence in adolescents with haemophilia: concurrently feeling safe and doing what you prefer. | Anne Hoefnagels | Received |
121-W-P | First National USA Type 3 Von Willebrand Disease (VWD) Conference | Jeanette Cesta | Received |
121-M-P | Mapping the provision of psychological care for haemophilia patients in the United Kingdom and Ireland | Nicola Dunn | Received |
122-W-P | Preparing for a child with a bleeding disorder to start school: a combined team approach | Allison Reid | Received |
124-W-P | Parents Empowering Parents (PEP): Its a Small World After All | Mina Nguyen-Driver | Received |
124-T-MP | The World Federation of Hemophilia Annual Global Survey: low dose prophylaxis | Christine Herr | Received |
125-T-P | Single centre experience comparing Factor VIII half-life to von Willebrand factor levels and blood group in a cohort of severe Haemophilia A patients. | Jenna Stanley | Received |
126-M-P | Impact of the Clinical Social Workers Intervention in the Attendance at a Hemophilia Treatment Center | Laura Villarreal Martinez | Received |
128-W-P | Giving men with VWD a voice | Corinne Koenig | Received |
128-T-P | Steps to Healthier Habits | Fionnuala Sayers | Received |
129-W-P | Ageing with a bleeding disorder | Tracy Hyalnd | Received |
129-T-P | Barriers and enablers to self-care (or self-management) for adults with inherited bleeding disorders | Chiara Hendry | Received |
130-W-P | Inhibitor support | Tracy Hyland | Received |
130-T-P | Active Participation of Hemophiliacs in Sports, Action Research | Haluk Zulfikar | Received |
131-W-P | Local Heamophilia groups around the United Kingdom | Tracy Hyland | Received |
131-M-P | Adherence: different approaches for different patients. An experience in Cordoba, Argentina. | maria simonella | Received |
132-W-P | A new way to learn about hemophilia: an educational APP for children | Io Daiela Castillo Martínez | Received |
132-T-P | The Effects of Swimming on The Social Adaptation of Hemophiliacs; A Qualified Research | Haluk Zulfikar | Received |
132-M-P | Improving care and treatment options for women and girls with bleeding disorders | Nabila Husseni | Received |
133-T-P | Tokyo Medical University Hospital-sponsored hemophilia summer camp: achievements over 34 years | Ryui Miyashita | Received |
133-M-P | Turkeys Model for the Formation of the Hemophilic Arthropathy Council | Fikret Bezgal | Received |
134-T-P | Empowerment through transition - a qualitative exploration of young peoples experiences | Gráinne O Brien | Received |
134-M-P | Turkeys Model for Easy Access to Hemophilia Care | Yusuf Buyukp&305;narbasili | Received |
135-M-P | Perception Analysis of GenerationY Hemophiliacs and Their Relatives | Bulent Zulfikar | Received |
135-T-P | Living your Life in a Bubble | Scott Moore | Received |
135-W-P | Relationship between treatment strategy and impairment in severe hemophilia | Aji Nair | Received |
136-M-MP | Culturally Responsive Practices: Interacting with indigenous communities through Piritoto | Te Whainoa Te Wiata | Received |
136-T-P | Life with Rare Bleeding Disorder | Nabila Husseni | Received |
137-M-P | Patient assessment by use of the International Classification of Functioning (ICF) in Indonesian patients with Hemophilia | Eveline Pauline Mauser-Bunschoten | Received |
139-T-P | 4th 2017 mdq hemophilia federal camp, we gather patients with their families from all over the country | Roberto Oscar Paéz | Received |
139-W-P | Nurses educational needs in bleeding disorders: results from an international, mixed-methods study | Christine Candora-Hickey | Received |
139-M-P | Development of diagnostic algorithm for von Willebrand disease within WFH the Twinning Tallinn-Helsinki program | Marika Pikta | Received |
140-T-P | Hemophilia and Masculinity | Neale Smith | Received |
140-M-P | Hemophilia in Brazilian Courts | THAIS MAIA RIBACIONKA | Received |
141-M-P | NHFs State-Based Advocacy Coalition Program | Nathan Schaefer | Received |
141-T-P | Living Conditions of Patients Attending a Social Service | Maria Marcela Musi | Received |
141-W-P | Lets Talk Period: Nursing Outreach in Grade 9 Females, a Pilot Project | Lisa Thibeault | Received |
142-T-P | In the Drivers Seat: A patient education resource to guide individualized decision-making about physical activities. | Elia Fong | Received |
143-W-P | Value of the Haemophilia Specialist Nurse | Cathy Harrison | Received |
144-W-P | Development of a nurse-led pharmacokinetic sampling clinic for patients with Factor VIII deficiency. | Niamh Larkin | Received |
144-T-P | Safety and efficacy of fascial therapy in the treatment of hemophilic arthropathy of elbow. A pilot study. | Rubén Cuesta-Barriuso | Received |
144-M-P | My Factor is my human right: Recombinant factors availability equal normal life for hemophiliacs | Bahaa Shaheen | Received |
145-W-P | Challenges in the treatment of Syrian refugees A view from German Hemophilia Nurses | Manuela Siebert | Received |
145-T-P | Usefulness of a simple self-administered condition assessment sheet for knee and ankle joints in the management of children with hemophilia. | Yusuke Inagaki | Received |
145-M-P | HEMOPHILIA A DETECTION BASED ON PEDGREE ANALYSIS | Nguyen Thi Mai | Received |
146-T-P | Validity of a Depth Camera for Elbow Range of Motion Measurement in Haemophilic Patients: the First Step for a Telemedicine Approach | Felipe Querol | Received |
146-W-P | The mothers thought and measures for the hemophilic carriers to notify their daughters in Japan. | Tomie Fujii | Received |
146-M-P | Building capacity to advocate for comprehensive care centres in Canada | David Page | Received |
147-T-P | Interaction of dual task in haemophiliac and non-haemophiliac subjects in postural control during quiet stance | Carlos Cruz | Received |
147-W-P | Protection for children with Hemophilia in daily life | Karen Menninga | Received |
148-W-P | A School Nursing targeted intervention to provide a greater understanding and holistic support for children with bleeding disorders within an isolated island community. | Jan Howard | Received |
148-T-P | Weekend Group Rehabilitation Course Increasing Range of Motion in Patients with Hemophilic Arthropathy of the Knee | Tsung-Ying Li | Received |
148-M-MP | The family attention program. Evolution and settlement after 40 years | Patricia Cabré | Received |
149-T-P | Osteoporosis and sarcopenia in haemophilics who underwent orthopedic major surgery: an observational study | Rossella Tosini | Received |
149-M-P | Psychological burden of hemophilia on familys functioning: which place for siblings? | ROSSO Natacha | Received |
150-M-P | How to prepare for a good school start for children with bleeding disorders? | Camilla Hertil Lindelw | Received |
150-T-P | Gait Testing and Training using the C-Mill Motek Treadmill in Hemophilia Patients: A Pilot Study | Rachel Tiktinsky | Received |
151-W-P | Does culture or country affect the care of person with a bleeding disorder? A qualitative review of persons utilizing a treatment suite at a global bleeding disorders conference | Penelope Kumpf | Received |
152-W-MP | 74 of haemophilia patients experience pain: A global snap-shot | Greta Mulders | Received |
153-W-MP | The pain of hemophilia in childhood | Silvia Grases | Received |
154-W-P | Short term benefits of steroid injection in the ankle, for severe haemophilic arthropathy | Stephanie Taylor | Received |
155-M-MP | The UK Haemophilia Parental Support Study A single site pilot study using the Parental Needs Scale for Rare Diseases (PNS-RD) to assess whether families with children with bleeding disorders are being adequately supported | Lemuel Pelentsov | Received |
155-T-P | Is eccentric overload exercise with a flywheel machine tolerated by patients with severe haemophilia? | Felipe Querol | Received |
155-W-P | Differences of subjective and semi-objective pain assessments in patients with haemophilia | Steffen Krger | Received |
156-W-P | Conditioned Pain Modulation (CPM) in patients with haemophilia | Steffen Krger | Received |
156-T-P | Fear of Movement and Joint Health Status in Haemophilia Patients: A Multicentre Study | Sofía Pérez-Alenda | Received |
157-M-P | GLOBAL ALLIANCE FOR PROGRESS (GAP) PROGRAM IN VIETNAM: PRIMARY RESULTS | Nguyen Thi Mai | Received |
157-T-P | Joint mobility program of patients with severe bleeding disorders in Hungary | Maria Kardos | Received |
157-W-P | The perception of pain in children with haemophilia, and its impact on their lives: a case-control study | Samantha Pasca | Received |
158-M-P | One solidarity crowdfunding initiative linked to our twinning program with the Haemophilia Cuba Society | Eduardo Garzon | Received |
158-W-P | Non-pharmacologic Hemophilia Pain Management Options: A Review of the Literature & Call to Action for Further Research | Angela Lambing | Received |
158-T-P | Evaluation of the Musculoskeletal Status of Persons with Hemophilia in Chiang Mai University Hospital, Thailand: A Pilot Study | Rungrote Natesirinilkul | Received |
159-W-MP | Assessment of depressive disorders among people with hemophilia A inhibitors | Randall Curtis | Received |
159-M-P | MHEMO : The healths French network of rare diseases for inherited bleeding disorders | Stéphanie RINGENBACH | Received |
160-W-P | Group therapy for parents of young children improves coping with hemophilia | Helena Landa | Received |
160-T-P | The Functional Gait Analysis in Persons with Haemophilia: Quantitative Data from a Newly designed Triaxial Accelerometer | Emilio Valter Passeri | Received |
161-M-P | 40 years of Catalan Association of Haemophilia explained by its main characters | Otilia Ragull | Received |
161-W-P | Psychological support to families and its effect on the family structure of patients with hemophilia | Silvina Graña | Received |
162-W-P | Go Dutch with Ethics; using a Moral Deliberation Forum to structure and discuss an ethical dilemma | Greta Mulders | Received |
163-T-P | A Physiotherapist a small price to pay | Trupti Bhandari | Received |
163-W-P | A psychological wellbeing needs assessment for haemophilia patients at Newcastle Haemophilia Centre | Frances Wilkins | Received |
164-M-MP | The impact of hemophilia on the social status and quality of life among Lebanese persons with hemophilia | Claudia Djambas Khayat | Received |
164-W-P | HEALTH CARE PROFESSIONALS AT HAEMOPHILIA CENTER AND SHELTER INSTITUTION WORKING TOGETHER:CASE STUDY OF A NINE-YEAR-OLD BOY WITH SEVERE HAEMOPHILIA A | FREDERICA R.M.Y CASSIS | Received |
165-M-P | Health-related quality of life and health status in persons with hemophilia A (PwHA) without inhibitors: prospective, non-interventional study (NIS) from a real-world setting | Daniella Babu | Received |
165-T-P | PHYSIOTHERAPY AFTER RADIOSYNOVECTOMY | kaouther zahra | Received |
165-W-P | The Effects of Counseling using NLP(Neuro-Linguistic-program) on reducing irrational belief and interpersonal anxiety of hemophilia patients - Comparative Study of Individual Counseling and Group Counseling - | WON SOOK BAK | Received |
166-T-P | PHYSIOTHERAPY AND MAJOR HANDICAP IN HEMOPHILIA | kaouther zahra | Received |
167-T-P | Physiotherapy assessment following emergency department visits by patients with hemophilia: a Canadian, single-centre experience | Steven Anthony | Received |
168-M-P | Effect of Monitoring Daily Physical Activity on Quality of Life in Adult Patients with Haemophilic Arthropathy | Sofía Pérez-Alenda | Received |
168-T-P | Orthoses in pediatric hemophilia patients: examining patterns of use in a large Canadian pediatric center | Lawren De Marchi | Received |
169-T-MP | Establishment of Plasma Fractionation Centre to Produce Plasma-derived Factor VIII Concentrate by the National Blood Centre, The Thai Red Cross Society: Achieving Self-reliance | Ampaiwan Chuansumrit | Received |
169-M-P | Understanding Gender-Specific Disease Burden of US Females with hemophilia A or B: insights from the results of the CHOICE Project into gynecological, obstetric, and quality of life issues | Wendy Owens | Received |
170-W-P | Establishment of a Comprehensive Hemophilia Clinic, Chiang Mai University Hospital: 5-year Experience | Rungrote Natesirinilkul | Received |
170-T-MP | The factor concentrate redistribution program: a 10 year review | Sarah Crymble | Received |
171-W-P | Collaborative model of home delivery program in haemophilia through an association of patients | Juan Eduardo Megías-Vericat | Received |
171-M-P | Health-related outcomes and caregiver burden in pediatric persons with hemophilia A (PwHA) with inhibitors: prospective, non-interventional study (NIS) in a real-world setting | Amy Lindsay | Received |
171-T-P | Emergency drugs, health geography interest to study spatial accessibility: application for clotting factor concentrates | Vincent LEROY | Received |
172-W-P | Patient experiences of recording treatments and bleeds at home: barriers and facilitators | Frances Wilkins | Received |
172-T-P | Audit of the Laboratory Management of Coagulation Factor Concentrates in a National Paediatric Centre for Haemophilia | martina williams | Received |
172-M-P | The PROBE Data Dashboard A new tool for real-time data visualization and analysis of patient reported outcomes | Alexandra Pastarnak | Received |
173-M-P | Pharmacokinetic education combined with a personalised treatment discussion increases patient activation in severe haemophilia A | Sandra van Os | Received |
173-W-P | Arterio-Venous Fistula in adults with severe bleeding disorders - a single centre experience | Debra Pollard | Received |
174-W-P | Adult and paediatric experience using a vein light device in a clinical setting | Anica Phillott | Received |
174-T-P | Accessibility to drugs in the context of a rare bleeding disorder: analysis of a cohort of haemophiliac in a French region | Vincent LEROY | Received |
175-T-P | Successful treatment for dental problem using expired recombinant Factor IX in India improving access in a challenging environment | Ana Gabriela Chalkling Bardelli | Received |
175-W-P | Nurse-led service development to create guidelines on childrens transition from central line to peripheral venous access | Sarah Pool | Received |
175-M-P | Influence of health care professionals on the embodiment of persons with hemophilia: a bioethical perspective | Tiago Marques | Received |
176-W-P | Achievement of home treatment after been trained by the nursery team from a multidisciplinary haemophilia centre | Laura Villarreal Martinez | Received |
176-M-P | Quality of Life in Adults with Hemophilia in a Colombian Population | Claudia Sossa | Received |
177-W-P | A pilot program to improve sexual health communication for healthcare professionals treating people with hemophilia (PWH) | Caroline Cook | Received |
177-T-P | The Female Factors: womens resources as education tools | Suzanne OCallaghan | Received |
177-M-P | Severe Hemophilia A. Two brothers lifetime experience | Manuel Fernández Alcaraz | Received |
178-W-MP | Patients priorities for enhancing access to person-centered hemophilia care and support via electronic means | Deborah Gue | Received |
179-W-P | Improvement in Reporting of Bleeds and Infusions via a Mobile Application | Chiew Ying Lim | Received |
179-M-P | HERO in Canada: The impact of the Canadian HERO Advisory Board | Caroline Cook | Received |
180-M-P | Feasibility Study on the Psychometric Analysis and Qualitative Assessment of EQ-5D and Haemo-QoL-A | Aji Nair | Received |
180-T-P | Women with All Bleeding Disorder Require Education | Janet Brewer | Received |
181-M-P | Health-related quality of life in children with hemophilia assessed by J-KIDSCREEN-52 | Yasuko Furuichi | Received |
181-T-P | Understanding and finding symptomatic undiagnosed women | Kate Nammacher | Received |
181-W-P | Sports Participation in Adult Haemophilia Patients: an age-related comparison between intermediate and high dose prophylaxis | Olav Versloot | Received |
182-T-P | Womens Booth at WFH 2016 World Congress | Brittany Zellner | Received |
182-M-P | Daily activity and health related QOL (HRQoL) among hemophiliacs with HIV in Japan | Toshiya Kuchii | Received |
183-T-P | HFNZ Womens Experiences of Menstruation | Phil Constable | Received |
183-M-P | Review of the Canadian Hemophilia Outcomes-Life Assessment Tool (CHO-KLAT): current status and future directions | Koyo Usuba | Received |
183-W-P | Quadriceps hematoma in mild hemophilia after sport injury: case series in two subjects | Hadeel mohammad | Received |
184-M-P | Classification of Hemophillia Patients Based on Sasang Constitutional Medicine for Effective Treatment and Patients Life quality | Mi Kyung Lee | Received |
184-T-P | Gender equality in Bleeding disorders Communities | Nabila Husseni | Received |
185-T-P | Outreach, education, counseling and support results and outcomes towards hemophilia carriers or women in hemophilia extraction in Japan | Akiko Kakinuma | Received |
185-W-P | Physical activity and sports participation in patients with severe hemophilia A: a new approach to management | hadeel mohammad | Received |
185-M-P | The hemophiliac citizen-patient in Brazil and their relationship of dependence with the Brazilian Government | LUCIANA MUNHOZ | Received |
186-W-P | A new activity for our community: Water aerobics | Ana Fernández | Received |
187-T-P | Pakistan Hemophilia Movement Driven by Youth | Faizan Baig | Received |
188-T-P | Discovering support needs for teenagers with a bleeding disorder | Alex Whitteker | Received |
189-T-P | Each One, Teach One: Members of the AFFIRM and NYLI Leadership Programs Provide Health and STEM Career Orientation Training for the BLeaders Advocacy and Leadership Program | Mosi Williams, PsyD | Received |
190-T-P | From the Roots to the Treetops: HFNZ Advanced Youth Leadership Training | Karl Archibald | Received |
213-W-P | Topical application of tranexamic acid after dental extractions does not induce systemic plasma levels | Vinicius Toregrossa | Received |
233-W-P | Addressing teachers fears of haemophilia - 10 years of a successful model | Janine Furmedge | Received |
20-24 May 2018 Glasgow
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