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WFH 2014 World Congress

 

11-15 May 2014 Melbourne
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Discussion forum - WFH 2014 World Congress
    Topic - Quality of Life

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 Thread / Poster  Author  Replies  Last reply
My experience as an Accompanying Parent  Soledad Rivero Haedo 1      4/23/2014 10:28:00 PM  
Psychosocial functioning and health related quality of life of boys with hemophilia 8-12 years  Perrine Limperg 1      4/23/2014 5:21:00 PM  
Employment and workplace issues in haemophilia in Northern India- a review of 95 case studies  Naresh Gupta 1      4/23/2014 4:59:00 PM  
Surviving and Thriving: Living with von Willebrands Disease and Platelet Aggregation Dysfunction  Julie Heinrich 1      4/23/2014 4:07:00 PM  
The Trajectory of Health-Related Quality of Life in Youth and Men with Hemophilia A  Jean St-Louis 1      4/23/2014 3:55:00 PM  
The Good Life: Quality of Life among Danish PWBD  Karen Holm 1      4/22/2014 3:45:00 PM  
Predictors of Quality of Life among Adolescent and Young Adults with a Bleeding Disorder  John McLaughlin 1      4/22/2014 3:15:00 AM  
Love, Sexuality and Communication in Hemophilia: A Psychosocial and Patient Perspective Book Developed for Adolescents, Adults, and Carriers  Frederica cassis 1      4/22/2014 1:24:00 AM  
Nutritional assessment and adherence to treatment of Hemophilia A and B patients in Integral IPS Medellin Colombia  Gloria Marcela Echeverri Hincapie 1      4/22/2014 12:12:00 AM  
Development of a First Hemophilia-Specific Burden Scale for Caregivers of Children with Hemophilia in the US the HEMOphilia associated Caregiver Burden Scale (HEMOCABTM)  Sylvia von Mackensen 1      4/21/2014 4:08:00 PM  
Factors Influencing Quality of Life in Chinese Adults with Haemophilia: Results from the HERO Study  Jing Sun 1      4/21/2014 3:58:00 PM  
Preference-based Measures of Health-related Quality of Life for Adults with Severe Hemophilia: Implications for the Cost-effectiveness of Prophylaxis  Yamini Ashokkumar 1      4/21/2014 8:46:00 AM  
Knowledge and attitudes of pain management in US hemophilia providers  Michelle Witkop 1      4/21/2014 1:26:00 AM  
 Tami Wisniewski 1      4/16/2014 8:00:00 PM  
Pain Management: Do We Offer Appropriate Care for Men With Pain Due to Hemophilic Arthropathy?  Michelle Sims 1      4/16/2014 6:15:00 PM  
Use of home videos to communicate significant changes  Cheryl DAmbrosio 1      3/16/2014 2:25:00 PM  
A Study of Art and Breathing Activities for Children with Hemophilia  Ekawat Suwantaroj 1      2/18/2014 5:18:00 PM  
       




Most viewed poster for this congress
Poster: 1
Visits: 2526
Title: A WEB SITE TO IMPROVE MANAGEMENT OF PATIENTS WITH INHERITED BLEEDING DISORDERS IN THE EMERGENCY DEPARTMENT: RESULTS AT 2 YEARS
Authors: Annarita Tagliaferri ,
Centre: Centro di Riferimento Regionale per la cura dellEmofilia

Poster most viewed in this topic
Poster: 5
Visits: 345
Title: Preference-based Measures of Health-related Quality of Life for Adults with Severe Hemophilia: Implications for the Cost-effectiveness of Prophylaxis
Authors: Scott Grosse , Shraddha Chaugule, B.Pharm.Sc, MSEmail: chaugule@usc.eduphone: 1 858 337 6642Joel W HayEmail: jhay@usc.eduPhone: 1 8183385433
Centre: University of Southern California and CDC


 








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